August 2010 Rads
Comments
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Carole, I'm for keeping the bra off as long as you can. I had one on the other day -- all day and paid for it dearly the next three days. Very sore. Seems you can't rush this healing even if it looks good on the outside.
Also, I was wondering if anyone else is having trouble with irritability? Maybe it's just as I start feeling better and try do go back to the old routine -- then fail ( cuz I tire faster than I think I should) Then I get really angry. Haven't had that problem before, always been fairly level headed and even in disposition.What's that about?
Arubajan, thx for the info on the Tamox. I start mine as soon as it arrives in the mail. Not looking forward to more severe hot flashes though. Hate to hear of the stiffness. I was going to buy a new ring the other day ( kinda my treat to myself for finishing tx) and my knuckle on that finger is bigger - and sore - is this arthritis or joint pain???????????????????? Gonna have to give all these little things a name so I can make fun of them otherwise I might cry.
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Thanks everyone for the prayers and encouragement! My pastor and friend are also going to be there at the hospital for me! it hurts that my husband "just can't spare any time" off for me. Well I did open up and told him how much it hurt and the abandonment during all of this. All he said was "sorry that I don't understand". Oh well. I have many who love me and are willing to be there for me and in that, i will wrap their love around my shoulders..not the other.
Every one keep up the healing!
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Well, surgery went good...find out Friday how my path report is.
Wishing and praying everyone is well and doing great!
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So glad your surgery went well! Continued prayers and health to you. Waiting for those path reports is the worse, isn't it?! Here's to all good news...
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OK - how's everyone doing? Questions I'm wondering about:
Where's the hair? I've got about a half inch and it seems so slow growing. Not sure I like the color either.
Anybody trying to get back into an exercise routine? I had a set back - fatigue hit after rads, was totally unexpected and now I'm trying to get back into walking again. Gotta lose this ten pounds I gained during chemo. I'm 5'8" and can usually hid it -- but not anymore. Seems to all go to the middle. Where's my waist?????
Againmine: How's your brother doing? How's the Effexor treating you? Glad surgery went well.
Had a 'deja vu' (not sure of spelling) experience the other day. I was driving down the road; on my way to the country for some fresh produce, it was beautiful out, the radio was on ( I hardly listened to it during tx) and a great song came on. I began singing along with it, keeping time with the music (hands and feet). Then I started laughing - it hit me - I felt like myself again, where have I been I thot. This was fun. Of course by the end of the day I was tuckered out, but hey -- I had a glimpse of life again.
Blessings all, Carolyn
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ECT - I'm back in the exercise routine and almost back to normal. I finished my rads a month ago and as soon as I could stand to put a sports bra on, I hopped on my yellow cruiser and pedaled around as far as I could. At first it was only a couple of miles and it was SLOW going, but within 2 weeks I'm back to full speed and 5 1/2 miles, or walking 3.5. I also managed to do 10 full body pushups this morning!! Had had to switch to girl pushups after the layoff from the surgeries and recovery time and the pain and fatigue of rads. I live in Arizona, so I need to be up before the sun is to accomplish this, but what a good way to begin the day. The birds sing to the rising sun and there is no more beautiful soundtrack than that. Many mornings I find I have tears in my eyes drinking in all the beauty of nature and being thankful for the chance to grow old.
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Hi Carolyn,
Know the feeling with weight - I'm 5'9" and have never really had to worry about my weight before but my stomach and bum are now huge! I've gone up a full size in clothes - had to go shopping for clothes to fit to go back to work last week. I find at the moment I've still got no stamina - I've just started a yoga class to try and get moving again (is helping with my lower back pain already!).
Been lucky so far - hair is making a good comeback - still wear my wig to work and out for tea etc but go topless rest of time. I've just started tamoxifen and I've heard sometimes it affects hair growth so will see if that has an impact.
I returned to work last week on a reduced time fraction - just two days a week and after week 2, am handling it ok so far. Only problem I have now is that husband decided to resign from his job yesterday so he's now unemployed. I am going to push myself up to 3 days a week starting oct 25th, but don't know what we're going to do as we can't pay all the bills on my part time status at the moment!!!! The irony of it all - I'm starting to get back on track and my hubbie is falling apart. This year sux!
Hope everyone's travelling ok anyway.
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I finished radiation on Friday - yeah. I was so happy and then I found out I still need to see the doctor every week until everything is completely healed ! ! ! ! ! I sent the doctor and office staff an "edible arrangement" as a thank you. They were so wonderful and nice and fun and they made the 36 treatments bearable. I don't know if I would have thought of a thank you gift if I hadn't read on this board about people giving them when treatment was over. This board has been such a help since diagnosis and now I guess it's time to move to a Tamoxifen thread - I started taking it on Monday but I've cut the pills in half and figure I will take 1/2 a pill for two weeks and then move up. I'm still really scared of the side effects but hopefully things will work out well. Good luck to all of us 'August gals.'
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Hi, AnnieBear - just to ease your mind a bit, I've been on the Tamoxifen for about three weeks - the first couple of days I felt a little nauseous but since then I've been fine. Nothing else that I've noticed going on from it, so hopefuly it will be five years of smooth sailing! Congrats on finishing your rads. The one thing that is strange to me is that it's almost like life is back to normal now - it's almost surreal at times to think what we've been through. Best wishes to all - Mo
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Hey DancerMel - so sorry to hear about your husband's job. I can relate, my husband lost a consulting job last year - one that really hurt us. It's been tough going. He own's his own business and it's energy related. This has been a very bad year. Will keep you all in my prayers as I pray for us. Hang in there, we got a new year coming......
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Oh it has been awhile since i have looked here. trying to get back to some form of "normal". lol had my surgery and NO cancer cells were found...so happy, once less thing hanging over me. The doctor thought it was a large fibroid but it was a huge polyp!
I leave Friday morning to be with my brother who will be having his cancer surgery Tuesday. Please keep him in your prayers...he is so frightened that he will not wake up from this procedure. Even though he was finished with his chemo and rads month ago..he still has to go several times a week to get fluids. he just can't seem to keep them in his system.
I am slowly building back some energy. My skin is looking SO much better..very little brown pealing spots now. get pangs of pain sometime but getting less each day. The Tamox is what gives me my woes now. The joints hurt a bit more then normal and that puts a kink in my walking. The Effexor (75mg now ) has helped a lot with the hot flashes and mood...but I do wonder if i need a bit more. Maybe its the worry over my brother that has me fighting the depression still.
congrats to all of you that have finished or in the last of your rads!
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againmine - CONGRATULATIONS on the no cancer!!! Thank goodness. My thoughts and prayers are with you and your brother. I am so happy you are able to make his surgery!! This has been your goal throughout.
My skin looks pretty good too. Only the boost area is still slightly red and just about all of the brown spots are gone. It's been a bit itchy lately though. I wonder if that's the good cells repairing themselves. Hope so!!
I started the tamox Monday of last week and I'm getting no side effects at all yet. I had hot flashes when I went into chemopause but since the summer has ended - nothing. Will find out in a couple of weeks how to tell if this stuff is actually going to work.
Hope all of you guys are doing well and are fatigue free.
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Hi everyone! Just a quich check in with you all before work. Glad to hear things are getting somewhat back to normal for all of us. Againmine I'm so happy to hear your test came back no cancer and will keep you and your brother in my prayers. It seems there is so much cancer out there - or maybe there always has been and I just didn't really notice it on such a personal level till I went through it. I'm feeling better everyday - three weeks out from rads now and healing nicely just a little brown peely stuff left. I too have occasional pain in my affected breast but overall more comfortable. I'm going to start working out again next week. Wanted to give myself a chance to adjust to full time at work first. So far the tamoxifen isn't giving me any grief. I had my check up with onc. this week and all was well - don't go back for 3 months. Have an appt. with the surgeon next week. Love and prayers to you all!!!
Carole
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Thanks, and blessings for continued healing to all!!
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Hello, everyone - I just wanted to drop in and say hello and hope you all are moving beyond this past year and are soaking up the beauty of the fall. Is anyone in the Philly area going to the breastcancer.org benefit at the Academy of Music tomorrow night? Would love to say hello, if so. Mo
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Hi Mo,
Won't be at the benefit since I'm out here on the west coast. I've moved on to the next phase of treatment, the 5 years of anastrozole therapy. All the side effects of rads pale along side of the joint pain from this. One month in and it is very bad. I'm told it will fade in a "few" months thankfully.
Are you having any further treatment? Bobby
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Hi, Bobby - I am on Tamoxifen - joint pain has been there but not unmanageable. Hope you feel better in time. Otherwise, my hair is growing and my toenails are growing back in - that was very freaky when they fell off. I'll let you know how the concer goes tonight - I love Harry Connick, Jr. and have really good seats so I get a great view! Take care - Mo
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Hi All!
Sorry I have been quiet on here, but had a couple trips in October. One to Boston to take my son to check out some colleges (he is a senior... so glad I got cancer this year, not next year when we will be busy with graduation activities!) and then a trip with my hubby for his 50th. Wanted to share that I lost ALL my toenails last week! Crazy....! I thought all the chemo side effects were behind me. Oh well, on the positive side, the new nails were almost 1/2 grown in under the old ones and at least it is autumn now when I will be wearing closed toe shoes, right?
I think of you all often and wish you all the best. I had my med onc checkup today and she said my blood work was great... "like they had never touched me".... hummm.... I don't feel quite that normal yet. Also, maybe I will get a break from the tamoxifen next April; she said that she would change my medication after I have my hysterectomy. I am getting ready to schedule that and need some advice.... I can't decide if I want to do it the first part of December and get everything "over with" in 2010, but have subdued holidays OR should I wait until January to have the surgery and enjoy the holidays? What do you all think?
And ECT, I have a crummy disposition too.... not sure why, but it MUST be the hormones (or lack thereof). I am just not myself right now.
Love and hugs to all of you!
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Oh I forgot to mention, my hair is growing very slow! and is a very mousy color. Thought it was coming in straight but as it is growing I have hair curling up and poking out everywhere. No complaining though, at least I have hair!
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Hi Everyone -
Mine is growing very slow also arubajan, but it's there!
Chest is still sore from rads, or it could be lymphedema irritating things as well.
Taking the big 'T' now, so we'll see how that goes.
Thinking of you all!
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Hello everyone,
Just thought I'd check in and see how everyone's going - haven't been around much. I'm back at school teaching 3 days a week - more than enough right now as I'm exhausted at the end of the day. Have been on tamoxifen for about 20 days now - keep waiting for things to go down hill SEs wise, definitely have noticed a change in my moods very up and down and I snap very easily :-s
arubajan - was hoping that I was clear with the nails now that it's been so long since chemo but you've got me worried again!! My fingernails aren't normal yet - they still have ridges all over but are slowly growing out, my toes hurt occasionally but are hanging in there so far......... well see I guess! Comign into Summer would prefer not to have them fall out now!
Hair is comign in well now - still not really a style but am sick of wearing my wig so am now sporitng the short mia farrow look (so they keep telling me anyway!). Am waiting to see if it's goign to curl - looking very likely.
Anyway, hope everyone's doing well. Love to you all! xx
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Carole - so sorry you lost all your toenails. Like dancermel I thot maybe that was behind me. Guess we can't take anything for granted. But sooooooooo happy you had a good check up - good labs etc. Wishing you the best on your surgery, I really couldn't imagine going through one more thing this year. I'm really looking forward to Thxgvg and Christmas. I feel like I missed it all last year.
My hair is coming in thick and salt and pepper ish. I have a bit over two inches-- I think. It depends on where you measure it. LOL
We maybe moving back to Texas - not sure when. My husband is going this weekfor job interviews. While I'd be agreeable with the move, I just don't have it in me yet. Seems to take a while to feel good consistently. I just ain't there yet!!!
Good to catch up with some of you!
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Morning everyone! Just checking in to see how it's going with you all. Sounds like there is positive notes but as the rest of this roller coaster ride has been still the sudden shocks. I'm feeling better and my skin is feeling lots better. Saw my radiation onc this week and all is going good - don't go back for 6 months to see him. I'm on my second month of the tamoxifen - some hot flashes and joint pain but not too bad. I am working full time with a little over time which wipes me out but need the extra money now so.... I just try to rest more when I'm tired. I am also looking forward to thanksgiving as I feel I have so much to be thankful for this year especially! My children and grandchildren are all supposed to be here so that will be great! You are all still in my thoughts and prayers! Carole
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Hey Carole and anyone out there, It appears most of those on this site have moved on to another one. I know I hopped over to the Tamox thread and the Hair one. But I had some extra time and thot I'd check in here. Everyone was so thoughtful and compassionate on this thread. Yesterday I say my radiation oncologist and he gave me a clean bill of health. Won't see him for six months. The radiation ended up being so easy for me compared to the Chemo. I'm grateful for that. I wonder what Babbalu ended up doing? Hope she was able to complete the rads.
Anyway, I have had lingering fatigue, I cannot imagine working right now. I hope your not having to work full time. I will be going to work sometime, not sure when. We are probably moving back to Texas after the first of the year, I'll look for a job then. With the economy the way it is I think we all need the $$.
Enjoy your children and grandchildren and have a wonderful Thanksgiving - you right, we have much to be thankful for this year!
Blessings, Carolyn
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Hello, everyone - just checking in, too. Funny thing - went to the dermatologist for a microdermabrasion on face and chest today. The technician, who I've been going to forever, was really trying hard to get out these blackheads on my chest - I was like, Oh, I didn't even know they were there. It didn't dawn on me until the way home and after she couldn't get them out that I realized that they were the tattoos from radiation! Gave me a chuckle. Hope you all are on the road to recovery and that you can enjoy the holidays - living for the moment is my mantra these days! Big hugs to all - Mo
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Hi everyone! It's been forever since I have logged on...brother's surgery, my MAC died, and I separated from my husband. What a month!
My brother's surgery went very well. Removed his esaphagus and 2/3 of his stumach as well. He is home and now eatting, tiny bites, but can eat and they believe they removed all the cancer. YEAH!!!!
For the first time, I am living alone and in my own place. A nice 2 bedroom apartment! Very different...but it is alowing me to heal from so much. Cancer can be quite a wake up call!!!
My skin has healed, but still have pain every so often in my breast. As time goes by, my breast looks different..unsure if just changing due to the rads or rads and surgery combo. Getting very "dimpled" these last few weeks on the left side of the breast..not on the top where the incision is.
I can get on the computer here when I am with my one son...so I hope I can check this site more now. I really miss everyones messages!
pam
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Hello and blessings to all!
Pam, you've been thru so much. I know you really struggled in your relationship with your husband so I hope this will be a very positive change for you. Congrats on a new, fresh start. You sound really excited... good for you! Yes, there's nothing like bc to give you a little kick in the pants to get busy livin' or get busy dyin'!! (to quote from my favorite move, Shawshank Redemption.)
Good health and much happiness to all my sisters!
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Ditto Melanie's post Pam -- hang in there!
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Pam, I echo the previous 2 posts and hope each day brings with it more peace and healing for you. You are a Tough Cookie with gumption to get yourself and your brother through the storm and out the other side again. Good on ya!!
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Nice to hear from you guys!
Pam - I'm so happy to hear that things are going well for your brother. I know how concerned you were about that. Congratulations on your newfound freedom. I hope you find all the happiness you deserve!
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