Starting Chemo in June 2005

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  • Watson
    Watson Member Posts: 1,490
    edited November 2005
    Alrighty!

    My long flowing locks of 3/4 inch long have been shaved from my head! I couldn't take the dog shedding look that I'm leaving everywhere. So I'm back to the fine grit sandpaper that I started out with.
    It's easier the 2nd time around!

    I hope you get your port out, too! I'm gonna ask my onc tomorrow when mine gets yanked.

    Watson
  • LizFL
    LizFL Member Posts: 377
    edited November 2005
    I am actually feeling almost human today!!! And it's good to know that I should start feeling better each day now that chemo is over. My doctor's office is still without power so I have to find where they are situated today (they have been moving around to different spaces in the hospital) to go for my blood work.

    I have my radiation simulation scheduled for Friday...any tips or suggestions? I guess I'd better find out if they have power!

    Liz
  • Analemma
    Analemma Member Posts: 1,622
    edited November 2005

    The Cleveland Clinic was offering flu shots to walk-ins just down the hall from radiation. I wasn't sure if I needed to wait longer after chemo, so I called the nurse just to be sure. So, today after rads I got one. Free! I guess the Clinic figures it's cost effective to offer free prevention to offset a lot of the no-cost care they will give when the season really hits. Remember last year when there was a crisis and not enough vaccine? Then they ended up with a surplus in some areas because of poor distribution. Seems a looooonnnnngggg time ago, last November! Election Day was a year ago today!

  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    If my WBC is high enough tomorrow I'm getting a flu shot at my onc's office. I took my kids today to get theirs. I have to say, they were both very sweet about it. They've never had flu shots, but they didn't complain at all because they knew it would be better for me if they did. I wonder how long I can bask in their sweetness before they go and ruin it!! lol.

    I had a dream yesterday I was Sandra Bullock post-chemo. Unfortunately I had been out in the sun too long (still part of my dream) and I blistered and ended up with these huge, nasty pustules on my face and swollen eyelids. What in the heck does that dream mean???

    Jen
  • Watson
    Watson Member Posts: 1,490
    edited November 2005
    Jen,
    I think it means you really don't like Sandra Bullock very much!

    Learned a lot at the onc today!
    - RBC is a little low now so will bet bi-weekly Aransep? shot
    - Will get flu shot tomorrow after chemo
    - Have option to have port removed two days after last chemo or wait three weeks after when WBC are strongest. I think I'll choose 2 days, thank you very much!
    - My last chemo will be Wednesday before turkey day!

    Whew! There was other stuff, but those were my nagging questions I keep forgetting to ask!

    I have the end of chemo now in sight! Whoopeeeeee!

    Watson!
  • LizFL
    LizFL Member Posts: 377
    edited November 2005
    Watson...I'd be getting my port yanked out now...but I think that the doc wants me to wait for counts to rise just so I don't risk any problems while on the cruise. If it weren't for the cruise the port would be coming out sooner! It doesn't bother me, and I can swim and do normal activities with it, but it will be nice to have it gone!

    Liz
  • Watson
    Watson Member Posts: 1,490
    edited November 2005
    Liz,
    I'd do the same thing. My port (which is internal but in my arm, not my chest) doesn not bother me in the least. I just want to get rid of all my 'sick' momentos! But don't you go asking for borrowed trouble by having the removal procedure done before your cruise!

    You have a blast!

    I'll have to settle for "cruising" through to the end of chemo and then docking at my "port", Tee hee, really bad attempt at a play on words.

    Watson
  • RebeccaH
    RebeccaH Member Posts: 72
    edited November 2005
    Liz...get the port out. I finally have a referral for the surgeon to remove mine. I'm tired of the inconvenience of having it. Couldn't get my teeth cleaned because I needed to be on antibotics because of the port. Plus, I need to have a crown replaced, and I don't want to have deal with antibotics for that.

    I think it's just another constant reminder of chemo days!

    I asked this on another thread. Why do some people get more rads than others? I asked if I was going to need more than 30, he looked at my records, and said 30 was fine. I'm just curious....
  • RebeccaH
    RebeccaH Member Posts: 72
    edited November 2005

    Liz...for the rad sim, the only thing I would suggest is laying on your back with both arms above your head for about 15 minutes at a time. They actually recommended I do that before rads start to help build the muscle so it won't be as uncomfortable.

  • Analemma
    Analemma Member Posts: 1,622
    edited November 2005
    Well, after today's rads I started getting a rash, sort of itchy. I hope I'll hold out for 11 more treatments without serious breakdown!

    Where's NoSurrender? Did she go to mentor another group, now that we're all approaching graduation?

    My nails all ended up discoloring after Taxol was done, and one of them is partially lifted. Not so it's bothersome, just odd looking.
  • JoMac
    JoMac Member Posts: 192
    edited November 2005
    Brenda, I am getting ictchy too. My skin looks fine.
    Today two gentlemen we have seen everyday in the waiting room finished their radiation. I felt sad saying goodbye to them. I wonder how they will do and I realize I will never see them again and will never know how things turned out for them.
    Then in a heartbeat a new person came in and sat next to me. She was an older woman in her 80"s . She told me all about her colon cancer.
    All this happens and I don't even know anyones name. I wonder if she is the new 10:30 person or was she just there at that time today.
    The good news is I am going to have to shave my legs and I had to pluck some chin hairs!
    I still just have a five O'clock shadow all over my head for hair but I guess the hair is starting to come back. My head is a "spring garden " of activity.
    I have a few more sessions of radiation then you do Brenda. They are giving me some last "boosts" to the area where the tumor was.
    I guess the last five treatments are what they call "boosts".
    I sure hope this works.
    Our hospital was all rennovated so the oncology dept. hadn't been moved in yet. They moved in this week so now I see all the people getting their chemotherapy .
    I look at them...they look at me.......
    The air is filled with instant communication ...non- verbal of course, but full non-the-less.
  • LizFL
    LizFL Member Posts: 377
    edited November 2005
    No Surrender is having computer problems, so she may not be able to access the board.

    Today I almost felt normal..had some energy, was in a good mood...but I think I overdid...now I'm achy, tired and wiped out...but it's good to know that I can feel good and even happy again!

    Not looking forward to rad simulation tomorrow...but at least it will be one less thing to do.

    Rebecca...getting the port out is one of the first things I will be doing when I get back from the cruise! Onc wants me to wait until then.

    Liz
  • NancyM
    NancyM Member Posts: 289
    edited November 2005
    JoMac, I meant to tell you that I liked your mantra of "let go, let go." I started to tell myself that whenever I'd get hung up on the little things remaining from the treatment (like fatigue, the darn neuropathy, etc.) Finally my husband told me one day "just take baby steps, that's progress, too." So I started saying "baby steps, baby steps" when I needed a reminder, and it helps surprisingly well!

    Here is the new and improved avatar. My son circa 1985. I have been missing him so much lately. Haven't been to see him since July. He's 26 now, but I'd give anything to go back in time to the day this photo was taken, just for a day, knowing what I know now about how fast time goes by. That's what is so great about being a grandma. You know it's wonderful to hug, squeeze and spoil them because they don't stay little for long!

    I hope you all have a great weekend! Chemolicious babes and Radical ladies, we're almost there!
  • MichelleB39
    MichelleB39 Member Posts: 51
    edited November 2005
    Chemolicious babes and Radical ladies,

    Nancy, I love this!!!! It made me smile. I love the picture of your son too. They do grow way too fast.

    I have been liberated - I went to work today without my wig. Everyone is so supportive and they love to rub my head. My hair is starting to fill in and has grown so much this past month. I am starting to feel that there is hope.

    JoMac- I had to shave my legs twice this week. I kind of enjoyed the break over the summer. Well, God still had a sense of humor. I still had to shave my legs but lost it everywhere else.
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    Nancy - what a cutie! My kids are still home with me - 13 and 11 - but I sometimes get so melancholy thinking about when they were younger. What fun they were and how cute, etc. Then again, they can be a lot of fun now, too. It kills me to think I probably only have another 5 years at home with my son and maybe 8 with my daughter. Where has the time gone??

    Liz - I know you're going to have a great time on your cruise. What a great post-chemo present!!

    I saw my onc yesterday. I have my last chemo scheduled for November 22nd. I told her I wanted to feel really good the weekend before that for my weekend getaway and she thought that sounded like a great idea. I'm also scheduled for my scans in December.

    She also wants me to get fitted for a sleeve in December so I can fly to Pennsylvania in January to start house shopping.

    I've been feeling so out of control lately. Not really able to plan on much of anything because I don't know what's going on. Talking with my oncologist yesterday helped me feel a little more in control and we're supposed to have a Realtor come over in the next couple of weeks so we can start getting the house ready to list. That helped quite a bit, too. I'm not feeling quite as chaotic or helpless.

    Hope you all have a great weekend!!

    Jen
  • MichelleB39
    MichelleB39 Member Posts: 51
    edited November 2005
    Jen- what is a sleeve?

    One more thing, JoMac, I know how you feel about connecting with people in the waiting rooms. I found myself surrounded by the same people everyday at radiation and would wonder what their story was. Some people would natually talk. I miss my "radiation buddies."
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    A neoprene compression sleeve to help prevent lymphedema. I don't have a problem with that (as of this moment) but the change in air pressure in a plane can sometimes cause it. It's a preventative measure.

    Jen
  • LizFL
    LizFL Member Posts: 377
    edited November 2005
    Had my simulation done yesterday...have 7 tattoos. Have mammo/ultra for left breast and PET scan scheduled for Monday. Feeling stronger each post chemo day! Can even see some hair growth without a magnifying mirror. Yea, there is life after chemo!

    Hope everyone has a great weekend!

    Liz
  • nosurrender
    nosurrender Member Posts: 2,019
    edited November 2005
    Hi Junesterettes!
    Just wanted to say HELLO...
    I haven't abandonded ship! My computer decided to be the first on the block to get Bird Flu.
    How are the end of Chemo girls doing???
    And Brenda - you are starting to get a little rash from the rads?

    BIAFINE RE! The BEST cream for rads!

    I see you all are a veritable commercial for Miracle Grow! Junies are busting out all over?! YAY!

    I am so happy... it is blessedly NOVEMBER.

    THAT MEANS IT IS THE END OF BC AWARENESS MONTH....

    Thank the lord!
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    What a bunch of quiet girls we are.

    Yesterday was such a normal day for me. It was wonderful! I made it to church for the second week in a row! And then we met some friends who we haven't seen in months for lunch. That was a LOT of fun.

    Later we dropped the kids and some of their friends off at the movies and then we went for some frozen custard (with Reeces Peanut Butter cups mixed in, of course). It was just a pleasant day.

    This morning DH had to have a root canal. I'm liking being the care taker and not the taken care of. lol. I'd sort of forgotten what it was like.

    Hope you all are having a good Monday.

    Jen
  • danahollis
    danahollis Member Posts: 161
    edited November 2005
    Hi chicks!

    I'm happy to see everyone is doing pretty darn good!

    I have my last Rad Tx tomorrow. Woohoo!!! My little pink, tender & slightly itchy boob is VERY thankful!

    Just wanted you all to know I check in on you ALL the time... but sometimes am too lazy to post.

    Hugs to all of you!
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    Yay for you, Dana!! Completely done tomorrow, eh? Are you going to celebrate??

    Jen
  • JoMac
    JoMac Member Posts: 192
    edited November 2005
    Dana,
    That is great that you will be done.
    I have two more weeks and yes, I am itchy.
    I also feel very very tired. Although when I say that aloud I follow it up by saying any day that is not a chemo therapy day is a
    "swell" day.
    I signed up for genetic testing and now I can't remember why.
    I don't want to go and I know the information will just make me either crazy or crazier.
    I would rather not know. all my treatment decisions have been made and execpt fot the last surgery acted on. So what will this information give me as far as information I can use?
    Oh....on the hair front, I know have "Ken" hair. Remember Barbie and Ken circa 1964. Ken had painted on hair that conformed to his head ......That is what I have ....
    "The Ken Head" is not dead.
  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    Ken Head! Bwahahahahahaha!!!!!

    How's this for ironic. My hair has come in fairly good. It's probably between 3/4 of an inch and an inch long all over.

    It was laying on the top of my ears so I trimmed it this morning. Looked pretty good. Then I got out the Veet and removed the hair from my legs and my underarms.

    Get in the shower and what happens? I start losing the hair on my head. I can still go hatless today, but I figure it's only a matter of time. I think I'm being punished for teasing my husband about the fact that I had more hair than him.

    I thought I'd be more upset, but Watson is right. It's easier the second time around. Then again, I'm still covered. I'll get back to you in a day or two, after it all goes.

    I CAN'T WAIT FOR 2006!!! LOL!

    Jen
  • RebeccaH
    RebeccaH Member Posts: 72
    edited November 2005
    Dana....WAY TO GO!! Doing the happy dance for you!!
    Rads went really fast for you. I have my first tx today, and you're already done.. I guess you could call it rad envy...

    My eyelashes and eyebrows are slowly falling out....just as the hair on my head is sprouting. Go figure!
  • danahollis
    danahollis Member Posts: 161
    edited November 2005
    Thanks ladies...

    Rebecca... it'll go by fast!

    JoMac... Ken head... that's very funny! LOL!!! I'm still in the stick straight up very soft fuzzy phase... but I LOVE, LOVE, LOVE my fuzzy hair. Tough to keep my hands off of it.

    My husband , son and I are going out to dinner tonight to celebrate. I brought the Radiation Techs and Rad Onc Krispy Kreme Doughnuts as a thank you. Friday night, I'm taking my girlfriends out to dinner as a thank you to them for being so good to me throughout all this stuff.

    I'm happy to be done. But as I was changing back into my top after my last Rad Tx... I almost started crying. I totally teared up and had to tell myself to not be sad, scared, whatever... it was strange.

    I have my 2 month follow up with my Oncologist tomorrow. This NEW life I have is so good in so many ways, but so frightening in so many others!

    Truthfully, I'm just glad to be alive!

    Hugs to you all!
  • Watson
    Watson Member Posts: 1,490
    edited November 2005
    Hey Ladies,
    I just made my six month follow up appt with surgeon. It will be on the 23rd, the same day as last chemo. This makes me sooo nervous! I still think I feel something in BC breast. Two different oncs have told me they don't feel what I'm describing, but I"m not crazy! (okay, I am, but I don't imagine breast stuff!)

    The lady who made my appt said the only problem with having this mammogram the day before Thanksgiving is that if it shows something, you'll have to wait until the next week to come back. So now I'm all nervous again. I guess I'll get over it.

    Have I mentioned that I hate Taxotere? lol. Just one more to go, so I'll just Cowgirl up and get through it.

    Oh, husband went to airport yesterday, checked onto flight to China, then his boss calls him and tells him not to get on the plane until this report was done. Husband gets luggage off flight, takes $120.00 taxi home, emails report to boss and then was told to go to China on Saturday. Is that a waste of time and energy or what? It actually worked out well for me, though. I wasn't feeling too good yesterday and having him back really helped.

    Ta Ta!

    Watson
  • LizFL
    LizFL Member Posts: 377
    edited November 2005
    Dana...Congratulations...that is totally wondereful that you are done!

    Ken hair...that sounds good to me! I just have a few fuzzies and an occasion very short hair sticking up here and there.

    Watson...I hated the Taxotere too..you will start feeling a lot better when it is done!

    I am waiting for results of mammo/ultra and PET scan...hate this waiting!

    Liz
  • Analemma
    Analemma Member Posts: 1,622
    edited November 2005

    Rebecca, my brows and lashes also fell out just as hair was barely starting to come in! I guess that's fairly typical. After the first flush of totally white hair, a lot of dark stuff is coming in below. I gave up the hat on Monday and wore makeup and dangly earrings to treatment and to the grocery store. I'm tired of covering my head, and I'm not nearly so self-conscious now that I have a good quantity of fuzz all over, and brows and lashes. Plus, I just love to rub it! I wonder what all the other drivers think about the mostly bald lady driving down the road rubbing her head! I'm going to teach my pottery class uncovered today, as well. It's very liberating!

  • Jenster
    Jenster Member Posts: 267
    edited November 2005
    Brenda - it is a liberating feeling to not have to wear a hat or scarf or wig, isn't it?? And I, too, love rubbing the top of my head. lol. Well, I did until it started falling out again. Poop!

    I've been putting off my shower all morning because I'm afraid of the inevitable. I've really been enjoying having hair. Oh well. I can't put it off forever. I guess I'll bite the bullet and have at it.

    If only I could lose weight as easily as I lose hair.

    Jen

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