confused by diagnoses please help

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I went for my breast ultrasound today. They couldn't do a mammogram unless something showed up in the ultrasound because insurance won't cover it otherwise. they pretty much told me the ultrasound was a waste of time the first person that done it first told me they didn't see anything then they said they didn't see much then the radiographer came in and redone it after telling me that because I didn't have one tiny spot for them to check that they can't really look for anything and she said that she didn't care what the internet said ultrasounds and mammograms aren't always the best thing to diagnose with (I never mentioned anything my doctor is the one who ordered this test) she also said my breast are too dense to see everything on an ultrasound or a mammogram she mentioned a ct or an mri (i can't remember which) might be better but she didn't say i needed one. after it was over with she said she didn't see any cysts but i wasn't even there for cysts i was there because i had symptoms of ibc. she also said that just because she didn't see anything didn't mean there isn't anything there if the pain gets worse in one specific spot in the next few months or whenever come back and we'll try it again and to remember if they find anything in a few months or so then don't think well that radiologist said there wasn't anything in the ultrasound so i'm fine. Is this at all confusing to anyone else because it sure is to me. Is she saying there is or isn't something wrong? Do I or Do I not need a mri or a ct scan?

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  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited November 2010

    Brighteyes, this all sounds very confusing.  I don't know what to say but someone will come along and post shortly.  There is a wealth of information and caring here.  Hang tight.

  • marylouise
    marylouise Member Posts: 5
    edited November 2010

    I don't blame you for being confused.  I'm confused too.  IBC hardly ever shows up on mammograms or ultrsounds.  They did an MRI on me followed by a punch biopsy.  You need to see a  breast surgeon who is familiar with IBC.  My onc was very sure it was IBC just by my symptoms, burning pain, warm to touch, larger than other breast and the orane peel skin on the breast. Well, my Dr was right.  I was diag. in 2003 and went through alot of chem, surg. and radiation.  It recurred 9 months later and the new cancer drug Herceptin saved my life.  Find a wonderful Dr. who has experience in IBC and get the proper diag.  Best Wishes,  Marylouise

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