oestrogen negative cancer.......ER-

I am er/pr neg but Her2Nu positive. not a happy outlook. Now just finished AC for a recurrence after 8 years. Luckily no mets, juts on the partial mast. scar of 8 years ago and exterior or I might ot have caught it. It grew fast and shrunk fast after 4 courses every other week of AC. Now scheduled for recon and then Taxol/Herceptin for 12 weeks, weekly. Orig. I did lumpectomy, nodes (1+ in 18) and then after about 4 CMF sessions, a spot appeared next to orig. lup, so had partial mast. FInished CMF and had rad. Now with the recurrence, had AC, will have total mast and recon and then the follow up chemo. Feeling VERY lucky. However, CMF was a breeze and AC NOT!

Debbie, I too am neg on all 3. I wish I could take herceptin. Nurse told me about the low fat diet for ERPR neg BC. Also, I loved the taxol - I felt so good, so did some research - it is from the yew tree, and hazelnuts also have the same chemicals. So, I eat hazelnuts. I had 6 mm agressive tumor found in 2/2002. Did surgery & radiation. Then in 9/2004 started having pain in chest - couldn't sleep on either side, only my back. Also pain in ribs & arm. After tests, no bone mets but met to my sternum. I had great response to Chemo, which I did know was typical of ERneg. Had surgery to remove the tissue where the tumor was, no cancer. I only hope for no more recurrances. But like others, wish there was some other treatment we could do, rather than just hope for the best. thanks to all who posted, it's so comforting to know I am not alone. I am 58, first dx at 54, post menopausal. trudann

Debbie, it was late, I didn't make myself clear. In 2002 Ihad my first BC, 6+cm tumor in right breast-had surgery then radiation. Then in 2/2005 had my second BC diagnosis, it too was a large 6+cm tumor. With my second tumor, it was near my sternum so due to large size had chemo first, then radiation, then surgery. So, I've had 2 surgeries, 2 rounds of radiation and one chemo (adriamyacin, cytotoxin and taxol). I'm 58 now, 54 when I had my first diagnosis. I too had lots of rib pain after my first radiation treatments. In fact, I started a new (too vigorous) exercise program and cracked my rib - it was weakened from the radiation, so said my oncologist. Sounds like we have alot in common. I did not know that erpr negative cancers usually respond well to chemo. I sure did = the cancer was just gone after chemo. Only did the radiation and surgery as extra insurance. I have my own real estate company, so I work alot. My daughter has joined me in the business, so she really had to take over while I was going through my treatments. She has 3 little kids, 3,5 and 7, so now I babysit sometimes while she goes to the office. It's nice, I love my grandkids! trudann

I have DCIS comedo necrosis stage 2-3. I am ER/PR neg and HER2 positive. 36 y.o., premenapausal. Never felt a lump, just went in for 1st routine mammogram and they found it. I'm recovering from bilateral tram w.recons (3 wks out), and after full recovery, I will start rads. That's all the recommended treatment for this. Kinda scarey actually.

Diagnosed_28 Boston,

I am also er-,PR+. There sure seems to be more of us with these stats showing up lately. When i first came on bco site there were few and far between with these stats. Just wanted to say hello. Hope everyone is doing okay today.