Chemo June 2010
Comments
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Just reading posts and feeling so blessed and lucky that I have met all of you brave, bright, funny, compassionate ladies. I can't imagine having gone through this madness without you!
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To Sherry and All My Sisters:
Thank you - your posts have been so moving. I went into a depression when my chemo was over and I started thinking - Why don't I seem better? My therapist said to ask my onc about antidepressants - which he prescribed. I told him - I think the chemo has messed up my hormones and caused the depression, and he said - No- you''ve had a major health trauma and THAT'S probably causing the depression!
Then, last week, I got a report that a suspicious spot, near my lump, is benign. I was hugely relieved. That night I had a dream about sex. I had not even thought about sex since this whole thing started last spring - yet here was my libido trying to push its way into my conscioiusness. Who knows? Maybe it was the antidepressant. But when a 50-year old bald lady in the middle o breast cancer treatment can have sex dreams, anything is possible!
Hugs to everyone!
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Toni u totally made me smile
LOL!
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Toni- WOOT! You go girl!
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Toni: LOL! That's what I love about this place. There's always someone to make you smile!
I am going to have to have another bone scan I found out today. I had called my onc's office on Monday to see if there was anything they could do for my joint pain as it is not getting any better and I can hardly walk and am having trouble sleeping at night because I can't find a comfortable position. Onc said I should be getting better and since I'm not, he wanted another bone scan as that would give him a clearer picture of what may be going on. Not sure if I should be nervous about this or not.
Did my first rad tx today. Was in and out in 20 minutes. I liked that part.
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hi girls, well its been a week or so post chemo, i dont need rads but i have sunk into that dark place again. my onc said i prolly would as most women do. i dont know what to do with myself. It breaks my heart reading all this from my sisters but yet, it makes me feel so blessed to have you all go through this with me. I never woulda made it without you girls, its been a long 6 months. I spend my night tonight thinking of all of you and praying for peace and health. We need to remember,we DONT have cancer anymore! we get to start a new year soon and as hard as it is sometimes, we need to remember our glasses are half full.(ok so mine has vodka in it
) anyway, im gonna try and be positive and keep myself so busy with projects around the house. Oh i start Tamoxifen tomorrow.
love you all
Chey
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toni, hahahaha... too funny!!
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Toni- I LOL at your dream. Then I remembered a story about my dear friend's sweet son who was diagnosed with leukemia as a baby. He was in remission for 12 years, but it came back and he is now in heaven waiting for us. At his memorial, a gorgeous, young girl told of her memories at the cancer camp they attended each summer. She, too was a survivor and remembered slow dancing, as a bald, ill, young girl with this handsome boy. Imagine a "normal", 14 YO boy choosing to slow dance with a sick, bald girl, it probably would never happen. It struck me how, once faced with cancer, we are more able to truly see the real beauty in people. It's as if I see right through the nonsense to the important things. I have met so many brave, beautiful, funny, BALD women during this journey. I feel forever changed in a good way. As for all of you beautiful friends. I will love you forever....bald, fat, skinny, wrinkled or whatever!
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Chey - don't go to the dark place. Stay out here in the sun with us! I completely understand the comment though. I am finding myself a bit more emotional and down now that chemo is done. For some bizarre reasoning while we were doing "organized poisoning" with chemo I felt like I was doing something to battle. Even though I have radiation ahead I still realized my "active" fight is coming to an end.
Saw the onc for the after chemo treatment review. MUGA, EKG and bone density tests were good. Blood work took a little dip but overall it didn't appear to be a concern. He started me on Arimidex. He wants to me take it for a month and see how I make out.
Have to admit felt weird leaving that office and knowing I don't need to be back there every week. What will I do with myself with out all those folks.
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Hi all. New to this thread. Have been reading several other topics. Did not see a group for chemo starting in April.I didn't find this site til after chemo ended I'm pretty close to most of you. I finished chemo in July. On tamox and supposed to be doing Herceptin every 3 wks, but had to stop due to low EF from MUGA. Have ups and downs days. Also having surgery in Jan. to remove other breast and have reconstruction. Don't want to do this again down the road. Thank you for listening. I don't feel quite alone knowing I can come here for support and knowledge.
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LLL-welcome! Will you start Herceptin again? I have my next MUGA the day after Thanksgiving. The one I had before Herceptin (my 2nd one) was down, but still ok. I'm a little concerned what my next one will be. Did you have a mastectomy? Do you know what you are doing for recon? I had my left breast removed in May, and have been wishing ever since that I had done them both. I'm trying to decide if I want to remove the other one and be done, or have recon. I'm having rads now, so I will probably wait until next summer to do it.
Chey--You are a strong woman with a lot to live for! I know you will get through this! Know that you are not alone with these feelings.
grneyd--glad all your scans were clear! Hope the Arimidex goes well for you.
Dmom--love ya back!
Sherry--I don't know if this is similar to your problem, but after I finished chemo last Jan. all my joints started to ache worse than they ever had. I had mild rheumatoid arthritis before chemo, but never that bad. I went back to work and was in alot of pain by the end of the work day. I could hardly walk. I finished chemo about 5 weeks ago, and I am noticing that I am starting to get sore again. I just hope it doesn't get as bad as last time. I'm not sure what causes it, but I've heard others complain of this too. Maybe the scan will show inflammation or something. Don't worry though! Hopefully it will show what's causing it so you can get help!
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TMarina - I am experiencing the same thing. I am more sore now that I was the whole time I was getting chemo. I thought it was just me. Really caught me off guard!
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Welcome LLL. Sorry you didn't find us sooner. We are a crazy bunch, but we love each other and support each other. Glad you can be part of us.
Chey: Oh dear - not the dark place again. Are you taking your meds regularly? Hopefully they'll help a little.
I was glad to read that others of you are having similar joint pains. It's so odd I think. Before cancer, I didn't have any joint problems. Really had no health problems other than allergies/bronchitis in the spring and fall. It is getting so bad that I won't be able to drive much longer. I still haven't heard when my scan appointment is. I called them today but they had not received an order from my onc. Got busy at work (kids were CRAZY today) and didn't get a chance to call the office, but plan to first thing in the morning. But as I think back, the joint pain started about 3-4 days after my Neulasta shot in October and has been steadily getting worse since that time.
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Count me in on the joint pain! I usually don't feel anything. These days my knees are killing me going up and down stairs. I thought it was just "aging". Now I am wondering if it is due to chemo. Ahhh, BC, the gift that just keeps on giving!
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Count me in with the joint pain. I finished chemo 3 weeks ago and I am stiff with muscle soreness and aching joints amongst other things like pitting edema. It's hard for me to get up sometimes! I feel like I have aged 40 years! I haven't taken anything for it yet. Has anyone found any meds that help? I may try to take some Aleve. I do know that when I was on the steroids the day before and the day after chemo that the joint pain did diminish. I hope you all feel better soon!
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Hi ladies!
Sorry I've been absent for a while. It's been super busy at work. I've been traveling on business and took some vacation days. I only have 3 weeks between chemo and rads, so I'm making the most of it.
My onco said I could color my hair, so it's now dark brown. Much better than the concrete gray. I'm still wearing my wigs.
I visited my dermatologist on Tuesday. She removed another suspicious mole. Hopefully it's nothing. I'm seeing her every 3-4 months now (instead of every year). I also saw my plastic surgeon, oncologist (for lab work which turned out normal) and my obgyn for a yearly exam. I had a 2nd CT scan for rads. They're going to prop me up on one side with a wedge pillow for rads. They have to get my left foob out of the way. They can't drain it because I have the exchange silicone implants. My PS and rad onco ran into each other at a breast cancer conference on Tuesday morning. They were discussing my case and how shocked they were to hear about my 2nd diagnosis after getting a bmx for DCIS. Anyway, they are going to stay in touch with each other while I'm going through rads. My PS told me to massage my rad foob everyday. Once I finish rads, he wants me on vitamin E. If I get capsular contracture, he can go in and release the capsule a bit and add alloderm. Seeing my PS made me feel a lot better. -
hi everyone
sorry to hear about all the joint and muscle pain, but on the other hand i'm glad - because I have it too and was worried, but now I know it's just a common post-chemo SE :-)
I'm off for surgery on sunday, so will be quiet for a while. hope you all have a good weekend!
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Latte- I will keep you and your little one in my prayers as you continue your "journey". Let us know how things went once you feel up to it.
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I'm DONE WITH RADS!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Congrats JFV!!!
Latte-prayers for you!
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Latte...I'll be thinking about you on Sunday. Please let us hear from you as soon as you're feeling well enough to type a short note.
And JFV...Well, Joan, YOU DID IT!!! As you are so fond of saying...WOOT, WOOT, WOOT!
Kittycat...it's such an exciting life visiting one doctor after another, isn't it? Sounds like you are on a similar medical tread-mill to the one I'm on. I can't believe how many appointments I've had and how many I still have to keep or schedule.
Amazing how so many of us are having severe joint pains. Just getting in and out of the car or a chair or bed is a real challenge some days.
Chey...I hope that your outlook and mood gets brighter over the weekend. Actually, I've noticed that I'm wanting to cocoon ever since last weekend when the time changed. It's so dark so much earlier each evening that I'm ready to call it a day by 7PM! I don't think the increased darkness helps anyone's moods.
Hope everyone has a peaceful and relaxing weekend. Love you all and am grateful that I've been able to go thorough all this madness with each of you by my side. cancer (yes, remember that I will not give it a capital c, not even at the beginning of a sentence) sure sucks but knowing all of you has been a true unexpected blessing.
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Latte: Good luck on Sunday. I had lumpectomy last week and they got clean margins, so that's my good news. Hope your surgery is also a success; I'm sending good karma your way. Congrats to everyone who is done with chemo and/or rads. You are all marvelous! PS- I have had back pain -not exactly joint pain - since Taxol and now think I will ask my onc about it next week.
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i am a month post chemo and my knees hurt too. Even worse is the connective tissue pain that comes on any time i use a muscle. Anyone else have this? i hope it goes away. im thinking of trying accupuncture and massage but i welcome all suggestions. sore muscles would feel almost good but this connective tissue pain is miserable.
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Hi to all of my June chemo friends, Sorry I am not posting as much as before but am really busy with work, finishing up rads and taking care of my Mom who has dementia. She is 84 and is really a handful but very entertaining. She still knows everyone but can't keep a thing straight. She tells the most outrageous stories fully believing them so is very convincing to others that do not know her condition.
Last week she called 9-1-1 and reported that her house was being broken into. She is in a residential living facility so does not even live at home. Needless to say there was nothing going on at home but the sheriff's dept contacted my brother next door to see if there was a problem. It was at 3am and he said it scared him to have a deputy at his door at that time of the morning. She is really starting to be a menace and we may have to take out her phone if this keeps up. She also has reported peeping Tom's that were not there.
Last month she caused the fire alarm to go off while she had popcorn in her microwave and it was also after 12 at night. The entire home was evacuated to the parking lot and the firemen came and everything. We have removed her microwave and apologized to the adminstrationa and staff. They were very understanding and expressed that they needed to practice a fire drill anyway. So glad they were good about it.
The other residents are now calling her "SMOKEY". I think she has enjoyed the attention and it may encourage more stunts from her. She really is stubborn and very manipulative even though her brain has gotten so unreliable. I have found that this is the way this disease goes.
Just thought I would relate these funny stories to you ladies so we can realize that even for all our problems we don't have it quite as bad as some. HA_HA! I will update with more Julia episodes soon. Maybe I can at least write a funny story from all of this and I want Bon to help with the arrangement and wording as she is so entertaining. Mom and I are a pretty good pair right now because we are both having "BRAIN PROBLEMS" , although my Mom claims hers is fine.
Finishing rads on Wed. and so glad to be finishing. Hubby and I are planning small weekend trips close by to see Christmas lights starting the weekend of Thanksgiving.
Hope all have a glorious weekend and I am thinking and praying for us all.
Hugs, GINNY
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gin2- Bless you for continuing to find humor in your mom's behavior. Congrats on finishing rads. I'm right behind you, just finished #19 and am headed for the finish line! Enjoy the magic of those beautiful Christmas lights.
I am tuckered out today. Walked through the park on this glorious NYC day with DH and my sweet son. They took me to our favorite neighborhood restaurant for my birthday. The hostess found out and the next thing I knew everyone was singing happy birthday with a cake and candle. It was the first time in a long time that I nearly cried, knowing just how precious every birthday is. I pray that all of us get to blow out a LOT more candles.
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Ginny - maybe you should think about writing a book with your mom's funny stories!
Latte - keeping you in my prayers as you go through your surgery tomorrow. Will be glad to hear from you when you recover enough to take to the computer.
Yoo Hoo Chey! Where are you?
Imaging called Friday and my bone scan is scheduled for Tuesday. I'm a little worried since I am about seven weeks past chemo and it seems that every day I get a little more decrepit. Now whenever I stand up from a seated position, I have to stand for a minute or two before I can start walking. I'm trying to stay positive.
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Anyone have their hair coming back? I have a nice head of fuzz - it's filling in quite a bit. Just not very long, but very soft. I find myself rubbing it alot because it's so soft. No lashes yet though. I kind of miss them.
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Sherry - good luck with your bone scan! I haven't had one yet. I can totally relate to feeling decrepit. When I get out of bed in the morning it takes a while for my body to warm up. I feel like I am 80 but I understand it will take a year or so to get back to "normal". I can't imagine what Tamox is going to do me once I start that at the end of the year. I am only 3 weeks from my last chemo but I see a little hair growing back on my head. Of course I am using a magnifying glass but it gives me hope. No such luck in the eyelashes/eyebrows area.
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Latte, thinking of you today and praying for a quick recovery.
Love and Hugs to all, Mimi
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Sherry- I'm like you. When I stand up I sort of hobble for a few steps (knees, feet, joints need to get going). Then I seem to get going and do better. I think it is important to keep moving even if it is just walking around. Like with arthritis (which I'm wondering if that is a SE from chemo!), it gets worse if we don't move. I feel like Dory in "Looking for Nemo"...."keep on movin' keep on movin". I know she was swimming, but I have always related to her character while going through BC, totally bewildered at times, but moving in the right direction. Hoping your scans are gorgeous!
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