LCIS AND ILC

MissTW, Radiation has changed quite a bit from the past, it is much safer. That being said, which side will you have the radiation on? Are they talking chemo as well? You may want to ask the BS about the Oncotype DX test. It will be used to help determine if you need chemo or not.

I'm sorry you're having to deal with all of this after just 3 short years. You are a brave person, and a survivor. Of course your scared, we all are no matter if it's the first time or not.

I hope later in the day those with much more knowledge than I will come along to give you more info. I didn't do external radiation, I did internal radiation, so don't know much about the external radiation.

MissTW----My mom  had ILC (with negative nodes) many years ago--had lumpectomy, radiation, and tamoxifen. She tolerated both well, with fatigue the main SE of the radiation (and had what she described as a "bad sunburn" on the breast), and is now doing well at 81, 24 years later. (How I love to be able to say that!) She also is a survivor of colon cancer twice in the last 8 years. I was diagnosed with LCIS 7 years ago and took tamoxifen for 5 years (now take evista for further prevention of invasive bc) with minimal SEs, mainly hot flashes. Tamox does carry a risk for endometrial cancer and blood clots, but it is very low, less than 1%, and they can monitor you very closely. Feel free to PM me if you'd like.

anne