what supplements do you take, how much, and why?

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  • dana14
    dana14 Member Posts: 20
    edited November 2010
    Integrative medicine doctor from Anderson/Sloan prescribed me the following:
     
    Green Tea Extract, 400 mg

    Curcumin C3 Complex, 500 mg (with bioperine)

    60 mg CoQ10 with 250 mg Omega-3 Fish Oil

    Vitamin D-3, 2000 iu

    Calcium 1500 mg


  • Kouragio
    Kouragio Member Posts: 55
    edited November 2010

    Hi Girls,

    The mushroom one that has gained popularity in Australia and Japan is Ribraxx, I take it (when I remember!). Jane Plant wrote that only Icelandic Kelp is good (b/c otherwise not very pure from other sources).  Which pro-biotic should I take? Thanks  xox

  • MsBliss
    MsBliss Member Posts: 536
    edited November 2010

    Sunflower:  Why is your doctor recommending that you stop the AHCC?

  • MsBliss
    MsBliss Member Posts: 536
    edited November 2010

    Crunchy, I am so inspired by your nutritional approach.  I thought of you today when I was at Whole Foods and discovered that they have pastured eggs and other choices I was unaware of.  I am seriously rethinking my supplement program since reading about how much the excipients and fillers have an effect on absorption.  But there are some supplements I will always continue to take because I can't get enough of the nutrient in my meals.

  • motherofpatient
    motherofpatient Member Posts: 240
    edited November 2010

    Vitamins in standard doses are fine but be careful becaue they can interact with any meds - they bind to the site the Herceptin is targeting and stop its usefulness.

  • hlth4513
    hlth4513 Member Posts: 267
    edited November 2010

    Bliss-

    I am intrigued by this issue of fillers, etc in supplements, can you possibly direct me to sources where I can read more about this?

    You always seem to be so educated about supplements.

    Beth

  • PiscesMoon
    PiscesMoon Member Posts: 206
    edited December 2010

    motherofpatient - do you have any links to sources regarding supplements interfering with herceptin?  i ran supplementation by my oncologist and he did not tell me to avoid anything with herceptin, only chemo.

    thanks.

    ~M

  • MsBliss
    MsBliss Member Posts: 536
    edited December 2010
    Beth, I was just googling magnesium sterate and some of the other fillers, which are in so many of the supplements I take.  There is concern and controversy about it because it is a common filler in so many supplements and capsules.  I can't refer to a specific article but I remember reading that it is a type of chalk and that it can create a film in the intestines that interferes with absorption of not just supplements, but most nutrients.  I am still investigating what this all means, but I am concerned about it enough to cut back on what I am taking and I will not be ordering any more supplements that have it in them.  It is not necessary to be in supplements--it is only there because of manufacturing processes.  Most vitamins sold in Europe do not have it, or use vegetable sterate, which might be better. 
  • seaotter
    seaotter Member Posts: 1,083
    edited December 2010

    I read where propylene glycol or polysorbate 60 or 80 should not be in supplements. I don't remember why. I just wrote those down so I wouldn't buy supplements that have those in them.. I wish my memory was better!!!!

    Patty

  • seaotter
    seaotter Member Posts: 1,083
    edited August 2013

    I just looked at my supplements. Almost all of them have magnesium stearate in them! What the heck!!! It makes me sick to think I have spent all this money and I'm possibly not absorbing them. Even the ATP cofactors from breastcancerchoices have it in them. Dang, back to square one.

    Patty

  • seaotter
    seaotter Member Posts: 1,083
    edited December 2010
    Me again! I just read this: http://www.raysahelian.com/magnesiumstearate.html This is another controversy. Another "who to believe."
  • MsBliss
    MsBliss Member Posts: 536
    edited December 2010
    Seaotter, yes, I don't know what to take to heart.....I have quite an investment in supplements that I don't want to waste--but I am concerned.  I will use up what I have; I'm not going to give up on it, but from now on, I will purchase with that in mind...
  • hlth4513
    hlth4513 Member Posts: 267
    edited December 2010

    Bliss-

    Thanks - I will have to check the fillers in my supplements.  - My functional med doc was actually wondering if I had a "biofilm" issue(had never heard that term before), because I seem to have some perplexing issues with my gut....maybe this is related.

    Beth

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited December 2010

    MsBliss, I hadn't checked into this thread in a few days so I had missed your kind comment; thank you! Great point about fillers and absortion... not to mention, unless you're buying high-quality supplements and thoroughly check out all the ingredients (even the inactive ones), you never know when GMO or other nasty ingredients might be snuck in.

    I remember reading some articles on how folic acid in supplement form can be harmful even to non-cancer patients. That's when I started making green smoothies... I figured I could still get my folate, but it would be in an all-natural form from fresh organic leafy greens, and you get the benefit of all the other nutrients and micronutrients in it, too! It just makes sense, since God/Mother Nature designed foods to fit our nutritional needs so much better than scientists in a lab, IMO.

  • seaotter
    seaotter Member Posts: 1,083
    edited December 2010

    MsBliss - If you don't mind let me know what you find. I buy most of my supplements at vitacost. Yesterday I was looking for supplements without the mag stearate. I did find a brand Mega Foods that do not have it in them but wasn't too thrilled about the dose. I think this is going to be costly and time consuming!

    Patty

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited January 2011
  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited January 2011

    ANyone on the list take Evening Primrose Oil? Rosmarinus?  Looking to expand my repertoire of supplements, though currently I take, alternating weekly:

    Week 1 

    Chelated Zinc (GNLD Nutritionals) 30 mg, 1X daily am

    Multi-Vitamin, Whole Foods Daily, 1X am

    Vitamin B sublingual Total Complex, 1 dropper am

    Magnesium Glycinate by Designs for Health 300mg 2X daily am/pm

    Calcium Citrate by Vital Nutrients 150 mg 1X daily am

    Iodine from Kelp, Whole Foods Brand 225 mg, 1X daily am

    CoQ10, 30 mg, 365 brand, 1X pm

    Curcumin 95, 500 mg, Jarrow Formulas 1X pm

     Week 2

    Source of Life Multi-Vitamin Supplements with Concentrated Whole Foods 1X am

    CoQ10 365, pm dose

    Curcumin pm dose

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited January 2011

    bump for newbies

  • toni30
    toni30 Member Posts: 252
    edited February 2011

    What does selenium do? I notice that lots of folks are taking it.

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited February 2011

    bump for newbies

  • annettek
    annettek Member Posts: 1,640
    edited February 2011

    This is my personal experience with Arimidex. I bit the bullet and decided to try it. I was fearful that in myown way I was outsmarting myself by not taking what every medical professional told me I needed. One pill, that's all I took. I decided to try it at night, before I went to sleep. I was calm and actually thinking it would be a good thing. I  took a bath and went to bed. I fell asleep shortly after. Then I woke up. And went back to sleep. This repeated itself through the night interspersed with bouts of explosive diarreah. I woke up (for tenth time) and got ready for work feeling like I was on the worst kind of speed. I skipped my vitamins as I did not want any extra enhancements adding to the mix. One pill, the night before. I got to work and was hyper and of course tired, from the lack of sleep. But felt like, ok, if this is the worst, I will just take the pill very very early in the morning and then I will be able to sleep. Maybe the diarreah was stress or something. That was fine until about 1pm in the afternoon, I was standing outside talking to a friend and my left arm went numb. Like I had just woken up after sleeping on it. I shook it and commented how odd it felt. Then she looked at me and said how glassy my eyes were and I said not much sleep last night. I sat down and then my left leg was tingling. I said this is ridiculous, it must be from me being scared or something, one pill could not do this that quick. So I got up and laughed it off and went back upstairs to the office. By the time i got back my eyes were watering and I felt my head was pounding,my eyes were burning and red.I shook it off, again, saying this is CRAZY, I must be getting sick. My brain was completely spinning. My sister came over and asked me what was wrong as my eyes were so red and glassy and I was holding my arm funny. I said I did not know. I hadnever felt this bad in my life...inclduing when I go the BMX...at least when I woke up from that I anticipated something would hurt. But this was weird. Like nothing before. I called my husband and said I didn't know if I could drive home so to hang in case I needed to call him. I made it home crying the whole way. By the time I got home I was convinced it was not the pill but that I had undergone a small stroke. My neck was was sore and the left side was weirding out. My husband got home and sat withme and got me to take a hot bath. Once I sat back in the tub I got really really MAD! I said I must be nuts honey...because one pill could not do this to a person. He corrected me and said I knew better than that. He reminded me of the two times in his life when he had violent side effects following the first or second dose of two different drugs. He reminded me of the drugs back in high school that people (him and his friends,not goody two shoes me:) took and how one little pill did an awful lot. I started crying harder. I sadi what if it doesn't get better? My arm and leg are numb and I have shooting spur type feelings in my foot. My neck hurts and I my stomach is rumbling loud enough for him to hear it. I turned on the jets in the tub to massage my hold body ...and kept crying. I was too scared to take a tylonel or an ativan because I did not know if it would make &it& worse...he told me to get mad so I would not be scared...(he knows me well) so i did. I went on to say not only would I not ever take a FRIGGIN AI of any kind again but I damn well would quit smoking without adding more drugs to the mix. Somehow I had slowly started to buy intoit all...the big name hospitals and the big name docs telling me I NEEDED THIS STUFF. Now don't get me wrong...i am not a fool and if I had a more agressive cancer I damn well would do what was neccessary. BUT...this is why I had a BMX, this is why I started a regimen to suppress the estrogen naturally based on clinical trials...this is why I changed my diet, this is why I decided to stop smoking...to battle the BC so I could live a good life. So I got good and mad. Mad atmyself for not trusting my gut which has led me right since all of this began. I was mad that there untold women suffering horrific side effects so they can make some magical 5year mark while their life is compromised in so many other ways along the path to get there. NO. My sister called as she was worried about me and said she had never been so scared in her life when she saw me that afternoon. And let me tell you my sister is no alarmist and in fact would be the first one to tell me it was inmy head. She said you know, maybe that is why so manypeople can't believe you have gone through all of this...as you are healing so well and have generally been getting stronger and healthier...maybe if you had taken the AIs right after surgery like they wanted you to you might have been sicker like everyone seemed to expect you to be. And maybe you would not haveknown the difference thinking it was all part of the process of breast cancer. That you were supposed to feel like &hit. And I thought about that and I have to agree. Don'tget me wrong, I have had some rough days since the BMX but not anything like what happened to me yesterday. But if I hadnot had eight weeks of healing before trying this poison how would I know how to feel? I had never had breast cancer andsurgery before...all of the symptoms would have gotten swept up in the general Bc aftermath....Let me say this,  Ivcould never have dreamed it would hit me that hardvthat fast. I stayed home from work today and rested. As the day has gone on most feeling returned with just my upper arm and elbow and knee and heel tingling/feeling weird still. My stomach is racked. A little gross aside...I went to the restroom and after wiping...there was blood. Now I know where I wiped and have neverhad blood from my rear before in 54 years. I start screaming a bit ago for my husband and we looked it up...yep, one of the rare side effects...I missed that one in my reading..I am hoping that I had a hemi I did not know abotu suddenly decide to bleed (dont they do that? soemtimes) from all the diarreah....If it continues until tomorrow I will go to doc. But i am sick of docs rightnow. Pissed at docs right now. So here it is almost 24 hours following one dose  of arimidex. My story, my experience. No wonder so many write of their pains, I will never glossover those plaintive writings again when reading them. I truly believe none of them are exagerrating and they must feel like theya re going nuts to have that stuff start popping off in their bodies. My case might be unique and the effects extreme. I can only liken it to a poison that my body is trying to get rid of. The bitch is the drug can linger in your system for 50-60 hours. I will stick with that and not pay attention to someone who called astrazeneca and was told each dose can actually remain active within for 10-11 days. Nope. In this case I will use mind over matter to get over this mini catastrophe. And be grateful that now I do not have to play the what if game. I don't care what brand or formulation, I will not put it in my body again. It scared me and I hope I don't have lingering anything from it. God bless all of you who can handle it. I cannot. sticking withmy supplements....

  • mollyann
    mollyann Member Posts: 472
    edited February 2011

    Annette,

    I'm so sorry. You must have been so scared.

    Please, please, please file an adverse reaction report with the FDA. http://www.fda.gov/Safety/MedWatch/HowToReport/default.htm

    Doctors almost never report these reactions because it takes time they don't have.

    May you have peace of mind now.

  • annettek
    annettek Member Posts: 1,640
    edited February 2011

    Thanks for reminding me _ i will tomorrow..gonna go to sleep now...thanks:)

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited May 2011

    bump for newbies

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited May 2011

    Does anyone here have experience with MSM? I just got pills, and want to get a cream for some foot pain I've got. I've heard it helps with hair growth and skin health as well.

      

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited September 2011

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