2 Types of cancer in 1 breast

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nwest125
nwest125 Member Posts: 240
edited July 2014 in Just Diagnosed

I was diagnosed with invasive ductal cancer on Sept 21, 2010 ON Nov.1st I had a lumpectomy . My results came back they didnt get enough clear margin so I had a second surgery Nov 15,2010. The rusults came back they found a second type of cancer in the same breast Invasive Lobular. My surgeon said it was only 5% of women having 2 types of cancer in the same breast. I cannt find much imfomation can anyone help. I am now going to have a double mastectomy with no reconstruction. I am a 58 year old women and I believe I have made the right dicision for me. I had my double mastectomy on dec 16th . I am feeling very good emotionly and physically. I know I did the right thing. I am almost 4 weeks out  and really feel very good. Going back to work next mon on the17th. Still sore but getting better everyday. Just wish I could sleep on my side and stomach, cannt wait for that. OH also good news no chem.

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  • nikola
    nikola Member Posts: 466
    edited November 2010

    Hello,

    I am 43, at the time of diagnoses I was 42. I had two biopses done at the same time (very close together, done through same entrance). They both came back positive. I choose double mastectomy with DIEP and pathology results came back with three cancers. One was IDC with DCIS and LCIS. Second was mixed ductal and lobular. Those two were close together. The new one was ILC only 0.2 cm in size. I never asked if third one was in same area as other two.

    I had chemo, 4 rounds of T/C, no radiation needed as margins were widely negative. Most likely I would go for ovary removal as they were ER/PR positive.

    Good luck.

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  • mnmom
    mnmom Member Posts: 2,068
    edited November 2010

    Sorry you are joining us....I had more than one type in one breast. No reconstruct

    hoping the best for you throughout your surgery & treatment(s) 

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  • Shrek4
    Shrek4 Member Posts: 1,822
    edited November 2010

    I am sorry that you had to join us. If you look at my signature you can see I had IDC, ILC, DCIS and LCIS in my right breast. I had bilateral mastectomy with Latissimus Dorsi Flap reconstruction, the sentinel node positive - did chemo and level I axillary lymph node dissection - no more positive nodes - so no radiation. Stay strong, teh road is hard, but there is a lot of sun at the end of the tunnel!

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  • eileen1955
    eileen1955 Member Posts: 365
    edited August 2013

    You are absolutely doing the right thing!!! ductal carcinoma tends to stay on one breast; lobular puts you at high risk in the contralateral breast.      I had atypical lobular cells; and that was the reason I had a dble mastectomy.    the invasive ductal cancer was not such a risk for the opposite breast. 

    As for your choice of no reconstruction, that is exacly what I did but it is such a personal decision.       

    I feel RELIEF that I won't have to be dealing with any more testing for breast cancers as well as no TE's for implants or autologous tissue transfers.            I am 55 and eager to resume my lifestyle as soon as I get my full energy back.      Keep me in the loop! 

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  • Tg5471530
    Tg5471530 Member Posts: 111
    edited November 2010
    I posted this question somewhere on these boards about 5 months ago.  Im 36 and in May I was diagnosed with IDC 4cm, ILC 1cm and DCIS all in my left breast. (And a very small breast too)  They also saw cancerous grouping in my Right breast and after axillary lymph node dissection they found 3 poss and 2 stuck together that were also poss.  I did Chemo first then bilat-mast with expanders.  The final path report showed that the IDC went from 4 to 1 cm, the ILC from 1 to 0cm and the DCIS was still there.  I will be starting 5 wks of rads next wk.  This is actually why I ultimately decided to get the expanders then implants.  With the new kind of expanders it will actually be safer for me to do rads than without.  I have no fat in the chest wall and the expanders will I guess be like a buffer for the chest wall during the rads.  Then about 4 months later I will have the surgery to switch out the expanders for the implants.  Plus somewhere in there I also have to fit in an ovary removal since my body couldn't tolerate the Tamoxifen.  But you are right, it is your choice! 
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  • dlb823
    dlb823 Member Posts: 9,430
    edited November 2010

    nwest, I think the percentage might be higher than 5%, but I also had ILC, IDC (side by side lesions), plus 2 smaller ILC and 1 small tubular (which is a rare form of IDC).  I also had some in situ bc thrown in.  In spite of all that, my breast surgeon & plastic surgeon (I had Diep recon) at UCLA encouraged me to do a unilateral mast.  They assured me that my chance of having anything happen in the other breast was only slightly higher than the general population, and they didn't see the need for a bi-lateral.  I'm satisfied with my decision and glad I have nipple sensation on one side.  But I certainly understand and support anyone who is more comfortable with a bi-lateral, to minimize future worries.  It's just such a personal decision, and one you should take whatever time you need to make.      

    I'm so sorry about your diagnosis and the two unsuccessful lumpectomies.  I'm curious, did you have an MRI prior to your surgeries?       Deanna

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  • Halah
    Halah Member Posts: 352
    edited November 2010

    Sorry you have to be here and have to face BC. And all the surgeries!  Did they not do any diagnostic testing before all of that? I had IDC and DCIS in my right breast and atypical lobular hyperplasia in both breasts. If I hadn't had a mammogram in July (it was followup from December), I think my circumstances would have been quite differently. Thank god for mammograms! Hang in there, it gets easier.

    Mindy xxx

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  • nwest125
    nwest125 Member Posts: 240
    edited November 2010

    Yes I did have a MRI and my  dr said she was upset that it didnt show up

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  • nwest125
    nwest125 Member Posts: 240
    edited November 2010

    yes I had my yearly mamogram and  came back abnormal and then went for mri and then had biospy. only after the second surgery was the ilc found, I am now looking at this second surgery as a life saver. If I had had clear margins the first time they would not have found the second cancer for a while.

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  • dreaming
    dreaming Member Posts: 473
    edited August 2013

    I had both, the second was found during the mastectomy  that I requested to have,  my doctor told me it is not rare, this is the reason she agree with my idea to have my breast removed.

    I had chemo, slow drip every 3 weeks with a booster on the 4 week. By the way I did not have a lump, mammogram and ultrasound negative, no history of any cancer in my family. Only occasionally sharp pain in my R breast.

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  • bookgirl
    bookgirl Member Posts: 128
    edited November 2010

    Add me to the list of a lot going on in one breast. IDC, ILC, and LCIS.

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited November 2010

    I too had what I called "cancer soup" in my breast.

    I had a right mastectomy, 6 rounds of chemo, a year of herceptin (my last one is December 1, yay!) and just had my reconstruction.  I had an implant put in my non-cancerous side to match and it looks great.

    It's been a long 16 months but it's almost over and I feel GREAT!  Good luck to you!

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  • Desert_tiger
    Desert_tiger Member Posts: 3
    edited July 2014

    I finished act chemo and then radation 16 plus 4 boost on April 11. Then on the weekend I was in the sun both days, I was protected but got a bit to much sun. The next day my breast swelled. Had a low fever maybe, and my breast is hot and a bit swollen now for two weeks. I called drs to talk and no one new anything. Went in on Friday for blood test and the RBC, hemoglobin and ferritin was high. The ferritin was lower than last time of 216... I have to wait another week to see the dr or should I go right away? What could it be? Any one have their Breast swell after three months later? 

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