Nervous Wreck

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Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    Nancy - Thanks for your kind words at such a difficult time. When you are feeling better, after your first chemo...let me know. I will travel to your next of the woods to meet for a breakfast, lunch or dinner. As for the port...eeks! I hate to say this, but I've read many posts about the long term probs by NOT having a port. OF COURSE...do what you think is right for you, but just wanted to let you know what I have read. (Maybe you should start a thread - PORT OR NO PORT - just to get some first hand experiences.) Red Devil...I "think" is called that because it changes urine color to red. I had 4 txs of AC - it wasn't horrible. What did me in was the damn Neulasta injections. Hugs...you are in my thoughts - BIG TIME!

  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2013

    Nancy, I hesitated to be the first to say it, but I had the same thought and will echo the concern Laura just expressed about getting Adriamycin without a port.  While some chemo drugs can be delivered just fine without a port (depending on your veins), Adriamycin normally isn't one of them.  Please read up on it, and/or, as Laura suggested, start a thread to get more input.   (((Hugs)))  Deanna

  • momand2kids
    momand2kids Member Posts: 1,508
    edited November 2010

    Nancy

    like you, I was extremely nauseous during my 2 pregnancies-- my onc did not think that it was  a predictor of chemo reaction, but I was convinced it was and I was right.... I often felt like I was on a ship that was listing...... not enough to get sick, but enough to feel yucky.

    Everyone is different and I think the hydrating makes a difference.  Before chemo, I never got carsick, now when we drive- I cannot read-- I have to be in the front with my eyes on the road... crazy.

    I did not have a port--had great veins and they let it in slowly----- they can also put fluids in the IV at the same time which helps... 

    I know you start this week--- the anticipation is definitely worse than the event, I found..... but absolutely have the anti nausea stuff on hand--- in the first treatment I waited too long to take it--after that, I took it as a precaution each time......

    Good luck!

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited November 2010

    Once again I want to thank you all for the good information and for thinking about me.  You are all truly wonderful and a great support system for me.

    Love,

    Nancy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    Hi Nancy, I didn't have chemo, so not able to contribute to the great advice the others have commented on.  But you have been in my thoughts and I have been following you here.

    Take Care

    Cathy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    Nancy - Just checking in. I'm sure you're stressed about tomorrow. The first one is scary, but it's amazing how routine it will become and before you know it, you'll be a chemo grad. I took a Xanax the day before - it really helped. Best wishes to you...hang in there...you've got many girls cheering you on. HUGS!

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited November 2010

    Thanks Laura!  I just got back from meeting my plastic surgeon.  I really liked him. He said he is going to put me back together again after my breast surgeon skins me, ha ha.  He made me feel good when he told me I didn't have enough tummy fat and skin to make a good breast. I've decided to do a bmx so I never have to have another mammogram. He told me that is what he would recommmend If I were his wife.  He was a good diversion from my chemo that starts in 20 hours and 15 minutes but then whose counting.....  Are there any last tips anyone can offer on how to prepare for tomorrow?  I plan on taking a xanax in the morning and drinking a vanilla milkshake from McDonalds on the 1/2 hour drive to chemo.  I heard that helps coat the stomach.

    Thanks a million for all your support!

    Love,

    Nancy

  • dlb823
    dlb823 Member Posts: 9,430
    edited November 2010

    Nancy, if you haven't already, be sure to check the information at the top of the chemotherapy forum for some helpful ideas.  The one tip I have (from one of my most negative memories of chemo) is to have a little spray bottle of water in the bathroom.  Those chemo drugs burn when they come out, and spritzing with water to get them off your skin ASAP is a tip worth passing along.  Good luck tomorrow!    Deanna

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited November 2010

    Thanks Deanna....I will plan on having my spritzing bottle ready:)

  • momand2kids
    momand2kids Member Posts: 1,508
    edited November 2010

    Nancy

    best of luck- I will send good thoughts your way.  So glad you liked the surgeon--- 

    Something my onc told me at the  start of chemo--you won't like it, but you can do it..... somehow that helped me..... I like the milkshake idea..... enjoy it!!!!

  • YoYo44
    YoYo44 Member Posts: 203
    edited November 2010

    Hi Nancy,

    Have not been on much so am shocked and saddened by your news.  But you sound like you are springing back at the evil bc with a vengeance!  You have great strength and a strong attitude and you will tough it out great!

    I did not have AC but rather FEC, which is similar.  My only words of advice are to mirror what many have said already.  Drink lots of water and make sure you take your nausea meds as required, even if you don't have nausea.  The goal is to prevent it.  Check in with your nurses or onc about any SE's; many are manageable.  I had horrible indigestion and was on Pantoloc the whole time after the first chemo and it helped greatly.  I found a light meal of slightly salty chicken soup each chemo day was my best meal-not too heavy.  I eneded up occasionally taking Ativan to sleep, the stress was so crazy sometimes.

    Thinking of you and sending you strength!

    Yo

  • AnnieBear
    AnnieBear Member Posts: 96
    edited November 2010

    Nancy:  Good luck.  I will hold you in my thoughts. 

  • Gitane
    Gitane Member Posts: 1,885
    edited November 2010

    You will be in my thoughts tomorrow, Nancy.  Think of all us girls being with your there in that chemo room,  a crowd of women cheering you on.  We are there in spirit.  Hugs. G.

  • Criss
    Criss Member Posts: 3
    edited November 2010

    Hi.

    I hope that everything is ok and you will kick the cancer's butt.

    Diagnosis : 17.06.2009, ILC, 2 cm, stage 2, grade 3, 2/10 nodes, ER+PR+ HER2-

  • momand2kids
    momand2kids Member Posts: 1,508
    edited November 2010

    Nancy

    Hope your first day was OK--- we are all thinking of you

  • kira1234
    kira1234 Member Posts: 3,091
    edited November 2010

    Nancy, I've been praying for you. Hope today goes well. Let us know how you are doing.

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited November 2010

    Hi Friends,

    My first chemo went really well.  It only took two hours and I didn't have any nausea.  The only side effects I feel are extreme tiredness and a headache.  I slept for 3 hours when I got home and I just took a tylenol so hopefully the headache will go away.  I felt like all of you were with me in that room and holding my hand. You are all so amazing and I'm lucky to have all of you on my team.

    Love,

    Nancy

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited November 2010

    I'm glad it went well - make sure you contact your onc if you have any SE's. They tend not to give you stuff until you ask for it. I remember my first tx - 2 days later and wham. Once my SE's were identified, I got scripts to help and the following treatments were much more bearable.

    Don't forget - do not get constipated.

    Sue

  • kira1234
    kira1234 Member Posts: 3,091
    edited November 2010

    Glad it went well. Get lots of rest, drink lots of wanter, and if you get any nausea take the meds they give you. Keep us up to date as far as how you are doing.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    Nancy hope you are doing ok.  I have been thinking of you and how difficult this must be for you.

    Take Care

    Cathy

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited November 2010

    Sorry I haven't been back sooner but my time on the boards has been limited.

    I'm so glad to hear that you are going for the BMX.  When you go through something this traumatic you don't want to carry the fear forward worrying about the other breast.  I had no recon and I just love the forms I have.  No painful surgeries but I have nice perky breasts!  And with two forms you know they match!

    Great advice from the other women on the chemo.  What worked for me was the goal of being able to be tick a week off the countdown.  It was big enough to be significant but not so big as to feel like I was never going to make it to my goal.  Keeping positive doesn't cure cancer but it sure makes living through chemo easier.  So on those days you can feel positive make the most of it.  But if it's a bad day and you don't feel positive then that OK too. Don't try to be strong if you're not.  Thats when you let those around you give you the help that they want to give.

  • kira1234
    kira1234 Member Posts: 3,091
    edited November 2010

    Nancy, Hope the SE's aren't to bad for you. Let us know how you are doing.

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited November 2010

    Hi,

    I've been so weak, sore, tired and fuzzy.  I can't even hold a thought.  I feel like I lost myself.  My bone pain was so bad yesterday that I was given Vicodin.  It makes me even more confused.  I just want off this merry go round.  Please tell me that it will get better.  I can't function with my current condition much less work, sleep and live. My thyroid biopsy was awful and now I have to see an endocronologist.  My neulasta shot made me hurt in places I didn't know I had.  I know I sound like a baby and I agree.  This has been a very poor start for me.  Thanks for checking on me.

    Love,

    Nancy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010
    Nancy - GENTLE, GENTLE HUGS to you. I know exactly how you feel right now. My bone pain was severe too. It will get better...please try to take it day by day. Get lots of rest...don't try to be superwoman. Drink lots of water. Force yourself to eat - preferably high protein. Take a long, hot bath or shower. You have an amazing cheer section here - we're all yours! Hang in there - remember our motto: Illinois Girls are Tough! You can do this...with a little help from your friends.
  • Gitane
    Gitane Member Posts: 1,885
    edited November 2010

    Hi Nancy,  Give yourself lots of TLC.  This is your time to veg and let go.  I slept ALOT.  Laura has given great advice.  I am so sorry that thyroid biopsy was so hard on you.  I hope you feel better soon.  When my doctors would say, " Go get this test." , or when I needed to see another doctor about something.  I wanted to yell at someone, "Don't you know I'm hurting here?  I need to rest, not run around!"  I felt like a weenie sometimes and was furious at other times.  It's so normal and it will get better.  Hugs! G.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    Nancy, it WILL get better.  I was so sick after the 3rd round of AC I wanted to quit but with the support of friends and family I held on.  All this will be over before you know it.  My prayers and thoughts are with you. 

    Marie

  • kira1234
    kira1234 Member Posts: 3,091
    edited November 2010

    Hi Nancy,(((Gentle Hugs))))). Take all the time you need to get your strength back. I'm sorry the thyroid biopsy was painful. I truly understand how that test hurt, have thyroid issues too. Make sure you take the pain meds, I know how out of it they make you feel, but if you need them that's why they give them to us.

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited November 2010

    Well you ladies did it again......you made me smile!  I wish I could put into words the way I feel about your suppprt.  You're all angels and I'm very blessed to have you listen to me whine.  Love to all of you and thanks for the encouragment.

    Nancy

  • momand2kids
    momand2kids Member Posts: 1,508
    edited November 2010

    Nancy

    it will get better--- my experience was that I was fine on the treatment day and the two days afterwards--- but then I had two days that were far more challenging--then I was on the upswing again--- I recorded all of my reactions in a little notebook so that when I talked to the onc, I could tell her how I was feeling and when.... it really helped us adjust the meds..... 

    big hugs--it is going to get better-I promise..... this is the hard part.  I would be surprised if you did not feel better tomorrow..... and if you don't, call the onc.

  • nash
    nash Member Posts: 2,600
    edited November 2010

    Nancy, I'm sorry you feel like crap. Chemo is no fun. I had very bad pain from the Neulasta as well, but had a much easier time with Neupogen. It's administered once a day over 3 to 5 days. You might want to ask your onc if it's an option for you.

    I felt very bad on days 3 and 4 of my chemo cycle, then felt functional on day 5. I hope you start to feel better soon. 

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