anyone starting chemo in Nov 2005

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  • mrsz0619
    mrsz0619 Member Posts: 39
    edited November 2005
    good morning, november ladies. Good luck today Grace05, report back how your first treatment goes. i am praying you will be fine, like Rhonda.

    i have a question about the port. Were you told to have it put in, or was it a choice? I have not been told by my onc to get one. I have read about them, and seen them in the infusion room, but it has never been suggested to me. What is the criteria for having one? I have already had 12 weekly infusions of herceptin/navelbine, and did fine. maybe i have good veins?? I am just curious, not that i really want a port.

    I have ativan and companzine already. Should I plan to take them the morning of my first chemo, which is Thursday afternoon? Or just bring them with me? I think i recall the onc saying I will have IV anti-nausea before the AC. My mom is going with me. She is 80, and has been to every single appt with me. She never gets bored, and loves talking to all the other people in the infusion rooms. I love her company! Hope everyone has a good day...LynnZ
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  • lana17775
    lana17775 Member Posts: 37
    edited November 2005
    Mornin' Lynn-
    I have not been told anything about getting a port either; one of the oncologists I saw for a 2nd opinion said he would not use a port on me, because I have 'good veins'....
    Take care!
    A day at a time,
    Lana
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  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited November 2005
    Grace, wishing you a very good day. We're with you all the way.

    Lynn, I was told to bring all my prescriptions with me. They gave me my Emend 1 hour before (I saw the onc before going into the chemo suite). They hooked up the port and then gave me an IV of anti-nasea and anti-anxiety medication first. If you are anxious, tell them--they can really help. She then started the "A" and went over all my meds with me and general advice about what to look for, who to call, etc. She also gave me popsicles to suck on. (You might want to check that they have them at your center, or do they have a refrigerator and you bring your own.) We then went to the "C" and I dozed through most of that. I took one Compazine about 4 hours after chemo and the Lorazepam before I went to bed and that seemed to work. Will you be taking Emend--it is great. You are so lucky to have your mom with you--I miss mine soooo much, especially when you feel vulnerable. No one comforts you like your mom. Re the port, my onc said it was the way to go (for me) and it is a real love/hate relationship. You might ask. Does anyone know if different chemo drugs effect the veins differently? Lynn, I'm still learning so much. Why herceptin before A/C, that one is new to me.

    For those new to the whole chemo thing, something that really helped me was to visit the chemo suite a week before my first treatment. I wanted to see what the set up was, check out popsicles, water, etc. I met the nurses and had a much better understanding of what to expect. In the days before my first treatment, it really helped me because I could visualize myself there and it wasn't so scary. When I arrived for my first treatment, I saw familiar faces and a familiar room.

    Hugs to you brave warriors.

    Nancy
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  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited November 2005
    Grace, a "chemo class", now that's a good idea. Tell me more about that. Sounds like that would really benefit women going through chemo and the people who support them. Reminds me of our pre-natal visit to the labor/delivery rooms. Anything to take the mystery out of it, right.
    By now, you're probably finished and on your way to lunch.

    Nancy
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  • mrsz0619
    mrsz0619 Member Posts: 39
    edited November 2005
    Hi there, I havent been told about Emend, but have read about it here in the boards. Is it something to take at home? My doctor said Zofran, if the nausea is bad. What is the thing about popsicles? I know my infusion area has small refridgerators, but not sure if they have freezers. I havent noticed anyone else sucking on popsicles either.

    nancyk, the reason i had the herceptin already, is because i qualified for a clinical trial. herceptin has been FDA approved for after surgery use, but not yet for before surgery. I am er/pr neg, and her2 positive. I did a loading dose of herceptin, followed by 12 weekly treatments with navelbine. my tumor and lymphnodes shrunk to nothing. the doctors were thrilled with the results. i had my quadrantectomy surgery 2 weeks ago, and start the A/C this week, to kill off any remaining stray cells. Herceptin and Adriamycin cannot be used at the same time, so after i complete the A/C then Taxol, i will go back to herceptin, to complete 39 more treatments, totaling 52. (a years worth)
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  • Msklapkin
    Msklapkin Member Posts: 208
    edited November 2005
    I take Emend 1 hour before treatment(and day 2 & 3), then they give me anti nausea IV before Adri.
    the next day I start Decadron.
    the compazine I take only when I get that bit of nausea or taste in the back of my throat and all goes away! Take whatever you need to feel OK- no need to be a martyr is my attitude.

    With regards to a port- each Dr. has different opinions. My Dr. does not believe in using unless you have really bad veins or need because your veins cannot take chemo. We took a wait and see-why have 1 more spot susceptible to infection when your counts are low?

    I have only had 1 AC treatment and it was not too bad- only a few hours of real exhaustion, minimal nausea (fixed by compazine)
    By day 11 I was feeling great! Back to my normal energy level.

    I find during days 1-10 I really needed to pace my eating- lots of small meals or snacks. Lunch was only 1/2 sandwich instead of a whole one and then maybe a yogurt a few hours later- that seemed much easier on my stomach. Anyone else really gassy?

    I am on Xanax for the anxiety anyway and take before I go.

    Going for 2nd treatment on Thursday- hope my WBC is back up since it was very low on day 8 and need to go on prophylactic antibiotics.

    Got a wig yesterday- now I am ready for the hair to go!
    Prayers to all of you going thru this journey
    susan
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  • mrsweb96
    mrsweb96 Member Posts: 1
    edited November 2005
    I take Emend also 1 hour before treatment(and day 2 & 3). My onco also gave me Zofran to take at home when nausea sets in, but I have found that Zofran is constipating. I hate this feeling. My first treatment was last Friday and they gave me anti nausea meds before Epirubicin. I need to ask my onc about compazine. I have read alot about it and it sounds to be better than Zofran.

    My genral surgeon and my onc both suggested a port because I have small veins that roll. I was unable to use my port at my first visit though because the saline was coming back up out of the needle onto my skin and they didn't want to take the chance of using the chemicals administering the chemicals because they said the epirubicin and the cytoxan can burn skin tissue. My ocn didn't want me to miss my first treatment becuase of the port so they did it intraveniously. They called the surgeon that inserted the port and he assured them that it worked. My onc says that maybe it just hadn't healed yet. We will see on my next visit. I am praying to God that it was just not healed and they wil be bale to use it this time. It would be a whole lot easier on me.

    I have only had 1 EC treatment and I had 3 days of real exhaustion, and queasiness the first night into the next morning, but no vomiting. Day 4 and I am feeling a bit better. Not my normal energy level though. I am a first grade school teacher and I am going to try and go back to work tomorrow. I made a deal with myself today to see how long I could stay awake without taking a nap.

    Going for 2nd treatment the day after Thanksgiving.
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  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited November 2005
    Bosom Buddies - Isn't it great that they have so many different drugs to help us through the nausea, etc. If one doesn't work, they can try something else, we just need to let them know right away. No extra points for being a martyr and miserable--this is tough enough under the best of circumstances. Some sound like they are used the same; i.e. Emend 1 hour before treatment, then on days 1 and 2 following; others seem to differ in dosage.

    Lynn, since some chemo drugs--the red one--affects mucous membranes (like the mouth) the popsicles reduces the blood flow temporarily in the mouth--plus it just tastes good. I'll also do Herceptin after my Taxol and then Arimidex.

    La'Tasha and Susan, welcome. Susan, how do you react to the Dex? I was so hyper for the 3 days and then very jittery for another 3 days. Grazing for several days and am very gassy. Not sure what that's about.
    La'Tasha, here's hoping the port works great next time. Nice that you'll be enjoying Thanksgiving dinner before your treatment. I'll be doing the same, but next is on Dec 23, so may miss Christmas dinner, we'll see. I have a vision of you encouraging your first graders to lay their heads down after lunch while you read them a story and then having them wake you up. Do what you can and let the rest go.

    By the way, I was sleepless last night (in San Diego) and was looking at our group. What an incredible collection of women. So far, November boasts 17 people from all over the United States (Tenessee-2, Mass, RI, PA, Colorado, Illinois, Kansas, Virginia, Alabama, and California-5. We have a number who love shopping (retail therapy works for me too), music, knitting, crafts, scrapbooking, gardening and interior design. We come in all ages, some have very young children and others are blessed with grandchildren or greatgrandchildren. Some work outside the home in teaching, nursing or health care, and banking. All this diversity and yet here we are as a group supporting each other in this battle. Thank God you're there. PS I hope no one is offended by my idle curiosity--I assume you didn't put anything on your profile you didn't want shared among friends.

    Happy Tuesday and Hugs to all.

    Nancy
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2005

    I just want to say that today I feel HUMAN!!!! YAY! I expect my hair to fall out on Thanksgiving. What a treat, right? Gotta go, Daniel is a grumpy little boy today-Hang in there everyone!! Debbie

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  • lana17775
    lana17775 Member Posts: 37
    edited November 2005
    Nancy - Loved your recap of our group (sorry to hear about the not sleeping thing!) -- inspired me to actually put a profile out there!
    I'm happy to be hearing from all of you that have started your treatments; its giving me a great window into what I may expect -- I still have two weeks to go -- 11/28 will be my first treatment. Just want to get things rolling and on with life!
    Take care all!
    A day at a time,
    Lana
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  • kim825
    kim825 Member Posts: 284
    edited November 2005
    Debbie,glad you are feeling great today. I keep telling my husband that my hair will fall out on Thanksgiving too!! My second treatment of Taxatere is Tuesday. They told me my hair would fall out after the first treatment and it hasn't. I am trying to get prepared for this, I've ordered some hats, not no luck w/ the wig.
    hugs to all my November buddies,
    Kim
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  • stacey2930
    stacey2930 Member Posts: 210
    edited November 2005

    Hi Ladies! I will be soon starting chemo.. not sure of the date. I am 42 diagnosed on 10/19 surgery on 10/25 IDC 1.5 CM negative nodes; ER/PR pos grade 1 stage 1 Whew! My world has been rocking since the diagosis. I get so depressed and scared. Night are very difficult for me for some reason. I know I need to start an antidepressant soon before I blow a gasket! Anyway I am scared of chemo! I keep thinking about what Melissa Ethridge said about it which really was upsetting but I figured she was able to sing in front of millions of people bald so I guess it is doable after all. Hugs to you all! Stacey

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  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited November 2005
    Bosom Buddies, what a glorious day it is in SD today.
    Welcome Stacey. Scared? Depressed? Blow a gasket? Imagine that. I don't know anyone whose world has been changed forever in subtle and dramatic ways by a bc diagnosis that doesn't feel one or more of those emotions. You're with a group of women who have and are feeling those same feelings, but knowledge is power and we're here to each other get through this. I remember seeing Melissa on 60 minutes with her partner just before I started chemo. I fell apart when her partner described how she "went away" for a week each time she had chemo and her eyes were glazed. I was so scared and so was my fella hearing that. I think now that may have been the marijuana effects more than the chemo effects. Anyone here "go away for a week at a time?" We all feel the effects of chemo and it isn't a walk in the park, but its doable, one moment/day at a time. By the way, I think I am so comfortable going bald because of Melissa and others like her that put it out there.

    Debbie, glad you're feeling good today. Don't shed on the turkey.

    Lana, you are quite the sportswoman. I doubt that bc will keep you off the water and the trails very long. I would imagine that it is beautiful on the trails right now, isn't it. By the way, how is your son responding to all of this.

    So many wonderful surprises today. I had lunch with a fellow bc warrior I met here (Brenda S) and that was a treat. My daughter-in-law arranged for weekly water delivery, and my fella arranged for a birthday treat--Neil Diamond concert on Dec 21 (is that showing my age or what?)I can't wait, I love his new album so much.

    Hugs to all
    Nancy
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  • mrsz0619
    mrsz0619 Member Posts: 39
    edited November 2005
    Hi there, everyone. nancy, you echoed my thoughts on some of the comments, for Stacey. This is a good place for us all to be, supporting each other through this, and gaining knowledge from people going through it right now, and not just in documented books. Although, the books are helpful too, i have a million of them, all scattered around my bedroom!!

    Rhonda where are you?? I sure hope you are doing alright after your first treatment yesterday. Let us know, how you feel today...I know you have company, and hopefully are just busy entertaining.

    I havent seen any interviews with Melissa Etheridge, but have read some very negative comments about her, in these boards recently. I personally love her music, and her courage going on stage bald.

    Did anyone see the episode of Grey's Anatomy Sunday night?? It was about a woman who tested positive for the BRCA gene, and wanted a prophylactic bi-lateral mastectomy and hysterectomy. I found the dialogue well done, and the emotions of the woman and her husband were wonderful. He was against her being so extreme, since he wanted children, and she didnt have cancer yet. wow, i cried through the whole thing. Then last night on Related, a WB network show about 4 sisters, they were having Thanksgiving and all having memories of their mother, who died of cancer. oh my another tear jerker! I have 2 teenagae daughters, and it hit home. I am so emotional now, about everything, and it seems everywhere i turn there is something about breast cancer. I suppose October being BC awareness month was the reason it is suddenly in my face. Anyways, have a wonderful evening everyone.....LynnZ
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  • Msklapkin
    Msklapkin Member Posts: 208
    edited November 2005
    HI Nancy,
    My reaction to Decadron was similar- a bit jumpy- always felt tight- jawed. Was really depressed day after I stopped.
    BTW- Add connecticut to the list and I am a dog lover!
    susan
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  • Graycie
    Graycie Member Posts: 839
    edited November 2005

    Susan, How is the Xanax working for you? I was given that too because I get so jittery on days 5 and 6 after treatment. By the time I got the prescription I didn't need it except I took one before bed one night to help me relax....Sleeping is another problem with me.......Everyone is telling me to be careful of the Xanax because it can be habit forming so I am a little afraid of taking it unless I really need it. Oh by the way, I am really gassy too and constipated. I am trying to up the water intake but it is really hard. Nothing tastes good these days...Grayce

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  • LizM
    LizM Member Posts: 963
    edited November 2005
    Hi I'm Liz,
    I will possibly start chemo the end of Nov. I see my oncologist on Monday to get started. I'm 49 and I was diagnosed in September, had bi-lateral mastectomy with tissue expanders (which I'm very happy with) end of Oct. Path report showed IDC in left breast, 2.1 cm, Estrog/Prog strongly +, her2 neg, 1 lymph node (sentinel) involved with 8 nodes taken out. I'm being treated at Hopkins and am very happy with my medical team. I was offered a clinical trial with 3 different chemo regimens but think I will stick with what will be recommended, dose dense AC X 4 and taxol X 4. I also opted for rads after chemo even though it may mess up my implants due to the one positive lymph node even though I am in a gray area. Anyway I'm looking forwarded to being a part of this group.
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  • lana17775
    lana17775 Member Posts: 37
    edited November 2005
    Hi all-
    I heard only bits and peices of the Melissa Etheridge interview and I wasn't happy about it either -- didn't encourage me to listen to the whole interview at all! I do admire her courage and talent, but I think she should have prefaced her statements by saying that its different for everyone -- not everyone will have the same experience that she did!
    Nancy - my son is away at school in NY (last year at RIT); I haven't wanted to tell him over the phone or distract him from his tasks at hand (sr project, exams, etc). He will be home on Friday for the Thanksgiving break and that's when I plan to tell him -- over a much looked forward to steak dinner Friday night!
    "Don't shed on the turkey!" Love it!
    Take care all who have started chemo -- you are an inspiration!
    A day at a time (ok...sometimes an hour at a time!)
    Lana
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  • lana17775
    lana17775 Member Posts: 37
    edited November 2005
    Forgot to say welcome Liz and Stacey! Sorry you're having to join this club....but I gotta say you're amongst some wonderful, strong women here!
    Lana
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  • grace05
    grace05 Member Posts: 30
    edited November 2005
    Hi All,
    Finally, I have my Chemo November 15th, on Tuesday. My treatments are 80 miles away so my husband and I had away to go but when I first got into the car I was surprised by a card he had placed in the front seat when I opened it the quote was: A telephone on front of the card that said, rrrring..... " This is God. I will be handling ALL your problems today> I will not need your help. So Have a Good Day." then my husband wrote: God is in control of every situation....even this one. You will do well. I love you. This was a good start!

    My treatment was at 1:00 p.m. but we went at 9:00 a.m. to see the oncololgist first. By that time I had a low fat big breakfast of cream of wheat, a banana, yogurt, then we had lunch fruit, crackers and diet 7up. Later we went for Chemo and there were 7 nurses present and I spotted one that I was hoping would be my nurse because she was upbeat (more like my personality) and had a cute spiky hair cut yet she seems to mature and very perfessional Ha!HA! she did choose me, Yeah!(of course I was praying) I have a port and felt only a tiny sting one time. She administered Adivan first, nausea meds, Adriamycian, Taxotere and cyaxtan. She took my blood pressure during the Taxotere and it was fine the Oncologist told me my heart was exceptional. Finished and my husband and I ate our favorite place restaruant, I took my Zofran then, and then compazine and hour later and have not had any side effects. I have been up all day today except for one hour of sleep. I feel a little fuzzy but it is doable. My sister brought dinner over for my husband and I rotessiere chicken, rolls, slaw, potato salad, and baked beans (yes we are from Texas). I ate chicken, rolls, and slaw has not been nauseated, however; they did give me a backup supposatory that I absolutely could not tolerate so she took me off and said to coninue the zofran.

    I hope this helps someone,
    Thanks for this thread beause it surely has calmed my fears.

    Blessings!
    Grace05
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  • mrsz0619
    mrsz0619 Member Posts: 39
    edited November 2005
    Grace05, Thank you so much, for that documented day of chemo you had yesterday and then today's stuff. It did help me, to see what to possibly expect for my day. I have my first AC treatment tomorrow. I am a little nervous. Not too bad. I just came home from my breast cancer support group, so that was a big help in calming my nerves too. My group facillitator will be there with me tomorrow, along with my mom. I have my meds to bring with me, ativan and compazine. I was wondering about breakfast and or lunch, and the group told me to definately eat, but eat light. I have to be there early for the RVG heart scan, then oncologist, then chemo. so my day will be long, probably like yours was. I only have to go about 13 miles, but it is into the city of Boston, and traffic is a nightmare, so it takes a good hour or more in the rushhour traffic. UGH.

    I also want to welcome the new ladies to our group. It seems we are all getting under way with our treatments, and able to report. That is good. I check here often during the day for new stuff......I guess i am addicted to this now!!

    Good night, i will hopefully be up to reporting my 1st treatment, tomorrow night sometime. hugs & prayers, LynnZ
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  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited November 2005
    Hello Bosom Buddies. Grace, you tickle me. Sounds like your day went great, starting with the very special card butI am worried you're not eating. Truly glad it went so well.

    OK, Lynn, its your turn. Hope you are having a good night's sleep, but if not, I'll bet you'll sleep tomorrow night. We'll be thinking about you tomorrow.

    Stacy and Liz, welcome to a great group of women. By the way, for those coloring in all the states represented, you can add Conn (Susan) and Texas (Grace). Lana, I used to recruit at RIT; its a great school.

    By the way, at my support group tonight, a couple of the ladies recommended this website if you're HER-2 positive. I thought it was interesting that of the 8 of us there, 4 os us were HER-2.

    www.her2support.org

    Goodnight and sweet dreams to all of you.

    Nancy
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  • wenblown
    wenblown Member Posts: 25
    edited November 2005
    Hey to all...I start chemo today. I was diag in Sept. Had a lympectomy Oct 4 and radiation in hosp. I will be doing 4 A/C and 4 T every two weeks.

    I am 37 yrs old with four children (girl-14,boys 13,6,4). I am very scared and anxious. I am excited to see all the posts for my situation.

    Hope I can join this post with you all. I have to go now. I have to be at the hospital in an hour for the port placement.

    Good luck and God go with you.
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  • mrsz0619
    mrsz0619 Member Posts: 39
    edited November 2005
    Good morning, Girls. I am up, and almost ready to leave for my first treatment. My daughters leave for school, then my sister picks me up, and we go get mom. UGH. I am a little anxious. Not too bad, though. I think all the stuff in these boards, has helped me prepare for this day.

    Nancy, I have been on the HER2Support.org site. I havent learned to love it yet, but I am sure it is just a matter of getting used it.

    Welcome Wendy. you and I start the same thing today, although, my treatments are over 3 weeks. You will be done faster than me!! You have your hands full with 4 kids, to come home to. Good luck, and let us know how you do. I will hopefully feel up to doing the same. Going for some yogurt and water now!!
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  • barbt
    barbt Member Posts: 6
    edited November 2005
    Hi ladies,
    I was diagnosed 10/19, had my right breast and two lymph nodes removed 11/7. The nodes were negative, but chemo has been recommended as insurance. I see the oncologist in a few days and all of your experiences are really helping me. I just wanted to say thanks for being the smart, funny and unbelievably strong women that you are. I am extremely proud of all of us.
    Barbt
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  • lana17775
    lana17775 Member Posts: 37
    edited November 2005
    Welcome Barbt and Wendy....I think you'll find this thread a great source of information and inspiration!
    Wanted to share this website for any who haven't seen it...I watch this at least once a day to remind me of the attitude I need to have: http://thesurvivormovie.com/
    Chins up!
    A day at a time,
    Lana
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  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited November 2005
    Morning Ladies and welcome to Barb and Wendy. We are growing!!! Wendy, meet Deb who is also from Kansas. We now also have 4 in the financial services industry and 4 current or former teachers. Barb, we are all proud of us too--doing what we need to do to battle our disease, live our lives fully, and support each other on the journey. Speaking of that, Lynn and Wendy, time to "pull on your big-girl panties". We will be here and waiting to hear. Grace, how is today?

    Just saw a Today Show interview with the Broadway star who performed 5 days after surgery--plans to sing and dance through radiation and chemo (if she has to have). OK, if that works for her, I'm all for it. We each have to find what works for us and I would hate to think anyone feels pressured by stories like this. You know "what's wrong with me that I'm not performing on Broadway every night in the midst of chemo?" I am an old workaholic and it wasn't that hard to stop and listen to my body's needs and refocus my energies toward fighting this damn bc--and that's hard work, isn't it. And guess what, the bank just keeps on going with or without me. That said, I am leaving in a few hours for my first business trip since September (just an overnighter) and am teaching my first management class next Monday and Tuesday since September. I'm excited about it because I feel good, but I will NEVER go back to the work schedule I used to have (60 hour work weeks and 80% travel). I used to tell my overworked managers that no one will have on their tombstone "I wish I had spent more time at the office." Thank you BC for forcing me to stop and reprioritize my life. And thank all of you for being part of my new (and improved) life.
    I'll talk to you on the weekend. Meanwhile, you are in my thoughts, you brave warriors.

    Nancy
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  • spirit3kd
    spirit3kd Member Posts: 37
    edited November 2005
    Hi I am new to this discussion....I will be starting chemo on the 29th of this month. I had a portacath put in last Tuesday, I was a nervous wreck, but it went pretty well...now if the chemo treatments goes as well, I will be happy.

    What is A/C? I have been told my treatment will be CAF. I am ER,PR - and Her2 isn't back yet, but I wasn't positive last time. This is a second re-occurrence for me, had breast cancer back in 1999 with a left mastectomy and I chose no chemo....not a smart choice...as it came back with a big roar.

    I am enjoying this discussion, hope I make out as good with chemo as most of you seem to be handling it well.

    Kaye
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  • lana17775
    lana17775 Member Posts: 37
    edited November 2005
    So Nancy - you're 10 days out from your first AC, right? Are you going every 3 weeks or dose dense? The fact that you're doing an overnight business thing is really encouraging -- I'm glad you feel well enough to do that! Have you been working right along? One of your past posts (I think you were 3 days out) sounded like you were having a couple of tough days. I will be doing dose dense and am planning on working the days I don't feel really crummy. I have the advantage of being able to work from home, which should make things easier.
    Take care!
    A day at a time!
    Lana
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  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited November 2005
    Welcome Kaye. A/C is a combination of Adriamycin and Cytoxan and may be followed by Taxol or Taxotere. Another group of drugs is CAF, which I believe is Cytoxan, Adriamycin and 5-Fluorouracil and there are others as well. Its amazing the various combinations they can use depending on individual factors (stage, type, ER/PR, HER2, etc.) So very sorry this is a reoccurrence for you, we'll be here for you.

    Nancy
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