colloid mucinous cancer

coopersworkshop
coopersworkshop Member Posts: 5
edited June 2014 in Older Than 60 Years Old With Breast Cancer

I have just been diagnosed with colloid mucinous carcinoma, as well as another tumour that is DCIS -- I know mucinous is rare -- anybody else out there?  Seeing surgeon next week. Not shocked or scared - my sis-in-law just died with lung stage 4 last week, and we had to watch her in pain for months -- so this seems relatively like a blessing.

· Share on FacebookShare on Twitter

Comments

  • hymil
    hymil Member Posts: 826
    edited October 2010

    Welcome to the world's largest gathering of this supposedly rare breed (-probably) :) A couple of us here:

    http://community.breastcancer.org/forum/5/topic/733018 I will give it a "bump" so it comes on the active threads list.

    Also try the search engine for older threads. (Top right, just below the Logout button)

    Of course you won't find us all on the Older Women forum, i don't even admit to being middle aged yet and several of the ladies on the thread above are a lot younger than me. As one approaches 50, denial is such a good coping mechanism....

    · Share on FacebookShare on Twitter
  • karen333
    karen333 Member Posts: 3,697
    edited October 2010

    I belong in that rare group too.  Had to look up all I could find on the internet, I didn't know about this great site till after my rads.  It didn't show up on the mammogram , it was palpable, and showed up on the ultrasound.  I also had an MRI to search for any other areas of concern.  This was all in September of 09.  Had a lumpectomy, with clear margins and no node involvement, and 7 weeks of radiation, so I am a little over a year NED. Had a great BS and the Womens Breast Care Clinic I went to was fantastic. Take care, Karen

    · Share on FacebookShare on Twitter
  • meglove
    meglove Member Posts: 267
    edited August 2013
    Hi Coopers. I have very similar diagnosis in my right breast.multifocal mucinous and multifocal DCIS in right breast. Although mucinous rarely HER2+, but it turned out I am today. Please see my signature. Glad to find you. Maybe we can share our treatment. i am waiting to see a onc. Best wishes, Meg
    · Share on FacebookShare on Twitter
  • coopersworkshop
    coopersworkshop Member Posts: 5
    edited November 2010

    meglove, so good to find you - i am still trying to understand all the abbreviations -- what is DX? Have you heard of oncotype DX which is a test to see how effectively your cancer will respond to chemo? It is now covered by my provincial health care which is great because the test is $4,000.  I hear that only estrogen +  can take the test, and i DON'T know which I am yet.  What is HER? what is the diff. between ER and HER?

    Seeing my surgeon tomorrow.

    · Share on FacebookShare on Twitter
  • coopersworkshop
    coopersworkshop Member Posts: 5
    edited November 2010

    meglove, so good to find you - i am still trying to understand all the abbreviations -- what is DX? Have you heard of oncotype DX which is a test to see how effectively your cancer will respond to chemo? It is now covered by my provincial health care which is great because the test is $4,000.  I hear that only estrogen +  can take the test, and i DON'T know which I am yet.  What is HER? what is the diff. between ER and HER?

    Seeing my surgeon tomorrow.

    · Share on FacebookShare on Twitter
  • bellydancer
    bellydancer Member Posts: 59
    edited November 2010

    Hello,

    I have also recently been diagnosised with Muinous  IDC(Invasive Ductual Carcinoma) and recenlty had a Lumpectomy and SNB. The pathology on my tumor revealed it is a "pure" as oppsoited to "mixed" form of this rare cancer.

    Now I am waiting for my Oncology appointment.  What province are you in Copperswork?

    Here in Manitoba the Oncotype DX test is not covered by our provinical health plan. :( 

    · Share on FacebookShare on Twitter
  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited November 2010

    Coopersworkshop and Bellydancer-

    The link that Hymil provided above on this thread is not working.  Please use the search box in the upper right hand corner of the Breastcancer.org and type in "mucinous" or "colloid" and you will see a number of links to discussions about mucinous breast cancer.  Also do a Google search of "mucinous breast cancer."

    Sorry you have to join us.  My thoughts and prayers are with both of you and my fellow breast cancer survivors.

    · Share on FacebookShare on Twitter
  • hymil
    hymil Member Posts: 826
    edited November 2010

    So So sorry, And how bizarre, because when i click on the link from "my recent posts" list on my own profile, it does work. Very odd! Ah well. See if this will work for the last page of it...

    http://community.breastcancer.org/forum/5/topic/733018?page=4

    Uh i'm gonna be embarrassed....

    Edit, after about 2 mins... Okay how can it not work, i have a page open, I click in the address box and right click and Copy then go to my post window and Paste and it pastse into my post Ok ut then the link doesnt work and i get this error message....

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 

    The web page that you requested cannot be found on this server.

    You may want to try the Discussion Boards Search to find what you need, or just start from the Forum Index.

    If not, you can might find what you want at the Breastcancer.org home page.

    Please contact us if you have any questions, or to report a problem.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    i think i'm going back to bed. It's clearly not going to be a good day.

    · Share on FacebookShare on Twitter
  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited November 2010

    Hymil --

    Once again when I clicked on the link, it didn't work.  However, when I cut and pasted it and opened a new tab, it brought up the link.  Hmmmmm.....

    Maybe the folks at breastcancer.org can talk to their technical folks about fixing the glitch and making it easier for novices to get to links.

    Anyone listening that can help????

    Mucinous breast cancer is rare enough, that we don't want to make it any harder for people to find resources that can help them.   :)

    · Share on FacebookShare on Twitter
  • hymil
    hymil Member Posts: 826
    edited November 2010

    Thank you, I'm only just managing with this technology lark, I think I'm getting delayed cancer-brain symptoms,,,, Best have another early night!!

    Dx in someone's signature tells you when they were diagnosed. ER+ means that, due to receptors on its surface, the breast tumour is Oestrogen responsive so it grows when you have high levels of that hormone circulating in your body, and medical treatment will be directed at reducing the level by either Tamoxifen for younger ladies or AI's (aromatase inhibitors) for ladies who have been through menopause and have lower levels of oestrogen from the ovaries. Younger women may alternatively have their ovaries zapped by radiation or by surgery or i think the injection drug Zoladex has the same effect, so your body produces much less oestrogen and the tumour has less to grow with, in effect these treatments put you into immediate and fairly abrupt menopause, which may or may not be reversible if you want to have children after treatment.

    PR+ means the same thing in relation to the other female hormone progesterone, and HER is human epidermal growth factor just another different receptor on the tumour cell surface, so in this case if your lump is HER+ it means it will probably respond to the drug Herceptin.

    "Symptoms and Diagnosis" and "Treatment and Side-effects" in the dark blue bar at the top of the screen are links that take you to lots more techincal information about the details of different types of breast cancers, There is also a list of abbreviations somewhere on the forum where a lot of these things are well explained. It's a whole new world....

    · Share on FacebookShare on Twitter
  • Sherri_V
    Sherri_V Member Posts: 159
    edited November 2010

    I had the same diagnosis.  I just passed the one year mark from finding out.  My treatment has been over for about 2 months.  I have my first mammogram next week.  All seems fine.  Tumor was very large but shrank with chemo, then lumpectomy.  If anyone has any questions, I'm happy to answer whatever I can.

    · Share on FacebookShare on Twitter
  • Ming21
    Ming21 Member Posts: 3
    edited January 2011
    Mucinous or colloid breast cancerI can't acquisition abundant advice on this type, pass4sure 640-553 I apperceive it is attenuate 3. I accept a lumpectomy snb with 3 of 3 nodes neg. Going to radilogist and chemo doctor. pass4sure SY0-101 Will I charge chemo for this type? My surgeon say apparently not but because of the admeasurement I may. Depends on what chemo doctor says. Anyone out there with this blazon of cancer, pass4sure EX0-101 amuse let me apperceive any advice you ability have.
    · Share on FacebookShare on Twitter
  • Chelsea23
    Chelsea23 Member Posts: 11
    edited April 2011

    Yes, I have mucinous carcinoma.

     I first had breast cancer in 1993. It was Invasive Ductal. I only had lumpectomy; then in Jan. 2008, I had breast cancer again in same breast, same location, and it was mucinous. Again, I only had a lumpectomy. 

    Both times, I had no health insurance, so did not have a second surgery in 2008, which I really needed--because there were cancer cells very close to the margins.

    I was afraid of bone loss, so I didn't take Arimidex. I wish I had. I had a recurrence of the mucinous carcinoma in same area--but much deeper because there's not much breast tissue left there---diagnosed in March 2011.

     I am now on Arimidex to see if the tumor will shrink before having surgery.

    Mucinous carcinoma--I have read--is only in about 2 % of breast cancers, and it has a very favorable prognosis.

    I am very sorry about the loss of your Sister and what she went through. God Bless her Soul.

    · Share on FacebookShare on Twitter
  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited April 2011

    Chelsea...Sorry to hear about your recurrence.  We have another more active thread regarding mucinous breast cancer here at the bc.org website.  Just click on search in the upper right corner of this page and type in the box "Mucinous Carcinoma of the breast"  and you can also join in!

    Good luck to you.  I hope this will be the last time you have to deal with it.

    · Share on FacebookShare on Twitter
  • Chelsea23
    Chelsea23 Member Posts: 11
    edited April 2011

    Dear Voracious Reader,

      Thanks so much for your good wishes re: no more recurrences !

      Thanks also for the info on the other mucinous carcinoma forum.

      I wish for you too----long & happy, healthy life.

    · Share on FacebookShare on Twitter

Categories