2010 Sisters

Options
1…5455575960…157

Comments

  • sweetaerobabe
    sweetaerobabe Member Posts: 319
    edited November 2010

    Thanks for all the advice, and I am writing this stuff down. It all just seemed to happen so fast today, Im not sure what meds the Dr gave me, He was talking to the nurse, the nurse was talking to the social worker (so she can fill out a prescription form to help get the meds paid for) so I was trying to catch what was being said. I ended up leaving with the employes because I was there so late. Tomorrow I will go to the pharmacy in the morning, and call the social worker to go over everything, and if I still have questions I will call the Dr.

    Thanks again.

    Kristy

    · Share on FacebookShare on Twitter
  • mumorange
    mumorange Member Posts: 205
    edited November 2010

    With the scarf tying, I do it a little different to Lago ( hey, there had to be something different).

    I use a long narrow style. Put the edge of the centre ( if that makes sense) and pull both ends behind your head, wrap it back around the front, cross over and tie at the back. Somehow it looks quite "styled" but is nothing at all. Only works with the longer styles but that's the type I often find in the stores.

    · Share on FacebookShare on Twitter
  • redninrah
    redninrah Member Posts: 773
    edited November 2010

    i stopped taking my steroids a little early and my knees are hurting!! :(

    · Share on FacebookShare on Twitter
  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited November 2010

    {{{RED}}}} Try an Advil. That always helps me and pretty quick!

    · Share on FacebookShare on Twitter
  • cat54
    cat54 Member Posts: 77
    edited November 2010

    Barbra and Redsoxfan...WELL SAID...I also second the fact that Barbra is our biggest chearleader as well as many of all of you to answer questions, give , support... I can't put into words how GRATEFUL I am to have you all front and center during this challenging time in my life and all of us...I already feel I can win this battle...GLAD you got a chance to get together. HUGS TO ALL, Cat

    · Share on FacebookShare on Twitter
  • sweetaerobabe
    sweetaerobabe Member Posts: 319
    edited November 2010

    Hey, not sure if everyone knows this but franceluxe.com will give you one free silk scarf or headwrap. I was told by the american cancer society. I emailed and waiting for a reply, but the headwraps look awesome, and have a 72.00 value, and you get to pick the one you like.

    Kristy

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited November 2010

    I just received my fanceluxe headwrap today! It's gorgeous! lovely silk scarf. I forgot to tell them what color so they sent me olive which is usually an aweful color on me but this is really nice. Darker than it shows online.: http://www.franceluxe.com/pc/L3083B2/headwraps/index.html

    · Share on FacebookShare on Twitter
  • sweetaerobabe
    sweetaerobabe Member Posts: 319
    edited November 2010

    I better email them back and let them know which one I want then... I didnt realise before I sent the email that I could choose. Ill get on that now. How long did it take you to get it?

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited November 2010

    Actually faster than I thought. I sent my email on October 24. Be sure to specify color.

    · Share on FacebookShare on Twitter
  • sweetaerobabe
    sweetaerobabe Member Posts: 319
    edited November 2010

    well, I sent a mail before I knew I could select, then I selected and changed my mind and sent yet another email with the subject "correction for my order" and chose the 1st one on the webpage. Thats the one my bf laiked so it may be a suprise which one I get. lol. Or I may get 3.

    · Share on FacebookShare on Twitter
  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited November 2010
    sweetaerobabe-  The franceluxe scarves are beautiful.  The hand-signed get well card they enclosed made me cry.  Another organization that gives free gorgeous scarves for cancer ladies is www.gailafund.org  They are a different sort of style, and look very fashionable.
    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited November 2010

    www.gailafund.org wants to contact your doctor to confirm you're a patient. I don't think doctors can even do that because of the HIPAA law.

    · Share on FacebookShare on Twitter
  • onestep
    onestep Member Posts: 115
    edited November 2010

    Good morning, I just checked out the FranceLux site after reading all the recent posts and the headwraps are beautiful. I am going to check out gailafund now, lago. :)

    · Share on FacebookShare on Twitter
  • onestep
    onestep Member Posts: 115
    edited November 2010

    I do like the Gaila headwrap. For me it may be nice for a special event maybe as it seems a little more formal than the others. What a small world as their company is "right in my backyard." I keep getting amazed by what people do to help this cause and so many powerful givers are people who are survivors.

    · Share on FacebookShare on Twitter
  • dianemoe
    dianemoe Member Posts: 74
    edited November 2010

    Ladies plz a little question. I had axillary nodes removed Thursday. Even with pain meds I have poker stabbing burning jab every once in a while under and down arm. Is this to be expected (normal)? You ladies are all in my thoughts and prayers daily. HUGS Diane

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited November 2010
    diane that didn't happen for a few weeks after surgery with me but I think it's a good sign. It means your nerves are regenerating.
    · Share on FacebookShare on Twitter
  • dianemoe
    dianemoe Member Posts: 74
    edited November 2010

    Thanks i really appreciate it. I felt it was a nerve problem but figured it was a bad thing not a good thing.....Again Thanks

    · Share on FacebookShare on Twitter
  • Teklya
    Teklya Member Posts: 435
    edited November 2010

    I'm b-a-c-k (only barely).  Wow, that stuff knocked me down for over 2 weeks!  Just now starting to feel a bit better.  Still have a horrid cough and still pitch a fever almost every evening.  Hopefully, I can have a few "normal" days as I will be getting ready for another (my last) chemo on Thurs (if all goes well).   I hope we can move ahead with no delays.

    Sounds like some of you are struggling as well.  Just know that you are all in my thoughts (and prayers).  I feel for all my "sisters" who are in these incredible situations dealing with the results, treatment, side effects, etc of this nightmare-ish disease. 

    We will beat it and we will go on to live many, many happy years, you all know that right???

    take good care and just breathe. . .

    Teklya

    · Share on FacebookShare on Twitter
  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited November 2010

    Aw {{{TEK}}} so sorry you are struggling. I am sending you lots of gentle cyber (((HUGS)))).

    And may all the sisters have a stress-free (well, I can hope, right?), side effect free and happy weekend.

    · Share on FacebookShare on Twitter
  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited November 2010

    Tekla,---Good to see you back...I don't post a whole lot, but I do like to read and see what everyone is up to.  So excited for you that you have only one chemo left...I just had my 3rd on the 5th....I have 3 more left...can't wait to be done with this part...I still have rads, but I think that may be easier than this (at least I can hope, right?)

    Dianemoe-l--ago is right...my BS told me it's the nerves regenerating and healing...you also may feel "rugburn like" feelings as well...it's the same thing...it's annoying, but it does get better.  I still have some numbness under my arm and back of arm...my surgery was August 12th.  I've heard it can take many months before things get back to "normal" again...

    Please know I offer you all up in my daily prayers..that no matter what part of the journey you are in, that you are blessed, comforted and doing well....

    peace and prayers,

    Tori

    DE COLORES! 

    · Share on FacebookShare on Twitter
  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited November 2010

    lago-  The Gailafund folks ask for your doctor's name but I don't think they actually contact them.  I think it is just a way for them to discourage non cancer types from getting free scarves.Sad to think people would do that, but nothing surprises me.  I did fill out my doctor's name and hospital, have nothing to hide.  I got my scarf the very next day so I don't think they would have had time to call them.

    It's an absolutely gorgeous day here in NYC.  It's my birthday so DH and my son took me to our favorite neighborhood restaurant for lunch.  The waitress found out and the next thing I knew the whole staff was singing happy birthday with a cake and candle.  I had to fight very hard not to cry.  Every birthday seems so precious now.  I don't care how old and wrinkled I get.  Please God, just keep them coming!

    · Share on FacebookShare on Twitter
  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited November 2010

    Happy Birthday to you DesignerMom!  Enjoy all the joy today brings!

    Tori 

    · Share on FacebookShare on Twitter
  • mumorange
    mumorange Member Posts: 205
    edited November 2010

    Yes...Happy Birthday DesignerMom...hope you had a fantastic day!

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited November 2010

     •♥•♦•♥• HAPPY BIRTHDAY DESIGNER MOM •♥•♦•♥• 

    · Share on FacebookShare on Twitter
  • LadyinBama
    LadyinBama Member Posts: 1,132
    edited November 2010

    Happy birthday Designer Mom.

    Teykla, glad you're back. My Taxotere #1 was Monday and it kicked my butt! So, I'm glad we are both backSmile

    · Share on FacebookShare on Twitter
  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited November 2010

    Happy BDAY {{{DM}}}

    · Share on FacebookShare on Twitter
  • Sherryc
    Sherryc Member Posts: 5,938
    edited November 2010

    Happy Birthday Designermom!!!

    · Share on FacebookShare on Twitter
  • shells43
    shells43 Member Posts: 1,022
    edited November 2010

    Hey welcome back Teklya and LadyinBama! BIG HUGS!

    · Share on FacebookShare on Twitter
  • Elisimo
    Elisimo Member Posts: 1,601
    edited November 2010

    Happy Birthday DM.  I am glad to see you went out with your DH and son to your favorite place.  I knew they would make your day special.

    Teklya - sorry you are struggling so, but glad you only have 1 more chemo they you are done with that. Know my thoughts and prayers are with you.

    I have been playing the waiting game for my radiation to actually get started on the spot in my back that is causing so  much pain.  Looks like if all goes as planned I will finish this round on my birthday.  After this is over I will be looking for a new RO.  This one makes me crazy and every visit turns into a confrontation and I don't want or need that in my life.  I have enough stress already.  At least he did give me the Rx for the Fentanyl patch that helps with the pain.

    Hope everyone has a restful weekend.  

    Amy Jo 

    · Share on FacebookShare on Twitter
  • sweetaerobabe
    sweetaerobabe Member Posts: 319
    edited November 2010

    Yes, Happy Birthday DesignerMom! I hope you had an awesome day!!!

    · Share on FacebookShare on Twitter

Categories