June 2010 Mastectomy

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  • almagetty
    almagetty Member Posts: 316
    edited August 2013

    Done!!! I'm done!!!! 

    I'm home from my NAC reconstruction! I can't tell you how I happy I am to have all the surgery behind me (God-willing!). The skin graft donor site/lipo area in my lower abdomen is sore and swollen. The NAC is well covered right now (look Laurie, no cone!!), so I haven't even gotten a look at the sponge, let alone the nipple. But the fat graft area to correct the shelf ... oh wow!!! It looks fabulous! I know that I will lose about 30-50% of it over time, but how I wish it would stay like this! It is perfect! I'm glad I decided to do it!

    The surgery took about an hour and a half. They started at 7:50 AM, finished at 9:15 and I was awake in Stage 1 recovery by 9:45 AM. I was home before noon.

    I hope Lisa's exchange went well and that she's recovering comfortable. 

    Getty 

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited November 2010

    Yay Getty!!!!!!  Fantastic news, thank you so much for checking in with us!  So happy for you :)

  • RobinLM
    RobinLM Member Posts: 143
    edited November 2010

    Fantastic news Getty - well done!

    What 'shelf' are you refering to - have I missed something??

    x

  • almagetty
    almagetty Member Posts: 316
    edited November 2010

    Thanks, Laurie & Robin, for joining in my celebration! I'm feeling pretty good this morning. The belly incision doesn't really bother me, but I'm feeling bruised in my lower abdomen and then under my arm. It's due to the fat grafting, I think. But, I'm off the narcs and just taking Advil.

    Robin: I had a gap that developed along the top, inside area when my implant dropped into place. It was between where my natural tissue ended and where the implant began. The ladies on the exchange thread call it a "step-off" or a "shelf". I think it's a pretty common occurrence. My PS filled that area with fat he took from my lower belly. It now looks perfect. The PS did tell me that my body will absorb some of it, usually as much as 30-50% of it. I'm hoping it's closer to the 30%. 

    Getty 

  • RobinLM
    RobinLM Member Posts: 143
    edited November 2010

    I have a bulge at the top of mine! Mine are 'super-pecs' , but- mine are tiny, booby stumps ...... no bra fits because the basal area is large but they have no 'projection' - if you know what I mean. So all bras are empty like hooters!! Wink

    Why did you have a belly incision Getty? Did they not harvest fat with a needle?

    AAnyway, its great news that you are done... now you can move on - hooray!

  • almagetty
    almagetty Member Posts: 316
    edited November 2010

    They took a skin graft from my belly to make the areola.  That incision is about 5 inches across at/just below my bikini line. The fat is taken (and also inserted) with a needle.

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited November 2010

    Just wanted to pop in and say hi to everyone.  It's been so quiet, I hope that means everyone is doing well.  Ducki- we haven't heard from you in awhile, I hope everything is ok and your just busy with grand kids.

    Getty how are you feeling since the surgery?  And Jane?  Jeanne?

    My grandfather passed away this past weekend and the funeralwas today.  I'm glad he was able to go quickly and with out pain.  93 is a lot of good years.

    Hugs to all of you.

  • RobinLM
    RobinLM Member Posts: 143
    edited November 2010

    Laurie - sorry to hear about your grandad, but as you say he had a good long life, but still very sad.

    I PM'd Ducki and had no reply - maybe she's on holiday somewhere lovely Undecided

    How are you doing Getty - everything still good?

  • brazos58
    brazos58 Member Posts: 261
    edited November 2010

    JUST Checking in Everyone.

    Hey Robin/ Getty/ Laurie thanks on your updates and glad all things sound good.

    Laurie so sorry about your Granddad.

    I am comming along, just mending from BMX's... I can not fathom all you are dealing with Recon.

    I keep getting bounced around from the LE/PT the Fitter and the BS all who are on different pages....hurt my knee 2 months ago and its finally feeling better.

    The Holidaze are fast upon us and I don't know where this year went. I am so looking forward to Hibernating and getting more strength back. So I can kick butt in the spring working in the yard some, and possibly wash my Mustang!

    The rollercoaster continues.....some days I have my act together, other days I am scatterbrained, some days plain disheartened, some days I laugh.  Its very hard on the Sex Front being Nakie.

    but I am kicking butt all in all. This is one tough thing to Rise Above.

    Love and Light to All of You

  • almagetty
    almagetty Member Posts: 316
    edited November 2010

    Laurie:  So sorry about your grandfather.

    Brazos: It sounds like you're on the same rollercoaster that I am. LOL. But, I can say that most days now are up days.

    I am still doing pretty well. I'm seven days post surgery now. My bruises on my belly and in the cleavage area and along the top of my reconstructed breast are a sight to behold. Yesterday I wore a shirt that, unbeknownst to me, showed a bit of the bruising along the top. I'm sure people thought I was a battered wife. :0 I still am sore in the abdomen area, due to the lipo not the incision, but it's getting better every day.

    I went to my PS' office today and the nurse removed the sponge and all the stitches. I didn't see the PS, but the nurse told me that, barring any complications, I am done with them. It was a little weird, I think, to be dismissed by the nurse without seeing the PS at all after surgery, but whatever. She said that in 2-3 months, if I feel that I need to tattoo the new nipple/areola to match my natural side, to give them a call and the PS will do it in the office. I think that if I decide to go with a tattoo, I'm going to go with one of the 3D tattoo people like Facecrafter (Judy) who posts on this board. 

    I had a slight scare as I was changing the dressing on my new nipple/areola just now. One of the scabs had stuck to the gauze and it seemed to me that the skin graft came up oh so slightly in one small area. My husband checked it out carefully and he thinks that it was just the scab that came off, but I'll be keeping a careful eye on it. This is all a bit nerve-wracking. 

    Getty 

  • orchidgal
    orchidgal Member Posts: 153
    edited November 2010

    Oh my! Getty, congratulations of your NAC surgery! That is so exciting! It must be so sore from all the work they did, but I'm sure it will look wonderful soon. And that it is nerve racking not knowing exaclty what to expect! At least it is only on one side. Look forward to marking your progress.Hope you feel better and better soon.

    Last time I checked in with you from the wilds of New Mexico. My road trip was wonderful in so many ways. I did get a toothache in Taos, partly due to the elevation and barometric pressure, and by the time I got back to LA I was in howlng pain, and my dentist sent me right away to the oral surgeon and they pulled the tooth! And then put in a cadaver bone graft to grow back bone so I can get an implant in three months time. So weird, now I have cadaver tissue in two (three!) places, and soon will have three implants! Think that the last couple of months have been tough on me as I am still not working and have had time to mull over everything that has occurred this year, including my brother's suicide this past March. So taking the road trip helped sort things out a bit. Am excited about exchange surgery coming up 12/7, and hope to get some semblence of my life back in the new year.  Had some dry injections today in my teres minor muscles due to the unending pain and soreness in those muscles ever since BMX, esp. on the left side. PS said it was due to SNB and the repair he did. The dr. who injected is a facial pain specialist, and she's brilliant. It may just have gotten rid of that soreness for good. I hope.

    Hope everyone is hanging in there and doing well.

  • RobinLM
    RobinLM Member Posts: 143
    edited November 2010

    Getty - you are doing great - and the sponges are gone - how does it look and is it painful??

    My left Frankenfoob, as I like to call her, is looking pretty ugly now as I get back to playing sport, thinking I will have to have remedial work on her maybe april time next year in which case I might get nipples done then.

    Melissa, great to see you post, glad you enjoyed your trip xx Rather typical to get toothache when you are away from homeUndecided 

    I've had pain in the same muscles on my LHS but not constant for me though luckily.

    Had an appt with my BS yesterday. All OK, but we discussed my Path report. He said that after reading it he felt vindicated because when he'd discussed my case with the other team drs, they felt I should be monitored....... he said I was without doubt going to be the 1 in 4 to get invasive cancer. The massive lump I had had for 13 years, was and still was B9, so only the poking around it checking it out, turned up the other stuff...... How lucky is that.Surprised Anway, I'm feeling a very fortunate lady right now

    xx

  • reneemac
    reneemac Member Posts: 73
    edited November 2010

    It's great to read the updates from everyone!

    My exchange surgery has been scheduled for Friday, December 3. The PS says that it will take a couple of hours and I should be able to go home that day. He also said that I would only need about a week off after, so no disability for me; I'll be taking sick time. He kinda freaked me out at my last appointment; he had me sign the consent form for the nipple reconstruction and when I reminded him that the expander was still in my chest, he said "really, are you sure?" Hmmm, YES I am sure. When I discussed all the details with his scheduler today, I made sure that it was for the exchange surgery.

    Unfortunately, our cruise vacation was cancelled. We were scheduled to sail on the Carnival Splendor and unless you haven't heard the news lately, there was a fire on that ship a week or so ago. The ship will not be ready to sail until mid-January, 2011. We weren't able to find anything that was comparable on the West Coast so we'll be combining a trip to Texas to visit family with a cruise leaving from Galveston. We'll be sailing in late March, 2011 and I'll have a new implant with me!

    The PS told me that he wanted to put the implant in first, before he did any adjustments to the other side. But he did say that everything is easier from here.

    I had posted that my Oncologist wanted me to go on Effexor for the hot flashes. I have the prescription but I haven't started to take it. It says not to take with alcohol and I had planned to be drinking a little of that on my November 28 cruise...... now I am not sure that I want to get hooked on an anti-depressant.

    Other than that, everything is great! I ordered a prepared meal from one of the local grocery stores for Thanksgiving because we were going to be cruising the next week, and when that was cancelled, we decided to keep the plans for the prepared meal. I will be making a couple of additional sides but everything else is included. Hooray!!

  • almagetty
    almagetty Member Posts: 316
    edited November 2010

    Awww, Reneemac, what a bummer about your cruise! I'm sure that your spring cruise from Galveston will be worth the wait, though. And you'll get to go with your squishy implant instead of the TE! That's pretty freaky that your PS thought your TE was out and that he was ready to move forward with the nipple surgery. These are the things that make me scratch my head and go "Huh?".

    Melissa, I'm so glad that you got that time away to think and reflect on everything that has happened this past year. Sorry you had to deal with a toothache, too. :/ Great news about the pain management!

    And the both of you have your exchanges coming up so soon! That's great news!! 

    Robin, besides the soreness from my bruises, I have no pain to speak of. I really think the nipple is looking great! I check on it every couple of hours to make sure that it's still there. lol!  Even though the color doesn't match the natural side yet, it really, truly does put that finishing touch on the whole thing. I'm really happy that I did it. 

    Getty 

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited November 2010

    It is great to hear from everyone!  I only have a minute and wanted to ask you ladies a question.  Since my surgery I swear I have gotten dumber.  I don't remember things, make mistakes with my work things like that.  I am meticulous with my work and always have been and now, I seem to flub stuff up left and right.  I have heard of chemo brain, but I haven't had chemo.  What about mastectomy brain?  I swear they took a piece of my brain out when I had surgery, it's very frustrating.  Has anyone else noticed this?

  • LG300
    LG300 Member Posts: 652
    edited November 2010

    Laurie08 - Are you on any pain meds or muscle relaxers?  I took a Valium as a muscle relaxer the day of and day after most of my TE fills - and that can definitely make one a little out of it.

    Getty - That is weird not to see your PS after your surgery.  Unfortunately, I just saw mine again today.  I had my regular post-op appointment on Tuesday (we both had our surgeries last Wednesday), and I was fine, except for an allergic reaction to the adhesive on the bandages.  Then last night I noticed that my left breast was larger than my right (they were pretty even right after the exchange surgery) and that it was red and swollen on the bottom.  Went to see my PS today and she said there was some fluid and an infection, but she thought we could "nip it in the bud."  She gave me two different antibiotics.  I go back to see her again on Tuesday.

    Reneemac - I can't believe your PS thought your TE was already out and was ready to do nipple construction.  Good luck with your exchange surgery in a couple weeks!  I've had some complications following mine, but on a positive note, it feels great to have the TEs out.

  • LG300
    LG300 Member Posts: 652
    edited November 2010
    Hi all - If any of you are currently taking Darvocet or Darvon for pain, please note that the FDA just banned them due to serious heart side effects: http://www.webmd.com/pain-management/news/20101119/darvon-darvocet-banned?ecd=wnl_nal_111910.
  • Laurie08
    Laurie08 Member Posts: 2,891
    edited November 2010

    I take nothing, no pain meds etc, Haven't since 8 days after surgery back 6/30.  See?  I have no excuse!

  • reneemac
    reneemac Member Posts: 73
    edited November 2010

    Laurie, I've had the same problem as you! For instance, tonight I was looking at a mushroom on my dinner plate and knew what it was, but couldn't speak the word. This seems to happen alot lately and the only thing I am on is Tamoxifen. No rads or chemo.

  • almagetty
    almagetty Member Posts: 316
    edited August 2013

    Laurie: I do think I've gotten, if not dumber, then definitely more distracted with everything. No rads, no chemo and no Tamoxifen (yet!) for me. I tell myself it's normal after all the mental trauma that I've been through this year.

    LG: Sorry to hear of your infection! I hope the PS is able to get it under control quickly. 

  • stlcardsfan
    stlcardsfan Member Posts: 466
    edited November 2010

    Hello all - almost Turkey time.

    Tuesday 11/23 go in for my pre-operative testing.

    Wednesday 11/24 is Herceptin # 16 out of 17. Also see Derm for 6 week followup on MOHS spot on my face. It is healing very nicely.

    Tuesday 11/30 meet with PS to cover my exchange surgery info.

    Side note - I too was thrown into first chemopause, and the instant menopause with ooph that was done 6/21. I was very resistant to being put on Effexor and wanted other options. I have now been on I-cool for menopause with great success. It can be purchased at Walgreens. No hormones, no soy, no extra fillers. No more night sweats, and hot flashed greatly reduced. My dr's all know I am on it, and no one has a problem with it.

    7 1/2 months PFC and my hair is about 2 inches now. I look like I have a chic hair style now. Of course random pieces stick up every which way, but who cares! 

  • LG300
    LG300 Member Posts: 652
    edited August 2013
    Just wanted to respond to stlcardfan's post about i-cool.  It looks like you ar ER-, so it may be alright for you to take it, but women who are ER+ should not.  In the FAQ section on i-cool's website, they recommend that women always check with their doctors (standard supplement warning), especially those who have had estrogen-dependent breast cancer (not a standard warning).  Their website also states, "During and after menopause, a woman's estrogen levels drop.  This drop often brings on discomforting symptoms such as hot flashes....  The pure genistein in i-cool combats this drop in estrogen and alleviates, if not eliminates, miserable menopausal symptoms."  If you are ER+, you do not want to "combat this drop in estrogen."
  • stlcardsfan
    stlcardsfan Member Posts: 466
    edited November 2010

    Second time I have been bashed on this thread.

    I am done. 

  • orchidgal
    orchidgal Member Posts: 153
    edited November 2010

    Robin, so happy that you got this great news. It is such a confirmation of your intuition and decision to go ahead, as some of us didn't know if our condition merited such a big operation. This will definitely boost your immune system having this knowledge. And getting more reconstrucion will probably feel better in April after some time has passed. Time is our friend here!

    LG: Sorry to hear of your infection. Sounds like the antibiotics are taking care of it. Glad you posted the Darvocet info. Saw that today. It makes me so mad that they allow so many dangerous drugs for us then only take them away years after so much damage has been done I remember my first breast biopsy in '97 for a cyst. They gave me Darvocet. I took one and felt so ill in my gut from it I threw the rest away and went cold turkey through the pain.

    Renee: that would upset me, too, to hear my PS get confused. But then they are doing so many surgeries all the time. Your surgery is just a few days before mine on the 7th, so keeping good thoughts for us. My PS said it will be a four hour surgery, so I've been taken aback these past few days thinking it was only gonna be two or so. But I know he will do a great job, and that's what counts. So sad to hear that your vacation got canceled.

    Getty: I'm so excited about your nipple, and can see you are in the honeymoon stage, checking to see if it still there. What a miracle of modern medicine that they can fully reconstruct our parts. Is your foam removed, yet? How do you camoflauge it in your clothes?

    Laurie: I"m so GLAD you brought up this mindlessness thing. I have it too, and have been wondering why as I'm usually pretty sharp, and have put myself on a regime many years ago for mental clarity with diet, exercise & supplements, smart nutrients. Now I feel like I am partially senile! Renee, I have the same thing like forgetting the name of a common object, or someone's name. Have two cooking classes scheduled for the new year, so hope I don't blow it in front of my students! I  agree with Getty that all the stress, meds, and anesthesia we've been subjected to takes its toll, and want to believe that in a year or less our minds will clear up. Having chemo, rads, or post surgery hormone therpay only adds to this, so hope you find the right thing to do for those hot flashes, Renee. Friends keep reminding me that gen. anesthesia really gets our mind numbed out for a while. I figure since I've had three surgeries while being under, not counting that horribly painful stereotactic core needle biopsy, that so far in the last  seven months I've been under general anesthetic for at least ten hours. In a couple of weeks there will before more hours to add to that. I guess as strong as these drugs are, (hello - Morphine!) plus the stress on so many levels we aren't even aware of all adds up to having brain freeze. LG: I agree that the Valium does do a big number on our brains, although it is sort of necessary going through recon. Yesterday I went to pick up my surgery meds at the pharmacy, and didn't realize they'd also called in for Valium for me. I bought it, then saw when I got home that I still have a lot, and since I get name brand they were $100. The pharmacy wouldn't take them back, so I have some very expensive pills that I won't be taking, and attribute this to my brain being so numb. Normally I would be on top of it for something like this. My plan is to do a lot more aerobic exercise, hiking up hills is my fav, and maybe that will renew the blood flow and promote better circulation, especially after all these hours laying around and in bed! Let me know if anyone has anhymore ideas on this. Sorry you guys are experiencing this, too, yet glad I'm not alone!

  • almagetty
    almagetty Member Posts: 316
    edited November 2010

    I added up my hours under general anesthesia, too, and I'm at about 12 hours over 5 surgeries in 8 months. That's a lot of anesthesia! No wonder my brain is in slo-mo!

    Melissa: The lovely daisy sponge! Just another really weird step in this whole process. I have pictures that I still have to load onto the computer, but hope to have them over on the other site soon. The nurse removed my sponge this past Wednesday. Quick and pain-free. It wasn't really that difficult to disguise under clothing. I was able to wear my regular sports bras (and on a couple of occasions, a regular bra) with no problem. I wore blouses instead of t-shirty clingy type tops, and no one was the wiser. The more difficult things to hide, still, are the bruises from the fat grafting. The darker bruises are pretty high up on my chest, so I have to be careful with necklines. This is one time that I'm not happy that our Florida temperatures are still in the 80's! 

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited November 2010

    Ladies, I thank you.  It (once again) is so nice to see I am not alone.  It really is frustrating when I make mistakes with my work.  Most of my time is spent with my boys, playing running etc.  I can't screw that up too badly, but doing the books for a business?  Yup, you can mess that up pretty easily.  I only took the week off after surgery and have been going strong ever since.  Or kinda strong.  Yet, I just always think what the heck is wrong with me?  I am so sorry that some of you have had the same experiences, yet glad I am not alone.  Why is no one else talking about this?  I read a lot of threads and have never seen anything?

    On a side note- in case no one else saw, Stcardsfan was very upset about a recent post and felt she was "bashed" on our thread.  She said she wouldn't be back and deleted all of her posts on our thread.  I Pm'd her and asked her to stay with us, but she felt she had to move on saying it was the second time she had felt this way . The whole thing frustrates and saddens me.  I don't think it was intentional but she still felt hurt and that matters.  Anyway, I wanted to share what I saw, I know she will be missed.

  • LG300
    LG300 Member Posts: 652
    edited August 2013

    Laurie - I did see stlcardsfan's last post before she deleted it.  I was going to respond to her, but saw she had already left the forum.  I'm sorry she felt "bashed," but I'm not quite sure why she did.  I don't know about the other time she felt "bashed," but my response to her post about i-cool wasn't about her - and was certainly not meant to be critical of her. I provided additional information and warnings about the supplement for other BCO sisters - taken directly from i-cool's website.  It's dangerous to take if you're ER+ (stlcardsfan is ER-).  I thought providing safety info for the group was a good thing, and I'm sorry if my post somehow upset her.

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited November 2010

    Happy Thanksgiving everyone!  I feel very thankful for so much, including all of you.  Jpy, I have been thinking of you your baby Vida will soon be here!  Good luck ♥

  • brazos58
    brazos58 Member Posts: 261
    edited August 2013
    Happy Thanksgiving to all of you. Blessed to have you all on this Journey.
  • LG300
    LG300 Member Posts: 652
    edited November 2010

    Happy Thanksgiving everyone!  I'm thankful for all the support and information from my BCO sisters.

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