Did you Hear About Vitamin D

Pure
Pure Member Posts: 1,796

Did everyone hear on the news about Vitamin D and not taking-what are your thoughts? I was already told this about a month ago by someone who knows a top researcher in breast cancer. I was told to stop taking it asap so I did-more info is going to come out about vitamin d and those of us who had cancer.

Comments

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited November 2010

    I posted this a few hours ago on another thread ---

     http://community.breastcancer.org/forum/79/topic/761340?page=1#idx_5

    2 hours ago voraciousreader wrote:

    Here's the entire article:

    Extra Vitamin D and Calcium Aren't Needed, Report Says

    By GINA KOLATA

    The very high levels of vitamin D that are often recommended by doctors and testing laboratories - and can be achieved only by taking supplements - are unnecessary and could be harmful, an expert committee says. It also concludes that calcium supplements are not needed.

    The group said most people have adequate amounts of vitamin D in their blood supplied by their diets and natural sources like sunshine, the committee says in a report that is to be released on Tuesday.

    "For most people, taking extra calcium and vitamin D supplements is not indicated," said Dr. Clifford J. Rosen, a member of the panel and an osteoporosis expert at the Maine Medical Center Research Institute.

    Dr. J. Christopher Gallagher, director of the bone metabolism unit at the Creighton University School of Medicine in Omaha, Neb., agreed, adding, "The onus is on the people who propose extra calcium and vitamin D to show it is safe before they push it on people."

    Over the past few years, the idea that nearly everyone needs extra calcium and vitamin D - especially vitamin D - has swept the nation.

    With calcium, adolescent girls may be the only group that is getting too little, the panel found. Older women, on the other hand, may take too much, putting themselves at risk for kidney stones. And there is evidence that excess calcium can increase the risk of heart disease, the group wrote.

    As for vitamin D, some prominent doctors have said that most people need supplements or they will be at increased risk for a wide variety of illnesses, including heart disease, cancer and autoimmune diseases.

    And these days more and more people know their vitamin D levels because they are being tested for it as part of routine physical exams.

    "The number of vitamin D tests has exploded," said Dennis Black, a reviewer of the report who is a professor of epidemiology and biostatistics at the University of California, San Francisco.

    At the same time, vitamin D sales have soared, growing faster than those of any supplement, according to The Nutrition Business Journal. Sales rose 82 percent from 2008 to 2009, reaching $430 million. "Everyone was hoping vitamin D would be kind of a panacea," Dr. Black said. The report, he added, might quell the craze.

    "I think this will have an impact on a lot of primary care providers," he said.

    The 14-member expert committee was convened by the Institute of Medicine, an independent nonprofit scientific body, at the request of the United States and Canadian governments. It was asked to examine the available data - nearly 1,000 publications - to determine how much vitamin D and calcium people were getting, how much was needed for optimal health and how much was too much.

    The two nutrients work together for bone health.

    Bone health, though, is only one of the benefits that have been attributed to vitamin D, and there is not enough good evidence to support most other claims, the committee said.

    Some labs have started reporting levels of less than 30 nanograms of vitamin D per milliliter of blood as a deficiency. With that as a standard, 80 percent of the population would be deemed deficient of vitamin D, Dr. Rosen said. Most people need to take supplements to reach levels above 30 nanograms per milliliter, he added.

    But, the committee concluded, a level of 20 to 30 nanograms is all that is needed for bone health, and nearly everyone is in that range.

    Vitamin D is being added to more and more foods, said Paul R. Thomas of the Office of Dietary Supplements at the National Institutes of Health. Not only is it in orange juice and milk, but more is being added to breakfast cereals, and it now can be found in very high doses in supplement pills. Most vitamin D pills, he said, used to contain no more than 1,000 international units of it. Now it is easy to find pills, even in places like Wal-Mart, with 5,000 international units. The committee, though, said people need only 600 international units a day.

    To assess the amounts of vitamin D and calcium people are getting, the panel looked at national data on diets. Most people, they concluded, get enough calcium from the foods they eat, about 1,000 milligrams a day for most adults (1,200 for women ages 51 to 70).

    Vitamin D is more complicated, the group said. In general, most people are not getting enough vitamin D from their diets, but they have enough of the vitamin in their blood, probably because they are also making it naturally after being out in the sun and storing it in their bodies.

    The American Society for Bone and Mineral Research and other groups applauded the report. It is "a very balanced set of recommendations," said Dr. Sundeep Khosla, a Mayo Clinic endocrinologist and the society's president.

    But Andrew Shao, an executive vice president at the Council for Responsible Nutrition, a trade group, said the panel was being overly cautious, especially in its recommendations about vitamin D. He said there was no convincing evidence that people were being harmed by taking supplements, and he said higher levels of vitamin D, in particular, could be beneficial.

    Such claims "are not supported by the available evidence," the committee wrote. They were based on studies that observed populations and concluded that people with lower levels of the vitamin had more of various diseases. Such studies have been misleading and most scientists agree that they cannot determine cause and effect.

    It is not clear how or why the claims for high vitamin D levels started, medical experts say. First there were two studies, which turned out to be incorrect, that said people needed 30 nanograms of vitamin D per milliliter of blood, the upper end of what the committee says is a normal range. They were followed by articles and claims and books saying much higher levels - 40 to 50 nanograms or even higher - were needed.

    After reviewing the data, the committee concluded that the evidence for the benefits of high levels of vitamin D was "inconsistent and/or conflicting and did not demonstrate causality."

    Evidence also suggests that high levels of vitamin D can increase the risks for fractures and the overall death rate and can raise the risk for other diseases. While those studies are not conclusive, any risk looms large when there is no demonstrable benefit. Those hints of risk are "challenging the concept that ‘more is better,' " the committee wrote.

    That is what surprised Dr. Black. "We thought that probably higher is better," he said.

    He has changed his mind, and expects others will too: "I think this report will make people more cautious."

    Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 2/10 Pure Mucinous Breast Cancer Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ PR+ HER2- [Edit] [Delete]
  • KerryMac
    KerryMac Member Posts: 3,529
    edited November 2010

    This is a clear explanation -

    http://www.healthzone.ca/health/newsfeatures/article/898832--panel-raises-recommended-vitamin-d-intake-levels?bn=1

    There is a line that says :-

    The Canadian Cancer society based its recommendations (1000 iu's a day) on the results of hundreds of studies looking at the relationship between vitamin D and cancer specifically, while conclusions from the IOM report are ultimately concerned with bone health.

    They recommend an upper limit of 4000 ius a day. I think that level is safe to take.

  • lago
    lago Member Posts: 17,186
    edited November 2010

    I was tested and had very low D levels last year. I was put on prescriptions strength for a few months then 1000ius a day. I was still in the low normal range. (was diagnosed with breast cancer 8 months later) A month ago I had a bone scan and have some osteopenia. I was then told to add calcium. My onc is now going to recheck my D levels next week. I was perimenopausal now chemopausal.

    Some people do need the suppliments.

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited November 2010

    Beware of making changes based on one study. A recent study also said that consuming soy isoflavones would help prevent recurrences in hormone positive breast cancer patients. When I asked my onc about it, she nearly had a heart attack!

    One thing to consider when reading about any "study" is, who funded it. Did these researchers receive a grant from a pharmaceutical company that may, oh, I don't know, be working on a new drug that mimics the effect of vitamin D3? After all, you can't patent and collect megabucks on calcium and vitamin D supplements. Second, who were the test subjects? As my onc pointed out regarding the soy isoflavone study, other lifestyle and genetic factors could be more responsible for the study results than the soy.

    I take about 600mg of calcium and 6,000 iu's of vitamin D3 per day. Recent bone density scans and kidney function tests have come back with optimum results. I don't plan on making any changes based on this one study without more information. There's been many studies performed worldwide on vitamin D3 that have said the exact opposite.

  • molly52
    molly52 Member Posts: 389
    edited November 2010

    My impression, from what I read, is they studied the studies.  No new data, just evaluated previously released reports to determine if "other health claims" were adequately supported.  Although they say not - their comments are on the quality of the support in previous studies.   No new evidence to either prove or disprove the role of Vitamin D and BC.

    Am I reading this correctly?

  • diana50
    diana50 Member Posts: 2,134
    edited November 2010

    i take calcium and vit D supplements.  just had my vit D levels checked and they were in normal range. 

    while on arimidex for 5 and half years....my bone density dropped into the red zone. after finishing the arimidex....taking a little extra calcium/vit D...i also drink a lot of milk because i like it...and walking..my recent bone density improved HUGELY....like way up into the green zone..

    just wanted to put out my thoughts and what i am doing. i don't overboard on anything...except maybe wine once and awhile. Cool

  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited August 2013

    Well, at stage iv and having bc in my bones, it is optimal for me to maintain bone health.  Since the calcium and D3 work together, I take them together with magnisium and zinc.  I have my D levels monitored and usually, fatigue is an indicator of a D defiency as was the case for the first test.  I am to take no more than 2000 units a day so I had to change my calicium which had D in it to one that did not.  More is not better, only when there is a defiency.  My levels are being checked again to determine if we should decrease the amount or stay the course. 

    I cannot speak to other applications of additional Vitamin D and breast cancer only to it being of assistance when one has bone mets.

  • jan508
    jan508 Member Posts: 1,330
    edited November 2010

    My onc has me on 1000 IU Vit D and 1200 calcium a day. I take Tamoxifen and a multi vitamin daily also.

    Jan

  • jan508
    jan508 Member Posts: 1,330
    edited November 2010

    I had my Vit D level checked before I started Tamox and it was 29. Onc says they like to see it at 30+

  • dlb823
    dlb823 Member Posts: 9,430
    edited November 2010

    I just did a very quick read of the above, and what kept jumping out at me is "most people."  If this study wasn't specifically done on those dx'd with breast cancer, I don't see how it applies to us.  If we have or had bc, we're not "most people" -- and, in fact, even if the results of this study disprove the need for high dose Vitamin D, it may not pertain to us at all, since "most people" don't have breast cancer, which means something(s) was out of whack in our bodies compared to "most people."   Deanna

  • Medigal
    Medigal Member Posts: 1,412
    edited November 2010

    For those of us who are taking ALs and need to protect our bone density, it seems to me that as long as we keep up with our tests and the Vit D and calcium we take is keeping us in the "safe" range, it makes no sense to stop because an article decides VitD and Calcium are bad for us.  For that fake, one could say it is not the best thing for our bodies to do Chemo etc but we do what we have to do to protect ourselves and survive.  My Onc is happy with the amount of VitD and Calcium I take from the results of my blood tests so I don't think he would agree to my stopping.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited November 2010

    My understanding of the study is that this is a meta-analysis of as many clinical studies that they could find and then they looked at the evidence.   What they found was that most people were within the "normal range."  30 was considered to be the "upper reach" of "normal."  When it came to bone health, that number was considered sufficient.  Then they looked at all of the other studies and found that at this time there aren't enough evidence based studies to support higher levels of Vitamin D for other conditions, such as heart disease and cancer.

    This study confirmed what I was contemplating for the last year or two.  First, I couldn't understand how so many people that I knew had Vitamin D insufficiences or deficiencies, and two, for a breast cancer survivor, what is an "optimal" number.

    My internist told me a few months ago that Vitamin D studies are in their infancy and that he thought 30 was a "good" number until more information is available.  I guess he was right...to be continued.

  • Husband11
    Husband11 Member Posts: 2,264
    edited November 2010

    Vitamin D supplements in the typically recommended range can only provide a small fraction of the vitamin D you would normally produce from exposure to the sun.  Factor in our indoor lifestyles and for many of us, Northern location, and we get a lot less vitamin D than our ancestors.  It's hard to believe we are not deficient in vitamin D.

  • karen1956
    karen1956 Member Posts: 6,503
    edited December 2010

    my onc has not tested my D levels and doesn't see any reason to....he feels that 400iu/day is all that is needed to supplement....in regards to calcium he ways 2000mg/day....I am osteopenic....I was on Actonel, but stopped it when i stopped the AI's....my last bone density was December 2009...onc didn't mention anything about having one this year...my pcp BMD, but on AI's onc wanted them every year....I've been taking 2000iu Vit D/day and between 1000 and 2000mg calcium depending if I remember to take my 2nd dose....

  • gogo_xago
    gogo_xago Member Posts: 131
    edited December 2010

    The name of D3 test is OH25.

  • hlahore
    hlahore Member Posts: 1
    edited December 2010

    low Calcium and high vitamin D is great.

    Suggest that you also take some of the vitamin D co-factors - such as Magnesium

    Big problems if take too much Calcium: http://www.vitamindwiki.com/tiki-index.php?page_id=1193

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