Starting chemo January 2009?

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  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited November 2010

    Jess-hope you enjoyed your day off, and I'd call it a legit personal day! Congrats to your dd. Did she do that in high school too? My daughter had to choose between that and the Y's Youth and Government, which she's going on a 3-day confer. tomorrow, but it seems that the Model UN can really lead to bigger things!

    Well, I got today off for Veteran's Day. Thanks to all our vets,and i thought of my WWII dad (departed, sadly) all day and the stories he could bring himself to tell us.

     Tomorrow is the 2nd anniversary of my mastectomy. Went on a long hike to celebrate life today with dh and son--crystal clear autumn day. Tomorrow meet with the GI guy to talk colonoscopy. I'm 54 and have been avoiding it. Have work tomorrow so good night!

  • Renrel
    Renrel Member Posts: 497
    edited November 2010

    Yesterday was my 2nd anniversary for the bilat, so official 2 yrs cancer free.  Was off with DS for Vetern's day.  Did a litte gardening (cutting down the dead stems and digging up a few plants that don't winter well outside.  Took DS to use his gift card at Barnes and Noble and they did not have the toy he saw last time and wanted.  But he did get a yo-yo set, another game and a book.  At night DH and I enjoyed a bit of nookie and one of the things that made it particularly enjoyable was the fact that we could since I was very aware that for about a year after surgery our sex life was probable good for a couple dealing with cancer treatment but certainly not very good.  My body was even behaving like a young woman's instead of a dryed up woman's, if you know what I mean. ;).  I took today off to have a 4 day weekend.  Trying to clean up the Guest room which I use as a dressing room.  There are piles of cloths and such on the bed, on the floor and on the dresser.  My goal is to make the room look like peope and not wolves (or frat boys) live in this house.  I am also getting my hair cut and colored this afternoon.  I am way overdue and this curly hair shows the passage of time more than my old wavy hair did. 

  • Renrel
    Renrel Member Posts: 497
    edited November 2010

    I did my 3rd level Reiki today.  I am now a Reiki Master (which is not as  high felutin as it sounds).  What it means is I can not attune others so that they can do Reiki, but I am not really ready to teach a class until I have more experience and take more classes, but theoreticly I could.  Maybe I can talk me engineer/non-believer husband into letting me attune him and they maybe he can do reiki on me.  But given that it is turned on by intention, and he does not really believe much in it (though he respect the fact that I do and is happy I enjoy it and supports my efforts) I have a feeling it would not work to well.

  • ktym
    ktym Member Posts: 2,637
    edited November 2010

    congratulations Renrel

  • momand2kids
    momand2kids Member Posts: 1,508
    edited November 2010

    Dear all

    My date for excisional biopsy is December 6--- 

    Surgeon did not think this was anything nor did radiologist.  But surgeon wants her radiologists to take extra films before the biopsy--- and that of course freaked me out!   Office said nothing new, she is just particular, and I know she is and I know it is a good thing to get specfiic pics since this thing is so small (.5mm) but until today, I was not stressed out about this--- now I can feel my blood pressure rising...... 

    Keep me in your thoughts 

  • ktym
    ktym Member Posts: 2,637
    edited November 2010

    momand2kids, we sure are keeping you in our thoughts.  Please keep us updated. 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2010

    Momand2kids--Thinking of you and sending cyber support your way. 

  • mnmom
    mnmom Member Posts: 2,068
    edited November 2010

    Momand2kids-- Keeping you my thoughts.

  • Renrel
    Renrel Member Posts: 497
    edited November 2010

    FWIW - I just formed a ball of Reiki Healing energy and threw to you though my computer screen.  Never tried sending it that way before but intution told me to give it a try. I hope it reachs you.  In any case my thoughts will be with you.

  • momand2kids
    momand2kids Member Posts: 1,508
    edited November 2010

    thanks all-- renrel--got it!!!

    Feeling pretty good about all of this. GYN called yesterday and said she had read the reports from the radiologist and it really did look like it was likely nothing--- so everyone agrees---but I know better now--nothing matters until we get the pathology report.... so, that is what we will do.

    My lumpectomy was 2 years ago during Thanksgiving week.. I was so stressed, sad, tired, scared.... of course then we knew it was cancer... but this time, I really feel pretty peaceful and grateful that I have such great medical care.... and things have moved so quickly--lat time it was about 3 weeks from diagnosis to surgery.  This time it is about 4 weeks from finding a .5mm spot to the excisional biopsy--and that all seems fine to me. 

    Last time, I could NOT sleep without ambien- now I am still sleeping like a log!!  So, it will be what it will be..... but I always appreciate the good thoughts and karma!!!!

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2010

    Momand2kids-  That has got to be such a relief.

    Renrel-  You are awesome.  I've heard Reiki training can be very intense.  I am impressed.

    Well in one week I get the famous blood test we love to hate to wait for.  Hopefully my blood counts are better.  I have more energy, but still have issues with dizziness and when the fatigue hits, I am down for the count.  I have also developed mouth sores and - you will all be proud of me- have NOT looked up the possible reasons why on the net.  I just hope that doesn't somehow connect with the weird blood counts.  Of course I could also attribute the sores to the intently hot salsa I have and seem to be gourging on whenever I am home after work.  Hm.......food for thought.  Wait a minute, is salsa food?  Actually, I made this most recent batch more like a chunky salsa.  I had 4 different peppers I used, plus fresh tomatoes and onions from our garden.  In fact, my little monologue here has inspired me to drag out another batch from the freezer. 

    Well, JJs, as usual you are all a godsend.  Thank you for checking in, responding and sharing.  I so wish someday we can all meet.  Have a great weekend.  

    Renrel---btw......dd will be in Boston in Feb----whadya think? 

  • momand2kids
    momand2kids Member Posts: 1,508
    edited November 2010

    so I think I am not stressed, but have lost my phone twice in two days--just thought I would go back to the office to pick it up then realized I don't have my office keys either....... sigh.......

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2010

    A few more days and I go to see the Onc.......I hope it is no news is good news and I don't have to go back for six months.

  • Renrel
    Renrel Member Posts: 497
    edited November 2010

    jrgolomb- If I am not in Florida on vacation at that time we should definately arrange something. And I feel confident it will be no news is good news.

    Momand2kids - How are you holding up?  The wait sucks,  but at least they did not feel the need to have it done yesterday.  

     I hope you all had joyous feasts and felt graditude in your hearts for the life you have been blessed to lead.  It does not have to be a "good" life or a pain free life to be a blessed life.  I

    had the friends who host my family while I was ill over to our house this time.  Way too much food for 6 people but that is sort of the point of the holiday.  We got a new Fridge and it was fun using it, though the getting of it interfered with my cooking and cleaning.  We also made a fire in our fireplace for the first time since we moved about 3 years ago.  We finally got some of our art on the walls and it is making a huge difference in the feel of our home.  

  • ktym
    ktym Member Posts: 2,637
    edited November 2010

    Happy Thanksgiving everyone.  I feel like my list to be thankful for is very very long this year.  I'm coming up on my 6 month f/u imaging for the "area of distortion"  which coincides with the week two years ago of the diagnosis.  Talked to DH last night.  I think I'm pushing it off into the New Year.  I'm tired of everything being an anniversary and a reminder.  If 4 weeks makes a difference in an imaging finding I'm in trouble anyway.  Palpable finding maybe, imaging finding, no.  I really feel like its taking control and not letting fear control me anymore, rather than hiding my head in the sand.  I'm tired of breast cancer anniversaries and crap and living to the next test.  This is in my control and I'm going to do it I think.  If I dont chicken out that is...

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2010

    Kmmd-- Very wise thoughts indeed.

    Happy Thanksgiving to everyone. 

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited November 2010

    Hope the Jewels had a happy, restful Thanksgiving. I was so thankful to have a house full of people--22!! I'm not weighing myself for at least a week...so much food. Thankful I felt up to hosting and cooking. Thankful for a week off of work and time to recuperate from the Kinder cold. Put my back out right before the big day (of course, once again lifting the laundry basket wrong)..and thankful for Advil. Better now so thankful it wasn't "mets".

    And thankful for you Jewels!!!

    Mammo on Friday and surgeon the next week. But...3 month onc visit not til Feb. That's the one that throws me.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2010

    I met with my onc on Monday.  Still low on the blood counts, but better than last time- now a low normal.  So relieved. Unfortunately,  I have put on another two pounds!Undecided  Then realized I had my winter clothes on, so when I went home I did a comparison with and without and discovered I had really lost a pound!Laughing  ( I really couldn't start taking my clothes off at the doc's office, right!?)

      I actually ate more than ever during the Thanksgiving break.  I spent a great deal of time with my mom who is in the last stages of Parkinsons.  We did have a few good talks during some of her more lucid moments.  Thank goodness congress finally decided to float a bit of money toward stem cell research  ( adult stem cells...)  I fear the funding is a bit too late for my mom, but you never know. 

    Hugs all. 

  • PLUTZ
    PLUTZ Member Posts: 133
    edited December 2010

      Hi ladies. I hope all of you had a nice Thanksgiving. Mine started out bad. My pumpkin pie burned on the edges, the no bake pie got mixed up wrong. It was more like mousse but still tasty. I was trying to make a grreen bean dish my mom used to make and it didn't turn out the way I wanted so I turned it into a greenbean casserole and last but not least my turkey was still frozen inside but in the end, my dinner was delicious. I'm glad everyone is doing ok. I had t see a dr. about a week and a half ago. My right side was hurting for a few days, so I finally made an appt. She was concerned it was my appendix so I hadto get a CT scan. I had to drink 2 bottle o barium. I thought I was going to be sick. Anyway, everything was ok. It was just a UTI. I see my onc. Dec. 21st for my 3 month. I'm feeling good, I'm still going through my breast expansion. I see the dr. next week. Its just not expanding to the size I want so I may just keep what I have and plan on having my implant in Jan. or Feb. Have a great week and I'll stay in touch.

  • jillyG
    jillyG Member Posts: 401
    edited December 2010

    Hello Jewels!  I hope all you US ladies had a wonderful Thanksgiving.  The Canadian Thanksgiving was back on October 11th.....so I'm going through turkey withdrawal hearing about the feasts that were had. 

    Phyllis, I'm with you on the 'still going through breast expansion' thing.  My expanders were filled to the top in early September and then my exchange will be Dec 22nd.  Merrry Christmas to me!!!  Since mysurgery is so close to Christmas, it forced me to have everything done very early and everything organized in case (knock on wood) there is a complication that forces me to stay in longer than just the day surgery.  As it stands, I am scheduled to be the 1st case on the 22nd and get out after lunch that same day. 

    Sorry I haven't been on very much ladies, life is calling and I am so busy with both of my kids in hockey this year and working full-time, and the kids having swimming lessons and school evenets going on.  Hardly anytime to think about cancer (Yay!) but I never forget the Jewels.  I think of you all often and I hope everyone enjoys this holiday season and that we head into this New Year healthy and happy. 

    kmmd, I can totally see where you are coming from with everything being an anniversary of something and this time of year already has enough memories for all of us.  I don't think that 4 weeks would make a difference, if that's what you end up deciding. 

    momand2kids, hang in there, we're all thinking of you. 

    Renrel, I like the throwing of the ball of healing power :)

    To all Jewels, you guys are awesome! Have a great weekend everyone (ya, I know it's only Thursday but I'm feelin' in a Friday-ish mood today lol).   

  • kt57
    kt57 Member Posts: 425
    edited December 2010

    Hi Jewels!   Been a while since I've been here.   I see my med onc this week -- moves my thinking back to "that place".  and you all are one of the best things about "that place".  I sincerely hope you are all well.    Cancer is less present for me -- thankfully.  Still have moments of cancer panic for no good reason -- had a few more than usual in Nov -- the anniv month. 

    Still on Arimidex and the bisphosphanate trial and doing surveillance every six months.   So far, so good.  

    (((((hugs)))))) to all.

  • momand2kids
    momand2kids Member Posts: 1,508
    edited December 2010

    Hello all-happy belated thanksgiving

    I am off to the surgeon tomorrow to remove a teeny tiny thing that no one knows what it is from my left axilla (my first bc was on the right).  It was found in my annual mammogram at the Dana Farber and I had yet another mammogram and ultrasound at the Mass General (where I will have this excisional biopsy tomorrow).  My BS is "encouraged" by its size and location-she says bc does not often present there.... so she really does not think it is anything but did want it out.  

     Additionally, in my regular dermatologist visit (i go every 6 months to be screened--I am fair with lots of freckles), the mole he removed needs better margins...so I have to go back in for that on Thursday-- and in between I have my regular pcp visit where my blood pressure will likely be through the roof from all of this!! I feel like I have to quit my job to keep up with all of these appointments.  

    All of this flipped me out last week, but one thing I know from the experience in 2008 is that I can only control my actions and reactions.  It is what it is.  I will do what is necessary to deal with both of these things.... they are both teeny tiny and the general opinion on  both is that they will be B9...but one never knows....I am, as they say, preparing for the worst and hoping for the best

    I am ready--bring it!!!! 

  • ktym
    ktym Member Posts: 2,637
    edited December 2010

    I love it momand2kids, bring it

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited December 2010

    Momand2kids---I've got my wine glass ready to celebrate B9 results tomorrow. Wishing you well. You've got a great attitude ("I can only control my actions and reactions"). That's a line I need to tell myself and learn to do.

     Had my diagnostic mammo Friday. All ok. Wow--they were really, painfully thorough this time, including putting stickers on my nipple, port scar, and a mole under my arm (ouch when they came off!). Thought my port scar was going to burst open. And I was thinking that  if they had been as thorough through my years of negative mammos, they may have found the lumps!

  • momand2kids
    momand2kids Member Posts: 1,508
    edited December 2010

    Well,

    all done-- in and out in less than 6 hours.  won't bore you with the details other than the fact that surgeon told h that the "lesion"was soft and most likely benign..... I, ever the skeptic, will wait for the pathology results, even though I think my surgeon walks on water.

    I had already made a plan for if it was not benign--I will scrap that once I see the pathology report.  But, I am sure she is right.  Next up, re-excision of mole on my back this week....sigh... 

  • ktym
    ktym Member Posts: 2,637
    edited December 2010

    momand2kids, thanks for letting us know how things went.  Good luck with the next step

  • ladyjane54
    ladyjane54 Member Posts: 192
    edited August 2013

    That is great news momand2kids.  I'm sure it will be as your doctor said.  Happy Holidays to all the wonderful Jewels.  I listen but say little as you all know by now.  Just realized I did not know when my next Onco appt is and that is wonderful......means  cancer does not have a 24/7 hold on me anymore.

    Am thinking about it lately though as I have surgery coming up on the 21st of Dec.  Have put off recon as long as I could and it is time to ":just do it".  Not a  great way to spend Christmas break, but did not want to miss a lot of work.

    Glad to hear from those who are still around.  Drop in and say hi sometime if you are one of the ones like me who reads but seldom posts.

    Love ya all.

    Patti

    P.S. Just found out two more grandbaby on the way in 2011!!!

  • jillyG
    jillyG Member Posts: 401
    edited December 2010

    Patti, same for me.  My exchange surgery is on Dec 22nd, so I'll be thinking of you on the 21st as I head to Calgary for my surgery.  Worked out well for being off over Christmas and just using sick time instead of vacation time.  For the exchange, it's only a day surgery so I should recover completely over the holidays.  I can't remember, are you getting a flap surgery?  or did you have expanders in?  Congrats on the new grandbaby's, that's awesome!

  • ktym
    ktym Member Posts: 2,637
    edited December 2010

    Congrats on grandbaby Patti!

    Well, it ended up being more trouble then it was worth to postpone my imaging so I went in today.  Everything was fine and I can now wait 8 months before the next go round.  (I've been every 4 for 2 years as things keep coming up).  Funny thing, I went in to today totally relaxed and not freaked out.  I knew it would be okay.  I'm starting to trust my body again it seems

  • PLUTZ
    PLUTZ Member Posts: 133
    edited December 2010

    Hi ladies! Congrats Patti. What a wonderful new year you will have. Patti and jillyg- Good luck on your exchanges. I just got back from an appt. with my surgeon and going forward with my exchange also. I'm schedeled Jan. 7th. I'm also getting my left breast reduced. He said its an easy procedure. I'll be a little sore in my real breast. Which implant are you getting? I think I'm getting the silicon gel versus the saline. I have to  read my materials. I will stay in touch and let me know how it went.

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