Calling all TNs

Kad:

I'm 11 months out of chemo and some of my bones that never hurt before chemo - still hurt from time to time, especially in yucky weather.  My onc says it's all normal, of course, she politely doesn't add that I am also getting reallllllllllly old!  Since my diagnose, it's probably the only time in my life that I am now loving getting older!!!!!

Heidi I love your postings. They make me smile.

Laurajane: You are right the past is the past , just focus on your bright future ahead. ((((HUGS))))

Monika- I have had a TE since 9-15. Still a pain in the butt. Sorry, i know that's not what you want to hear. I can't lay down very well as the TE puts pressure on my ribs-makes them feel like they are fractured. My PS said it was normal and just try to sleep more upright!! Yeah right-I'm a side/stomach sleeper!! I still feel the elephant on my chest feeling-just when I get up in the morning. I've heard we will have to deal with this until exchange time. Between the port on the left and the TE on the right-I am practically sitting up to sleep. If anyone has any other suggestions-we'd be grateful!!

Tiffany

Hey Titan - liver US for me tomorrow. Onc (took him a few days to get back to me--- don't think he got the page) still feels it is just a cyst, but because radiologist suggested a repeat be done after 6 months onc is "bound" by that recommendation. He was actually annoyed about it, as he knows I am conflicted between the desire to be closely monitored and the desire to put it all behind me. He's one of those who prefer not to overdo all the follow-up testing. Funny--I was initially dismayed by his approach but, now that I am living it, I find it's a "Be careful what you wish for" scenario.

Hopefully, tomorrow's US will show nothing different and I will be able to eliminate repeats. Scanxiety vs. reassurance. Sometimes it's a toss up for me which one is more important.

Again, thanks to all of you for your support!

Heidi2, thanks for the laughs.

Titan, MBJ, GOOD LUCK tomorrow, here's hoping you get a negative thats positive!

Best thing that happened to me today, I took off my wig and hat and sat on the deck by the bay with a girlfriend and cracked irreverent jokes for hours.  6 weeks since I have known, three weeks on CA, still feeling good.  Three "friends" came by and said "wha" although I know they know, the fourth came out, stood me up, gave me a big hug and said "your going to be fine" no pretense, no games, just some positive straight-forward words.
What's up with sore feet, sore soles and a swollen throat?  My book says call the doc, but the doc says call my GP.

Hi All--I am now a 15 year survivor, triple negative. Diagnosed in 1995. Had lumpectomy, chemo with the old protocol (4 cycles Adriamycin, 8 of CMF) followed by radiation. Had been super healthy before but changed eating habits, added supplements. 

My best wishes to anyone currently going through treatment.

Ultrasound today revealed no further changes from six months ago, so consistent with a benign cyst. Another bullet dodged, and one less test to worry about.

Yes, I had my Rumrunner afterwards (you knew I would) and am now consuming a "better-than-Paris" Napoleon.

MPB: So glad you joined us to share . It is great to now there are survivers triple negatives that passed the 5 year mark!Where you BRCA negative or positive?

MBP: thanks for taking the time to post.  15 years!  Wonderful.  Survivor stories are always welcome.  Please come back and tell us more about yourself.

Navy

Congrats Heidi. 

Swanny, yep, we can compare notes.

Heidi,  Excellent news. I envy you the Napoleon.

Congratulations heidi!!

MPB- Love hearing this. Would you PLEASE post more and tell us about yourself.

Titan- I love that philosophy. Cheers to you, hiedi and all!!!! 

MBJ- Glad you are staying busy. I hope your days are filled with excitement.

Pinkpee- Sounds wonderful. I spent the evening having dinner with my girlfriends tonight also. But there isn't anything like coming home to blog with you guys that really understand what all of this is like.  

Riley- I wonder if that is the same kind the gal showed me yesterday. I was ready for her to slice me and insert it right then and there. It felt so real. Actually a lot plumper than my own. I am looking forward to recon AND a new plumper one on the other side. I always dreamed of slightly larger breasts and I believe my wish will come true. Ha! P.S. I hope I didn't gross anyone out with that. Actually just so excited to wear a bra again with the newbie falsy. I'm also excited that insurance will cover it. Maybe I will opt for multi sizes you know depending on my mood. LOL

Lynn and Monika- How are you both feeling? 

The best thing that happened to me today is that I got a call from Doc Bill and was told they may have gotten me into a clinical trial with carboplatinin or cisplatinin and the beyond fabulous parp inhibitor. I just love that guy. I go tomorrow and fill out the paperwork. I still don't know where it is but planes fly everywhere don't they? I also got a script for an arm sleeve and my BS said that I am healing just fine and he might be able to remove my drains on Monday and then give me a script for my falsy and a new brassiere. Great day! Yahoo!! To wear a tank top again, oh yeah! Life is great. Sweet dreams to all of you.

Laurajane:  Congrats on getting into the parp trial!  That's wonderful.  I am feeling better but my arm still hurts, does yours?  It seems like the pain is worse since they took the drains out.

Monika:  How are you feeling? Better I hope.

MPB:  Welcome and thank you for posting. 

Heidi:  Glad you got good news, hope you have a good weekend.

Can any of you tell me how long you waited after surgery before you started radiation?  Thanks!