December 2009 Rads Group

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2010

    Monday I have an appointment with the radiologist for a check up. I'm a little scared. Well, maybe just a little more scared than I want to be. I have been having pain in both of my breasts, but mostly the one that was operated on. I don't know if I am feeling scar tissue from the seroma I developed aftet the lupectomy or what it is. Please tell me its all in my head. I need hugs!

  • somanywomen
    somanywomen Member Posts: 872
    edited October 2010

    Lots of HUGSSSSS to you Veggy, it's so hard to think positive when we have these unexplained reactions but after all, our bodies have been put through a lot...I still have some pain and a hard ridge under my lump side...Also still have a small seroma that want go away...So let's just hope yours is just a reaction to all your body has been through and that's all.....My surgeon says that the radiation will play a number on us for many years to come....Of course if you go the the radiologist, they will probably say that the surgery is the cause of your pain...At any rate, I hope you get a very simple answer and all is well....Let us know........More HUGSSSSS...Jewly

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2010

    Thank you Jewly. I really hope that is what it is. Now I am starting to worry about every little ache and pain I get. Before all of this, I wouldn't have gave it a thought.

  • somanywomen
    somanywomen Member Posts: 872
    edited October 2010

    Just part of our New World, I even got a second opinion this month on a cyst that showed up in my mammo/us, even though I was told it was okay, I guess we will never take anything for granted again...I question every new pain, I guess I always will......Now you go Monday with a positive attitude and come out with a big smile on your face......Hugs and Positive Thoughts.........

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2010

    Thank somanywomen. I'll try.

  • BonnieSF
    BonnieSF Member Posts: 101
    edited October 2010

    HUGS, Veggy! I know what you mean about how we worry now about things we never gave a thought to before. It's hard to keep a balanced perspective. Try to keep your thoughts positive as you approach the appointment - it can only do you good. Plus, if there is something that needs to be found, it's good you're going, so it CAN be found. Knowledge is power!

    Last time I saw my surgeon, I told him that I still had pain in the BC breast. He shrugged and said, "Well, yeah, sure you do." That helped me regain perspective.

    Good luck!! and be sure to let us know how it went and how you're feeling.

    Bonnie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2010

    Thanks Bonnie for your comment. I have a hard time understanding the "new me".  The new me worries a lot more than before. My thoughts are also twisted.

    I hate cancer. I detest cancer. I loathe cancer. I despise cancer. I abhor cancer. My feeling for cancer and what it has done to me is worse than all those descriptions put together.

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited October 2010

    Veggy I totally understand where you and all the others are coming from.  Worrying about every little ache, pain or abnormal lump, bump, etc is normal when you've been diagnosed with cancer.  It will be a part of your life for a while to come, but I promise it does get better with time.  I guess because I  have been there and done that before I don't let it control me as much as I use to.  Hope things get better for you {{{{{Hugs}}}}}

    Renee

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    Thanks Renee.

    I'm awake but tryingto get myself motivated to get ready for my appointment. I'll let you know what happened later this afternoon. I'm trying to remember to take deep cleansing breaths.

    Thanks for the hugs everyone.

    Valerie

  • AICa
    AICa Member Posts: 64
    edited November 2010

    She said, "You'll like it." Today's appointment was my first of eight boost after 28 full rads. Before getting on the table, I asked the techs to explain exactly what was going to happen today. After telling me about the procedure and explaining that it was only one exposure, she said, "You'll like it." What a poor choice of words. I told her I would never like it; I hated every second I'm in the building.

    A friend I'd known for 24 years died of cancer at this hospital last week. His funeral is this afternoon.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    I home! A friend of mine is in the same hospital I had to go for my appointment. I visited her first. I saw the actual radiologist and not the PA. She told me the lumps I am feeling is the scar tissue And that some of this achiness and tiredness comes from the chemo and rads. It takes a while to heal. She checked everything out and yelled at me because I am overdoing it checking my breasts. My next appointment is with the chemo doctor in February. I can breathe again.  :)

  • somanywomen
    somanywomen Member Posts: 872
    edited August 2013

    What a relief!!...........Been checking for your update and that's great news...They sure never tell us in the beginning that the rads and surgery recovery could go on for years....I still can't sleep on my lump side, but feel we have to get answers and never take anything for granted...Bet you're going to sleep well tonight!!!!...Jewly

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2010

    Yeah Valerie!!! Freaking Happy Dance for you.... Glad it wasn't anything major.  What did she mean your checking your breast too much?  You are doing the breast self exam too much??? HMMM.... O.k. let's let her/him get breast cancer or cancer of any kind and then they can tell us we check to much in the beginning.  After I was dx with Hodgkins Disease I use go around feeling of my neck all the time because that was where the lymph nodes were that came up and were biopsied from.  I know looking back as a nurse it was really stupid (I kept my neck sore around my throat all the time), because anything can make your lymph nodes swell... a sore throat, sinus drainage, allergies, infection, earache, you name it and it can make them swell in your neck or anywhere else.  But it didn't matter to me I was OCD about it at the time and there was nothing you could have told me to convince me to keep my hands off of my neck and later my kids necks.  LOL!  It was my constant obsession.  You don't live through almost stage 4 cancer and not be obsessed about staying on top of it. 

    So Valerie and Jewly and anyone else, ya'll go and see your docs as much as you need to for a check for your peace of mind.  That's what is important not what anyone else thinks. 

    Renee

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    Not to sound weird, but I check myself about 3 times a day or whenever I feel a twinge of pain. Its hard not to make sure it isnt the cancer coming back. It was cancer. I'm always scared. Its the new me. Anyway I am happy its only scar tissue. I had a small glass of wine that night to celebrate. Next appointment is in February.

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2010

    yeah Veggy and I don't think you are weird at all.. believe me I use to go around feeling my neck all the time and checking it.  Like you said, it was cancer.  On a different note I am seriously thinking about canceling my appointment on Tuesday with my Rad Onc.  I mean I really don't see the need to go to him.  I just went and saw my Med Onc in Aug and got a clean bill of health.  I'm going to see my breast surgeon in a few weeks and will be getting my mammogram, can anyone give me a good reason that I need to keep seeing the Rad Onc?  The only test he does that my Med Onc doesn't is the CA-15 test and my Med Onc doesn't believe in doing the cancer test.  Personally they all 3 check my breasts, the 2 oncs do the same blood work and I think it's a bit ridiculous to have to go see so many doctors.  Help I need an opinion before Monday!

    Renee

  • somanywomen
    somanywomen Member Posts: 872
    edited November 2010
    Renee, since my Onco and my Rad doc worked at same center, I saw no reason to see both, neither did they....My Onco does CEA and CA-15 every 4 months..My Surgeon does Mammo/Us every 6 months......What does your Rad doc actually do when you see him?...Jewly
  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010
    I see my BS, Rad doc,and chemo doc once a year. So about every 4 months I see one of them. They are all at the same hospital and share their notes. My Rad doc looks at all my notes and test results and then examines the breast.
  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2010

    Jewly the only thing my Rad Onco does is examine my breasts (both of them) and do labs... that's it.  However, my Med Onco does the same thing, examine the breasts and do labs.  The only difference in the labs that they do is the Rad Onco does the CA 15 (or whatever it's called - no CEA)  the Med Onco doesn't see a need for it.  They share notes and send them back and forth as far as I know (at least the Rad Onco sends the Med Onco his notes).  I have to see the breast surgeon every 6 months at least for now.  He may change that when I go back if my mammo is all clear since it will be a year.  I don't know.  Anyway I changed my appt with the Rad Onco to Dec. 6th.  My mom told me to go she said you don't want to make him mad and he won't treat you again if you need him.  I probably wouldn't use him again anyway and would go elsewhere.  As I've said many times I don't like him!!!  I think he over treats his patients.

    Renee

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    I had a nightmare last night. I dreamt I found something inmy breast. The first doctor wouldn't do anything. The nurses at ultra sound were joking about it until I made them feel the lump. Then they started putting big long needles in and around my breast and leavingthem their. They hurt. And then I had to go for chemo and they had a hard time getting the equipment to work. I had to go find someone to help them. There was a little girl getting chemo for the first time and she was crying. I sat there in my chair with all these needles sticking out of me. I wanted to tell her it was going to be okay, but I couldn't. I felt so trapped.When I finally woke up, I was checking for the needles. It was so real.

  • BonnieSF
    BonnieSF Member Posts: 101
    edited November 2010

    Yikes, Veggy! What a terrible dream! Your worries came out in your dream. Do any of your doctors know about your anxieties? Seems that along with treating cancer that the treatment plan should also include something for anxiety. The entire time I was in treatment, and afterwards for a while, I was getting acupuncture and also personal coaching, which is kind of like therapy, but geared toward making an action plan in the here and now. It REALLY helped with my stress. Also, I had a prescription for Ativan, which is an anti-anxiety medication that I would take when I was freaking out. Sounds like you could use a prescription or some stress relief program, too. Another thing I did was take an 8-week course called Mindfulness Based Stress Reduction. I HIGHLY recommend that program. It's based on a program from the University of Massachusetts Medical Center, and is now offered all over the country. It's really something. Very, very useful. This nightmare shows that you definitely need something to help wtih your stress and anxiety.

    I was just re-reading your earlier post - your doctor yelled at you for checking your breasts too much!?!  Wouldn't it have been a BIT more effective if she had shown some compassion and asked about your anxiety?! For crying out loud!!!!

    Good luck with all this, and I hope you can get some stress relief going. Stress is not good! What kinds of things have you done in the past that have helped if you were worried, stressed or anxious??

    I'll be thinking of you and sending peaceful thoughts your way,

    Bonnie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    Thanks Bonnie!

    I am on celexa and Lorazepm (1 mg) 3 times a day if needed. I can't function on it if I take during the day. I don't believe there is a stress relief program in my area. I really want to get a punching bag to take my frustration out on. I have always had stress in my life. I have a 19 year old sonwho has Asperger's Syndrome that since he was a newborn screamed non stop. As a child he would beat me up. It wasn't until I was DX with breast cancer that he stopped. Now I deal with the stress of all of the treatments and the what if's.

    In the past I would get ocd with crocheting. I would be so engrossed with it that I could resolve my problems. I have just started that hobby up again. Right now I have a nurse practioner that I talk to on the phone regularly for my depression.I had a social worker but later found out that she was not covered by our insurance. I go out with my friends whenever I can, usually once a week.  I go to two cancer support groups.

    If I can keep myself busy I am usually better. Its trying to get me started that's the problem. I lack the motivation.

    Thanks for the peaceful thoughts.

    Valerie

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2010

    Valerie, that dream was just awful!! I would have probably awakened myself screaming.  Lucky for me I hardly ever have dreams that I remember anymore. 

    Finally got the call today from the Mammography lab to schedule my appointment for my full first post treatment mammo.  I've had the unilateral mammo several months ago, but this is the first bilateral mammo I've had.  It's scheduled for Nov. 23 at 11:15 and then I have my follow up with the breast surgeon.  The lady I spoke with today told me they could call the preliminary results over to the surgeon since I was coming before my appt.  That made me so excited I about did a happy dance at work.  LOL!  I told her that I was really happy that I hated the idea of having to wait for a week to get the results.  So, I'm keeping my fingers crossed and praying that there will be great results.

    Renee

  • somanywomen
    somanywomen Member Posts: 872
    edited August 2013
    Renee, wishing you extremely clean results for Nov 23.....My next scan will be unilateral in April...Believe it or not, BC is not consuming all of my thoughts lately...I will be going to win my fortune in Vegas next week (I've never been) with a side trip to Zion National Park to do a 5 hr hike up to Angels Falls, then to San Diego for a week...With that shock of dx last year, I will not let my fear of flying or adventure hold me back from life...I told my DH that if ever BC wants to take me down, I hope that I will not let it hold me back from living life to it's fullest....I would rather go by falling off Mount Kilimanjaro or in a barrel off Niagra Falls, not by BC......
  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2010

    Jewly, you go lady!! That is the only way to look at life in the face of what we have fought so hard to overcome the last year.  Live life to it's fullest, don't sit around and let it pass you by.  I know it's hard burt I am trying.  I work way too much, but there has to be food on the table.  I am getting frustrated with myself for not doing and spending enough time on me!!  Have fun on your trip!!!  Oh yeah take lots of pics to post when you get back.  :=)

    Renee

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    Somanywomen - Have fun on your vacation. I'm envious!

    Renee - Sending you happy thoughts for your upcoming mammo. 

    I am still having stupid dreams. A night ago I dreamt the cancer was in my leg. I had a scar from the knee up to my hip. Last night I dreamt I was getting chemo again. They didn't give me anything for the nausea and I was afraid of the side effects. I really want to put this all behind me. These dreams are holding me back. Yell My next appointment is in February with the chemo doctor.

    Hope everyone is okay.  Sending (((HUGS!))).

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2010

    Veggy thanks for the good thoughts.  I really hope you stop having those "terrible" dreams soon!  I am so glad that whatever I dream I never remember it so therefore... I don't really dream.  hahaha!

    Renee

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    Last night is the first night I got a good night's sleep. I had fun with friends, came home late and fell right to sleep. I actually over slept this morning. It felt good!

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2010

    Woo Hoo way to go Veggy!  Jewly hope you are having a good vacation!!

    Bonnie I miss you...

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2010

    Happy Dance today... NORMAL mammogram!!!!!!!!!!!!!!!!  Woo Hoo and I don't have to see my breast surgeon again until I go back next year for my yearly mammo.  So freaking happy I could cry.  Love to all my sistas and Happy Thanksgiving... We have so much to be thankful for this year!  I know I do for sure. 

    Renee

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2010

    I'm doing the Happy Dance with you! That's wonderful news!

    Here's a great big (((((HUG!!!!!)))))!

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