Calling all TNs

MBP:  Wow, 15 years out is so encouraging!  Thank you for coming on here and sharing.

Heidi:  I'm doing the happy dance for you!  Wahooooooooo!!!!

Laurajane:  I am so happy you get to go on a trial and I really hope that it works for you.  Your dr. is the best!

Riley:  I have been on 8000 mg per day of Vit D3 for a year now and I am waiting on the blood test results.  My dr. says being in the 80's is optimal for vit D for us BC gals.  Is your dr. monitoring it?  I still got BC and when my levels at the time of diagnosis was 62.

Laurajane:  If you are on the picture site, you should check out my pics--I augmented my other side and definetly got "plumper" LOL!

MBJ- Thank-you. I will try and get registered today. 

The clinical trial I will be trying to get on is actually available here in Indiana. I am supposed to meet them this week to see if I match their criteria. Scary probably the most important interview I've ever done. I am thinking positive and truly believe I will officially get on. If they accept me I will start in two weeks. This clinical trial everyone recieves the Iniparib in combination with Gemcitabine/Carboplatin. This is the phase 2-3 I believe. My onc can give me the Gem/Carb. but I really want this parp inhibitor. I have read that many women had an extension of living for 3 months and more. I am so unbelievable grateful that my pet scan did not show mets. The nurses and doctors were crying when we were talking about this miracle yesterday. I am truly lucky.

The best thing that has happened to me today is that I woke up breathing and am so happy to be alive and feeling so good. I'll be cleaning my house and working on landscape designs today. I hope to sell another one to clients tomorrow. I hope you all have a fabulous week-end. Love you guys.

Laura 

Pinkpee- Love hearing that about your friend. I'm hoping that I get in for sure.  

Titan- Where in Ohio? It would be so fun to meet you. I often drive through Ohio on plant buying trips.

The best thing that happened to me this evening was that I contacted a well known artist named Anthony Ryder who lives in Santa Fe, NM to see if he had any impromptu classes that I could join for a week and I talked with him for a while. Really nice guy. I told him the trip to go to Santa Fe and study art was on my bucket list. He welcomed me and I plan on going out in the next week or two in between my chemo. How exciting to be drawing a live figure for 8 hours a day with phenomenal instruction for a week. I can hardly wait. I'm also looking forward to going to all of their cool galleries. I'm really not sure how I will react to this chemo but I hope it is like the others and not to bad in the beginning. I want to take full advantage of my feeling this darn good. Fingers crossed that they accept me.

Laurajane:  I am crossing my fingers and hope that you qualify and if not, do not despair.  There are many things we can  do to help ourselves and better our chances.  Glad you are doing so very well!

On that same note - I will never fly any airline except Southwest. During my chemo, I took my family on a well-needed vacation. The flight home had a layover in TN and would have taken 5 hours. I knew I would never make it. I called the airline, but to switch would have cost us $600. I mentioned that I was undergoing chemo and anything that they could do would be appreciated. All 6 of us were on the next direct flight home without any added cost. Amazing!

Swift bird- I gained only an approx 3 week remission from Taxol than my cancer started spreading more aggressivly. I think I had 6 treatments total then emergency surgery. I am hoping that the carboplatinin has better results but I was told that statistically others that had this response from Taxol again only had approx. 3 weeks response to the carboplatin. That is the main reason I want this parp so bad. My onc could start me on the chemo mix without parp tomorrow if I wanted but I REALLY want the parp. I've been told thaat most TN's get positive results from Taxol or Taxotere but there are a few like me that don't get the expected results. I would imagine that in a few years they will come up with a new name for Tn's like me that don't have the anticipated response.

MBJ- Thank-you as always for all. You are correct so many positive life changes for so many of us that have cancer doors can really open when we decide to knock. 

Claire- I just love what happened to you at the airport. Stories like this put such a huge smile on my face and fill me with complete joy and happiness. I felt similiar talking to that artist yesterday and I plan on flying Southwest. LOL 

Titan- Good Heavens... what a disaster! Glad I didn't have to suffer through it on the big screen.

MBJ- I thank-you and will check it out. This is the only thread I've been on maybe time to spread my wings. 

Gillyone- Oh my god! That just breaks my heart. They have got to come up with a cure for all of us. My sincer positive thoughts are with her. Damn it this makes me so angry. I feel so helpless and hope my positive thoughts will help. Pauldingmom is an inspriation to us all. 

Hi Everyone

I have been reading all your threads for sometime and am writing here for the first time.  Hello all of you TN's.  I am also a TN.  Finished two lumpetomies, one infection surgery, started chemo 4 AC, sept. 21 and am starting on dose dense Taxol on Nov. 16th.  I am so terrified of Taxol, ladies.  I had a 3.3 cm invasive tumor and a c.5 cm I situ, Stage II, grade II.  After surgery they are clear by 3 cm.  I am so very sick of chemo, the nausea.  I am not sure if there is anyone out there like me, I am eating like a pig.  It seems that when my stomach gets empty that's when I am wanting to vomit my stomach out.  I can't even drink water, water is my worst enemy.  I am really suffering, I can't do this.  All the eating has made my ab so big it is huge, like a pregnant woman.  The nurse had told me that Taxol is much easier, but I have read a few things up here, indicating that it is harsher than Taxotere.  The taxol will be a 3 hour infusion.  I am not sure I can sit and take the poison in for that long.  Even when I write about AC, I have the vomit feeling.  It has had such a bad effect on me, ladies.  Has anyone else experienced Chemo as bad as I have?  I have 4 dose dense Taxol to do, every 2 weeks.  i think my Onc. thinks that I am so healthy I can handle anything, but I sure don't want to develop neuropathy.  i feel that I just have really really bad luck.  Like I read some of your threads, I have always paid attention to my health, eating salads while others are eating burger and fries, always finding this supplment or that, expensive things to keep myself healthy. And then this cancer crap came.  The fear of recurrene is so great, as I have already told my family, I will never do chemo again, I would rather die.  I just can't do it.  I even smell the wig that I wear and it is horrible.  someone please help me get through this.  How will i take the 3 hour taxol infusion?  Please help me.  I did not have any positive nodes and my pet scan was clean so am wondering why the onc. gave me dose dense.  I have two other TN's in my support group, they did clinical trials, every 3 weeks.  I have no family history, insurance denied paying for the blood test, due to lack of family history of any cancer.  what do you all think?  Should I start with dose dense Taxol or ask my Onc. to change to Taxotere?  Anyone with any experience on this subject?  Also, anyone eating like a pig, like me?  what are you doing about your digestive issues.  sorry for the long post.  I am so miserable today, 5 days after AC chemo.  Love you all and my best wishes to everyone who is going through BC.

Gilly - thanks for letting us know about Pauldingmom.  I'm so sorry to hear this news.  I recall Lisa posting on here, I hope she comes back so we can offer her our support.

Welcome Lovelyface! The ladies on this thread are lovely and you'll get a lot of support here. I had Taxotere/Cytoxan every three weeks. It's no picnic but it's definately doable and you will get through it and be glad to did when you get to the other side of the fence. Hang in there...