Starting Chemo in June 2005

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  • RebeccaH
    RebeccaH Member Posts: 72
    edited November 2005
    I'm done with rad #2 (only 28 more to go)

    I am finding it quite interesting the number of ladies going through rads. During chemo there were probably 80% men. Now, I've only seen one man waiting for rads. It's nice to be in company with ladies' whose hair is growing out. Feels like a whole new common connection. I actually ran into a gal going to the restroom, and I boldly said, "we have the same hair style." It was almost a revelation for me.

    The eyebrows and eyelashes are falling faster than my hair did--and they are almost gone. I guess I'm going to have to break down and get the stencil on eyebrows. It's a weird feeling.

    I do LOVE the feel of my fuzzy white hair. My husband finally acknowledged that it's coming in really quickly. I've been using Nioxin, and I do think it's helping. It's almost worse than Mary Kay, though....it's a multi-step program....Just when I was settling into fast showers and getting dressed in the morning...I'm back to shampooing, conditioning (which has actually been good for dry scalp), and then there's a scalp treatment. I haven't used the follicle booster, yet. But, if it yields more hair, sooner, then great!
  • Watson
    Watson Member Posts: 1,490
    edited November 2005
    Jenster,
    Your hair may only thin a little. I just shaved mine for uniformity. I was totally addicted to rubbing my white fuzzy scalp as well!

    Hairs to you!

    Watson
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    Quote:

    Hairs to you!




    LOL!!!

    Jen
  • minerva
    minerva Member Posts: 36
    edited November 2005
    Hi everyone! Haven't posted in a while. I had my mastectomy on Monday and am doing good. I am a little sore but nothing I can't handle. I have to have oxygen for a week because I don't seem to want to breathe, lol. I go today to have the bandages taken off. Kinda nervous because I will see the incision, but I remember the story about the "Winking Pirate".
    My hair is finally coming in. I was outside yesturday and looked at my shadow and lo and behold, my hair was casting a shadow also, lol.
    Take care everyone. Hugs
  • Watson
    Watson Member Posts: 1,490
    edited November 2005
    Minerva,
    Happy to hear you're doing well! The winking pirate! That was soooo funny.

    Has anyone heard from Scout lately?

    Watson
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    So glad you're doing well, Minerva. That initial look at the incision was kind of surreal for me. You'll do just fine!

    And I was the "winking pirate". lol. I know this is TMI, but my pirate has his goatee back.

    Jen
  • MichelleB39
    MichelleB39 Member Posts: 51
    edited November 2005
  • rmmom
    rmmom Member Posts: 168
    edited November 2005
    I did it! I had my last treatment Monday! Happy dance here.
    Everyone was so nice-I gave them brownies at the request of ds #2-he wanted the edges and didn't think I should send those in with me. They gave me a pink bear-so cute. Of course I still have to go in for counts of stuff-and to see Dr. Flake- you know she told me to not get excited over any aches and pains I may have in the future-that most of them will be all in my head-DH said she really doesn't know you does she. Wonder what she would think if I took in broken pieces of me "Here my arm fell off, do you think I should worry yet?" Whatever. I am done. Have to keep the port a bit longer but I don't mind.
    Hope everyone is well
    Love
    Bev
  • rmmom
    rmmom Member Posts: 168
    edited November 2005
    PS
    I want my eye lashes! How long until I get them back???
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    Yay for you!!!! I'm dancing with you!! And eating brownies!! (Actually, I made some brownies this morning. lol)

    DH and I ordered cupcakes the other day for my last treatment. They're going to be chocolate with vanilla icing and pink ribbons. I'm taking two dozen to my onc's office and keeping a dozen here to eat with the kids, my parents and in-laws. Any excuse to eat chocolate and sugar, I say!!

    Congrats again, Bev. I know you're happy to be done.

    Jen
  • LizFL
    LizFL Member Posts: 377
    edited November 2005
    Congratulations and welcome to the finish line Bev! Hooray!

    I got my PET scan results and it is NORMAL...this nasty chemo stuff really works! When I went for my blood work Wednesday...since I had already finished chemo at the hospital due to the hurricane...they still gave me a big bell to ring to signify the end of chemo...got all choked up and cried all the way to my car!

    Now I only have one doctor's appointment before my cruise and then I will be free! Of course, when I come back I will be starting radiation, but it will be wonderful to have a few doctor and work free weeks!

    Minerva...glad your surgery is over. It is quite shocking at first to see yourself...but you do get used to it. It's been six months since my mastectomy and sometimes I forget that I'm missing a breast! It will all look better after some healing and you will eventually become comfortable with yourself again.

    I am so jealous of all of you that are getting hair...I get a teeny bit more fuzz each day...but still have to look hard to see it. I enjoy rubbing my head too. At first the fuzz was only in a few spots, but slowly it seems to be coming in all over...but by no stretch of the imagination could you say I had hair. I really want my eyelashes back too!

    Liz
  • Analemma
    Analemma Member Posts: 1,622
    edited November 2005

    Five more rads (boosts) to go after today. So, so tired. And unmotivated. I should be in the studio, but am sitting around instead.

  • kimBe
    kimBe Member Posts: 101
    edited November 2005
    Tired and unmotivated...I have Taxol #12 next week and then I'm done....should be elated and I am just kind of floating along....need to post more often, but can't seem to even think of anything to say other than I sure am glad not everyone has gotten as apathetic as me! Have a good weekend and maybe I'll be more chatty next week.
    KimB
  • Watson
    Watson Member Posts: 1,490
    edited November 2005
    Ladies,
    Lounge and float around as much as you want! Lord knows I've been holding the bed down a lot more than usual lately! I've still got one more Taxotere left then rads won't even start until after first of year.

    Who in here still has surgery left to do?

    I had lumpectomy in May and now face my first six months post check up with surgeon on the same day as my last chemo. I'm skeert! I keep conjuring up bumps and lumps in my BC breast. I can't keep my hands off my boobs! If I'm not rubbing the fuzz on my head, I'm feeling myself up!
    lol

    Anyone else have this strange compulsion?

    Watson
  • Scout
    Scout Member Posts: 76
    edited November 2005
    Sorry I have been missing in action for so long. I had a terrible time with Taxotere! I was getting it every 3 weeks until after the second dose....I was in bed racked with pain for 8 days. My Onc decided to try the every week dose...which was fine the first dose, but then back to the horrible pain. Anywho, my Onc felt I had had enough chemo and I had all my chemo except 2/3 of one dose.
    I interviewed several plastic surgeons and decided on one that I really liked. My surgery is this Tuesday at 8am. My Surgical Onc. and the Plastic Surgeon will be working together, so the surgery will be about 5 hours. I will spend the night at the center. It's not at the hosptial, but a surgery center that has about 10 beds. Both doctors hate the hospitals and said I am much safer from contracting germs away from the hospital.
    I have also been dealing with alot of depression. I don't know if it's hormones or not. I am comfortable with what I am doing, but maybe I am surpressing my feelings...who knows. My blood pressure has been high so I had to see my reg dr to get that under control.
    I'm glad to hear that some of us are ending treatment soom...yea!!!!!!!!!!!! I am having reconstruction done so hopefully this will be the end of the road for me. So far, they said I won't have to have radiation...and maybe not more chemo...let's keep our fingers crossed.
    Anywho...that's what going on here!
  • JoMac
    JoMac Member Posts: 192
    edited November 2005
    I am trying to schedule my "oomph". I think it will probably not get done until January.
    I too have my six month check up and mammogram with my surgeon.
    Yup, I am scared.
    The truth is I am scared most of the time.
    Now that treatment is almost done I have more time to dwell in my own head and worry.
    Did any of this work or just put things off for a while.
    I don't say it outloud anymore. I promised my family I wouldn't.
    But I do still think it.
    I was very busy in the studio last weekend doing pictures of my daughter but this weekend I haven't worked at all.
    I feel "run down".
    maybe tomorrow I will feel differently.
    I have six more boosts to have done . That is 12 hours of driving.
    I think I'll sign up for some counseling before Christmas.
    I feel unbalanced and heading into the holidays that is never a good position to be in.
    I look a lot better than I feel....and I look pretty weird.
  • LizFL
    LizFL Member Posts: 377
    edited November 2005
    Jo..."I look a lot better than I feel....and I look pretty weird." How true! People tell me I look good and I think compared to what? When I first started reading these boards I read about a woman who thought about dying every day...her onc asked her if she really wanted to look back in a few years and realize how much time she wasted thinking about dying instead of living life the best she could. Whenever I get scared or depressed I think about that and for some reason it helps me. None of us can predict our future...it's in God's hands so we might as well enjoy each day in whatever way we can. Easier said then done when you're feeling down...but sometimes I have to say that over and over to myself. Right now I feel so worn out and tired it's hard to feel any oomph about anything...but I know it will get better. I thought that once I finished chemo I would just bounce back to my old self...now I realize it is going to take time to heal and feel some energy again and I'm doing my best to accept that and just not worry about things. I was very worried about the results of my PET scan and it turned out fine. It will take us a long time to ever feel safe having tests, but eventually it will probably be something we learn to deal with and feel less vulnerable about as time goes on. We have been through hell, but we are all still here and we are all making progress.

    Scout...good to hear from you! Will pray that all goes well for you on Tuesday. Sounds like you are definitely moving along now and that things are getting better just having everything planned out. Let us know how you are after surgery as soon as you can.

    Liz
  • minerva
    minerva Member Posts: 36
    edited November 2005
    Jen - Thanks for reminding me it was you that wrote about the winking pirate. I have shared that with a few people who are dear to me and they enjoyed it as much as I did. I saw the incision, whew, but I know it will get better. Liz and Watson -Thanks for reminding me that it will get better.

    Scout - my prayers are with you. I hope everything goes well for you!.

    Hugs to all!
  • JoMac
    JoMac Member Posts: 192
    edited November 2005
    I am feeling pretty cool about having hair .....
    my daughter came home and saw my hair for the first time and said "You look like a convict"
    You know she's right.
  • NancyM
    NancyM Member Posts: 289
    edited November 2005
    Jo, that's a funny thought about looking like a convict! I look pretty weird right now, too. Shadows of eyebrows coming in, microscopic eyelashes, white/dark/fluffy hair, globby around the middle since I haven't been exercising, chin hairs, radiation pinkness on my chest, missing 2 toenails, oh....UGH! Makeover team....STAT!

    Bev - Congratulations on being done with chemo!! YAY!!! Your eyelashes should be making a comeback pretty soon, isn't that wonderful!

    Jenster - are you done, too?? WAHOO!!! Fabulous!!

    Scout - I hope your reconstruction goes well! I hope you are feeling better and your BP is back to normal! I hope the depression is TEMPORARY!!

    Watson - that is so funny about the boob/hair obsession. I have a hair fetish now, and offering for other people to feel it, too (I haven't asked total strangers yet, but if I had a couple of drinks, well, I just may be unable to control myself...) But I am still too paranoid to check for new lumps. It's kind of a boob aversion, but I will have to get over that soon.

    Liz, I'm glad your scan went well. I'm jealous of your cruise!

    Brenda, you will be done with rads this week! So cool! There is the finish line!
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    I still have one more. A week from today will be my last. YAY!!!

    I'm still shedding like a dog in the middle of summer, but continue to go without hats. It's thinned some, but as of right now I'm still comfortable topless. In fact, I spiked the hair on top of my head this morning just for fun. lol. I can't wait to hear what the smartalec techs have to say when I go for my labs in a little bit.

    Jen
  • Watson
    Watson Member Posts: 1,490
    edited November 2005
    Jenster,
    You Brat! Your last chemo day beats mine by one day! Mine will be on the Wednesday before Thanksgiving.

    If those labtechs say anything, shed on them!

    My oncologist is making me wait three weeks to get the port out. The radiology department won't be open after Thanksgiving for me to make the 2 day window before WBC's start dropping, so Dec 14th it is. No biggie, my port doesn't even really bother me. Mine was the internal one in my arm instead of chest. I just wanted it all to be over. sigh

    Watson
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    Watson - nanny nanny boo boo (no pun intended - LOL!) The lab techs didn't say anything so neither did I.

    I have no idea when I get my port out. It won't be before the 15th of December, though. That's my next appointment with my onc. My port is in my chest, but it's not been bothering me a whole lot, either. But I know what you mean. I'm ready for it all to be over, too!

    Jen
  • danahollis
    danahollis Member Posts: 161
    edited November 2005
    Hi Junies... It's hard to believe we've all come so far, huh? It's so good to see we're all getting through this. The road is tough... but having you all has made it a bit easier. Thanks!!!

    I've been posting here and there on the boards, but I always read our thread. You all are the most awesome group of women!

    HUGS!
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    I saw my surgeon for my 6-month check up today. She told me I have nice flaps. LOL! Don't believe anyone's ever told me that before.

    So are you ladies ready for turkey day? I am! And then I'm going to quit eating. I've gained 20-freakin-pounds! Yikes. And now it's the holiday season. Double yikes!! Oh well. There's always next year.

    Jen
  • rmmom
    rmmom Member Posts: 168
    edited November 2005

    "There's always next year."


    Jen that's the best quote I read on the boards!!

    It is so great that we can say there is next year. It gave me a Happy Happy feeling...I am smiling ear to ear.
    So eat turkey and be merry...because we have next year!
    Bev
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    WOO HOO 2006!!!!!!!

    thanks about the quote. That would be from John Lennon. I came across it after my diagnosis and I thought it was perfect. We were in the middle of making other plans, i.e., moving to another state. And all of a sudden, life happened!!

    Jen
  • NancyM
    NancyM Member Posts: 289
    edited November 2005
    I was online for the ER/PR neg conference. The transcript will be posted Nov. 23 for anyone who is interested and didn't see the conference last night. Here is my take on the information, and keep in mind I may have misunderstood some of the details:

    Even though estrogen is not stimulating this type of cancer, other growth factor receptors or protein receptors might be, such as epidural growth factor (EGFR). They are looking at some drugs (such as Iressa and Tarceva) to target EGFR. Apparently, testing tumors for this factor isn't very accurate yet, or they are not sure if the drugs are effective for that specific receptor, I'm not clear on that. But how exciting that there may be a drug for us on the horizon!

    And the fact that exercise and a low fat diet makes a bigger difference for ER/PR neg women (for recurrance rates) shows that something other than estrogen is affected by being overweight. That has really motivated me to try harder to lose weight now that I know a bit more about these growth factors and proteins that I never knew anything about before.

    Also, hormone receptor negative tumors occur more frequently in younger women. The recurrance rate is higher the first 5 years, but HR pos. rates are more constant. Therefore, after a few years the recurrance rate is about the same.

    Here's to the Junies being 100% recurrance free!
  • danahollis
    danahollis Member Posts: 161
    edited November 2005
    Thanks for the update Nancy! I'm sure going to be watching for those drugs!!!

    Hugs!
  • LizFL
    LizFL Member Posts: 377
    edited November 2005
    Saw my onc yesterday and now I have no doctor's appointments until 12/12, when I start rads. Don't have to be back to regular onc until 12/21. Nice to get a break! Only disappointment was that onc now wants me to wait until after radiation to have port removed. Feels everything should be one step at a time. Good thing it doesn't bother me...but I do want it out!

    They seem to be having a difficult time drawing blood from me lately...I keep trying to tell them they took it all...but apparently they don't believe me. Also, I am still having joint pain three weeks from the last of the 4 Taxotere treatments.. Anyone else dealing with either of these problems?

    I am actually starting to see hair on my head! It looks much darker than my normal color...but I had been having my hair highlighted for years so who knows. So far it's only in a few spots...the rest is peach fuzz. Eyebrows starting to grow back...but no sign of lashes yet. My nails look horrible, but they will improve over time.

    Only 9 more days until my cruise...I can't wait! In retrospect, this year has been going very quickly...although it didn't seem that way when I was getting chemo. I have a feeling rads will go fast...I hope I am right!

    Liz

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