Calling all TNs
Comments
-
Kelley - good news. Thanks for letting us know!
-
Kelley: WooHoo!!! Wonderful news! So happy for you! Did they say what it was?
-
Kelly: What a relief! Emjoy your weekend!!
-
Wonderful news Kelley!
-
Great News Kelley! Celebrate!
-
Yeah Kelley!
-
Kelley41 - So happy for you! What a huge relief!
-
Great News Kelley!!
-
Kelley...YAY..what was it after all???
-
Kelley:
Hooray! So happy about the news.
Linda
-
Kelley41,
Great news!
-
> Lovely Face, I start the Taxol after Thanksgiving, have been very concerned about stopping AC which is working, your note helps me relax and move on. Thank you.
-
Kelly: Yay for B9!!!! Congratulations!
Happy Friday!!!
-
Kelly - Congrats!
Question: My last chemo was Sept 30th (Taxotere). I just noticed today that I have lost most of my eyebrows. I lost my eye lashes and hair during chemo but I always kept my eyebrows (albeit they are thin to start with). Anyone lose their eyebrows AFTER chemo was over?
-
Swanny - It's normal. A lot of gals lost them after chemo ended, some gals got theirs back (eyelashes and brows) only to lose them again at 6 months out. Doesn't seem to be a real pattern that fits us all. They will come back and stay - eventually. I lost mine - all of it - during chemo - and my eyelashes and brows started to come back - s l o w l y - about 6 weeks after chemo ended, but really slow. I didn't lose them again, though my brows are a bit thinner than prior to chemo. I also think my hair is thinner too since it came back. It was never "thick" hair, and no one can tell it's thinner, but I can.
Another rad down the hatch!
Linda
-
Kelly - great news, glad to hear the good news.
Titan/Sugar/Heidi - I haven't heard about black salve or drawing salve in years. My friend's MawMaw used to use it on us when we got splinters and I thought it was so weird, but it worked. I didn't realize it was something that was used on horses. I figured it was something that was all but obsolete by now.
Swanny - I lost my eyebrows and the last of my lashes after chemo. The good news is they were the first to grow back.
Pinkpee - love the list and the mascara made me laugh.....
-
If anyone wants that salve I can send my mom in law to Amish Country to get some..actually I need some more! It really stinks but it does work!
Pink..how many AC's have you had? 4? I had 4 and I think that is the plan...I did ask the chemo nurse if I had reached my lifetime max at 4 doses and she said no..but that there is a lifetime limit...good luck with the Taxol..I totally freaked out about the Taxol b-4 I started taking it..not sure why..guess I was used to the Ac...knew what to expect.
Taxol is clear not red like AC...they will watch you closely for the first 15 minutes to make sure you are not allergic. I had to take a couple of pills in the middle of the night b-4 each infusion. They will also monitor your blood pressure...if you don't have a port it hurts like heck to have the bp taken every 15 minutes...because it pulls on the IV..after awhile I got smart and just unhooked the BP cuff...the nurses finally chilled out when I told them I was fine..some nurses were more anal than others...
-
Kelly, that is just wonderful news, I am so happy to hear that! What did they say it was? I am feeling a couple of somethings at the very top of my right breast right now. But I am on chemo, so am wondering if one can still get lumps during chemo. Anyway, I doubt it is anything like the one I had which was cancer, so I will have to get that checked next week. Was it a cyst?
-
Hi Everyone! It was great catching up on all of the posts. Scares, fears, laughter and congratulatory dances all in one dose. I hope everyone is having a great week-end.
I went up to Indy and got two more opinions from 2 different oncs. My onc. has not seen me or returned any of my calls in the last two weeks. Last I heard she wanted me to do radiation(Standard protocol after surgery) Doesn't make sense to me with 14 out of 20 positive lymphs. I got a call from hospital last Tuesday saying I was scheduled for chemo. WHAT? no one had mentioned this to me. Still no return phonecall from my onc. I went to a second onc. up at the National Cancer Research Center in Greenwood she said rads standard blah blah blah! Went to the third up in Indy at the Simon Cancer Research Center IUPUI (Part of the Cathy Miller team). Wonderful! She spent over an hour in a half with me and never even looked at her watch. Not once! I love her. She started with the whole rad thing and then I looked her directly in the eye and asked her what she would do if she were me and she said skip rads and jump on chemo to try and prevent mets. Hallelujah! She is also thrilled that I am going to Sloan Kettering on Tuesday. The onc I will be seeing at SK is the one that started DD chemo therapy through the original clinical trials and specializes in TNBC. She said that would be the first place she would recommend if it were an option for me. She has tentatively scheduled me to start chemo (Maybe carboplatin/Gemstar) the day after I get back dependent on what SK says and or suggest. SK also have me scheduled to see one of their integrative docs after my appt. with their onc. I am so happy about that because I am sick and tired of docs here saying don't take anything, no herbs supplements vitamins etc. I finally feel like I am in capable, compassionate caring hands. Well worth an hour in a half drive back and forth. Plus she wants to see me every 2 weeks while I am on treatment. I also am glad I am taking more control of my medical choices. I know all of this is dependent on what SK says they may even have a clinical trial. I'll find out this Tuesday.
I am having Thanksgiving dinner here tomorrow because I have decided to go ahead and spend a whole week in New York and have as much fun as possible while I am feeling so great. I hope all of you have a wonderful week.
Laura
-
Laura, Please have a lot of fun in NY.
-
Why men shouldn't be allowed to take phone messages:
-
too funny, Heidi, thanks!
-
Swanny- Thanks, that is my plan.
hiedi- thanks for the humor.
Life is good until we make it and decide it is great!!!!
-
Heidi - what a hoot. My DH got a kick out of it too.
-
Laura
I am somewhat confused - you mean you are TN with 14 positive nodes since May, and your Onc. had not prescribed Chemo yet? If that is the case, kick him out, man, that is shocking. I am so glad you have found someone so good now, I feel like coming and seeing the same doctor, no matter where she is. Good Luck with everything. I think you gonna be fine now that you have someone so great.
-
Ichthammol Ointment should be obtainable in tube or jar form at any good pharmacy.
-
Yeah. Yeah! So happy for you Kelly!!
-
Sorry in advance this a rant that I need to get out!
Well this year really SUCKS - BIG TIME!!! So I get cancer, sister has had at least 3 surgeries for other stuff and this past thursday my baby boy (DOG) of only 3 years was hit by a car right in front of me and died instantanoulsly! He was my guy that got me through all of the other sh** in my life and now this. I love him soooo much - how does someone get over something like this?! I just don't think I can handle it. I know he wasn't a person but he was my little guy that I loved like a baby! Some of you may think that I am crazy but it hurts really bad right now. If anyone wants to and can prayers sent my way and for my baby - Mike, would be great. Even though I am pissed at the big guy right now anything to get me through this would be accepted with open arms! Thanks.
Kelli
-
Kelli: Oh I'm so sorry to hear of all that's going on! You're not alone... I've had a rough year too. Oh, and your baby boy will be waiting on you in Heaven. I'm a firm believer. No, he wasn't human, but with God all things are possible! I lost my dog of 16 years last year, and he's waiting on me too. I wish I had an answer as to why everything keeps going wrong. But none of us have that answer. I will say a prayer for you though. You lost a member of your family that you are mourning.. it's just as hard as the death of a child for some people.
-
Kelli - I completely understand. My thoughts are with you now. My little buddy Brandie (bichon-poodle) provided companionship when I went through my treatment and I know how hard it would be to lose him. I don't know what to say. The only saving grace is that it was instantaneous and he didn't suffer.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team