THE 2ND TA TAS SISTERHOOD REUNION IN VEGAS!!

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  • Journey
    Journey Member Posts: 905
    edited October 2010

    Susie!! Wow - what a jerk doc.  Ask for copies of your reports!  You need copies of all biopsies, surgeries, labs, etc. It's your right!  Any medical facility / hospital/ doc office has a form you can get and request your records. Don't take what the doc says in a meeting or phone call as gospel.  You need to have the written results for the labs & radiologists, etc.  Just my humble opinion. {{{{SUSIE}}}}

  • jkz
    jkz Member Posts: 355
    edited October 2010

    Mona I noticed on fb you were born in Trenton, NJ.. Where about I also was born and raised very close by. Now I live about an hour south of Trenton.

  • monandeclan
    monandeclan Member Posts: 412
    edited October 2010

    I was born in Mercer County Hospital.  We lived in Bordentown and Hamilton before we moved to NH when I was 10.

  • Jazzygem
    Jazzygem Member Posts: 790
    edited October 2010

    {{{{SUSIE}}}}}  PLEASE keep me updated!! p.s. I will be in TD friday and sat!  Gonna sell jewels at my sister's school...and to whomever else I can find...haha  I'm hittin the streets!  Seriously Susie...this is AWESOME news!  You will only get....Better, Better, Better, Good, Good, GREAT, FANTASTIC, AMAZINGLY AWESOME!!!!!!!!!!

    HUGS! Jazzy

  • Katey
    Katey Member Posts: 733
    edited October 2010

    Susie, unbelievable news!  Your photo says it all:)

    Journey, you're so right, and it reminds me, I need to get on the phone and ask where the heck my records are that I requested!  I had a jerk for a surgeon years ago, and he didn't want to give me my pathology report, said I wouldn't understand them, I got it, read it, and luckily saw there was an issue which made me more vigilant, which in the end led to a proper dx.

  • SusieZeeMears
    SusieZeeMears Member Posts: 444
    edited October 2010

    I LOVE YOU ALL!!!!!! Thanx for all the positive feedback & support (((HUGS)))  Some of the information on me is still wrong...but getting all the information next month at the Dr. Appt. & doing excately what you have all mentioned. Getting copies of my reports...all of them!!

      I think with all that was going on in my life when I got hit with this was just sooo overwhelming, you all know that feeling- I was losing Dr.'s that I cared about & given to others,then afraid to step out of my comfort zone when hit what I thought was bad bed side manners, thinking they are the experts & know best.....well we all know that isn't the case.  Took me over a year to convince my surgeon something was terribly wrong & even with CT Scan's..they didn't show up how truely bad things were till he went in for emergency surgery. 

    SO...Hip Hip Hurray for the TA TA SISTERHOOD that gave me the much needed push( with abundance of LOVE) to check it out!!!!!!

    Jazzy...we sooooo have to see each other with you soooo close!!!  Aurora will be doing the Trick or Treating in The Dalles form 3-5 on Friday, then at 5:30...were releasing Balloons at Mom's hill site!!!  4 years to the date & time...want the sky to be brite & beautiful!! Innocent

    Wishing all of you a safe & wonderful HAPPY HALLOWEEN!!

    TA TA'S, just another quick note...for those of you who couldn't make the reunion...I had plenty of special stickers made & still have some if you are interested in getting one-just PM me with your name & address & I'll get one out to you!!!!

    Take care  Chow   XOXO Susie

  • tkone
    tkone Member Posts: 511
    edited October 2010

    Susie

    Yay for Stage II!  That is really wonderful news.  That is a big mistake!  It has to change your whole outlook on cancer and your life and everything!  Who knew we would all be so excited about someone being diagnosed at Stage II!  But seriously, Stage II is a much different animal than Stage IV. 

    I'm so happy for you that you finally have some good information.  I have been so lucky to have had really great doctors throughout my entire journey that I forget that not everyone has the same experience.  Glad you are getting the support you need.

    Tracy

  • saskie
    saskie Member Posts: 205
    edited October 2010

    Hi all!!   I have recently learned that I have 2 titanium clips in my body from the mastectomy.  Does anyone else have these types of clips and has anyone had problems with them?   My reconstructed breast is still hard as a rock on the bottom and close to my underarm.  There is still dark bruises in that area as well.   Anyone experience anything like this and have any info as to whether the titanium clips could be causing problems?  It has been a year and a half since my surgery.

  • Lilah
    Lilah Member Posts: 4,898
    edited October 2010

    Saskie -- what does your PS or your BS have to say about the bruises and the hardness?  If you had had the surgery recently I'd say it sounds like a hematoma and the hardness is the bruise healing... but so long since surgery, I don't know at all.  Also why did they put in the clips?  I was told I would have them after biopsy to mark where the biopsy had been done (then they did not end up putting them in due to bleeding).  No clips were ever mentioned either for lumpectomy OR for subsquent MX.

  • Katey
    Katey Member Posts: 733
    edited October 2010

    Hi Saskie,  I found out 2 years ago that I had clips from earlier surgery.  If anyone has a chest xray, if you have metal clips you will see them on the xray.  I was concerned about getting an mri of my shoulder (didn't want them to fly out of me;)  but it was and is no problem.  Guess they've been in for either 10 or 20 years, I think they are used to clamp off blood vessels.   The hardness I would call your doctor about, maybe it's scar tissue?

  • saskie
    saskie Member Posts: 205
    edited October 2010

    Thanks girls - I am trying to get the xrays sent to the plastic surgeon so he can see if they are in the same area I am having problems - if not guess we better see if there is something causing all this hardness and bruising.     Not sure why they were put there but probably as Katey says to clamp off blood vessels.

  • Katey
    Katey Member Posts: 733
    edited November 2010

    I thought of all of you and giggled while watching The Office halloween tvshow.  Jen dressed up as Olive Oil!

  • SusieZeeMears
    SusieZeeMears Member Posts: 444
    edited November 2010

    Just sending out Major Power Prayers for everyone's continued Health care & just getting thru the day!!  I've got some stuff ahead myself & don't want to put the cart before the horse...will feel you all in when I get the answer's.  CT scan for one thing is getting scheduled for this week..keeping positive thoughts!!

    Hope you all  had a Wonderful BOO-TIFUL HALLOWEEN!!! 

    Thanx for all the Great feedback & LOVE  (((HUGS))) GOD BLESS 0:)

    Take care   Chow  XOXO Susie 

  • Cydz
    Cydz Member Posts: 157
    edited November 2010

    Best of luck Susie!!!! Positive energy comin at ya!

  • my560sel
    my560sel Member Posts: 1,065
    edited November 2010

    Hi Ladies! Someone sent this to me and I thought I'd share with all my sisters!

    www.KomenPhiladelphia.org/Video  

    Susie, Glad things are finally going your way ! YOU GO GIRL !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    Saskie, my Canadian sister  from the other side of the country...... Hope you get the answers you're looking for and that the hardness and bruises will be something that can taken care of without surgery. Sending prayers that you get to the bottom of this soon......... ((((HUGS))))))

    Terri

  • Linda54
    Linda54 Member Posts: 2,689
    edited August 2013

    I received an email from Gretchen and she said that the surgery went well and lasted 12 hours..

    She is sitting in a chair and progressing nicely.

    She wanted to thank all of her BC sisters for their prayers.  God was definately with her.  She is at peace and totally positive about the surgery.

    I am sure she will check in when she can.

    This is great news.

    Linda

  • Lilah
    Lilah Member Posts: 4,898
    edited November 2010

    Linda -- thanks for sharing that wonderful news!  Wow -- 12 hours -- that is a scary long time to be under!

  • Estepp
    Estepp Member Posts: 6,416
    edited November 2010

    Those who are not yet on our TATA SISTERHOOD Facebook page...

    EBANN/ELIZABETH..... just found out... that her BC has spread to her bones. Ladies... she needs our prayers.

  • SusieZeeMears
    SusieZeeMears Member Posts: 444
    edited November 2010

    NO NO NO!!!  I HATE THIS SOOO MUCH!!!  Elizabeth-our Power Prayers are with you & we are here for you no matter what you need!!!    Gretchen.....glad you came thru that long surgery!!!Healing Prayers your way too!!    Why are so many of us going thru more than what we had to battle already!!  You already know that your are fighters & came thru SURVIVORS!! Continue to be Strong know that the TA TA SISTERHOOD is behind you all 100%

    LOVE (((HUGS)))  POWER HEALING PRAYERS

    Take care  Chow   GOD BLESS 0:)  XOXOXOXO Susie

  • Estepp
    Estepp Member Posts: 6,416
    edited November 2010

    Susie... did you get Herceptin?

  • SusieZeeMears
    SusieZeeMears Member Posts: 444
    edited November 2010

    Yes, but was only able to have 7 out of the 15 I was told I needed.  They crippled me & ended up seeing a Specialist for that as well thinking I had rumthrod arthritics(spelled wrong) but I didn't. My blood pressure soared and at one point 150 over 100.  my hands were in balls & couldn't open them & was painful to walk & I was hunched over, all my joints hurt,  Pregnozone for a month, gained 50 lbs, but my body was no longer crippled by the end.  My Onc. decided I was done

  • Estepp
    Estepp Member Posts: 6,416
    edited November 2010

    OIC

    well.... the good news with HER2.... you did NOT have positive nodes. THAT IS HUGE!!!!!!

    ((hugs))

  • Lilah
    Lilah Member Posts: 4,898
    edited November 2010

    Prayers for Ebann... so sorry to hear this.

    Suzie -- if it's any consolation, I've read that even getting half the Herceptin infusions may be as effective as having them all.  And yeah, as Laura said, thank goodness no nodes!

  • SusieZeeMears
    SusieZeeMears Member Posts: 444
    edited November 2010

    Hey Girls, just wanted to see if everyone has loaded their photos from  our trip to Vegas. Getting some time now that feeling better that I can start on my scrap book & don't want to leave any wonderful caught moments out!!

    Still have everyone in need of Power Prayers on my list 0:)

    Miss you all & try to keep up with everything between, here, FB & the TATA FB :)

    Take care  Chow  (((HUGS)))  XOXO Susie

  • Lilah
    Lilah Member Posts: 4,898
    edited November 2010

    Glad you're feeling better Susie :)

  • Estepp
    Estepp Member Posts: 6,416
    edited November 2010

    Ladies... anyone who went to Vegas this year.... who is not yet on our FACEBOOK page...... and you want to be.... Please PM me here on BCO, and I will get you set up for our SISTERHOOD Facebook.

    xxxooo

  • rockwell_girl
    rockwell_girl Member Posts: 1,710
    edited November 2010

    wow I have many pages to read...A few of you might know but I will share with the rest why I fell off the grid.  After getting back from Vegas I decided to leave my husband something I have been thinking about for a year+.  Just have been super busy starting up a new household.  As usual didn't get any help splitting things up and my spouse won't allow me to have any of my friends help me and was even made when my sister helped get a washer and dryer for me 2 hours away at her sister in laws house which you would think make total since for her to help me out.  We have been staying cival but has been hard.  I hardly took anything from the house so it's been a lot of work.  I've turned into a craigslist junky finding really good deals I must say.  Well want to get some rest... want to make my boy a good breakfast before I have to go to work and send him off to school.  Will be childless for the next 5 days so wil try to get on line even though I still have a lot or organizing I would like to work on plus want to paint my basement sometime soon.

    Sandy/Sunshine : ) 

  • rockwell_girl
    rockwell_girl Member Posts: 1,710
    edited November 2010

    ps will try to load my pix soon also 

  • Lilah
    Lilah Member Posts: 4,898
    edited August 2013

    Aw Sandy -- what a big rite of passage!  You sound like you are made strong by the decision.  I'm sorry your spouse is making things difficult for you.  It's hard enough, isn't it?  We are here for you!

    And thanks for letting us know.

    Keep in touch with your dancing spirit!

  • tkone
    tkone Member Posts: 511
    edited November 2010

    Sandy

    I'm so sorry.  I had no idea and it makes me sad to realize that as much as all of us talked, I never had enough of a personal conversation with you to know what you were going through.  I have been through a divorce (with my ex-husband) and a separation and reconciliation (with my current husband) and in both cases it was the right decision for me. 

    I know you are making the right decision for you and I'm so proud of you for being strong and decisive.  But that doesn't make the day to day any easier.  I so wish we lived closer!  I would love to come over and give you a hug!  Well consider yourself hugged, girl.  Keep your chin up.

    Much love to you!

    Tracy 

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