Starting chemo Sept 05

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  • tornadogirl
    tornadogirl Member Posts: 133
    edited November 2005

    Susan, glad you are done but just to be sure you may want to check with a second onc bout the Taxol. i heard with any vascular activity they give Taxol (maybe only in her, pr, er negative cancers like mine) but at least you are getting the 5 years of treatment later, that is good. Good luck here!

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited November 2005
    Barb,

    I am confident that the decision my oncologist and I made regarding Taxol is the right one for me. Taxol gave me an additional 1% against recurrance; not enough to warrant the possibility that I couldn't play violin anymore.

    The aromotese inhibitors add many more percentage points, and so I am willing to live with those side effects, though I sure hope that I don't get most of them!

    *susan*
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  • sholroyd
    sholroyd Member Posts: 288
    edited November 2005
    Susan – enjoy your weekend. I am also getting close to the lady who tapped me on the shoulder in the supermarket to ask if ‘she had seem me at the hospital’ – I am just two weeks ahead of her in terms of treatment.

    I thought I had got away with ulcers but it seems I haven’t – not too bad though. My nose sort of feels tender inside too.

    My 11-year old dog has decided to get sick on me now – was at the Vets at 9.00 am today and have to take him back for xray in the morning at 8.30 am – he has gone completely off his legs and I fear things are not good with him – just what I need. He has probably worn his legs out cos since I have been off work he has done nothing but walk around the house after me – wonder I haven’t got broken bones from tripping up over him.

    Off to look at Peggy’s dogs now.

    Sandra from the UK
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  • tornadogirl
    tornadogirl Member Posts: 133
    edited November 2005

    Susan, i remember now! Of course dont take a chance on the neuropathy! AC is very good for er,pr plus type cancer. Very good!

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  • nmherr
    nmherr Member Posts: 63
    edited November 2005
    Diane,
    I too experienced the same thing with needing the Procrit and the 4th treatment. I am at the end of an enjoyable 2nd week after my last E/C treatment. The Procrit really did, after 8 days, give me quite the energy boost. I actually was out riding my horse hard for 45 minutes and I haven't done that since the beginning of these treatments.
    Peg,
    Speaking of pet therapy, I don't think I could do it without my animals needing attention. They certainly do motivate me to get outside and move. I have one horse and board a horse and I insist on going out to feed no matter how I feel. Then while out there I feed my 2 cats. They are outside cats but very friendly. My vet can't believe they are 12 and 13yrs old, for outside cats that is ancient. Then there is my dog Buck. He is 4 years old and very demanding of my time. Out, in, out, in and hey lets play. I am constantly grumbling about all the attention he demands but he has me trained well and keeps me moving. Pet therapy is always good.
    Maxine,
    Flu shot? I was just wondering about flu shots. I didn't think I could get a flu shot while taking chemo. Has anyone else had flu shots?
    Bubbles,
    Oh you make me laugh.:D I am with you on the constipation problem. I think am through with the worse of it. The next problem was going to the coffee house with my neighbor and drinking hot chocolate. The most I drink is milk and water so I decided to have a LARGE hot chocolate. Well to say that got things moving is an understatement. When I returned home, I went up with my neighbor to ride horses . Suddenly I felt everything was moving south at a great rate of speed. I thought I might need to ride the horse to the bathroom because I was afraid to get out of the saddle. I stopped, put the horse in a stall and did a Charlie Chaplin waddle to the house. My friend said nothing. It was a painful experience but I felt wonderful after it was done. I think all the toxins left my body. I went back and finished a little riding and have felt good ever since.

    Well I am feeling good but still suffer with eating problems. I start my taxol on Monday and will not know until then how I am going to take it. There was one statement made earlier that actually encouraged me but I am not sure who said it. She said after her first taxol, " Well I only have 3 more treatments to go." I thought that is how I am going to look at it. Thanks ladies for the great thoughts and encouraging words.
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  • Pegk
    Pegk Member Posts: 389
    edited November 2005
    The weather has been so beautiful here that I've been spending more time outside, gardening, visiting neighbors, walking dogs (of course). Take note: I'm in my 2nd week of DD Taxol. After a couple of days of pain in my hips and down my legs, I've felt pretty normal.
    Constance-I was not given any at home meds for Taxol (except for oxycodone, for pain). During the infusion I was given Decadron with Zofran, then Benadryl, then Pepcid, then the Taxol was given very slowly so they could moniter me for an allergic reaction.
    I was told to let them know about any tingling in the fingers or toes, which could lead to the neuropathy that Susan needs to avoid as a violinist. The nurse said the dose can be lowered to avoid permanent damage. My fingernails have felt tender since my last A/C, but I haven't had any other problems yet.

    I started another thread just about Taxol. I'll find it and bump it up so you can see experiences of those further along than me.

    Good luck, CD and Norine and those that are starting Taxol soon. I'll have Taxol #2 on Tuesday.
    Peggy
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  • jlpd
    jlpd Member Posts: 54
    edited November 2005

    Greeting everyone one...three a/c's down and one to go! THis past Wednesday when I had my A/c vis IV...they had a heck of a time getting the IV in correctly. Three tries. Definitely having memory issues this time too...last night, even with a medication chart I made up, I was having trouble remembering what I took and didn't take...I took my cat to the vet and said here's Nikii...Ha, it was Tabby...Nikki crossed the rainbow bridge years and years ago!! I'm definitely more tired this time...and still not getting help around here...when this is over....there will be major changes! Well, off for a bowl of lime sherbert...at least that has a little tang to it. I've missed the board several days and will need catch up on everyone's posts...talk to you later...Janet

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited November 2005
    Janet,

    Good of you to check in. The fatigue does seem to be cumulative! oh well, who needs a husband who helps out when you have lime sherbert? Sounds good actually. Wonder if my store carries any!

    Well I am off to the airport in a few hours, so I had best start packing.

    All the best to everyone. Hope that your days are going well.

    *susan*
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  • tornadogirl
    tornadogirl Member Posts: 133
    edited November 2005
    Lime sherbet is great. Try putting about 4 scoops of it in a big tall glass, pouring in 7-up and chopping up the sherbet a bit with a big tall spoon. Voila, you have a cold lime freeze! Have fun all day you guys, if you can! I am on the 9th day of my 4th AC and taking Valium and Vicoden for the predictable (for me) back and esphageal spasms. Took stool softeners too because of the meds....I will eat a whole bottle if it would help....dont want to "die" giving birth tomorrow morning again on the toilet. TMI, sorry.....

    Got the name of some good rectal surgeons if this "problem" of mine does not clear up by end of chemo.

    Good luck today and with future treatments. We will all get thru this but for me, i will never take my body or health for granted ever ever again.
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  • jlpd
    jlpd Member Posts: 54
    edited November 2005

    wow...all I can say is i am wiped out today. It's day 5 after my third chemo and I need to go back to bed...that's how tired I am...I know part of the problem...I did way too much yesterday. Plus I'm fight a cold/sinus infection. Just a low grade fever (99--but I usually run around 97)...so I'm just plain tired. I wish all of you going on Taxol the best of luck. My understanding is that with my diagnosis of ER/PR + invasive, no nodes, that AC plus hormornal is all I'll get...and hopefully that will be enough. I was a little depressed at the treatment on Wednesday. Only one other woman in the room and she was diagnosed with BC five years ago...now there are spots showing up on her ribs and they want to do a bone biopsy. How does she handle it...asks to be unhooked from the iv machine and goes out to smoke a couple of cigarettess...That left a rather odd feeling inside me. Well, off to take a quick nap. Talk more later. Janet

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  • tornadogirl
    tornadogirl Member Posts: 133
    edited November 2005
    JL, that 5th and 6th day after AC chemo was always the worst for me. You feel like the tiredness will never end but on the 7th day the tiredness will ease.

    It is funny but we really cannot completely describe what we go thru with this chemo experiance. No one would understand it unless they had been thru it. It is like no other feeling. We can say this and that and this symptom or that feeling and still not describe the whole of it.

    Hang in there girl, it will be over soon! Hopefully the hormonal part will be easy for you.
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  • txred9876
    txred9876 Member Posts: 392
    edited November 2005
    Well......(sorry in advance for the long post)

    After my post on thursday...I went and rested on the couch...an after dosing for an hour or so my right armpit started hurting...(non BC side...)I checked my temp...and nothing unusual...well my honey bought the new star wars so we started watching it...and I got really cold toward the end and my armpit hurt worse....well...102.5...ooops.. guess its time to head to the ER...by the time we got there (we are about 30-45 min...) and they took my temp...104 here we come.
    I just spent the last two days in the hospital on two different powerful antibiotics...my counts are back up after 3 shots of neupogen...and fever is pretty well gone...and the swollen infected lymph node is now not as bad but not totally gone. I now have an antibiotic i have never taken before called Levaquin (taken once a day its that powerful) and Bactrim...they are covering all there bases and told me if my fever spikes again to get back to the hospital.

    While I was in the ER I told my very nice nurse (whom was there the last time I was admitted....and remembered me...how could you forget a half bald yet still smiling lady..LOL)and told her last time they would not access my port and I showed her some of the bruises that have not totally gone away after 4.5 weeks. She accessed my port and took blood...thank goodness or so I thought...

    The next morning the nurse had difficulties getting blood return but cound flush the port...she tried heperain (not sure how to spell that) then said we need to re-access....not knowing any better there is something else called something like THP...it is an actual flush plus blood clot disolver...thats probably all you have to do..since it had been only 12 hours since last blood draw. Well she tried to access the port and even though I used the cream for whatever reason she did not access where I put the cream (Hello...I know where the port is...I can feel it...I know where it has been access all the other times...) so thats one time..felt it all..she appologises and gets another person...they miss to...didnt even bother with cream this time...then they call in the charge nurse...omg...3rd time she misses...After that i said...since its friday and the chemo ladies are there can one of the who NEVER has any issues come access it...so they went and got another lady who workes two days a week at one of the local chemo places...she got it first try!

    So 4th time is a charm...hint to everyone/moral of the story/bitch...ask the nurse when the last time and how often the access ports!

    My counts are back up but I need to get over the infection quick..next chemo is thurs...

    I believe it was Bubbles...talking about constipation...have you tried good old dried prunes? or prune juice? What about good old MOM (milk of magnesia)...no reason to suffer...what works for one may not for another....one thing that works wonders for me is....don't laugh....pinto's and cheese from Taco bell...

    One more tidbit I found out...If I can handle it..if I eat more protien...less carbs...and sugar...I have much more energy!

    Enough blabbing....:)

    Tina
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  • lisag
    lisag Member Posts: 22
    edited November 2005
    Peg, glad to hear you are feeling better from the aching. I had first taxol last Thursday and felt ok until Saturday and have had joint and muscle aching and weakness. My doctor told me to use 30 mg glutamine( amino acid powder) a day to help with the pain, but the first dose I mixed with water and it made me gag a bit so haven't been brave enough to try to mix it with something else. Also felt a little queasy and anxious yesterday which I didn't expect so I got out the vitamin A (ativan). Still anemic and short of breath so got some more aranesp.
    Bubbles and Norrine I'm with you on the constant what the heck are my intestines up to today-I'm still on antibiotics from the sinus infection last week and was considering taking a vicodin for the pain today until I though about the total shutdown effect I'd just have to treat with something else. Am so looking forward to feeling "normal" again someday in that department!
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  • foxxf
    foxxf Member Posts: 171
    edited November 2005
    On friday I developed a sore groin, thinking it was a heat rash applied anti fungal cream all weekend. Monday morn groin still sore checked area with mirror,there are two huge black patches on the top of my thighs.

    freaked out, went to G.P she checked them and said they are bruises. What the?

    I have not been doing anything to be getting brused,she said to show onc on friday when I go to have chemo.

    anyone else heard of this? Or even other bruising?

    Nicole
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  • txred9876
    txred9876 Member Posts: 392
    edited November 2005
    Nicole,
    Is the area painful like a bruise? The reason I was asking is because the area in my armpit looked red and bruised.

    Tina
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  • Calico
    Calico Member Posts: 1,108
    edited November 2005
    Hi girls,
    hope to find you well, I seem to have a cumulative nausea effect and it's hard to be on the computer a lot.
    Going for AC # 4 tomorrow (yeah last one and yuck don't want to go). '

    If I say I look forward to Taxol I am afraid to jinx myself.
    I will be happy for the AC to be done big time.
    Welcome bone ache good bye nausea pleaaaassseeee...

    Bubbles
    I force myself to eat an apple a day, didn't need colace this time. I hope you don't need surgery!!

    My prayers are with you all even if I don't respond individually!!
    Stay strong!

    God Bless
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  • foxxf
    foxxf Member Posts: 171
    edited November 2005
    txred9876

    Yes is is sore much like a bruise, have been thinking more on the subject over night. remembered I got some new undies with a bit of lace trim (never usually buy those) and we had a pre-summer hot and steamy day on Friday, so may have had a small amount of chafing in area.

    Never had a huge bruise like this though.

    Told my sister about the weird bruising and she immediatley assumed that my husband had part to play in the location of the bruising.....lol

    I wish...lol

    Hope everyone is well
    Nicole
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  • Liezel
    Liezel Member Posts: 192
    edited November 2005
    Just starting to feel human again after my 3rd round of CEF of Friday. Boy, this one was bad. Have been suffering from nausea, fatigue and severe arm pain since the minute I walked out of the chemo room. And chemo brain has been so bad that I actually forgot when I had my meds. I only realised this morning that I actually did not take any yesterday! No wonder I spent the day in a fog!

    Good news! My onc told me on Friday that Herceptin has been approved for use in South Africa! It has not been published yet, but someone showed her the report!!! Hooray! This means my medical aid will pay for it! This certainly is the best news since I heard that there has been no metasteses!!!

    My 2 year old asked me this weekend who broke my hair - lol. He is worried that they'll "break"his as well! I think I am going to battle to take him for his next hair cut!

    Look after yourselves.... I need another nap....

    Liezel
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  • nmherr
    nmherr Member Posts: 63
    edited November 2005
    Liezel,
    Good news about the Herceptin approval. It is so good to here that this helpful drug is
    being accepted in so many new places. Thanks also for the hair story and your little one. It is funny how they show us thier fears and make us laugh at the same time.

    LisaG
    Thanks for Glutamine info. I had my first Taxol on Monday and the onc told me about Glutamine. So loaded with Dexamathasone and benadryl I went to the nutrition store to
    buy some. Well I was in an extreme fog and between the 10 versions of Glutamine, L-Glutamine and 10 versions of Glucosamine and Glucosamine/Chondroiton I couldn't
    remember what the heck the onc said but it was 10mg in the morning and 10 mg at night. I asked the clerk, as I lay my head in my hand against the shelf, he said was it 10 mg
    or 10 grams. Maybe he meant 10 grams LGlutamine which would be 10,ooo mg of LGlutamine. I didn't think so but he really started to move in my fog and I told him I'd be back later. I didn't go back.

    As I said I had my first Taxol Monday. After 10 minutes of Dexamathosone and Benadryl, my head started to swim and my eyes kept shutting. I called the nurse and said was this ok? She said definitely and just go to sleep. However I was smiling and couldn't stop giggling and laughing at my friend who was laughing at me. They then started me on
    Zophran for a half an hour to let the other stuff kick in. Next came the Taxol which they started at 50 (A very slow drip). No allergic reaction after 20 minutes so they moved it up to 125 drip. My friend went to the cafeteria and brought me back a strawberry slushie and cup of soup. They moved my drip up to full speed at 200 or over (I was really foggy by then) I was sleeping but woke up and ate the cauliflour soup. As I was finishing I told her this was cauliflour soup not broccoli. She laughed and said that is what she told me, did it take me that long to realize there was no green?
    The nurse said that Taxol would make me lose my hair so when I took off my wig to try to sleep I said keep an eye on it the nurse said I would lose it. I think they gave me too much benadryl. Then we both fell asleep until the end of my treatment.
    Well here it is 4AM and I am wide awake. I need to get my neulasta today and I had a Procrit yesterday.
    My red count was lower than last time. I hope it pumps up my energy like last time. Well as they say this has been a Decadron inspired posting.

    Ps the computer kicked me off before I posted so the posting time is later than the writing time.
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  • jlpd
    jlpd Member Posts: 54
    edited November 2005

    Norine...I hope the rest of your taxol goes a little better...I had to laugh about the wig though...we really could get creative and fool a lot of people with our wigs! Last week before chemo I caught my son's cold or virus...more of a sinus thing than an actual cold...well, now it's nasty. Spent the last two nights coughing up horrible stuff...and finally convinced my nurse this morning that I don't have to have a fever in order to have developed a sinus infection...actually I was more worried I'd develop pneumonia! So she called me in a new antibiotic...tequine, I believe it was called...very expensive, one pill a day and more potential side effects than I've seen in a 'medicine'. I hope that I didn't cause myself to get sick by not taking my decadron properly...it seems in my chemo fog state, I didn't take two pills twice a day, I took one pill...I wonder if that contributed to my feeling so achey this time. We all are facing this battle, so hoping that what we are doing to our poor bodies is going to help us, that sometimes it makes you wonder how in the world this can help us when it makes us feel so horrible...I guess all we can do is have faith and believe. Here's hoping everyone has a good night and a good rest. Janet

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  • sholroyd
    sholroyd Member Posts: 288
    edited November 2005
    Liezel – strange what goes through little minds isn’t it? Good news about Herceptin. I should know whether I am Her2 + or – on Tuesday – funding not sorted yet here but since the nurse took on the NHS I don’t think it will be too long.

    Norine – fingers crossed that you soon have the energy again to get on your horse and enjoy a long ride – remember to go to the loo first though – I still have a smile when I think of you jumping off your horse and waddling into the house to the youknowwhere.

    Ok folks – I am off to try and work out how a Sat Nav works – I am not very technical minded and we all know what treatment does to our concentration levels – wish me luck.

    I am going to our cancer back-up centre tomorrow to try out Reiki – after my Thursday hospital visit for this dam thrombosis – my blood is still not thinning enough and I am still having the daily clexane injection and warfrin – pain in the axx. (sorry for swearing).

    Thoughts to you all – speak soon.

    Sandra from the UK
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  • Pegk
    Pegk Member Posts: 389
    edited November 2005
    Hey everybody!
    Norine, that Benedryl drip really knocks me for a loop, too. I actually see visions out of the corner of my eyes. It's better to just go to sleep.
    I hope you're doing okay with the side effects. It was about this time (Day 3) that I started feeling the aches and pains in my hips and down my legs-also strangely enough, in my mastectomy scars. Take whatever you need to alleviate the pain and remember it won't last. For me it was done by Day 5
    I completed Taxol #2 yesterday. That's 3/4 through chemo, halfway through Taxol. I got my first Arinesp shot to boost my red blood count. Today I went for the Neulasta. I'm ready with some new pain medication when the aches start again.
    I'm going for a sonogram of my liver tomorrow. There was something elevated in my blood that needs checking. the nurse said it could be Taxol related. I guess I'll know more tomorrow.

    Okay Sandra, what's a Sat Nav?
    I hope you get your blood problem straightened out. Swear all you want-it helps! So does Reiki, I hope. Let us know how it goes.

    Hope all is well with everyone.
    Peggy
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  • Liezel
    Liezel Member Posts: 192
    edited November 2005
    Peggy, I truly hope it is just Taxol related. Let us know. Love the pic!

    Sandra, I'll be very interested to hear about the Reiki. I did it a few years ago for bad period pain and not falling pregnant. Was pregnant within 3 months after that!!!

    Today is Day 6 after my 3rd CEF treatment, and still feeling horrible. I have also noticed that my skin is taking very long to heal from small nicks and scratches. I am also bruising very quickly. Bumped my toe the other night and it bled for ages. I would not even have noticed that I bumped it if it did not start bleeding! My chemo arm still extremely painfull! When I complained during the treatment they actually said I am imagining it! When they took out the needle, they said it was in side ways and that is why it was so sore!!! Imagining it. Next time I'll insist that the nurse who "did me"the second time do me again. That was the only time they did not nearly kill me with the needle. Starting to think the port would have been a better idea...

    Look after yourselves everybody!!
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  • tinkermax
    tinkermax Member Posts: 269
    edited November 2005
    Hi Everyone

    Well i'm feeling fine, I have my next FEC on Tuesday (#4 of 8) so we will see how that goes.

    Does anybody else on FEC have any hair growing?, my head has about 5-10% still growing, but it is white!!!!
    I also have 40% of pubic hair and my leg hair is still growing (about 70%)albeit slowly, and i still have eyebrows and eyelashes (though they are thinner) YAHOO!!

    My red blood count has stayed high throughout treatment, last blood test before chemo my Haemoglobin was 13.1 so maybe this is why, (nurse said it is still higher than hers!).

    I had my flu jab last Thursday and that was fine, no side effects, i'm just hoping my wbc (4.2 before last chemo) and neutrophils (1.8 before last chemo) stay at an acceptable level as I dont want to start having Neulasta shots.

    Peggy
    Good luck with your sonogram today, I'll be thinking of you, let us know how you get on.

    I hope everyone remains well, (or as well as we can be, bearing in mind we are constantly being poisoned)

    Best wishes to you all

    Maxine
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  • jlpd
    jlpd Member Posts: 54
    edited November 2005

    Greetings September Ladies! I am now finally coming out of the fog from the 3rd AC...one left to go...and one thing has been plaguing me. I've be looking at the different forums on this board (usually I only have time to read 'helping me get through treatment')...and I think I've been scaring myself. Where do we go from here after we're through with chemo? Do we live our lives in fear of the disease metastisizing itself in another form or place? How do we know that ache or pain we feel is not the cancer re-establishing itself? Why am I suddenly scared? I know the reason I chose to follow my onc advice and do chemo was to lower my risk of relapse, to kill all those radical cells floating around in my body looking for a home....and now suddenly, I'm afraid. I think back to when I broke my three ribs three years ago and how from time to time those ribs have hurt. Does it mean I have bone cancer? No, it shouldn't...but will we live with that in the back of our minds for the rest of our lives? I'm not normally 'negative-minded'...but I want to get on with my life...and hopefully never have to go through chemo again. Maybe that's what scares me the most...chemo was do-able...this time. Could I do it again? Would I do it again? Do you all ever think this way? I'm sorry for not being up-beat. I guess I'm a little tired from all of this. Thanks everyone. Janet

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  • kimmie11
    kimmie11 Member Posts: 30
    edited November 2005
    Janet,
    I am from the August group and I noticed alot of us got depressed around the 3rd treatment, it is hard to pull out of. Maybe it is the chemo, your not feeling well anyways and it is all sinking in, the what ifs and whens. Just have to remind yourself you are doing everything possible to fight this disease. I have now had 4 weeks off of chemo and now on to rads, slowly I am coming out of it, physically I am feeling better too. Did your doctor give you anything for depression? I am on lexapro and it has helped. I am sure some girls will suggest reading material that will help also.
    Kimmie
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  • leannem
    leannem Member Posts: 137
    edited November 2005
    Hi all

    Janet- I could have written that post it echoed all of my thoughts and fears. I have no idea why we think like that- maybe while we are having chemo we can feel some sense of control but once it's finished we are at the mercy of whatever?? I don't know. I really don't have any advice but wanted you to know that you weren't alone in your thoughts.

    Next Wednesday is round 4 of AC for me then onto Taxol and Herceptin (I think). What are the differences in side effects?? A bit worried about starting afresh but glad to be half way through chemo! I have been feeling really good apart from exhausted but that could just be the kids too!

    It is Toben's 3rd birthday tomorrow (where do the years go?) and this year I am having a party for him. I haven't done the party thing yet but this year really want to. I think with everything go on with me this year has really made me want to do these special things.

    No wedding date at all yet. I have decided I want to wait until treatment is completely over and my hair is on the way back! Maybe early 2007 not too sure.

    Scott is recovering well from his walk albeit slowly! We have been in the awesome position to be able to pay for another lady's herceptin treatment for 1 year with the surplus funds and we are just thrilled to be able to do that. In order to not have to make the heartwretching decision of who to help, we delegated that to my oncologist. We just werent' able to make that choice and thought he would be able to make a medically minded decision. Anyway, we are so happy to be able to pass some of that help on.

    Must go, children to feed and dress for the day!

    xoxo
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  • foxxf
    foxxf Member Posts: 171
    edited November 2005
    Having my 4th A/C today then on to Taxol.

    I must say also that like Leanne I am begining to worry about the taxol. I have just got the A/C thing sorted and now it's going to change again. I have avoided looking at Peg's Taxol thread untill I have done my last A/C but will be sure to check it out early next week.

    Hope everyone is doing well
    Best wishes
    Nicole
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  • sholroyd
    sholroyd Member Posts: 288
    edited November 2005
    Peg – A Satellite Navigation system – what do you call them?? My directional skills are non-existent – even more so at the moment. I have been threatening to get this for my car for about a year now – have to decide now whether I want a male or female voice telling me whether to turn right, left or go straight on at the island??!! Let us know how you get on with the Sonogram – thoughts and prayers and everything else Peg. Love the piccies of your 2 dogs – I still can’t get my ‘bald’ piccie to upload – have emailed Fumi but not heard yet.

    Liezel - I hope you soon feel better. I have never really gone into relaxation stuff before – never really had much time – so I found the Reiki experience ‘strange’, although the lady was very good and she said I took in a lot of ‘energy’ and this was good, she also said I nodded off for a while which suggested I managed to relax. I will go for a few more sessions as she said it was good to have treatment alongside the ‘treatment’ (you probably have gathered I hate the word chemotherapy). I have certainly decided that whatever my future holds it will include more time for relaxation and ‘me’ time – I have always been a workaholic and burned a lot of midnight oil ‘in the past’, marking work, preparing lessons etc etc etc etc. I wouldn’t want Reiki to have the same effect on me as you though Liezel!!??

    Maxine – 3 weeks over already – I will be thinking of you when I receive my last dose of Epirubicin next Tuesday– I move onto CMF then and am told my hair will start growing whilst on this combination of poison.

    I was well pleased with my thrombosis blood check today, it had gone up to 2 (needs to be between 2-3) so I am being let off with the daily clexane injection and have just got to take warfrin to continue to thin my blood – next check on Thursday – hope I don’t feel too grotty from Tuesday ‘treatment’.

    Janet – I would like to bet we all feel as you do right now, sometime or other. But then everyone is in the same position – who knows what tomorrow holds – supposedly healthy people or not – I suspect we all know of someone who was by all accounts healthy but never lived to see another day. We HAVE TO BE POSITIVE Janet. Remember the motto – I MAY HAVE (HAD) CANCER, BUT CANCER HASN’T GOT ME. Look forward Janet, our professionals have given us (are giving us) the very best chance.

    Off to lunch with friends again tomorrow and also out tomorrow evening – still making hay whilst the sun shines – I feel great this week. Someone told me I ‘radiated’ health today??!!

    Thoughts to you all.

    Speak soon.

    Sandra from the UK
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  • txred9876
    txred9876 Member Posts: 392
    edited November 2005
    Leanne...that is wonderful news that you had enough money to not only get your treatment but that of someone else.

    I was just checking in...I had tx #5 of AC....every two weeks is taking its tole...but the good thing is that I only have one more!

    You just never know what each treatment will bring....this time almost as soon as infustion started I felt like crap and it has not let up. They also gave me a drug like (procrit....starts with an A....they said procrit is once a week and the A is every other like my chemo)...side effect...same as neulasta...bone pain....it has already started within hours of treatment. I hope it ends quick this time.

    Well I am headed back to the couch and looking for meds.

    Tina
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