I guess I Don't Belong Here Anymore :(

RealtorJackie
RealtorJackie Member Posts: 91
edited June 2014 in Stage III Breast Cancer

  Just found out the results of my PET scan.  My cancer has spread to my bones.  My bone scan in August was clear.  This is totally unbelievable.  Getting ready to go for a second opinion at University of Pennsylvania.  We agreed not to tell the girls (ages 16 and 19) of this new development until Christmas break.  I got my regular A/C today (2nd dose).  They added Zometa first.  I believe in miracles!

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  • EnglishMajor
    EnglishMajor Member Posts: 2,495
    edited December 2010

    Hi Jackie

    Just wanted to say hang in there. I will send you a PM. 

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  • Maureen813
    Maureen813 Member Posts: 2,893
    edited December 2010

    Hi Jackie, 

     I'm praying for you and your family.  There are some amazing treatments today that can provide a good quality of life for a long time. 

    Love and hugs,

    Maureen

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  • diana50
    diana50 Member Posts: 2,134
    edited December 2010

    sending prayers and good wishes. keep on..keep on. do the chemo...see what happens...one day at a time* just do today* hugs

    diana

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  • KittyDog
    KittyDog Member Posts: 1,079
    edited December 2010

    (((((HUGS)))))  I so sorry.  I am waiting on my bone scan results too.  I am worried sicked because I saw a hot spot and it was on the BC side.  I find out Friday.   Wishing you the best.

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  • Bugs
    Bugs Member Posts: 1,719
    edited December 2010

    Jackie, I'm so sorry. I agree with Sherri..you DO belong here.  {{big hugs}}

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  • karen1956
    karen1956 Member Posts: 6,503
    edited December 2010

    once a stage 3er, always a stage 3er even if you progress....I am sorry that you are having to deal with this...but come and visit us and let us know how you are doing.

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  • Tg5471530
    Tg5471530 Member Posts: 111
    edited December 2010

    Jackie- I will keep you in my prayers.  You are going to U of P.  Where do you live?  Im in Langhorne in Bucks county, just outside of Philly.

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited December 2010

    Oh Jackie, I am sorry to hear this.((((hugs))))

    I know how devastating this news must be, I will be thinking of you.

    And, as the others have said, you will always belong here. Please keep us updated!  

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  • diana50
    diana50 Member Posts: 2,134
    edited December 2010

    jackie, as the stage III'ers have said; come back and post often. sending prayers and comforting thoughts.

    hugs

    diana

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  • apple
    apple Member Posts: 7,799
    edited August 2013

    sorry to hear this Jackie.. i moved on myself.    I am hoping that 2nd opinion overturns the first.

    The good news is that bone mets are easily treatable and many are living many, many  many years and it keeps getting better.  I  never really told my children I was stage IV specifically.  I just trickled information to them till they realized.  My apparent health, hair and energy level belie my diagnosis.  I am NED currently and expect to stay that way for a while.  There are so many treatments that are specific.. and if one doesn't work another will.  you'll receive a lot of encouragement on the stage IV forum.

    I hope you'll find that life indeed goes on and the quality is high.  I feel absolutely wonderful.

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited August 2013
    Jackie - this really stinks, but there is still lots of living to do!  I started off stage IV over 2 years ago...brain mets a year ago and here I am.....typing this response while working at my full-time job!  We are all here for you so just know you are not alone and miracles do happen every day :> 
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  • littletower
    littletower Member Posts: 333
    edited December 2010

    Jackie - to echo everyone else, you DO belong here. So sorry to hear, but there is so much they can do. While I know the Stage IV group will welcome you and take wonderful care of you, we'll miss hearing from you. So stay in touch. Big warm hugs and loads of prayers and love coming your way.

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  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited December 2010

    Jackie,

    Oh my YES YOU DO BELONG HERE!  I just read your post and am sorry to hear about this recent turn for you.  But yes you will go on.  I live with your fear every day and question every ache and pain.  It truly sucks.  

    And I am THRILLED to see Apple here with the NED status!  See, she is living proof of what can be.

    Hope to hear from you soon, HERE!

    Take care,

    Sharon

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  • Pure
    Pure Member Posts: 1,796
    edited December 2010

    So so sorry but do know that bone mets are treatable... I no several people who had bone mets years ago and have been NED for years (one has been NED for 7 years)

    Breast Cancer sucks no doubt but of all the Cancers it is so on the verge of more and more amazing breakthroughs.as with prostate cancer-the cure came overnight and suddenly stage 4 was curable. We are sooo close we just need to all hang on.

    APPLE- I am sooooooo happy to read your post! So so happy.

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  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited December 2010

    Hi Jackie...I am so sorry for your news...I am a bone metster too and while it is sad to leave...you have lots of living left to do and are welcome with open arms to the SS Mets to help you get through this new journey just like everyone else helps everyone else on these boards.  This isn't coming out right...I shouldn't post right when my meds kick in...I have about a 5 min time span where I am a little loopy - thank goodness it passes because I am at work (always praying no one asks me for anything at around this time)

    Big Hugs....LowRider

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  • SusieMTN
    SusieMTN Member Posts: 795
    edited December 2010

    Jackie, I herald the above.  You are in my prayers, sending you a cyber (((((((((HUG)))))))). 

    Susie

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  • RealtorJackie
    RealtorJackie Member Posts: 91
    edited December 2010

      Thank you for all your good wishes and support.  I didn't sleep well last night, but I am thinking it is the steroids.  Lots of energy today.  Cleaned the downstairs.  A fellow BC survivor came to drive me for my Neulasta shot.  I live in a very rural part of east central PA, and must drive almost an hour for treatment.

     I really want to live.  My wonderful hubbie is so positive and upbeat.  I don't know what I would do without him.  I will check back often,and thank you again!  You are all wonderful. 

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  • karen1956
    karen1956 Member Posts: 6,503
    edited December 2010

    Apple.....so happy to hear that NED is your dance partner once again.  Karen

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  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited December 2010

    They do amazing things these days, so don't give up!

    Sending love & prayers. NJ

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2010

    Hi Jackie,  You are always going to be one of the stage 3ers, and we will be here for you.  The stage a 4's are awesome and will help you go on.  You have heard the news that all of us fear we will hear.  I just went thur this a month or so ago with my scans and knew my onc was looking for bone mets.  It's something we are all acutely aware of and why we so understand.  Please don't feel you don't belong here.  I sure wish I didn't belong here or on any part of breastcancer.org, but here we are.  We are all just keeping on and you will too on stage 4 group forum. ((((hugs))))

    image

    Barb

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  • lkc
    lkc Member Posts: 1,203
    edited December 2010

    Hi Jackie, I am sorry to read that you had progression.

    But the truly good thing is Bone mets is manageable.

    Most ladies w/BM  do extremely well for many many years.

    Also, there are new drugs in the pipeline for tx in the future,

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  • jenn3
    jenn3 Member Posts: 3,316
    edited December 2010

    Jackie - Ditto to what the others have said, you will always belong here.  I am sorry for what you're going through and am sending cyber (((hugs))) your way. 

    Apple - glad to hear you're NED!!!

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  • yellowfarmhouse
    yellowfarmhouse Member Posts: 279
    edited December 2010

    You will always belong here.  Prayers going out for you.

    Wendy

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  • ebann
    ebann Member Posts: 3,026
    edited December 2010

    Jackie I understand the devastation. I too was dx with bone mets. The bc has spread to my hips, tailbone, spine, femurs, tibia. Right now I am experiencing pain and doing radiation. I am to be starting chemo soon just waiting for ins approval. My Dr informed me this is a chronic condition and I will feel like I am married to her. She is talking about 6 months on chemo and then doing a pet scan. She is talking about lifetime maintenance. My Dr also is going to have me on Zometa as well. I had a Pet Scan in April and then did it again in Oct. My Dr had them do MRI's  with and without contrast. They did a biopsy on my hip and confirmed that my bc has spread. So much to deal with. If you would like to chat anytime you can PM me if you would like. I wish you the best with your 2nd opinion.

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  • ebann
    ebann Member Posts: 3,026
    edited December 2010

    .

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  • Maureen813
    Maureen813 Member Posts: 2,893
    edited December 2010

    Hi Jackie,  Just sending hugs and prayers cause I was thinking about you.

    Maureen

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  • mcsushi
    mcsushi Member Posts: 174
    edited December 2010

    Jackie... So sorry to hear this. I went for a second opinion at UPenn back in September. I saw a wonderful onco there. I would love to give you her info if you need suggestions. Please feel free to get in contact with me.

    ~Colleen 

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  • LRM216
    LRM216 Member Posts: 2,115
    edited December 2010

    Jackie:

    If this in fact does turn out to be in your bones, please go read on the Stage IV forum of the gal that has had bone cancer for 18 years and is still going strong and living her life fully.  You have the benefit of being hormone positive and there are many gals living long lives with those stats that have it in their bones. 

    Look up sweetie, not down.  It's a bummer if that's what this is, but it's doable for many gals.

    I wish you all the best,

    Linda

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  • julie75
    julie75 Member Posts: 635
    edited December 2010

    Jackie:  My prayers are with you, too.

    Julie

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited December 2010

    You will always belong here.  Cancer is cancer.  I'm so sorry to hear the PET results.  Please let us know when you go for your second opinion.

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