Know any guys with bc and LE?

Or even just guys with bc who are, like us, at risk for LE?

If you do, please urge them to help out with this research survey from the University of Missouri. A male research student of Dr. Jane Armer (who's one of our favorite research heroes -- she's also a bc veteran with LE, so she gets it!) is conducting this survey to learn more about the male bc experience and post-bc coping, including LE. A subject close to all of our hearts, to say the least.

The study volunteer request follows, so please do help get the word out. 

Thanks! Be well,
Binney

VOLUNTEERS NEEDED
For a research study on Male Breast Cancer, Secondary Lymphedema, Patient Support, and Family Quality of Life.

Purpose of Study:
The intent of the study is to assess and begin to evaluate different aspects of Male Breast Cancer. First, what are the difficulties of self-care surrounding male breast cancer? Second, what are the difficulties of self-care surrounding male breast cancer patients who suffer from secondary lymphedema? Third, to what degree was the patient able to obtain support from others with the illness, and was the support adequate? Fourth, to what degree did the family support system change for not only the patient, but also other members of the family?

Participants must be
• Male & over the age of 18
• A current or recovering Breast Cancer patient

Participants will:
• Be sent an electronic or hard-copy nine page questionnaire, about their experiences with breast cancer, secondary lymphedema (if, applicable), their families’ quality of care, and their ability to find/receive support.
• If any clarifications in data are needed the participant will be contacted to set up a time in which a phone interview would be convenient.

All personal information is strictly confidential, and will not be attached to the study in any way. The final report will utilize pseudonyms in order to protect the privacy of the participants.

Participants will be not reimbursed for their time, but will receive a copy of the findings.

If interested, please contact us for more information at mrmpp9@mail.missouri.edu