anyone starting chemo in Nov 2005
Anyway, I start my 6 rounds of TAC chemo on Thursday 11/10. I am 40 yrs old and was diagnosed with IDC on Sept 30th, had a bilateral mastectomy (strong family history) on October 20th. Tumor was 2.1 cm with no lymph nodes involved. PR/ER+, Her-. I only had a 1mm margin to my skin, so after chemo they are saying I need 6 weeks of radiation. But, I'm not so sure I want the radiation. Still investigating pros and cons for it.
I am frightened about the side affects of the chemo and I'm worrying about how it will affect me.
Anyone else out there getting ready to start their treatment?
Comments
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HI! I start chemo on the 9th! I was diagnosed on 9/29, and have had a sentinel node biopsy, and a port put in. I am 31 years old. I have to do pre-op chemo because Teddy tumor is pretty huge. I will at least have a full mast. on the left side, but am waiting for brca tests to come back-if positive, I will have bilateral.
I'm freaked out, too. I'll be here for you.
Lots of hugs and prayers, Debbie -
Hi there. I begin AC Nov 17th. I have completed 12 weeks of herceptin, and had a great response, tumor and lymph nodes were undetectable. I had my quadrantectomy/lymph node dissection surgery last week on thursday, and got the path results yesterday. no sign of invasive cancer left. that is great news. however, there was a margin that had DCIS. I have to decide now, to do more excision of the area or a mastectomy. i am worried about there being more DCIS, and later having a recurrance. I am having some discomfort and swelling in the lymph node area now, 9 days after surgery. the surgeon told me that was normal, and it may need to be drained. (YUCK) I had 30 nodes removed. I am so nervous about the AC, and now worried about the DCIS and possible lymphedema. ugh.......... maybe a bilateral mastectomy, will put the worry out of my mind.
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Hello all,
I am actually heading into my 2nd round of chemo. I was diagnosed on March 11th of this year. I have already done 4 cycles of AT followed by partial mastecomy, with 13 nodes removed, followed by reexcision, followed by 37 radiation treatments and am now heading back into chemo for possibly 6 more months. I am starting back up with AT since I had such a good response from it but can only do a couple more cycles before I am maxed out on the adrimycin portion, and then my onc. will switch me to something else, he hasn't made the final decision yet but is kicking around a couple of possibilities as long as they get every last cell that may be lurking around I don't really care. I start back up on the 14th and even though I have already been through this I hope you won't mind if I join your thread.
Deb -
Hello ladies. I start tomorrow on 4 A/C, 12 Taxol w/Herceptin (+40 more Herceptin), 35 rads and 5 years of Arimidex. Dx w/DCIS in Sept, lumpectomy 9/29 showed IDC. Another lumpectomy 10/12 to get clean margins and SNB (clean). Have port, ready to go. So, Deb, Lynn, Jill and The Band Teacher (did I get the names right), we'll journey through this phase together. Be brave, we can do this.
Nancy K -
Hi, thanks for starting a November thread, I was looking for one too! I am 41 and was dx'd on 9/17 with left side IDC and (minor) DCIS in a 2 cm tumor with lymph node enlargement. ER+, PR-, Her2-.
I had a bi-lateral mastectomy with immediate reconstruction w/saline implants on 10/5. Surgery showed that only sentinel lymph node was involved, the other 10 nodes removed were clear (thank God). I see my onc on 11/14 to find out when I start 3 mos. A/C and 3 mos. Taxotere, I imagine it will be late November....I will have a port put in right before first treatment. I will be on Tamoxifen for 5 yrs after that.
My onc gives patients the option of weekly vs. every 3 wks treatments.......says weekly makes side effects more tolerable, but is not yet clinically shown to be better, worse, or the same as 3 week schedule. Has anyone ever heard of this?
I am worried about side effects taking me out and the effect it will have on my family. My husband (43) and son (17) are Bipolar (son is well managed right now and seems to be "growing out of it," if that's possible, but still takes meds) and daughter (15) has Post Traumatic Stress/Depressive problems....I have always been the one to run the house and help manage everyone else's issues, so I can't believe this is happening to me....my hubby struggles just to take of himself, but I have a good network of friends and family eager to help.....I still worry, though. Friends from work are bringing meals 3x a week and that has been wonderful.
I do have faith in God and I don't resent this "bump" on the journey of life. I know we will all get through it with faith and a good therapist! I take anti-depressants and they make an enormous difference in my coping skills.
Sorry such a long post.....glad to meet everyone here! -
Hi there, everyone in the Nov group. I wanted to ask Laura, how did you decide to do a bilateral mastectomy so quickly? I think that is what I want to do too, but have been thinking since dx may 8th. i had upfront chemo, herceptin, and agreed to quadrantectomy 1st, but didnt want a 2nd surgery, unless it was a bilateral mast. and i also want reconstruction. did you have radiation? my onc says they wont do radiation on a recon, so the recon couldnt be immediate. (my reason for opting for the quadrant 1st) Ladies, any other ideas on prophylactic mastectomy, would be greatly appreciated. i am trying to arm myself with all the info i can. thank you, LynnZ
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Hello to my co-chemo starters! I start on the 11th with FAC every three weeks times 6. I get anxious before each "new" event in this journey and this is no exception. I'm 45 with teenagers one son and one daughter they along with my husband have been amazing not to mention my co-workers family and friends.
I am to have reconstruction after I finish chemo. I chose a mod radical mastectomy vs. lumpectomy with radiation. Lynn this is for you I hope it helps you. I also decided that when I have the reconstruction that I will have a mast on the other side.
I'm in the health industry and I have a personal motto "If it isn't supposed to be there I want it OUT" the motto came from seeing many oncology patients come to the hospital I worked at in the early 80's. I can't tell you how many times I heard "They thought they got it all"
My general surgeon told me that because I had bc on the one side that I am at higher risk to have it in the other side. My Oncologist explained to myself and my husband that it takes over a million cells of a tumor before you can feel it. The size of the tumor doesn't determine whether is spreads or not. Spread is when at least one cell "breaks off" and enters the bloodstream and in the case of bc it can go to the liver, lungs, bone and brain. Personally I've seen patients/family members with these types of cancer and I don't want them.
Lynn an excellent resource of information is the Susan Love's website or she has a book that is the best one out their on breast cancer.
Hope this helps! Let me know if you need more info
Take care! We are not alone!!! -
Hi all, We are getting a little group of Nov starters, that is great. Thank you so much, for your info LNRN. That is the kind of stuff I want to hear. I go to a great support group too. Some of the ladies have chosen prophylactic mast, and others havent. It is a mixed group, and very personal. I just think, myself, I would be a nervous wreck everyday, wondering when something was going to turn up. I am 42, and have 2 teenage daughters, 16 & 15. My son is 23. My husband passed away from a sudden heart attack, 20 months ago. So I and my kids have been thru a lot, and a recurrance is just too scary to think about. I feel like a champion some days, and a big whiney wimp other days. I am really nervous about the side effects of the AC, and the way it will change things in the house. I am praying and hoping to be one of the lucky ones with minimal side effects. These boards are a great resource for info. Looking forward to building a good repoir with all of you. LynnZ
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Lynn-- my breast doc wanted to get surgery scheduled as soon as possible to get my treatment plan going (surgery, then chemo) - which was OK with me.
She explained that I could have a lumpectomy or mastectomy with option for recon and that research indicates about the same risk of recurrence for each, so it was totally up to me. She also explained that I could eliminate the radiation element completely by electing mastectomy.
I chose double mast with recon primarily because:
1. I wanted as much assurance as possible that it was removed in the affected breast and proactively prevented as much as possible in the other breast
2. I wanted the least chance of subsequent surgeries - for financial and emotional reasons
3. I felt totally comfortable with the idea of implants - the whole flap thing just didn't appeal to me (no offense to those who choose it, of course)
4. Skipping radiation was important to me
5. Ok, I admit it - the thought of having firm, perky ones sounded good! ha ha I was never attached that much to the original ones in the first place - they were saggy
I have not regretted my decision at all. My new boobs are perky, firm and best of all, I don't have to wear a bra! (I only had 350cc saline - B cup) I just wear camisoles underneath to hide the flat scarline. There will be more revision in the future to get rid of the "corners" of the scarline on the inner edges, add nipples, etc.
Best wishes to you in your decision-making.
Laura -
Hi all. I started chemo on November 1. I was diagnosed w/ IDC on October 18. Because it was a large mass I am doing chemo first to shrink. I saw an oncologist and had PET Scan, CAT scan and will have a bone scan on Thursday. Unfortunately there are a couple spots on my lungs, one on my liver and possibly one on my hip bone. The oncologist course of treatment right now is 6 rounds of Taxatere. I will have a CAT scan done after 3 treatments to see if there is any improvements. I was feeling good the day of treatment and even the next 2 days. On day 3, WOW did the fatigue set in. I am learning my limits. Then on Saturday and Sunday(day 4 and 5)I just couldn't relax. I posted about this and got great responses. These boards are a great source of information and hugs.
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Hi,
I'm 45, married with 3 boys (13, 8, 5) and am doing my second round of chemo (1st was 6 rounds of AC in '03...things have changed so much in just the past 2 years!). Anyway I have bone mets diagnosed Nov'04(spine, left hip), have been on Herceptin since Dec'04. The cancer was stable but now showing slight increase, so am now beginning taxotere with hopes it will knock it down.
I started last Friday the 4th with my first treatment of taxotere. I will do 6 weekly treatments, and then have 2 weeks off and this is a cycle. After 3 cycles I will get a PET scan to see how things are going. So far no side effects, we'll see what happens with the nails and hair over the months.
I had a bilateral mastectomy Feb'03. I only had cancer in my left breast but it was very aggressive. I didn't want to live waiting for the other shoe to drop, and being a Libra I like things balanced, so I a prophylatic mast on my right. I have elected not to have reconstruction b/c I can't put that added stress on my body.
I hope for everyone comfort and healing going through chemo. I remember my first go around and it started out harder than this one so far. Hang in there b/c there is a light at the end of the tunnel. One day at a time.
God Bless,
Anne -
I am so happy to see there are others we can share our chemo issues and concerns with.
I had my MUGA scan today in prep for chemo on Thursday. The tech was very nice and after the test she let me see my heart in action on the screen. It was nice to see it pumping strong!
I have been following the thread "it's a gas..." and my gosh am I worried about tummy problems. I thought the major concern was nausea, now I think I am more concerned about the gas and constipation. I know it was a problem after surgery and I'm not looking forward to more. I just need to remind myself "one day at a time" and "baby steps" I tend to think about the entire treatment and get overwhelmed.
It is very nice to know I am not alone. Take care, Jill -
November Bosom Buddies--we've come from so many different places, backgrounds and medical histories, but we're in the same boat now--chemo in November. I feel so good about being part of this diverse group and know we can help each other through the next phase of our treatment. What I have learned about bc so far is that everyone will respond differently to treatment choices, effects of chemo, and where we are on the emotional roller coaster at any momemt in time. And that wherever we are, there is information, hope and comfort available. This is a tremendous site, but I also encourage everyone to tap into local support groups and attend if it works for you. There are tremendous resources available 24/7 if we get into trouble, physically or emotionally. There are even resources to help with food, child care, etc. in many areas , so seek out what you need.
I had my first A/C yesterday and so far, so good. Like Kim, you just take it one day (or moment) at a time.)
Hugs to all you brave warriors.
Nancy -
LNRN,
It looks like I am on the same treatment as you are. (FAC X 6) I started the 7th. I felt fine after and even went to lunch. They told me to come in a cab or with a driver but it wouldn't have been neccessary. Tuesday I drank juice for breakfast and got heartburn and didn't feel like eating. I spent most of the rest of the day obsessing about how I felt. I gotta' get over this - I can't spend the next 18 weeks waiting for the next side affect. Thanksgiving and Christmas are coming and I must get a life besides cancer. I need a new attitude! I am getting weary of my family calling to see how I am but when they don't call I miss the calls - Go Figure. I am a widow living alone and my four grown children have their own lives.
I did read Dr. Susan Love's book and you made an excellent recommendation.
Nancy -
HI everyone, I had 12 weekly doses of Herceptin and Navelbine, and had bad indigestion after about 6 treatments, it was a cumulative thing I guess. My doctor gave me prescription strength zantac 150mg, it worked, and was less expensive with my co-pay, than the over the counter kind. Ask for that, instead of suffering, Nancy. I had my surgery last week, and am recovering from the quadrantectomy, but have a lot of discomfort in my underarm, from fluid buildup, where the 30 lymph nodes were removed. i went to the dr yesterday to see if it needed to be drained, and she said not yet. i go again tomorrow, for a regular post-op. I begin my 1st AC next week, and am hoping to feel OK by thanksgiving. This will be a different year for us all, with the holidays coming in and around our treatments. hang in there, and keep a positive attitude and thank god daily, it worked for me. my tumor shrunk to undetectable, in 12 weeks. LynnZ
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I started dose dense chemo (every 2 weeks) 11/7/05. So far so good just a little queazy couple times. I had multifocal ILC and one tumor was 7.5 cm. I had one lymph node involved, they could not find a sentinel node, the answer for no sentinel node I had breast reduction 18 years ago. After the first treatment so many of the unknowns are answered. I had the port and after my first treatment I knew it was a god send. I know that I may respond to each treatment differently, but I feel I'm one down seven to go and the first one wasn't that bad. Heres hoping all the new chemoers have a successful start and end.
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I am now 3 days past first A/C. Port was still very sore, but a little lydocaine and I really didn't feel anything but the pressure when it was connected. Nurse very helpful and shared lots of info. Groggy all afternoon--I definitely could not have driven. Last two days have been minor woosey, hyper, and overall tolerable. Drank my gallons of water (what happened to the red/pink pee I was promised?) and took my Copazine on schedule, Ativan at night. Appetite decreasing. I'm grateful for the battle going on inside my body and know that cancer is under seige. Extra hugs to all of you today.
Nancy -
Hi everyone...I started my first dose of AC yesterday...It wasn't what I had imagined at all. I did have orange tinted pee for about 2 hours, then it was gone. I drank tons of water all day long. I took my copazine and Ativan as well-felt a little barfy but it has been tolerable. I am bummed that my next dose is supposed to be 3 hours long!!!! What is up with that? I'm sad about losing my hair-I have a wig, but just don't like it one bit!!!!
I ate my popsicles and chomped on ice chips during treatment, and as a result, my teeth are SORE. Maybe I should be less agressive.
Lots of love and prayers to all. Debbie -
Thinking of everyone going through the beginnings of chemo and sending thoughts and prayers for massive healing and comfort through this for you all.
Anne -
Debbie, that's good news. I am on my 3day on the other side of my first A/C and its been OK. Feel a little woozey, but keep ahead of it with the Compazine and Ativan at nights. Cheated out of my pink/red/orange pee--should ask for a refund. Don't forget the water and the synecot if you need it. Fella took me to ski shop last night and got me 2 Dr. Zhivago hats and I feel like a million bucks in them. You could sure use them in Illinois--just a thought if you hate the wig.
Ellen, you're next friend. Hugs to all you bosom buddies.
Nancy -
Nancy, what is a Dr. Zhivago hat? I am so curious! Also, what is synecot? Don't know that one, either. I giggled at your request for a refund on the colored pee! Did you pee rasberry blue if you got a sentinel node biopsy? I did-for a few days. It was pretty cool. Debbie
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Debbie, I am definitely showing my age. Its one of those great looking Russian fur hats (not real fur of course, but beautiful.) Sinecot is something to keep you regular especially when you are on steroids (dex), although I know others use different products, this is what my onc recommended. Yes, that bright blue, to teal to "pea" green was exciting. Don't we get kicks out of strange things. Tell me about that little guy in your arms. Hugs. Nancy
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Hi all,
Looks like everyone who has started seems to be doing fairly well. I am enjoying my last few days of freedom (and tastebuds) before I head back to the infusion room on Monday. I am eating all my favorite foods this weekend and told my family we would be having an early Thanksgiving Dinner this year. I have found myself very emotional this time around and am chalking it up to having been away from the chemo for the last 4 months and am finally feeling "normal" again. I even have enough hair that I skip the doo-rag and hats when I am at home (even when friends come over)Im still not crazy about the fact it came back in black (use to be a redhead) but my family is excited to see what it will come back as this next time.
Awj - I know your worried about your nails but mine really did ok while I was on AT I kept them covered with Sally Hansens Protex it is a blue color in the bottle but goes on clear the only problem I had was a weird line that ran across them horizantally. I actually got a line after each treatment and at one time had all four lines at the same time, pretty much only noticable when I would point it out to someone.
For the most part I felt almost invincible on chemo and told myself with every treatment "Get in there, seek out the little rogue cells and kill them off" so I always felt it was "working" for me instead of being something to fear.
Best advice I can give, do not slack on the mouth rinses, be consistant and your chances for mouth sores will go down. I worked 45+ hours all through my last chemo and plan on doing the same this time around.
Hang in there ladies we are all so much tougher than we think and you will be amazed at how fast it goes by.
Deb -
I had my port put in today. I will start my chemo next Thursday. I had a RMM on the L breast. I had a lot of drainage problems and had to have a home nurse for a few weeks.
I'm going to try and work while going through this. I'm a people person and have been off work for six weeks now. I seem to obsess to much when I'm alone.
I'm very glad to have found this board, and will update as I go.
Thanks to all of you who have come here to share with others.
I hope to make some friends here as well.
Mary Lou / VA -
Lots of positive attitudes here -- I'm lovin' that! Nancy, Dr Zhivago hats -- I love that idea!! And I knew exactly what you were talking about -- definitely have to be of a certain age!!
I start chemo on the 28th - 4 AC, 4 Taxol. I had the impression that the Taxol would be the toughest, but what I'm reading in these boards is that its the AC that's really no fun at all.
Are any of you triple negative? (HR-,PR- and HER2-)
Will/are any of you taking Neulasta? How is that going?
Going wig shopping today with a couple of friends -- should be fun! Any advice there?
God Bless you all! Stay positive!
Lana
Stage 1, Grade 3, Node-, ER-, PR-, HER2- Age: 51 -
What a great group! Mary Lou and Lana, you are in good company with these tough, brave and caring women. All those drugs have their side effects and we all seem to react to them differently. I am 4 days past first A/C and it really has been a non-event. A little woozey, a little hyper, but eating, sleeping, and doing OK. Able to do some work, but on my terms. Be proactive about taking your anti-nausea (before you feel sick), drink, drink, drink, stay ahead of constipation or diarrhea if that is a concern and do whatever feels good for you.
Wigs are fun and I love mine. Glad you're making it an girls event. Remember you may need to adjust when you have less hair under the wig. You may also want to have a professional cut--usually they have too much hair. This might be the time to go completely different--punk? Liz Taylor? Dolly Parton? Right now, I am enjoying the Annie Lennox look. Hugs to all and so glad we're on the journey together.
Nancy -
I had my first round of TAC yesterday. All in all not too bad. I was at the hospital from 10 am to 4 pm. took exactly how long they said it would. My nurses were nice and helpful, explaining everything as they went. I got home and was sleepy and didn't eat anything, just some water. I slept okay, but I did take the Ativan.
When we got home from the Hospital my box of three wigs were here. My hair has always been long and I got a short, mid length and long stlye. It was fun trying them on, but my husband and boys couldn't contain their laughter. Very supportive! Oh well all in fun. I sure wish I could wear a Dr. Zhivago hat, very comfy and stlyish....however in sunny southern California, even in winter, my head would be a big sweaty mess.
Happy thoughts to all. Jill -
Nancy
Thanks so much for your post. I put Thursday for my first day, it is Tuesday the 15th. Don't seem to know one day from the other. In fact my husband saw that. I feel very lucky to have him.
I still get breakfast in bed after 5 years of marriage. Since I have had my surgery he has taken care of everything. Dishes are done, bed is made & always has a load of laundry in. And his days at work are at times 12 hours long. Plus he is a boss at work and that in its self has a lot of stress. He is truly amazing.
I'm in some pain this morning from the port. I didn't think it would be that sore. How long does that last?
Thanks again for all of the ladies here that share their stories, information is power.
I happen to be a really strong woman, and this will only slow me down. I really hope to work while I pass through this journey, I just have to see how my treatment reacts on my body.
This is all new to me, so I just take one day at a time.
Mary Lou / VA
God blessed me -
Jill, good for you, 1 down, 5 to go. Congrats. New wigs are fun, good sports your sons and husband are. I went yesterday for my post-surgical visit. All is fine with the healing, however I have to make my definate decision by today, if I want to have a re-excision before the chemo starts, to get the DCIS on the margin, or stick with my schedule and have a bi-lateral mastectomy with reconstruction after the chemo/radiation. UGH. I have been playing the idea over and over in my head that I would choose the bi-lat, and have researched it in depth, but now that I am down to the last minute, I am nervous. It is a huge commitment, based on fear of recurrance, rather than necessity right now. My surgeon is confidant, that all my invasive cancer is gone, due to the herceptin treatment, before surgery. She is also confidant that she can get the little bit of DCIS on the margin. i am just afraid of any other ducts later on turning into invasive cancer. i am a widow, raising 2 teenage daughters, and I need to get my life back, and have it be the best odds possible. I know it is extreme, but seems like the best choice for me. Sorry for the long post, but I guess I am reconfirming my decision, by writing it down. LynnZ
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Hi Ladies,
I'm joining this lovely group of women also!! Here is my story so far. I am 39 been married for 10 years have 3 beautiful young daughters age 9 and twins age 6. A Golden Retreiver puppy named Maggie. We just moved from Indianapolis to Tennessee a year ago. We wanted the girls to be near their very devoted granparents. (God must have already known something)
Felt a small lump in September went for my mammo and ultrasound. Then went for the biopsy came back positive. Had an MRI showed only in left breast. Had Bilateral Mastectomy on Oct 20th with Expanders they were orginally going to take the muscle from my back to create the pockets for the expanders and new implants but since I already had implants they had already created a pocket so they didn't have to do that part of the surgery!!! Yeah!! They took the sentinel node it came back positive so she took the rest out (just6) they were all negative. YEAH!! But my tumer was bigger then they orginally thought was (1.5) after surgery it was actually 2.5. Clear margins
So it is Invasive Ductal 2.5cm 1/6nodes+ grade 2 Er+her-
I had PET Scan and CT scan this past Monday I haven't heard from them. I'm waiting for them to call me I'm afraid to call them. I am hoping no news is good news!!
I had my Port put in yesterday it is REALLY sore!! So now I start AC on Monday 4 treatments every 2 weeks then I start Taxotere I believe that is 4 treatments every 3 weeks. I finish in March. That seem so long!!
My sister got a hold of my email addressess and emailed my family and friends a website called Headcovers Unlimited and had a Hats Campaign for me. It was awesome I got so many hats,scarves in the mail!!! I've got my wig ready i'm wearing it in my little picture. I still haven't cut/shaved my hair. I think I am just going to wait till around day 10. I am REALLY dreading it. I just think that is going to be so hard!!
So that is my story so far. I just hope I can be as strong as all of you and all of the October women.
What are some things you have all bought or done to get ready for the first week of Chemo.
Thanks for listening
Rhonda
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