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pattimay
pattimay Member Posts: 72
edited June 2014 in High Risk for Breast Cancer

Just found out today that I will need another surgery.  I have severe ADH and with this last MRI surgeon is just going straight for the excisional surgery and no biopsy.  This will be my second surgery in less then a year.  I'm praying it's just more adh but I have been reading that having multi locations of ADH is putting me in a very high risk for invasive cancer.  I guess I should have written on the invasive cancer board to see how many ladies go on to develop this after having ADH.  I'm just so afraid.  I know that mri's show alot of things that turn out benign.  So I'm wondering why I'm going straight to surgery without having another biopsy done.  The way my surgeon explained it was that he knows he did not get all the ADH so with this past mri changing from my last mri at 3 months post surgery (which led to another biopsy which was atypia but NOT adh) he doesn't need to do a biopsy to know I need to have this changing area removed.  I'm still confused and scared.

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  • mawhinney
    mawhinney Member Posts: 1,377
    edited November 2010

    For your own peace of mind, relate your concerns to your doctor so that you have a clear understanding of what is going on with your body. Is you doctor planning on a lumpectomy or a mastectomy.  Consider getting get a second opinion.

     My doctor described ADH as the stage before cancer.

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  • momma_of_3
    momma_of_3 Member Posts: 110
    edited November 2010

    I am sorry that you are going thru this. I am a newbie to this ADH stuff-- but you are going thru what I will be seeing in the future. I am being told get more opinions ask questions. Good luck. I hope you get all your questions answered.

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  • thegoodfight
    thegoodfight Member Posts: 560
    edited November 2010

    If the area is small, then a lumpectomy of that and a biopsy are really one in the same.  It is a surgical biopsy.  My second surgery, after mri findings in both breasts where technically biopsies, but they were the same surgery as a lumpectomy, he just took the whole area that showed in the mri.  One breast was indeed negative and the other, which was my breast with the beast, actually showed another primary in a different quandrant.  But remember, mri's are very sensitive, so the odds are still in your favor for b9 results.  Wishing you the best................Caren

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  • pattimay
    pattimay Member Posts: 72
    edited November 2010

    Caren I think I understand a little better now with your explaination.  But since Mri's are sensitive and show many benign findings, wouldn't it make sense to do a maybe core biopsy before surgery?  When I had the followup mri 3 months after the adh surgery I just had the mri guided core biopsy which turned out benign.  The way surgeon is explaining it if I'm understanding right is that he did not get all the adh so that's why I need surgery again.  So he's not wasting time with a biopsy because he knows it has to come out.  But how can he be sure since the mri showed the same thing 6 months ago and he didn't say surgery again. When I got the call from his office two weeks ago to come in to see him I was told by him that I needed another biopsy and that  since I am small breasted and he already took so much out last time that he wouldn't be able to surgically remove more tissue and reconstruct again if the biopsy turned up anything.  Then I get a phone call a few days later that radiologist said I needed surgical biopsy.    I was so shocked I didn't ask the right questions and now he's been on vacation and this week attending seminars so I haven't been able to speak with him .  I just had my presurgical checkup at hospital and will be having surgery on Monday.  My husband says to postpone everything until we can get in touch with him.  Office says he will call as soon as he's back in his office.  Would I have been able to do the masectomy at the same time or does he have to wait to see the path report from this surgery. 

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  • momma_of_3
    momma_of_3 Member Posts: 110
    edited November 2010
    There with you. I have to have a re-excision as well. They are waiting on an MRI though. I keep thinking take the whole thing off and I won't have to worry about it...but I suppose I will have to wait and learn patience. As for you...I think you need to get some answers to your questions. I would imagine they would wait on the pathology from your sx excision before doing a mx. A surgical excision will give them more info than a core bx.  But...I feel like the blind leading the blindWink. Hope you get some questions for you and your husband answered. Waiting and wondering blows!!!!
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