Check up :-) and Zometa

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everyminute
everyminute Member Posts: 1,805

Had my check up today - it's been 6 months since I had an appt and I don't have to go back for another 6 months! 

I asked the doc to no longer run tumor markers because they just make me nervous and she agreed.  Once we got past that (and me freaking about asking that) it was all good.

She is super impressed with my running and even asked me if I could help her get ready for the next Komen 5k.  She also is thrilled with the volunteer work I am doing in the community and has been sending lots of patients my way for exercise and motivation.

She is doing a dexa scan and then probably taking me off tamoxifen (almost 2 yrs) and putting me on Femara or Armidex.  Bummer.  I know it is the right thing to do but I tolerate tamox so well.  She said today was my last zometa - cant figure where she even came up with that timeline!  Gave me a flu shot too.

My bp was great, all cbc counts were great (and I am a vegetarian so I was concerned).  She is running and will get back to me on Vit D levels.

Overall a great appt - she told me I am her favorite patient!

So about Zometa - I have gotten 4mg - every 6 months - 4 times.  Does that sound right - I was hoping to get it forever I guess....

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2010
    So happy your appointment went well.  I wish you lived in my area.  I would love to get back into running, but the spirit is willing and the body not so willing.  I go for zometa infusions every 6 months. imageBarb
  • Octobergirl
    Octobergirl Member Posts: 334
    edited October 2010

    Congrats on your good checkup. You must get a lot of good energy from your dedication to fitness/running and a lot of satisfaction in being such a strong support  in your local and online community. Thanks for all you do for cancer survivors.

    Molly

  • KerryMac
    KerryMac Member Posts: 3,529
    edited August 2013

    Awesome news! Happy to hear the TM issue wasn't an issue!

    For the record, I am getting Zometa 6 times (4mg, every 6 months for 3 years) I think the incidence of SE's increase with usage, so she probably doesn't want to overdose you - at this point they are just making it all up anyway.

    And Arimidex isn't so bad, I really notice any SE's now (just hot flashes, and Tamox gives you them anyhow). There was a recent study that showed Arimidex gave about a 5% higher survival rate over 10 years, so it is probably wporth switching.

    Congrats again!!

  • lkc
    lkc Member Posts: 1,203
    edited October 2010

    3 years is the normal timeline for Z tx.

  • YATCOMW
    YATCOMW Member Posts: 664
    edited October 2010

    I think about you all the time and so glad that you checked in......

    glad everything is going great!!!!!

    Jacqueline 

  • Pure
    Pure Member Posts: 1,796
    edited October 2010

    yeah I am doing 3 years plus I had it during chemo. There is a new shot that is coming about that is about to get approved by the FDA and is more effective and has better results then zometa so many of us will get switched to that.

  • JacquelineG
    JacquelineG Member Posts: 282
    edited October 2010

    Hi Mary!

    Glad it went well! I'm right behind you -- was supposed to go in on Friday but i realized it's my youngest son's halloween party and I'm not missing that! I'll go in a couple of weeks and get my 3rd or 4th Zometa - I can't remember which it is! I'll be curious to hear how many more I'll have.

    I think my onc is probably going to switch me to Arimidex or Femara soon too (I'll have been on tamox 2 years in January). I was debating whether to ask to stay on Tamox for a 3rd year (tolerate it well too) or just make the switch now. I think she'll keep me 5 additional years on an AI.

    Since we were diagnosed within a few days of each other I feel like our lives have been so parallel (except i'm not a marathon runner :-))

     But very happy it went well for you - now just relax (and run!)

    Jackie

  • Bugs
    Bugs Member Posts: 1,719
    edited October 2010

    Great news, Mary!

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited October 2010

    Wonderful!  If oncs were grade school teachers you'd definitely get a star and a smiley face! I used to love getting those on my papers back in grade school...

    My onc is having me do Zometa every 6 months for 3 years.  At your next 6 mo visit you ought to pick her brain why she doesn't want to do the extra 2.  Who knows if it makes any difference if you get 4 or 6 but understanding her reasoning would probably be reassuring.

    As for moving on from tamox to an AI.  I've run across a lot of research that indicates the optimum results are 2-3 yrs on tamoxifen and then switching to an AI.  Better than doing just one or the other.  I was clearly post menopause so it wasn't an option and hitting it with an AI from the start was my stronger defense for these critical first couple of years.

  • Christine2000
    Christine2000 Member Posts: 176
    edited October 2010

    Hey Everyminute--

    I am also getting Zometa every 6 months for 2 years--just finished #2 

  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited October 2010

    Is Zometa covered by insurance now?  My onc doesnt even mention it, i did have one of those density scans though and my bones were ok.  I'd like to get it anyway!!!

  • ktn
    ktn Member Posts: 181
    edited November 2010

    I had Zometa every 3 months for 5 times then my Onc stopped it because my Dexa scan last Dec was so good. She didn't feel insurance would cover it. I have a repeat scan this Dec and if the results are lower she'll order it again. I'm hoping they are! Otherwise I wish the results would be final so insurance would just cover it. I'm liking what Pure said about a shot...that sounds easier than the infusion.

  • Beverly11
    Beverly11 Member Posts: 443
    edited November 2010

    I am on a different zometa plan as I am on a clinical trial.  I had 4 mg once every month for the first 6 months and then every 3 months for the remaining 2 1/2 years.  Glad to hear appt went well and thanks for all you have done for all of us Mary. 

    My oncologist has spoken about having me on tamoxifen & then later arimidex for more than 5 years combined.  They are finding some benefits with that too.

  • weety
    weety Member Posts: 1,163
    edited November 2010

    I'm almost a year out from chemo.  Is it too late to start on zometa?  Onc has agreed to it b/c of osteopenia (on femara), but I'm curious if I will still get the anti-recurrence benefits this far out from chemo.

  • Beverly11
    Beverly11 Member Posts: 443
    edited November 2010

    Weety - I am not certain what the difference in benefits is but it would still be of considerable benefit to go on zometa.  Clinical trials have rules about how far out of chem/treatments you are.   The benefits I originally read about were having zometa after treatment.  Now, they are talking about having it during chemo.  Good luck

    Bev

  • Jenna1961
    Jenna1961 Member Posts: 71
    edited August 2013

    Weety,
    I was told - it is never too late for Zometa (unles you are late for the trial). It is currently given for bone metastases anyway.
    Chemo causes a rapid bone loss for pre-menopausal women. So does a loss of weight too (being petit probably does not help). I decided to put two pounds on and do some weight bearing exercises three times a week. This gives me a lot of confidence for now.

    best,
    Jenna

  • weety
    weety Member Posts: 1,163
    edited November 2010

    Thanks jenna and beverly.  I finally have a date to get my wisdom teeth out--next Tuesday and dentist said if I do a bone graft with them, I should be healed well enough to get the zometa in 3 weeks.  I need to get the ball rolling because my onc is retiring at the end of December and she wanted to have the full instructions and treatment plan already in place just in case the new onc has different ideas and decides zometa is not warranted for early stage BC. ( I have Kaiser, so if the onc orders it, they will pay, but I know it is not standard of care yet.  That's why I want to get it going before she retires!!!)  I am kind of worried about 3 weeks being enough time to heal though.  I guess the dentist will check, though, before she gives me the green light?

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