Chemo starting in December 2010

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sammolisa
sammolisa Member Posts: 180

I am starting Chemo December 1st - have no idea what I will start with yet because of the adriamycin shortage tho.  anyone else starting in December?

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  • caitedidruns
    caitedidruns Member Posts: 26
    edited November 2010

    I will be starting on December 15. Supposedly the Adriamycin will be back within two weeks. 

  • Lawleigh
    Lawleigh Member Posts: 56
    edited November 2010

    Starting December 2nd with AC plus a clinical trial (if selected randomly) of Bevacizumab followed by Paclitaxel.  Going to Chem class this next Monday, EKG and Echcardiogram on Monday and Port placement on Tue....whew, then a break until the big day on Thursday.  Anyone wondering like I am what we have gotten into?

  • sammolisa
    sammolisa Member Posts: 180
    edited November 2010

    Lawleigh - wow! you're getting alot done all at the same time!     I am starting chemo tx on Dec 1.  Had my port put in about 10 days ago and it is just now feeling good enough for someone to poke it.   I am not doing the clinical trial,  and may only be doing TC and not ACT because of the shortage.  My hospital didn't offer a chem class so I hope it is informative for you and you can share the info you receive.   My MUGA  ( a radioactive echocardio)  is this monday coming up.  And yes wondering what we have gotten into here too.  Don't have any idea how I am going to react to the chemo -  this site tho has given me some great info for packing a carry bag with me to chemo you might want to do too, 

     good to have on hand when you're out and about: digital thermometer, Tylenol or Ibuprofen (ask your onco), toothbrush, toothpaste, Breathsaver-type lozenges, chapstick, unscented hand lotion, eye drops, antibiotic ointment, Purell sanitizer or handwipes, Saltines or animal crax, Kleenex, thin cap to ward off any sudden chills, mouth rinse. And maybe a maxi-pad in case of any port or drain mishaps. (Why this stuff? Important to ward off mouth sores, avoid fever/monitor temp, chemo dries out eyes, mouth, skin; lack of nose hairs causes drippy nose.)

    I seem to be about a day ahead of you for tests and chemo  - I'll try to post on here and let ya know how it went!

  • lexyloohoo
    lexyloohoo Member Posts: 36
    edited August 2013

    Hello to all start my chemo on Dec 1 also.  Since as they call it the triple positive I am doing 6 cycles of Taxotere, carboplatin, and Herceptin and than the remainder of a year of Herceptin.  At least it is only once every 3 weeks.  Great tips on what to bring and keep for chemo.  Going to go this weekend to get things together.  had to get my PET scan, MUGA scan and port put in all within 1 week since they want to start my chemo asap.  MUGA and PET scan not bad at all, just sitting still is the worst part.  Everything I go through is all through the same facility so it is really nice.  My oncologist even has her own Chemo Nurse educator so spent 2 hours with her last week so all ready for next week.  Have to admit it has been a big whirlwind with only being diagnosed 10/20/2010.  Only thing with a long chemo schedule my plastice surgeon may have to request a break in chemo so he can do my TE and implant exchange.  He really doesn't want to wait a year before finishing my reconstruction.  Can keep the TEs in that long put we shall see.  He would rather wait to avoid an infection frtom the exchange surgery.  So glad the surgery and that is done also.    Take care all of you and glad to have a place to go through this journey with.  Hopefully chemo will not be to bad.  We shall see!!! 

  • Lawleigh
    Lawleigh Member Posts: 56
    edited November 2010

    It will be an interesting week for sure.  I will be anxious to hear how it went for those of you just a day or so ahead of me.  I will also be questioning what they are going to do about the drug shortage and if because I am in a clinical trial does that make it a priotity to use that drug.  Sorta seems like it might as these clinical trials are not going to be of much use if they are changing the variables any.

    Good luck to all of you and remember that 90 percent of any recovery is mental...keep it positive ladies.

  • sunflower71
    sunflower71 Member Posts: 130
    edited November 2010

    Hi Ladies!

    I start Dec. 2.  6 rounds of TCH.  I had my port put in this morning.  I am spending the weekend looking for movies for the portable DVD and loading my Nook.  I was told I will be there for 6-7 hours!  Good luck to everyone starting this week!

    Lawleigh: Sometimes I feel like Alice going down the rabbit hole! Smile

  • Lawleigh
    Lawleigh Member Posts: 56
    edited November 2010

    Sunflower71,

    That is a great analogy!!!...

    My chemo has been delayed until the 9th so all of you will be able to give me the expert advice on what to expect.  Visualize good things and hang in there...we all hear that it is not as bad as our minds have convinced us.

    Enjoy the weekend intensly and do something nice for yourselves!

  • sammolisa
    sammolisa Member Posts: 180
    edited November 2010

    @ Sun - great idea with the portable DVD player.  My brother and sister brought me a blanket throw that i can plug in......... just hope they have an extra plug i can use!   5 days away....

  • sunflower71
    sunflower71 Member Posts: 130
    edited November 2010

    @Sam- I figure it is a great way to catch up on all those girly movies my boyfriend hates!

    @Lexy-Sometimes I wonder if I will start to glow in the dark or become a super hero from all of the radioactive substances I have been exposed to in such a short time! Looks like we are on the same protocol, fingers crossed it is not that bad.

    I am having trouble with the port, it got put in yesterday and I was not expecting the pain.  I think it is worse than the lumpectomy!  Ugh, they only gave my Tylenol3 which is not cutting it.  I called the surgeon and he said take 2 Tylenol and managed to pooh-pooh me.  I am convinced that surgeons are actually cyborgs.  If it keeps up, I am calling my onco, she has a heart!  It is a stabbing pain everytime I move.  Anyone else have trouble?  Any tips?

    Brain Scan on Tuesday and 6 days till D-DAY! 

  • LauraGI
    LauraGI Member Posts: 12
    edited August 2013

    I am starting Chemo Tuesday Nov 30 but because it is so close to December, someone advised me to get on Dec board.  I found the lump 9-11-10 so I am ready to start.  I had a mascectomy on10-20-10 after having the lump originally removed from a local hospital when the biopsy came back negative for cancer.  That was devistating.  The most issue I have had is the decision whether to go with AC-TH or TCH.  I have had oncs advise both.  I went with the Onc that will let me decide but then I could not decide..I picked AC-TH but may change my mind yet today..lol.  I will let you all know my experiences since I am one day ahead. I plan to work through this so wish me good luck!!

  • scottysue2010
    scottysue2010 Member Posts: 14
    edited November 2010

     Good luck to everyone starting chemo,I am almost 13 years down the line after chemo,mastectomy and radiotherapy,and do believe people who say it's not as bad as you expect,and things have improved greatly since my treatment,know a lot of people who have had treatment recently and they had little or no side effects.stay positive and good luck

  • Basia
    Basia Member Posts: 790
    edited November 2010

    Good luck to all of you starting soon! I am 3 sessions into TCH (6 sessions) and it isn't so bad.  Hang in there, you'll be fine.  Most important thing to remember is you shouldn't have to suffer SE thruout all of this, if something is bothering you talk to your oncologist about it, there is probably a pill to help you get thru it.  

  • LisaMomOfFour
    LisaMomOfFour Member Posts: 465
    edited November 2010

    Hi -- popping into here for the first time to introduce myself.   My oncologist tells me I will be starting in the last two weeks of December.   Like some others I am going to attempt to work through treatment, we'll just have to see how that goes. 

    I am doing 4 cycles of A/C, then 4 cycles of Taxol, two weeks apart.  When I think about it as 8 separate events, 8 weekends of *maybe* feeling bad, it seems doable. 

    I am still recovering from BMX on 11/9.  Looking forward to moving onto the next stage of treatment.

  • msjag
    msjag Member Posts: 416
    edited November 2010

    Hi everyone, I am new here, having chemo for the first time 12/2,  T/C 4X every three weeks, tripple negative, no nodes, 1.2 cim.    I had a lumpectomy a month ago.  thanks so much for all the suggestions.  It can get so overwhelming. Onc told me  I will be taking a steroid the day before, and two days after chemo, senocot the night before, and a few days later, ws told to use tea tree oil on my nails. Friends have recommended to chew ice the first 10 minutes of chemo, ice for hands and feet as well...claritin D before/after N shot, and biotine mouth wash a couple times a day!!!  So I have to ask, is this over the top, or good prep? 

    Good luck to everyone, I also will be working through treatment. nice to have this place to support each other.

  • thePuppetLady
    thePuppetLady Member Posts: 127
    edited November 2010

    hi all...I'm halfway thru my chemo (6 sessions of T and C and started in Oct) and wanted to wish you all luck on this particular journey.  Like a lot of you, I was pretty concerned at the beginning of my chemo (hardly ever went to the doctor before all this so the whole medical thing was a culture shock, lol)

     So far, I've had a farly easy time with it...got the fatigue, flu-like symptoms, diarrhea, all things that were pretty manageable.  It hits people differently but with all the meds these days, one shouldn't have to suffer the SE's so harshly.  I think the first time was probably the hardest as there was the fear of the unknown but once you "understand" your cycle (good and bad days), the subsequent tx's are easier to bear (at least for me)

    Yeah, the hair loss was tough, but it is just hair IMO, and will come back.

    I did get a bit depressed a couple of months into treatment (I'm on Zoloft anyway) but it did lift after a couple of days.  It does grind you down a bit :( but hang in there.  When you start feeling better, you may almost be euphoric--it feels so good, lol, compared to the "feelin' crappies" .

    Any of you feel free to PM me if you'd like, I can be a chemo buddy, lol...but there's tons of info on this site already as I'm sure many of you have seen.

     Hang in there all!  Fight the good fight!!...ellen

     

     

  • MaryinIllinois
    MaryinIllinois Member Posts: 13
    edited November 2010

    Hello, all,

     This is my first post! I was diagnosed in October of 2010, and getting a port this Wednesday, and first chemo (TC) on December 8. Still sort of in shock, but I had my hair cut really short yesterday to prepare for losing it, and ordered a wig.

    What's ironic is that I am an RN, just finished a Master's in nursing, and for one of my clinicals I did a rotation in the same cancer center that I will be getting treated at. It's nice that I know everybody, but I hate being a patient. Also not used to the pitiful looks I get from people. I thought I would be open about it, but now I'm starting to wish I kept my mouth shut so I don't get these comments from people like "How ARE you?" "Have you tried alternative medicine?" "You need to get this (test/medicine/etc)." blah blah blah

    I am getting antsy to just get going with this! I will do radiation after the chemo. I am planning on working, but not sure if that will work out or not. So far, my boss is incredibly cool about it, just told me to call in if I feel bad (I only work 20 hours a week, and I work in a specialty area).

    So, it's nice to touch base with other folks in the same boat, I hope to talk with you all frequently!

    Cheers,

    Mary in Illinois

  • klynnwayman
    klynnwayman Member Posts: 23
    edited August 2013

    Hi,

     I just posted the same topic...starting Decmeber 9th...

    I was diagnosed in October, and since there seemed to be muliple foci (of intraductal and invasive carcinoma), I opted for a bilateral mastectomy right off the bat. The right breast was normal, but I didn't want to take a chance.

     I just had my port put in on Friday, and I do have to say it was more painful than I expected.

     I think the worst part is the waiting to see how this will affect me. I try to maintain a good attitude and not show how scared I am, primarily because I have a small child. But I can't help but be afraid.

    So where to I look to find out what to bring with me to chemo???

    So glad I found you all...my family and friends are all so supportive, but I still somehow feel very alone, its weird.

  • ShelMel
    ShelMel Member Posts: 207
    edited November 2010

    Hi all -

    I've been posting a bit a few weeks ago in the waiting forum, haven't been on in a while due to moving, the holidays and such.

    I'm starting my first round of chemo (Taxotere/Cytoxan) December 2, Thursday. I cut off all my long hair last Friday in anticipation of losing it. My oncologist said it would be about 2-3 weeks after my first round when the hair started coming out.

    I have doctor's appointments every single day this coming week. Port Cath education class Monday, PET scan on Tuesday, getting my port cath put in on Wednesday, chemo on Thursday and Neulasta shot on Friday. 

    I'm nervous as heck about the SE's and what's going to happen. I wasn't offered chemo education classes. I'm going to call my cancer center and see if they offer anything like that.

    klynn -  I know what you mean about feeling alone. It IS weird. I have 3 children (14, 11 & 4) and I'm trying so hard to stay positive, even with my husband... but sometimes I just want to give in and be depressed.

    How and when did you guys get on anti-depressants? I don't even know who to ask or if I need them.

    Looking forward to getting to know all of you through the coming months. I'll be thinking of all of you in the days ahead. Blessings!

  • Lawleigh
    Lawleigh Member Posts: 56
    edited November 2010

    Mary and Klynnwayman,

    Looks like we are on about the same schedule.   I get my port put in this Tue (a bit uptight after reading posts from people who are in more pain than they anticipated). They are giving me the choice of a general or local anesthesia....any advice?  I begin AC on the 9th and am just ready to get the first over with so the unknown will be gone.

    Leigh

  • MaryinIllinois
    MaryinIllinois Member Posts: 13
    edited August 2013

    Hi, Leigh,

    From my understanding you could have the port put in with just a local, or with an IV med that is sedating (such as Versed), which is not really a general anesthesia. General is like what you get with the big surgeries such as lumpectomies and mastectomies, and you generally feel out of it for a few days. (I barely remember the days after my lumpectomy, although I apparently talked to people on the phone, and went to work the Friday after my Tuesday lumpectomy!). With Versed or another sedating drug, you should be semi-awake, but just out of it (kind of like, Hey, you can cut my head off, I don't care!)  So, I am personally going to have the Versed or what other sedating drug they use, but not general anesthesia.

     Leigh, I see you live in Boise. My son lives there, it is such a cool town. I was just there a few weeks ago.

    Good luck to us all in our port adventures this week!

    To ShelMel-- that's funny that you cut your hair this week, too. I don't have nice long hair though. Mine is about an inch all over now. A friend (?) today said, "Wow. Your hair is really short". (not in a nice way). I reminded her that I was starting chemo, and would soon have NO hair. She said, "Oh. I didn't think you needed chemo". This chemo thing seems to freak out others more than me (and I'll admit I'm a little freaked out).  I ordered a wig online that looks like my own boring hair, but I'm thinking I might order another one, too, that's longer and funkier. What the heck!

    Mary

  • ShelMel
    ShelMel Member Posts: 207
    edited November 2010

    MaryinIllinois -  I've heard that same statement from a few people about how I shouldn't need chemo since my cancer is early stage. It's weird when someone says that. My mom, Lord love her, is the number 1 purveyor of this statement, always asking if I'm sure I want to do this? Have I looked into other forms of treatment? I'm sure people mean well but it's kinda strange when someone asks that.

    I just realized that we have the same diagnosis, Mary. 

    My hair is about an inch on top and even less in the back. My friend kept cutting and I kept telling her to take off more. I've had short hair before, but never this short.

    I havevn't gone wig shopping yet, but I need to. I think I want a cool weird looking one, not one that looks like me. I say go ahead and get one that's crazy, too! You only live once! :)

    I picked up the book Crazy, Sexy Cancer Tips today and have been reading it. So far it's good, I'm enjoying it because the author and I have the same twisted humor about this whole cancer thing. LOL In fact, I'm probably going to be carrying my camera around to all the doctor appointments and chemo and everything. I know, I'm weird. I just have this need to document the process in some way. I'm a writer by profession so I've already started blogging about it, too on the blog I started a year ago. 

    I'm trying to gear up for the week ahead but find myself avoiding preparing for it mentally. I think my procrastination habits are rearing their ugly heads. 

    Shelle

  • sammolisa
    sammolisa Member Posts: 180
    edited November 2010

    I will admit  I gave in to the sadness of it all.  I cried at the drop of a hat for the first few weeks, mostly because I felt it was the end of a dream of becoming a mom.   I had never been able to get pregnant my entire life (mostly due to uncooperative spouses I find out)  When lo and behold in March of this year ( at 48!)  my husband  (third lol)  received the most precious gift of a positive pregnancy test!   Short lived tho it was,  we lost the baby at 11 weeks and I had to have a D&C on May 24th.    A few short weeks after that was when I felt the lump and pain that didn't want to go away.    And no I don't feel guilty one bit to have given in to the sadness of being diagnosed with breast cancer - I believe you have to go through a grieving process which I allowed myself to do before I got myself together and got on with life and all the joys that come with it.  And don't make yourself feel guilty when you feel like crying and DON'T LET ANYONE ELSE MAKE YOU FEEL GUILTY EITHER BECAUSE OF YOUR "BAD ATTITUDE"!   Nobody knows  what a "good" attitude is really.   Is it being a cheerleader type and going out and doing a marathon for breast cancer 2 weeks after your surgery and devoting the rest of your life to educating others? Or is it to try to get thru every day the good Lord wants you to wake up to and make the most of it?   All I know is I am not laying down and taking it and waiting to die and that is a good enough attitude for me.    Yes I am scared.  Chemo starts in just a couple days and I pray it isn't all hellfire and brimstone.   But I also know my husband who has been wonderfully perfect thru this whole roller coaster ride will be there holding my hand when they access my port for the first time on wednesday.

    @Sunflower

     I had trouble with pain on my port too which actually surprised me -  I didn't expect to have so much pain.  The hospital sent me home with NO pain meds and no instructions even saying I WILL BE IN PAIN.  Luckily I had some Vicoden still left from surgery and my med Onc hooked me up with more.   I left the hospital from the port surgery in no pain at all  - apparently my mind was not wrapped around the knowledge that is was all numb from the shots and that was why it didn't hurt.   A short nap later and WHAM! pain city.  It has been almost 2 weeks since the port placement and I can say the 1 week mark made a huge difference in how it felt and I am finally able to forget it's there.  ( it even felt weird to cough and sneeze for the first 10 days)

  • sammolisa
    sammolisa Member Posts: 180
    edited November 2010

    oh!  and my nephew who is about to turn 12 December 16th made me a dark purple yarn wig (looks like a raggedy ann wig lol)  and I so plan to wear it!

  • prayersareanswered
    prayersareanswered Member Posts: 40
    edited November 2010

    Sammolisa, seems like we have a somewhat same diagnosis, except they have no exact measure of my tumor and say it is between 2 and 5cm (lots of DCIS mixed with IDC). I am scheduled to start TAC x6 every three weeks on December 13. It is funny people at my onc's office say they have not heard of adriamycin shortage. I am in the Northern Virginia area.

    I really hope and pray that we get through this with minimal side effects. I have two little boys (age four and a half and three) and chose to have my infusions on Mondays so that I can rest while they are at preschool during the day. I am not sure I plan to work the whole time since my workplace offers disability anyway.

  • Lawleigh
    Lawleigh Member Posts: 56
    edited November 2010

    I admire all of you for being so brave about the hair lose thing...I don't know if I am vain or what but it is my biggest fear.  We went wig shopping a couple of weeks ago.  Took a bottle of wine and went to a little wig shop that specializes in cancer patients.  It was very homey and they did their best to make it "all ok".  I did go a bit wild and bought the normal everyday go to work wig but my husband who is amazing also got his long brunette fantasy wig (I am shoulder length blonde).  I guess if we must do it then a little fun is well deserved

  • sammolisa
    sammolisa Member Posts: 180
    edited November 2010
    Lawleigh  -  I think about losing my hair all the time.  They say it starts to fall out around 2 weeks after your first treatment.    Some people get their hair cut short in anticipation but for me that is going to be just as devastating as losing it for real so I decided to just wait and when it starts to fall out that is when I will deal with the loss.  One loss is enough for me.   Haven't looked at any wigs yet and I have chosen not to work as I work for a cell phone company doing customer service which I can take upwards of 100-130 calls per day   (13 hour day)  and it can be extremely taxing and stressful.   The company has benefits allowing me to stay out so I am taking advantage.   And this disease affects so much of who you are I felt it best to focus on me and not anything else and whether someone's cell phone works on Mount Washington. lol.
  • klynnwayman
    klynnwayman Member Posts: 23
    edited November 2010

    Legh- Yeah, they didn't really let me know too much about the port beforehand. All they offered me was the Versed, which was adequate. The first shot of it wasn't enough, and I was quick to let them know I needed more- don't be shy. I don't think general anesthesia would be necessary. But if that is all you are being offered other than just a local, then take it. We are all going through enough, so I feel that it is our caregiver's (doctors, port-placers, etc.) responsibility to do what they can to keep pain to a minimum.

    The losing the hair thing is scary to me. I also just cut off my long hair that I had been trying to grow out for a while. Now I have a chin length bob- I guess I thought it would be easier to deal with losing it if it I did something drastic, like cutting it off, before the process started.I went wig shopping last week, and decided on a bob like I already have, a medium length one, and a long flowing head-of-hair one that my husband will probably like. Might as well make the most of the situation, right?

    For those of us that are on the same schedule, it will be helpful for me to be able to keep in touch with each other as we go through this.

    Kim

  • sunflower71
    sunflower71 Member Posts: 130
    edited November 2010

    I was going to respond to you all individually, but as i scrolled down i realized we all have the same similar fears and anxieties.  My number one is THE HAIR.  I hate that I am going to lose it. To all of you who have already cut it I admire your strength.  I can't do it.  I decided to wait until it starts to fall out and then deal with it.  I have lots of scarves and 2 wigs.  One is practical for work and the other is my "dream hair" Cool!  I may go on to get a funky blue one! My number 2 is the "alone" feeling.  My family and boyfriend have been amazing, but I can't help but feel that they can never really understand what I am going through.  I also find myself being "positive" for them when I feel like throwing a major temper tantrum over the unfairness of it all. 

    Today I called a Gilda's Club near me to join as a new member.  If you have one near you I recommend it. They have all sorts of free classes like yoga and painting for cancer fighters.  I could use some stress relief and I definitely need some free yoga!  The medical bills are starting to come in for all of the tests and surgery, who can afford yoga?!  

    @Sam-I am starting to feel better today with the port, I am at work and managing.  I just can't turn or bend!  I love the purple yarn wig, you should definitely rock that one!

    @klynn-Did you see the shopping list for chemo on the forum?  It gives a good idea of what to have on hand.  

    @Shelmel-I love the crazy, sexy, cancer book.  It has been much more enjoyable then my copy of "breast cancer for dummies". 

  • MaryinIllinois
    MaryinIllinois Member Posts: 13
    edited August 2013

    Hi, all,

    So, here's a brief roll call:

    Me (Mary in Illinois), Port Dec 1, Start TC Dec 8.

    Sammolisa: TC Dec 1.

    Sunflower, Port 11-26, TCH Dec 2

    Leigh, Port Nov 30, Chemo starts Dec 9

    Laura, Chemo Nov 30 (TCH?)

    KLynn, Chemo Dec 9

    Shelmel, TC Dec 2

    Prayersareanswered, TAC Dec 13.

    @Sunflower, I hear you about "being positive". I am trying to be a good little soldier for my family, but it's hard. This is the first place I can talk about this without the pitying looks or the "Oh. I'm so sorry". (I think people are mostly freaked out about the hair).

    @Leigh: I think that's great that you got a "fantasy wig".

    Good luck to us all going through ports or first chemos this week.

    Mary

  • msjag
    msjag Member Posts: 416
    edited November 2010

     I will start 12/2, TC 4X

     How long does chemo actually take?  I guess I never asked that question!!  I just assumed a couple of hours!!   Thanks for the good wishes, Mary, same to you and to everyone here.  Look forward to sharing our experiences. 

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