Visible ripples in implants

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  • joanne2
    joanne2 Member Posts: 74
    edited November 2010

    I had a bilat about two years ago... 5 revisions later... crossing my fingers I can get some nips and be DONE!  I too have ripples.. especially on my previously RAD side (seven years ago first occurance - lumectomy).  Co-pays and lost work have drained me, to add to it... I was trying to get back in shape and flipped over my bicycle handlebars and broke my clavicle!  At least the max out of pocket made it a free ride! lol!! 

    What can you say?  We made it this far, many things make of unique.. I now add a titanium plate to my silicone boobs!

    But as far as the ripples... if we had the tear drop shaped implants cleared by the FDA, the ripples wouldn't be the reality for many of us.  You can get them if you happen to live by a facility  in the study program, live in Canada or Europe (I believe they had them for 10 years now).  No, we get the stupid baggie shaped ones...  makes no sense to me!!! 

    I did fat grafting.. I am a thin person with very thin skin. My PS said he could shine a light through and see the implant!  The fat grafting didn't really "take" but my PS tried hard to mimimize the ripples with multiple revisions and a couple of exchanges...including grafting... they are not bad.. I do have a few ripples, but I am done with surgeries!  Mamma just wants a new pair of nips for Christmas!  Good wishes to all!

  • deekaay
    deekaay Member Posts: 328
    edited November 2010

    leeinfl, I thought my insurance paid for fat grafts since I got fat grafting when I had my nip/areola surgery.  It was only when I later asked my PS about further need for fat grafts that he said insurance doesn't pay for it, he just adds it gratis if he's doing another surgery for which he's getting paid.

    So my mission is to find out: 

    a) has anyone seen insurance reimbursement for fat grafts on their statement?

    b) has any one had fat grafts ALONE as a surgery that was covered by insurance?

    YES on either of the above questions would confirm that insurance does pay.  I am putting off just calling my insurance company since I don't want to hear them say NO. 

  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited November 2010

    leeinfl  thanks so glad you are here to talk with

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    leeinfl- So glad you are much happier with your results now.  I know how hard it is so psyche yourself up for another surgery (I also had 4 in 1 year) so I admire you for putting yourself through that to get what you want.  It's great that Dr. K was able to fix things for you.

    Determined- I agree with you- the loss of sensation is the greatest loss.  If I could have the feeling back I wouldn't even care about the damn ripples.  (OK, maybe I'd care a little.....) Hope your post op appointment goes better with your PS than it did with mine.  When I told her about the ripples she said, Oh yeah, sometimes that happens.  Nothing we can do about that."  WTH?  (When I got upset she said she should show me some photos of other women who have been horribly disfigured by their MX and then I would feel so much better about mine.)  (Wonder how those women would feel about being described as horribly disfigured.)  Needless to say, if I decide to do something about these ripples it will be with a new PS.  

    joanne2- Sorry about your bike accident.  (That's why I try to avoid exercise whenever possible- it is SO dangerous!  LOL!)  I've read a lot about those tear drop shaped implants.  I think they would look better but I heard they are much firmer so they don't feel as natural.  Why can't they make something that doesn't ripple and feels natural?  (I feel like Goldilocks- I just want the implant that feels just right!)  

    deekaay- Good question about the insurance.  I've been wondering that myself.  My PS told me they don't because it's a cosmetic issue.  How is it any different that them paying for a revision which they do?  I don't get it.  I'll be very curious to see what the responses are.

    So I sent an email off to a doctor who supposedly does the sensory nerve preservation thing.  I asked if this is something they can reattach after you've already had your implants put in.  I'll let you all know what she says! 

  • vanderlady
    vanderlady Member Posts: 154
    edited November 2010

    I met with my PS today.... I am so encouraged with this "new" PS..... I really think I'm on the right path.  We decided on 600 HP (perhaps 650) and then the tricky part will be matching the natural side..... we are thinking either 400 HP or 425 HP (up from 213 mod).  He has been great to work with and has spent perhaps 15 minutes at each visit just going over the calculations on the size.... great guy.  So open to my input.  So, I'm all set for a Dec. 3rd revision..... I'll keep you all posted.  Oh, and he seemed to think no problem in getting rid of that ripple... I was a little surprised at his certainty as most docs wouldn't do that.  Trying not to get excited because I don't want great expectations only to be let down again.  Pam

  • vanderlady
    vanderlady Member Posts: 154
    edited November 2010

    Kate -- Sorry about your doc' response .... similar to what my original PS said..... no wait, better yet, he offered to removed the implants and leave them out for a year.  I thought, what a jerk.

    PB -- What a great idea.  Yes, I sometimes worry about the women who get radiation without knowing all the complications that it can cause down the road...... ya know.... the clinicians don't really go into all that.  I had to ask for my NSM, the BS wasn't too forthcoming, however, it was the PS who pushed it through for me.... well, I do have that to thank him for even though I've now left his services. 

  • leeinfl
    leeinfl Member Posts: 317
    edited November 2010

    deekaay - I checked my insurance statement and the fat graft is listed under procedure code 15770.  Since this was a revision there are at least 7 other codes listed for the entire surgery so I don't know if that makes a difference or not.  It would seem to me that if fat grafting is necessary to achieve symmetry, then it should be covered. 

    Hope this helps....

    Determined - Dittto!  Sometimes we have to vent Wink and on here at least everyone understands.  No explanations are necessary.

    Kate33 - Thanks!  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    vanderlady- So glad you found a new PS that you're happier with.  Sorry, but the last one sounded like an ass.  Take your implants out for a year?  WTH?  And how exactly will that help with the rippling?  Really hope the new guy can give you the results you want and deserve.  Good luck!

    leeinfl- Thanks for sharing the procedure code.  It will definitely make it easier for finding out if it's covered by our insurance companies or not. 

  • deekaay
    deekaay Member Posts: 328
    edited November 2010

    leeinfl, thanks for the code, It's encouraging it was on your statement as part of your revision.  I agree that if it is necessary to get an acceptable outcome, thats part of what we are entitled to under the law.  I'm sure the rub is that symmetry or a reasonable outcome is open to intepretation.

    Besides saying insurance didn't pay for the fat grafts, my PS said he didn't think another round would help.  I know in the past I've heard other women talk about a series of fat grafts.  That's why I was expecting I would get more than one round.  Maybe he was just ready to be done.  I'm just going to give it 3-4 mos. and reevaluate then.

  • joanne2
    joanne2 Member Posts: 74
    edited November 2010

    fat graft/ insurance..  establish good comunication with your PS or better yet the insurance coding person of the facility.  Everything they do results in a ICD code... Keep all bills and EOB's from your insurance.  First make sure they pre-auth everything!  Ask if something doesn't get covered if they will eat the charge, (my place does that).  Also, if you get a non covered charge... call your facility be it hospital or clinic... In my case the clinic was fine but the hospital coded a few things with incorrect which was followed by me getting a $3,000.00 hospital charge.  I had to be persistant to get the hospital billing department to give me the codes they used, (extra effort for the billing gal... ho hum...), anyway it was completely stupid... reconstruction of my thigh???   I called my PS office, found out the codes they used, and told the hospital folks to use the same codes and resubmit.. it then was covered.  (spoon feeding yields the quickest results and less stress!)  good wishes everyone!  

  • PB22
    PB22 Member Posts: 315
    edited November 2010

    leeinfl-well said.  Chutes and Ladders.  You recover, get your strength back, some sense of normalcy, scars start to fade and then your knocked down again as everything and everyone moves on in life. Only the BC survivor would understand this.

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited November 2010

    joanne2-Wow 5 revisions? Why so many? Was it all because of the ripples or did you have other issues?  I too have many ripples and my skin is very thin. My Dr could have done the tear drop gummies for me and I chose the rounds because they seemed to be more of what I wanted. After my exchange I asked if tear drops would have helped with the ripple issue and he said no. He said I would have still had ripples even with them. Maybe slightly less but still some. I think in my case and maybe yours it has a lot more to do with our skin being thin.

    Kate33-I can't even believe how insensitive your Dr. was to your concerns. So not right.

    Vanderlady-that is so great you had a good appointment and have confidence in your new PS. I know everything is going to turn out great. I'm still contemplating a revision too. My only issue is I'm happy with my size and I'm afraid of being too large. If he can fix my ripples with only 50cc's I may do it. I talk to him again in Jan. It's hard to think about surgery again especially since my scars are starting to heal so nicely and I'm starting to feel somewhat normal. However, the ripples are not getting any better and if I decide to do a revision I'd rather do it sooner than later.

  • deekaay
    deekaay Member Posts: 328
    edited November 2010

    Joanne, good info about the ICD codes.  I think I'll call the hospital insurance office next week when I'm off and see what I can find out.

    Still, since my PS said insurance would not cover the fat grafts, I'm just not sure where I can go with that.  Calling my  insurance co. directly is unlikely to yield much.  It's like pulling teeth to get them to be clear on what they cover when it comes to anything "unusual".  I hassled for months with them on mastectomy products as an example.

    Going to do some research and see what I can find out.  I'll let you guys know what I find out. 

  • joanne2
    joanne2 Member Posts: 74
    edited November 2010

    Deekaay, I think my revisions were all coded as mastoplasty...  I'm going for a PS visit next week or so... I'll ask the code and info... it's up to your insurance if it is covered... I have blue x, blue shield... But it is a law, that they have to cover the recon and have an obligation to make them try and match... 

     Sweetie2040..Yes thin skin and one had RAD... the revisions... one uniboob fix, twice because the pockets sort of didn't hold despite the alloderm, ripples, and one more attempt to decrease the ripples and higher the position... PS said most heal with pockets that get scar tissue to form white and give a place to sew to... I heal like reynolds wrap!  Clear and thin..  I stuck with him because I think I have a hard case, and it's just the way I am... I'm now hoping I get some nips that don't look too stupid and I can start putting this behind me...

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited November 2010

    Joanne2-wow, you've been through a lot. You have a great attitude though and I wish you the best for the nips. I look forward to the day when I am not thinking about my boobs 24/7! I'm getting there though, I have moments, even hours when something about them are not on my mind!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    sweetie- Good to know that the teardrops probably wouldn't fix the rippling.  I was wondering about that.  I'm like you, in that my scars are fading so nicely, so the thought of another surgery seems so depressing.  I know I need to do something, though.  The rippling seems to be getting worse, my implants ache all the time, they feel like they're getting further apart (even though I wear a bra 24/7) and they just don't feel right.  Last night my DH and I went to see a friend of ours perform (sing and guitar) at a local bar.  Every time I applauded my boobs hurt.  This is so not normal!  I really hope there comes a day when I'm not thinking about mine 24/7 either!!!

  • joanne2
    joanne2 Member Posts: 74
    edited November 2010

    Alright girls... did you ask why you have pain??  I don't know if I am lucky.. or what, but I never had much real pain other then the first few days after each surgery.  I do not claim to have a high pain tolerance either... What does your doc say?  I work in physical therapy and certainly am not trained to make any calls here but I here this every now and then and wonder why some gals really seem to have pain.  I will say my biggest issue is the financial part as I am single, have a house a dog and a 17 y/o that likes shinny things!  Please, if I can be of any help feel free to ask.  Did you have nodes taken resulting in lymph drainage issues?  Not to be nosey, I just feel bad that in addition to going through this you have to deal with pain issues too!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    joanne2- My PS thought the pain might be related to my fibromyalgia somehow.  She said sometimes getting implants can aggravate fibro but they're not sure why.  I did have SNB on both sides but the pain feels more like I'm wearing an iron bra or something.  I am wondering if my PS did not make the pocket big enough for the implant or did not stretch the pec muscle enough.  (She did not overexpand me.)  My BS just wrote me a prescription for physical therapy but I haven't started yet.  (BTW, I also have a teen that likes shiny things!  LOL!)

  • deekaay
    deekaay Member Posts: 328
    edited November 2010

    Kate, our exchanges were around the same time in July if I recall.  I am really sorry you still have pain--that is not good.  Seems like a long time to have continuing pain.

    Here's my current status that I was not expecting, but I am still hoping for improvement.  I have the iron bra feeling all the time.  It is not pain, though, for me.  I just feel like I have a tight bra on all the time and I don't wear a bra much of the time.  It's not just residual LatD effects since I only had that on my bc side (almost a year ago for that surgery).  I feel the tight bra now on both sides.  Also, my incision line on my prophy side remains sore to the touch.  Weird, huh?  When I roll over at night, this incision actually hurts for a minute and then calms.

    It is frustrating not to know what's normal, what will fade, etc.  I didn't ask those questions at my post op. Wish I had, but I am not sure the docs know since our outcomes vary so much.  THE GOOD NEWS IS I am noticing the tightness less so that is what I hope--that over time, those weird feelings will fade either in reality or in my mind, if you get what I mean.

    That said, since you have PAIN, that needs attention.  You should not have to live with that. Maybe it's time to go back for a follow up?  deekaay

    P.S. I was overexpanded to 800cc w/ 650cc implants.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    deekaay- It is frustrating to know what is and isn't normal.  I do wonder if I'm just hyper-sensitive to every little thing and maybe it will fade in my mind.  I did bring up the pain issues at my last appointment.  My PS just wrote it off to my fibro and the BS's PA just wrote me a script for PT which I still need to start.  (Did I mention I am the Queen of Procrastination?)  As far as your incision still hurting- that doesn't seem normal either.  I wonder if any of the scar creams would help with that.  Maybe it's just not healing as quickly as it should for some reason.  I definitely can relate to the iron bra feeling, though.  I have to wear a bra 24/7 or I'm terribly uncomfortable.  So strange all these issues we didn't expect after exchange!

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited August 2013

    Kate33-yes that's what my Dr said and honestly I love the silicone rounds. I really feel that the tear drop wouldn't have been right for me. I don't think either type of implant is perfect. I think the trade off with rounds is slightly more rippling, but they are soft and moveable and that I like. In a bra I have no rippling,lol. I am at the same point as you not knowing what to do. Some days I just think ah well just live with. Other days I really want to have them revised but then worry it may not help so much. I think my pockets are pretty tight so I am also afraid if he put a bigger implant in there it would feel too tight. I also don't care about going bigger, really just getting rid of the ripples. Maybe I need to accept in my case it's not as feasable as it is for some others. Regarding your pain. I don't think it should be bothering you all the time. Did you have it with the TE? If it started right after your exchange that is seems it would definately be related to the implants or the pockets. I saw my physical therapist yesterday.( Joanne is on the right tract with her comment)  I had pain shooting down my arm and in my shoulder believe it or not it is all from my chest area. He explained how tight that area was and how much impact that has on your body. I really think you should give PT a try. My Dr doesn't want him touching the implant or that area but the areas around it should be fine. I like you am super sensitive to changes in my body. I can tell when something is wrong and I'm usually right about it! It is a good thing and a bad thing. I also hold a lot in so my body gets really tight and locked up. Maybe some stretching and yoga is in order. You definitely need more answers than you Dr's having been giving you.

    Deekaay-curious- you have the tight iron bra feeling and yet still have rippling?

    Joanne-I really wish I could do fat grafting. My Dr doesn't do it for ripples only indentations. I wonder if I should pursue finding someone who does or try a larger implant first. Which comes first fat grafting or larger implant, who knows what would work best.

    I too have teens. One who likes shiny gadets and one who likes expensive brand names! GRRR, Christmas is becoming about going broke, don't like that!

  • whitedove
    whitedove Member Posts: 292
    edited November 2010

    http://community.breastcancer.org/forum/44/topic/747737?page=2#idx_31

    Hello there! Just following the thread and wanted to know if you had seen this other BCO thread called, "Has Anyone Had Micro Fat Grafting?"

    ...continuing to learn about the ripple issue. thanks for your posts.

  • deekaay
    deekaay Member Posts: 328
    edited November 2010

    Yes, Whitedove, I followed that thread a while back, but most of the posts had to do w/ Dr. Khouri's work.  Since already had my exchange, after I got the gist of the discusion, I quit following.  I'll have to check back to see where the discussion is now.

    Sweetie, yep, I have the iron bra feeling AND ripples.  Most of my iron bra feeling is along the bottom of the bra line.  I feel it whether or not I have a bra on.  But all of my chest feels tight.  As I mentioned previously, it doesn't bother me all the time now.

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited November 2010

    Deekaay-I don't have an iron bra feeling, but a very numb feeling. My husband hugged me to day and it felt weird, like something strange was inbetween us. Because it feels so tight I wonder if a larger implant would help with rippling at all. I don' t want to end up feeling tighter. I think some of the tightess could be the muscles around the area too. My PT told me I was all locked up in that area and it can cause all kind of pain and tightness. Have you tried PT at all?

  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited November 2010

    Hi everyone,

    PS last night. Agreed to exchange on the left for ripples and place alloderm. Won't do the right because I said I was pretty ok with that side. My concern is the left is 400cc now and the right is 450 cc and they are pretty symetrical.  If I go to 450 on the left will that throw it all off?  He said 50 cc won't make a difference I can see. So why didn't we put the same size in to begin with.

    He said I need to take a week to think about it. To think whether I am okay with what is there now or do I want to change it out knowing there are always risks. I asked him did he think he would be successful and he said yes or he wouldn't do it but there are always risks. The left is where I ha the incision break open.

    I am happy with my size now but just not the ripples. I asked about the fat grafting and he said there are lots of issues with them cysts, infection, hardness etc and he really didn't think I was a candidate. He thought maybe someday fat and stem cells will be the answer. 

    I am really torn. With all the complications I had do I leave it alone?  Or do I try it?  My wonderful husband said don't make a decision in one day. Do I get a second opinion about not increasing the size on the right to try to keep it symetrical? 

    Wow I wish I knew what to do. So that is what happened. We did a lot of laughing in his office which is always good. I get a iron bra feeling still at 7 weeks post op. And when I turn it feels tight but it is getting better each day. 

    Someone was talking about pain. I needed to take Neurotin for awhile which is what they give to people with shingles to help with nerve pain. After three surgeries in a month on both sides I was one hurting girl and it really helped.

    Have a blessed Thanksgiving everyone. This is my favorite thread.

  • deekaay
    deekaay Member Posts: 328
    edited November 2010

    Sweetie, I have the same weird feeling like you describe--like a foreign feeling on my whole chest.  This is in addition to the iron bra.  I don't notice it 24/7, but still very often.

    Yeah, I too have the feeling that a larger implant OR a tighter "tuck" on the bottom of exisiting implants would get rid of ripples.  I feel this because when I pull the skin tight at the bottoms of my breasts, everything tightens up and ripples disappear.

    However, my PS says that larger implants would not resolve ripples for me since all implants ripple.  Plus after having these 650's for 4 mos. now, I definitely don't want bigger.  I'm really tall at 5'10" so they don't look big, but I don't want more heaviness, more chest, etc.  I was a B before so even going to a C (although officially Nordstrom's say D) seems big to me.

    The dilemma is exactly what Determined describes.  Hard to decide when we are happy with size, but not ripples.

    Well, tomorrow, we can concentrate on our tummies and enjoy Thanksgiving with family and friends.  Wishing everyone a lovely day, deekaay.

  • funsizejen
    funsizejen Member Posts: 93
    edited November 2010

    Determined, I don't know if this is the case with your different-sized implants or not, but my PS told me that he often uses a smaller implant on the left because the ribcage is often larger on that side (b/c that's where the heart is located). 

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited November 2010

    Determined-I feel for you. It is a tough decision to know what to do. In some ways it is good to be done with all this and just try to accept things. In other ways you think why shouldn't I have the best result possible. I agree with your husband, take your time and really think about it. I always say think about what is most important to you and it will come to you. If it does make you feel better you could get a second opinion just to feel confident about what your Dr is telling you. I took Neronton too for a while when I came out of my first surgery and it helped.Keep us posted, we're in this together.

    Deekay-we are in the same place too. I understand not wanting to go bigger. I feel big enough. I think C but Nordstroms tells me D. Doesn't seem that big to me but big enough.I wonder how much bigger we would have to go to get sufficient resolution of most of the ripples. I bent over in the mirror today and the ripples are at the top and bottom. Just everywhere. It's weird though because the implants feel tight enough and they don't move around. Makes me think my skin must be really thin. I read something about using additional alloderm in cases where the skin is really thin. I'm going to ask at my next visit. Oh well for now like you said lets all just eat and be happy, enjoy our family and be thankful for having made it this far. I'm still very grateful ripples and all!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    deekaay- You summed it up perfectly- a foreign feeling on my chest.  This sensation was so unexpected.  I never saw anyone describe it in any posts.  Surely we can't be the only ones!  I know I definitely don't want to go any bigger (and my PS said it would make the rippling worse since it would make the skin even tighter and thinner on the implant).  Like you and Sweetie I'm a D (according to Nordstrom's as well) though I feel more like a C which is plenty big enough.

    sweetie- Just to let you know- my PS used GOBS of Alloderm during the TE placement and during exchange.  (So much I'm surprised my insurance company actually paid for it.)  And I still have rippling everywhere.  Makes me wonder how bad it would be if she hadn't used it.

    Just wanted to say Happy Thanksgiving to all of you, too!  I'm going to try to have one day where I'm not obsessed with my boobs and just enjoy the day! 

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited August 2013

    Kate33-well if a larger implant is going to make things look worse than that's no good!! I was wondering that myself.  My PS did place alloderm at the time of TE too but I don't know how much they use. If more of that won't help than there goes that option. It looks like there really aren't any feasible options than for us is there? 

    Hope everyone had a happy Thanksgiving. Now it's time to focus our attention on shopping!!

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