Dr. Ordered Lumpectomy Instead of Biopsy?!

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KittyKatt
KittyKatt Member Posts: 6
edited February 2018 in Not Diagnosed But Worried

Hello,

 I am a 32 year old female, no children & no history of breast cancer. I was on a heavy course of various hormones the past 2 years to try to help my Dysmenorrhea. I found lumps in my breasts last March, and told the doctor, who said not to worry I had fibrocystic breasts. I just began going to a new doctor last month, and mentioned my lumps at the end of my visit. She felt them & suggested an ultrasound. The ultrasound found multiple cysts in each breast, a supposed benign fibroadenoma in my left breast and a non-specific solid ill-formed mass in my right breast. When my doctor got the results, she said to get a lumpectomy. The 2.4 cm mass is located on my pectoral muscle in my breast tissue, and she said that the lumpectomy will change the look of that breast. She then referred me to a general surgeon to do it. Now, after wading through websites for just 4 days, I am seeing that most women I've read get a biopsy done first, before a surgery is performed. I also have read of horror stories of general surgeons wreaking havoc. Any past experience or suggestions? This is a whole new territory for me. I'm in Southern CA. Thank you!

Comments

  • Alyad
    Alyad Member Posts: 817
    edited November 2010

    you should go see a breast surgeon-not a general surgeon. There are a lot of very qualified breast specialist people in so cal- I'm sure someone else will give you some names.If not you might post something with need a referral in so cal in the title to get more folks attention. I am in the midwest but there are a lot of women on here from CA.

     Perhaps the depth of the mass against your chest wall is why she suggested lumpectomy vs a biopsy? A second opinion is a good idea I think. You have time- even if it is cancer, which is unlikely, a few weeks won't hurt anything, tho I know you want answers asap. Good luck!

  • Beesie
    Beesie Member Posts: 12,240
    edited November 2010

    An excisional biopsy - i.e. a surgical biopsy - is the exact same surgery as a lumpectomy.  If no diagnosis has been made yet and the purpose of the operation is to make a diagnosis (as seems to be your situation), most doctors call the surgery an excisional biopsy.  By choosing to call the surgery a lumpectomy, your doctor has confused you.  That's not surprising.

    While often a needle biopsy is recommended as a first step since it's a less invasive procedure, if the area of concern is up against the chest wall, then usually a needle biopsy is difficult to do - the needle can't reach the right spot.  So in this type of situation, an excisional biopsy is recommended instead. 

    It sounds like that's what's happening in your case.  It is a common approach and often is the only way that the biopsy can be done.  If you are uncomfortable having the surgery, you can always ask if a needle biopsy can be attempted first.  I did that and had the needle biopsy first, but ended up needing the excisional biopsy anyway. 

    Good luck to you.  Hopefully the biopsy results will be benign.

  • blackjack
    blackjack Member Posts: 1,010
    edited November 2010

    Hi Kittykatt, Sorry that you have to join this club. There are many women who have gone through what you are going through now. Most women will have a mamo first, then ultrasound, biopsy then see a surgeon. A surgeon can and will do a biopsy depending on your report. A biopsy will also tell you your path results and from that you can decide which type of surgery you will have a lumpectomy or a mastectomy.

    I would suggest finding a good surgeon at a breast center who deals with breast cancer. There are lots of surgeons out there but you need to find one who has experience in doing breast surgery. I would also suggest bringing someone with you to take notes for you as it  can be overwhelming when talking with a doctor. This is the start of a long journey so take baby steps, come here for support, ask questions and remember we are here for you.

    Sending you a healing hug. Keep us posted on how you are doing.

    Blackjack

  • KittyKatt
    KittyKatt Member Posts: 6
    edited November 2010

    Alyad & Beesie, I appreciate your replies! Alyad: I will post about a referral, that's a great idea. I would like some positive stories from happy patients to ease my mind of a doctor to choose. That's true, the location might be a reason why they wanted to do that. I know the radiologist who did my ultrasound said that she was confident a needle biopsy would be possible with the mass, but my general physician disagreed. I am all for a second opinion!! Beesie: Thanks for helping on the terminology! My doctor did confuse me, as I thought what? no biopsy? I would like to try the needle biopsy in case it does work, I have had extreme anxiety about doctors & surgery all my life, so this situation is confronting it head on. I just want to be ok though and do what is best for my health. 

  • KittyKatt
    KittyKatt Member Posts: 6
    edited November 2010

    Blackjack, your input is really insightful! I will be having my fiance go with me to my appts. On Monday when they told me the news, I passed out and felt so foolish.

    I always take notes when I go to my doctor over regular health things, so I will continue with that on this journey. I will look for a breast center, they referred me to just a general hospital, but luckily with my insurance I can choose where to go myself. I have a feeling I'll be on this site often, so nice to have so much information and to meet others with similar problems. I don't have any close friends or family who have had breast problems, so it is a new undertaking. I just want to be informed and try to make the best decisions for myself!

  • blackjack
    blackjack Member Posts: 1,010
    edited November 2010

    KittyKatt, Remember that this is very overwhelming. I would ask for copies of all test results as you may need them if you are interviewing other doctors. Make copies. Keep everything in a binder so you can easily access things when needed. It is a good place for notes and articles. Do your homework, make a written list of all your questions before you go. This makes the most of your appt. These are just a few things that has helped me in this journey. Feel free to pm me with any questions.

    Blackjack

  • lovetosail
    lovetosail Member Posts: 544
    edited November 2010

    KittyKatt, where are you in SoCal - the UCLA Revlon Breast Center is great.  Google that exact phrase to find it.  They have an integrative approach to BC where breast surgeons, oncologists, radiologists and plastic surgeons are all under one roof, so to speak, to coordinate your care.

    Best of luck,

    Sue

  • JennyB100104
    JennyB100104 Member Posts: 237
    edited November 2010

    I second lovetosail's recommendation. I love my UCLA docs. They are amazing.

    I also just wanted to add that the biopsy was useless in my case--no diagnosis. They had to do the lumpectomy to get an accurate diagnosis. Even though my lump was right under my skin!

    Take care, KittyKatt.

    hugs,

    Jenny

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited November 2010

    I would just like to add my two cents...I highly recommend a second opinion

    for much of the treatment we receive ...I am a believer in excisional biopsies

    because I had five false negative core biopsies and was misdiagnosed until

    I requested an excisional biopsy. It allowed the pathologist to throughly examination

    the whole lump not just the parts the core biopsy took out, and correctly

    diagnose the breast cancer that had been present all along over the time frame

    of over a year. The cancer kept on growing in that time finding its way to one of

    my lymph nodes and thus my having to do chemo..so ...do get that second opinion

    and then you can make an informed choice you will feel more involved in making.

    Hugs to you,

  • dlannon82
    dlannon82 Member Posts: 1
    edited November 2010

    KittyKat- The women on this site know what they're talking about! You may want to check back with your physician and ask the question as to WHY she is recommending an immediate lumpectomy over a needle biopsy. There may be perfectly good reasons, but I do have to say, without a definitive diagnosis, the recommendation seems a little extreme. You're lucky you're in SoCal - there are many excellent physcians there! Good luck!

  • KittyKatt
    KittyKatt Member Posts: 6
    edited November 2010

    Thanks for the new replies! I am in L.A. County, so going to UCLA Revlon Breast Center is doable! Jenny & Sue, any docs you recommend there? I am going to my radiology place tomorrow to request a copy of my ultrasound to move forward for a second opinion elsewhere. Wishing everyone else on here positive thoughts!

  • lovetosail
    lovetosail Member Posts: 544
    edited November 2010

    KittyKatt - I think Dr. Raquel Prati and Dr. Helen Chang are excellent.  Prati has a warmer manner that really appealed to me, I would recommend her highly.  I'm told Paul Schmidt is good as well, but I've not met him.  Best of luck!

  • camazur
    camazur Member Posts: 70
    edited November 2010

    KittyKatt--With a lumpectomy, they can examine hopefully all of the lump, and try for clean margins in case it is cancerous.  My first lump was pretty large, but my breast not much smaller or misshapen after.  I was wearing my old bras.  Nothing like not having to have extra surgery.  Best to be done in one shot, I say.  Although in my case it came back and I opted for a bilat-mast.  Came back again.  Just had 2 excisional biopsies and thankfully got clean margins.  This time my surgeon dismissed doing the needle biopsies first as too difficult with masses so small as mine, and the chance of missing and getting a false negative.  So we just took them out, and they were cancerous. Also, from what I've heard, a lumpectomy with radiation is supposed to equal a mastectomy, but it didn't work for me.

    Not sure if this helps... 

  • Sassa
    Sassa Member Posts: 1,588
    edited November 2010

    I am also another one who believes in excisional biopsy.  I had one done 4 years ago and, embedded in a large area of DCIS, was an extremely aggressive, ER/PR -, HER2+ very tiny IDC.

    I was glad to know it was gone. A needle biopsy probably would have just shown the DCIS.  At the rate the DCI was growing (KI-67 of 70%), I am glad there was no lollygagging around with treatment of DCIS.  I would have probably been a much later stage than Stage 1 if the IDC had not been removed at the time of biopsy.

  • Pennythoughts
    Pennythoughts Member Posts: 81
    edited November 2010

    I had the core needle biopsy first, which did indicate IDC.  Then had lumpectomy  & SLNB on Oct. 4.  Margins were not clear, so now I'm getting a re-excision on Nov. 17, but this time they're going to remove the biopsy tracks.

    I did some reading on this and some medical professionals feel that core needle biopsies should not be done at all.  Reason being that since the needle punctures the tumour, when the needle is being withdrawn, there is nothing to stop the cancer cells from being dragged along the needle track, thus spreading the cells to tissue that otherwise may have been kept intact had an excisional biopsy been done to begin with.

    I had just read that before my surgeon called me to tell me margins weren't clear.  He informed me in that call that this time, they would remove the biopsy needle tracks as well (in my case there were 5 core biopsies taken).  Needle entered from the side of my breast and up to the tumour at the 12:00 position.  In my case, that translates to a lot of tissues being removed from my already small breast.  I asked him why they didn't take the biopsy tracks in the first place and he was a little taken aback.  He said, "Why did you ask me that?"  I told him that I had read something about it.  I don't think the doctors are used to their patients questioning them, especially on issues that they think we should know nothing about.

    Anyways, might be good to research more about the biopsy tracks and question your doctors about that.  After what has happened to me, I think I would have been better off to get the lumpectomy/excisional biopsy instead of the needle biopsy, and I may not have been going back for a 2nd time to get the biopsy tracks removed.

  • JennyB100104
    JennyB100104 Member Posts: 237
    edited November 2010

    KittyKatt, My surgeons were outside of UCLA (though you can bet if I ever have another surgery, I'll be going there!). I wish you the best!

    hugs,

    Jenny

  • KittyKatt
    KittyKatt Member Posts: 6
    edited November 2010

    Thank you for the latest updates, I am going to a second opinion this week, I would prefer the breast specialist to do the surgery over the general surgeon. I am so glad to hear the feedback, I will keep this all in mind with the new surgeon!

  • lago
    lago Member Posts: 17,186
    edited November 2010

    I know with my biopsy they told me there was a risk of puncturing my lung. My tumor was not on the chest wall but it was in the posterior area. No they didn't puncture my lung but I also had a pretty big tumor. It was US guides so they would have to be pretty incompetent to miss it.

    I'm wondering if that was a concern and why they didn't want to risk the biopsy.

    My BMX surgery was done by a breast surgeon. Although I had skin sparring he made sure he included the scar from the the biopsy. I'm sure this has something to do with what Pennythoughts was saying about "cells left behing". I also think that's one of the reasons why radiation seems to be mandatory with lumpectomies… kill of any lingering cells.

  • tiger2338
    tiger2338 Member Posts: 2
    edited November 2010

    Hi KittyKatt; I am so sorry you are going through this. I am a ten year survivor of DCIS. I had surgical excision biopsy in 1999. I was confused too. But my surgeon, a wonderful lady named Dr. Margaret Paul, told me that lumpectomy was the common name for the biopsy. Usually in a biopsy, a small piece of tissue is removed but with the "lumpectomy" the entire lump is removed. Hence the name. I was very lucky, both the margins and my lymphnodes were clear.

  • Di356
    Di356 Member Posts: 13
    edited February 2018

    Hi everyone, I found a hard lump on my left breast in the 12:00 position and it measured 1.7cm. My mammogram was sent to ultralight sound and was read. The radiologists wanted me to come in for an altar-sound. He checked my lump twice and said he could do the biopsy. Looked suppicious. I was referred to my surgeon and it was a BI-RADS category 4 suppicious. We talked and he wants to remove the lump. I understand why he wanted the lumpectomy. He told me about the needle biopsy and I decided the lumpectomy. He told me it's a 50/50 chance it is cancer, I made appt February 22, 2018. I do remember hearing that a radiologist can usually tell when it's cancer and mine had this look about him. He checked my ultra sound twice. I'm nervous. Has anyone had a lumpectomy and it was cancer? Where did you from there. Thank you all for your wonderful support.

    Will wait to be hearing from others. What happens after lumpectomy..do they tell you then or do you have to wait? Diane


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