"Highly Probable" mets lungs and bone

Options
2»

Comments

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited September 2010

    welela,

    Thinking of you and wondering how you are doing with mind and body?  You are in my prayers, and sorry I missed your post on 9/15.  I think the ladies in the stage IV forum are proof that stats don't matter. How is your daughter doing?  You are in my prayers, and it is clear you are a strong fighter. And it's o.k. to let the tears come.... and say what you feel.  We are right here supporting you.

    Many Blessings,

    traci

    · Share on FacebookShare on Twitter
  • ibcmets
    ibcmets Member Posts: 4,286
    edited September 2010

    Welela,  Sorry to hear you're stage IV with bone & spinal mets.  I do want to tell you there is hope for us; maybe not a cure yet, but definitely treatable.  I was diagnosed ibc w/ mets 6/09.  Had another scan today after 8 months of chemo & Femara since Feb.  Will post the results.  I've been on zometa for the bones from the start.  It's healed my bone mets in 10 months and the TAC chemo did wonders on my tumor & ibc.  I guess I can post just about on any board; as it seems I have the majority of diagnosis's from the get go.

    Good Luck with your treatment.  The ladies are wonderful and informative on the stage IV board.  I just check here every once in awhile to help those newly diagnosed.

    Terri

    · Share on FacebookShare on Twitter
  • BaseballFan
    BaseballFan Member Posts: 859
    edited September 2010

    Welela,   I've been thinking about you a lot because, I too, have just learned that my bone mets have spread to my right lung.  I have been SOB and have developed a dry cough....not constant, but shows up sometimes when I laugh or talk......and that really stinks because that's what I do best!!!  I'm not sure what the onc will do....but right now I am being treated with Faslodex and hoping the levels turn around soon.  If that doesn't happen soon.......nevermind......don't want to think about it.........

    · Share on FacebookShare on Twitter
  • welela52
    welela52 Member Posts: 38
    edited September 2010

    Hi Ladies -  still waiting to get the show on the road.... going through all kinds of tests to qualify for the trial drugs.... hopefully should start 7 - 10 days.  It's been emotionally and physically tiring. Once in awhile I have a so so day, but luckly I have mostly good days.  Today, however, ain't so hot.  Feeling back pain, weakness in my legs and coughing.  I took my last Dex today and am sure that the pain will increase after today.  It did last week when I had to stop all drugs for 2 days post thorascopy and biopsy.  Without the Dex - man did I feel pain.   Surprising how fast the pain came on.  From a dull back ache one week, to real significant pain the next.... 

    Sorry about the bitching... that's all I feel like I do anymore.

    I hope you're all coping and feel good with your situations.  Hang tough (it's better than the alternative)! 

    · Share on FacebookShare on Twitter
  • welela52
    welela52 Member Posts: 38
    edited September 2010

    I know exactly what you mean..... we have to believe that the treatments will work... and they will.  It takes a lot of faith but I've got that and more, enough for all of us.  If the Falsodex (sp?) doesn't work, they will try something else and so on and so on until they find the right cocktail to put us in remission.  Believe it! 

    · Share on FacebookShare on Twitter
  • prettypink
    prettypink Member Posts: 41
    edited December 2010

    welela

    Ive been here as often as time permits to see how you are doing..hoping your struggle will be over soon and make way for REMISSION :)  Let us know how your doing.

    · Share on FacebookShare on Twitter
  • welela52
    welela52 Member Posts: 38
    edited December 2010

    Hi Pretty Pink: I'm doing okay.  I'm on the trial meds which are a bit more than I anticipated.  I think I'm actually sicker with these trial meds than I was on chemo.  But  I will keep going.  I had a follow up CT scan a few weeks ago.  When compared to the based line CT, several tumors have grown and one has shrunk.  So we will continue with these meds.  I have another CT in January and that will determine whether or not I will continue or go back to conventional chemo.   I go next week to have another port put in my chest.  I am on disability and hoping to get back to work soon.  But with the side effects and lenght of the side effects from the treatments, I don't know if I will be able to.  Emotionally, I could be better.  I find myself weepy quite often.   I don't want to be going through this again, but I have no choice if I want to live.  I recently found out that I'm going to be a grandma (for the 2nd time) and I  want to be around for to watch my grandchildren grow.  I'm stressing alot over little things.  My husband is wonderful and I find myself snapping at him a lot.  I don't like that either. 

     I hope your mom is well. 

    Keep the faith.  

    · Share on FacebookShare on Twitter
  • prettypink
    prettypink Member Posts: 41
    edited August 2013

      Welala,

           I am 100% certain that your whole family understands the incredible strength it must take for you to go through this.  A little snapping only ever reminds me that my mom still has her "fire"...and I would take that gladly, with open arms any day.

    Thanks for the update..:)

    PS.  My mom is doing good...the usual fatigue from stress that comes along with this terrible disease.  xo

    · Share on FacebookShare on Twitter
  • gutsy
    gutsy Member Posts: 391
    edited December 2010

    You have all my respect, you are in a tough journey and have the get go. Congratulations with your second grandchild on the way. He or she is going to have the best grandma to guide them. Hugs for you

    · Share on FacebookShare on Twitter

Categories