Just diagnosed... too many questions HELP!

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Salma1971
Salma1971 Member Posts: 42
edited June 2014 in Stage I Breast Cancer

I have just been diagnosed with Invasive Ductal Carcinoma, grade 2 (hormonal responsive)--- The size of the tumor is 0.9*0.7*0.7 ---- According to the Ultra Sound no auxilliary lymph nodes are affected... We have a long holiday, where I live...and I will not be seeing my doctor or doing the rest of the scans.. till next week... And I am really scared... First, what does grade 2 mean? and what are the chances of the cancer turning out somewhere else in my body... considering it's IDC  and it's size? I am 39 and have to young boys 3 and 6... and the chance of metastatis is scaring me!!! Thanks!

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  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited November 2010

    First Salma, just take deep breaths. Finding all this out on a Friday really stinks as the waiting is the absolute pits! The size of your tumor is small. Mine was 1.8CM. Mine is grade 2. A lot of your treatment options are determined based on your ER/PR/HER status. For me, I was ER+ PR- HER-. For ER+ women there is a genomic test called the Oncotype test that can detemine what kind of value percetnage-wise chemo would give.

    Once you know your status, I would ask for that test it you are ER+.

    We are here to help you though this. As a new member you are limited to 5 posts a day until you hit 50 posts. You can click on a member name then in the upper left corner, you can select to send a private message.

    You can do this.

  • flopsy
    flopsy Member Posts: 365
    edited November 2010

    Salma,  Take a deep breath and try to relax!   Stage 2 BC and the size tumor you are describing are very treatable.   Also the fact it is hormone positive turns out to actually be a good thing with the introduction of hormone blockers a few yrs back.   When you have surgery they will also check to be sure that there is no node involvement by doing something called a sentinel node biopsy where they check the nodes that drain the area of the tumor.  Stage 2 is a grading system for BC which means the cancer is of a certain size and is invasive in the tissue but probably not outside the breast.   The stages are 0-4 with 4 being the worst.  There are many women on these boards with Stage 2 after many yrs doing well.  I am a Stage 3.

    I am so sorry for your anxiety and fear because we with BC have all been there.  They may want to do a Breast MRI and I recommend that you insist on having one.  It will help to evaluate all the breast tissue for possible cancer sites.  My surgeon also did a CT of chest, abdomen, and pelvis and a Bone Scan before I had surgery to help relieve my mind about the cancer being other places.

    As soon as you can, ask your Dr for some anxiety meds if you are having trouble coping and eating and sleeping because you need all your strength for the next few months to fight this cancer and have surgery and treatments.

    I was dx in May of this yr and am finishing treatment now.  It is a long process but very doable.

    Come here and ask for help when you need it or just a shoulder to cry on.  There are so many wonderful supportive women on these boards that will be a solace to you.

    Please try to take care and I am thinking of you and you and your family are in my prayers now.   Hugs to you, my new sister, Ginny

  • Salma1971
    Salma1971 Member Posts: 42
    edited November 2010

    Barabra...and Ginny... Thank you soooooooooo much for promptly being there.... It is so good to know that there are people to support me out there... I hope both of you are doing well health wise... Ginny, the doctor says so far it looks like stage I due to the size...but the GRADE of the cell is Grade 2--- It seems to be related to how normal or abnormal the cells look... the higher the grade the more aggressive the tumor.. I understood from the doctor today that it is ER+ and PR+ , so I am left with the worry about metastatis... I keep wondering what are the chances in finding it somewhere else in my body...But I guess the waiting is the worst part... Thank you so much and I hope you have a great weekend...

    HUGS BACK TO YOU--- Salma

  • flopsy
    flopsy Member Posts: 365
    edited November 2010

    Salma, Stage 1 is even better and I would not worry too much about that Grade 2 because until they do the ONCO testing they won't know exactly how aggressive the tumor is.  So, don't get ahead of yourself and borrow trouble as my grandmother used to say. 

    I know the waiting and not knowing is the worst.  Accept that you can't control the situation or any of this other than your attitude.  Try to take things one day at a time and think about other things that can help take your mind off of this for the weekend and Mon. you can start getting more answers and a plan.  Deciding what to do and knowing what that is will help a lot with the anxiety and fears.  We are here for you.

    More hugs to you,  Ginny

  • Faith316
    Faith316 Member Posts: 2,431
    edited August 2013

    To add to what others have said, (and they may have said this part, too and I just missed it) --- if no lymph nodes are involved, it is highly unlikely that the cancer is anywhere else in your body.  A diagnosis of cancer sends us all into panic, but as you learn more about it, you will calm down and feel less like you have just been handed a death sentence.  You haven't.  Your cancer appears to be small and contained and I think you will do just fine.  Lots of wonderful women here on this forum who have been through exactly what you are going through now who understand how you are feeling right now.  Let all of them support you.  You'll be ok.  Good luck.

  • Susie123
    Susie123 Member Posts: 804
    edited November 2010

    Salma,

    Being er+ and pr+ is a good thing. They have medications to treat that successfully. Stage 1 cancers, even with the grade 2 cells, have a very high survival rate. Google "cancer math" and use that calculator for survival statistics, you'll feel much better about it. Right now just the C word is overwhelming. It gets easier, I promise.

    Susie

  • pod1257
    pod1257 Member Posts: 262
    edited November 2010

    Salma,

    To echo what the other ladies said.- With a stage 1, small tumor, no nodes, er+/pr+/her2-, grade 2, you have a very good prognosis. I expect you will live to a very old age and enjoy watching your beautiful boys grow up and someday have  grandchildren too.Smile

    Best of luck.

    Julie

  • catbill
    catbill Member Posts: 326
    edited November 2010

    Hi Salma,

    I add my voice to the others.  You appear to have a very good prognosis.  If you wish to have some reassurance from a professional, you might send your pathology as you stated it above to the wedsite below. 

    www.hopkinsbreastcenter.org/services/ask_expert

    This is at Johns Hopkins Hospital and when is maintained by their breast cancer experts.  They will give you very good information, and it is free of charge (although they do take donations but do not ask for them on this site).  I found some of the questions others asked were of interest to me as well but I have asked a couple of questions of my own too.  It has only taken a couple of days or less to get an answer.

  • msbehavin
    msbehavin Member Posts: 30
    edited November 2010

    God bless you and I am right beside you. Don't do anything unless you are 100% comfortable with your decision and make sure your questions are all answered before you go to the next step. I was diagnosed with breast cancer on Oct 25th, 2010. It has been a whirlwind of doctors, nurses, techs and flowers Smile. First, I didn't want to have a needle biopsy, which apparently is not the norm, but my surgeon got past it, so on Tuesday we did an excisional biopsy, where he took out the mass, and treated it as if it was cancer, so also took out tissue in the margins. The mass was cancer, the margins were negative. 60% In SITU, 40% out..On Friday he went in and extracted three lymph nodes, which were also negative. The tumor showed positive for ER and PR and is still being looked at for a myriad of other things. What I need to find out now is what is the statistics for radiation vs no radiation, for tamoxifin vs no tamoxifin,, where can we get those kinds of stats from?

  • Salma1971
    Salma1971 Member Posts: 42
    edited November 2010

    Dear Ladies... I want to thank you all for your very reassuring posts... As some point I stopped checking any cancer related websites because I started getting too agitated... and my worries, started to turn into paranoia... Anyway... finally last week the tests showed that liver and chest bones were clear... So I am BEYOND relieved and ready to take anything on... no matter what it is--- MRI showed a suspicious lump in the other breast...so I am going for another biopsy--- but that's ok---

    You won't believe how good your posts were to me..and they really made feel much better... I wish you all great health---!

     Misbehavin--- I am afraid I am not the expert to answer your questions as I have just been diagnosed too. But I am sure there are sooooo many nice ladies on this forum, who can help you with this information... Wishing you good health and peace.

    Salma

  • changes
    changes Member Posts: 622
    edited November 2010

    Salma,

    Glad to hear the liver and chest bones are clear. Sorry you have to deal with cancer, but stage 1 has an excellent prognosis.

    Msbehavin - your oncologist should be able to go over with you what the benefits are of each type of treatment. Radiation is a given with a lumpectomy (which is what it sounds like you had), unless you want to go back and have a mastectomy (lumpectomy + radiation has the same survival rate as mastectomy alone). I'm confused about your stage - you have yourself listed as stage 1, but then say DCIS (which is usually stage 0). Tamoxifen is usually recommended if you are ER+. You may need an oncotype test, which should help with decision-making (gives you a recurrence risk based on several things and tells you whether chemo is likely to be of any benefit).

    Wishing you both the best,

    Karen

  • Salma1971
    Salma1971 Member Posts: 42
    edited November 2010

    Thank you so much Karen for you reassuring words. You are all great and brave ladies... and I am so glad I am on such a forum...

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