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  • MicheleS
    MicheleS Member Posts: 937
    edited November 2010

    Tif~ I spent $300 on a wig an barely wore it.  I wore bandannas at home (or went commando) and pretty scarves at work.  Here's the store where I bought most of them:

     www.headcovers.com

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  • swiftbird
    swiftbird Member Posts: 177
    edited November 2010

    My hair is coming in... yahoooo! About 1/2 inch now - figuring after New Years, I will style it up and go topless.  Still girlcrushing on Jamie Lee Curtis - I'm shooting for her style. 

    Wigs. I am in the minority I guess.  I enjoyed my wigs (I've had I think 3 so far, all getting progressively shorter) - they were expensive but they were comfortable and fun, and looked great.  I worked throughout my entire treatment and radiation (took a few days off for surgery) - besides getting diagnosed only a few months into my job (eeks!) and having to deal with clients and in a corporate environment, I wasn't scared to reveal it... I just didn't want everyone scope-locked on my hair and treatment, so I got a great wig and nobody besides HR knew anything.  

    But at home with my family - I am rockin' my crew cut! Cool 

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  • swiftbird
    swiftbird Member Posts: 177
    edited November 2010

    I am thankful that I:

    have a kick*@$ oncologist

    am cancer free

    have a hot, supportive, cool DH 

    have eyebrows and eyelashes

    don't have to obsess about the optimal mix of miralax and ducolax

    am witnessing more and more attention on TNBC (ooh ooh, researchers, pick us! pick us!) 

    and have this sisterhood of excellent, tenacious, occasionally cantankerous but always upbeat  women who are always here to give a pat on the back or a laugh or some great advice... 

    Happy Thanksgiving Ladies!!!  

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  • Luah
    Luah Member Posts: 1,541
    edited November 2010

    Just popping in to wish all my U.S. sisters a wonderful Thanksgiving holiday. Not matter what's going on with our health, time with close friends and family is something to be cherished!  Enjoy.

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  • ebann
    ebann Member Posts: 3,026
    edited November 2010

    Hi everyone;

    I hope that all is well with everyone. I did not start chemo on Monday as was planned. The office called me on Friday after getting my port put in that day. They have to wait for my ins to approve the chemo drug before I get started since it is so expensive. So we are looking at this coming Monday instead. So I am just praying they approve it. I see the Rad onc Friday so I will find out what we are doing at that point as well. I am experiencing pain in my hip. My onc did give me an ok to do light exercise. So I am very glad about that. She was concerned about fractures in my bones. MRI's indicated no fractures yay!. So I am meeting with my trainer on Friday to start a new schedule. I think this will really help.

    Swiftbird; Hi! Are you coming to our ornament exchange party on Dec. 11th? I hope so it would be great to see you.

    turkeyHAPPY THANKSGIVING!

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  • swiftbird
    swiftbird Member Posts: 177
    edited November 2010

    ebann... I hope so!  After having modified travel for so long during chemo and rads and everything - I'm road warrior again so I do tend to hermit up a bit when I am home on the weekends.  I will for sure try - sounds fun.  I sure didn't like having to have a port, but sure appreciated it once it was in.  What chemo are you starting???  

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  • tnbcRuth
    tnbcRuth Member Posts: 454
    edited November 2010

    Just a shout out that i got my port taken out yesterday !!!  I am so happy to have it removed and one step closer to putting this mess behind me.  I am Thankful it is gone!!

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  • MBJ
    MBJ Member Posts: 4,352
    edited November 2010

    slcst12:  So sorry you are here so close to the holidays--I was in your shoes last year and started chemo right before Thanksgiving, so I am relishing the holidays this year.  Have they already done an MRI and a scan?  You will find much support here and just a great bunch of supportive women.

    LauraJane:  So glad to hear your news!  I knew that if you kept looking you would find the right dr for you!  Congratulations.  Really loving being in the country for the first time ever.  So beautiful.

    HeidiToo:  Thank you for sharing that article--it pretty much sums up my feeling regarding Pink advertising.  Don't even get me started.

    TNBCRuth:  Congratulations!

    Does anyone remember the name of the company that gives free scarves to women with TN?  That's where I got my free scarf from and I would like to pass the info on to those in need in additon to giving my own way.

    Happy Thanksgiving Everyone!!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    MBJ- didn't you say the Triple Negative Foundation gave you yours? Couldn't you ask someone on that site? I know the two I bought from them were by France Lux---> Erickson, as I recall.

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  • Luah
    Luah Member Posts: 1,541
    edited November 2010

    I got a free scarf from France Luxe through their good wishes program. It was lovely.  

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  • LRM216
    LRM216 Member Posts: 2,115
    edited November 2010

    France Lux IS the name of the company that gives the free silk headwraps.  They are online just contact them.  The owner is a wonderful gal that supports all of us and is so kind to do this for us.

    Want to wish all my wonderful sisters a very Happy Thanksgiving.  I give thanks everyday for each and every one of you, and unfortunately, all those that are yet to come.

    Hugs to all,

    Linda

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited November 2010

    I got a beautiful silk headwrap from France Luxe too.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Ladies, haviing bought two France Lux "It's a Wrap" items last year (and *loving* them), I just inquired about their program and got an immediate response. I can't believe I did not know about this program before now! I intend to spread the word because, as some of us already know, their products are gorgeous and, most importantly, easy to wear.

    I am going to tell my local BC organization about this!

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited November 2010

    Heidi - when they sent the free scarf, there is a really lovely card they include, which is personally signed by the staff members. It's such a nice touch and really made me feel good when I received it. 

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  • retrievermom
    retrievermom Member Posts: 522
    edited February 2011

    slcst:  I got my news this time last year, the day of my office Christmas party, and had my lumpectomy/SNB right after New Year's.  Ask anything.  Someone in this group will have the answer, or at least an opinion :)

    LJ:  The NYC trip sounds great.  Glad you hear you are having a good time, and that the trip to Sloan went well.  NYC is someplace I really, really want to visit.  Will have to twist my DS's arm to go with me.

    Which leads me to--Heidi--I was at a wedding reception tonight, 18 year old girl who had known the guy a couple months, which is common around here.  I want my DS to find "the one," and aim to see grandkids, too.  I bet an announcement is coming from your DS.  What fun!

    Elizabeth:  Thankful for no fractures.

    Congratulations, Ruth!

    I got a scarf from France Lux, too, and loved the card they sent.

    I've made roll dough, cranberry salad, a couple of desserts, and did some housecleaning.  Looking forward to tomorrow and spending time with friends.  

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited August 2013

    Hi ladies - I wanted to wish all of you in the U.S. a Happy Thanksgiving.  

    Although tomorrow is not Thanksgiving for us here in Canada (we had our's in October), I'm going to a cooking demonstration tomorrow night and the theme is holiday entertaining.  I understand they will be preparing a complete feast of turkey with all the fixings so I will eat my turkey and think of all you wonderful ladies!

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  • Swanny
    Swanny Member Posts: 147
    edited November 2010

    Happy Thanksgiving everyone.  Friday I have my 14 out of 28 rad so I will be 1/2 way done.  Can't  believe how fast this goes compared to chemo.  So far no skin problems and no SEs.  They say next week is when fatigue can set in.  We'll see.  I think I am just so happy that this is so much easier for me than chemo that I don't think I'll get too fatigued.  Take care all.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Swanny- I kept waiting for some "obvious" fatigue--- and that tired me out! Surprised

    Seriously though, my experience found it to be a bit more insidious. I thought I had breezed through everything (right up until I had that seizure!). 

    Point is, I'm fine now but have learned to be reasonable in what I can take on. That seizure really got my attention because I guess I did not recognize how tired my body really was, so I got right back "into the game"... perhaps too quickly.

    My GP told me that fatigue lowers a person's seizure threshold, and I have pretty much concluded that my mind out-paced my body after all the tx ended. My mind said Go Go Go right up until my body said No No No and threw my main circuit breaker, effectively putting me at parade rest.

    Almost 7 months later I am cautiously beginning to believe that I may finally be back to normal energy levels for an old broad.

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  • Titan
    Titan Member Posts: 2,956
    edited November 2010

     Heidi..old broad?? don't think so! 

     Happy Thanksgiving everyone..including our Canadian sisters..since you already had yours..I work for a grocery store chain in Ohio and a grocery store in Canada sends us their advertisements..Your turkeys are expensive!  In the US we usually sell them at a loss to bring customers in the store..oopss..probably boring everyone..sorry.

    Seriously Swanny..they told me about the fatigue and it never happened...just don't go there...remember its normal to get a little tired in the middle of the day anyway... but remember like Heidi said..take it easy...you may feel great and ready to go go go but maybe your body isn't ready yet..it will happen...we don't need you..or anyone else doing the passing out thing like Heidi...she was our one and only...

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited November 2010

    Titan - Turkey has always been more expensive here in Canada.  I grew up on the Michigan border so my mom always stocked up on them buy buying in the States.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Happy Turky Day to all my friends here in BC.org. I'm headed off soon to meet the (very possibly) future in-laws.

    Life is Good, isn't it?

    Warmly,

    Heidi

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  • Swanny
    Swanny Member Posts: 147
    edited November 2010

    Thanks for the info and warnings.  Besides work I do a lot of resting when I get home and then on the weekend.  Actually my life has been too boring and inactive since I was DX.  Then with mom passing away after taking care of her so long, I have to kind of rebuild my social life.  I'll start that after all the treatments are over.  It will be a good New Years resolution.  Happy Thanksgiving again to ALL!

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  • ebann
    ebann Member Posts: 3,026
    edited November 2010

    Swiftbird: Waiting on ins to be able to start chemo. We need approval they have approved one of them just waiting for the other one. They are hoping to hear from them on Friday so that I can start chemo on Monday the 29th. The chemo's I will be doing is: Abraxane/Avastin and then will be getting infusions of Zometa every 4th week. I will do chemo for every week for 3 weeks and one week off but not really since I will have to go in for Zometa. I am scheduled to do this for 6 months. My onc is planning on me doing a PET Scan in 4 months. So here is hoping it all works out.

    I really hope you can come and glad to hear you are doing well.

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  • slcst12
    slcst12 Member Posts: 161
    edited November 2010

    Happy thanksgiving ladies!

    MBJ: no--no scans yet. I literally got my dx 6 days ago and the TN status 2 days ago.

    With the holidays, I was lucky to get my surgery scheduled before the New Year. I have first-time appts with the medical oncologist and the radiation oncologist on Tues to discuss something--not sure what, since we haven't had the surgery yet.

    Have a great day ladies!

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Hi!

    I was able to clean and am now helping my husband prepare our Thanksgiving dinner.   I am not  X-mas shopping on Black Friday or the weekend, but will address X-mas cards and do a little decorating at home.   Mostly, I'll enjoy Thanksgiving leftovers.Wink

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  • PinkPeeCA
    PinkPeeCA Member Posts: 27
    edited November 2010

    has anyone been following Jennifer Griffen's  (blog) fox war news correspondents experience with TN?  She did CA x4 dose dense followed by T with carboplatin, then double masectomy, then radiation!  Money can nuke the cr** out of it. 

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  • MonikaV
    MonikaV Member Posts: 201
    edited November 2010

    Hi ladies,

    Just wanted to wish everyone a Happy Thanksgiving day. Kiss

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  • jenn3
    jenn3 Member Posts: 3,316
    edited November 2010

    I'm a little late, but wanted to pop in before the day was over and say Happy Thanksgiving.  I hope that everyone had a great day.

    Below is a paragraph from an email last year from Laurie with FranceLuxe - I rec'd mine within a month, a beautiful silk scarf with Swarkoski crystals in the shap of an angel on the the corner.  Email her and she will respond.

    If you or someone you know would enjoy either a scarf or an It's a Wrap - please email me at laurie@franceluxe.com and me and my staff will work to get it done for you.

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    PinkPeeCA,

    Money can nuke the cr** out of it.   What does that mean?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011
    PinkPee- Yes, I have followed Jennifer Griffen's blog on occasion, and recently saw her reporting on Fox News. However, I don't think money was the defining factor in her treatment (as it can be in the judicial system). Like many, she just has the good fortune of having a pro-active doctor and good health insurance. As I recall, she is Stage 3, so needs to be vigilant. I did wonder if she had a cook/maid/dietitian (whatever) who prepared her cancer diet though. Me, I just have a husband who loves to cook, and that is good enough for me! Wink
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