The Agony

g-onnie..cant seem to get to your home to PM u..hope you  get this.am still mailing cards toCarole..whats her syatus? has she gone home, or  elsewdere from hoapital?please advise

I did MUCH better on the Taxol although I had some strange se's that no one could account for (abdominal cramping day 2 after tx), so I guess I'm just a freak of nature.  But it was WWWAAAYY  better than A/C.  You're going to make it and be fine I just feel it.

Take care,
Sharon

((((hugs)))).  So sorry you've been having such a rough time.  I had some of the same problems your having.  I finished chemo almost 2 and a half years ago.  Take one day at a time, like others have suggested.  You'll get through this.  I, too, developed an infection and seroma in my mastectomy site which held up my chemo.  I spent a week in the hospital with it. then was discharged, I would get an abcess in the incision, that would come and go, but after about 6 months, it completely healed and I haven't had a problem with it since.  I also experienced really bad nausea and vomiting the entire time I was going through chemotherapy.  It didnt' matter what drugs they gave me to counteract it, nothing worked.  I had to go in one time for them to run 3 bags of saline through my port because I got so dehydrated.  And I recall the smells and odors that I couldn't stand to be around.  My husband once lit a candle and I had to go out of the house.  Another time, my Mother heated something up in the microwave and again I had to sit on the front porch for about an hour while feeling so sick.   Any smell made me so nauseated especially after the first chemo.   it was hard, but I got through it.

I had my gallbladder removed about 10 months following chemo.  I was having nausea and vomiting and they determined through testing that I had a non-functioning gall-bladder. I had to stay away from fatty foods, any fried foods. 

A suggestion, if you continue with the nausea and vomiting following your chemo, and nothing seems to help, talk to your doctor about Gastroparesis.  I've had nausea and vomiting ever since finishing the chemo and have been going to a gi doc ever since.  1st had the gall bladder removed, then developed C Diff infection after a round of antibiotics.  Once that infection was killed, I still had nausea and vomiting.  Had a lactose intolerance test which was positive, so I limit the amount of lactose in my diet.  Still nausea and vomiting wouldn't go away. I had an egd which ended up being normal.  They finally did a gastric emptying test and I failed the test bigtime. Turns out, I've had gastroparesis all this time along with the other problems I had and that's what was causing the nausea and vomiting.  It got so bad that I was fitted with a gastric electrical stimulator 3 weeks ago. (a  gastric pacemaker).  And what a difference it is making.  I'm off phenergan and am able to tolerate food in small quantities. 

I don't mean to scare anyone, but if anyone has chronic problems with nausea and vomiting after chemo has ended, please discuss this with your doctor.  since it took them 2 years and 3 months to diagnose me, if I can help even one person not have to go undiagnosed for so long, than it was worth me going through it. 

Best of luch to you. 

take care,

Deb