Should I ask for a second opinion?

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Carlatap
Carlatap Member Posts: 96

Hello TN sisters, I am a 2X cancer survivor, and I carry the BRCA2+ mutation. I have come to realize in a serious way, how I need to be aware of new lumps and bumps and pain in my body. I am still healing from my double mastectomy, with tram flap reconstruction from August 11. Its been a long journey with complications but I am finally feeling like I am mending. But...on the edge of my new right breast, there is a hard lump that I am concerned about. My PS felt it and says that I need not worry, its a ball of fat tissue, and I probably have more. I asked his nurse to feel it after he left the room and she said the same thing. I told myself that they are the experts and I should believe them. I do feel other lumpy areas but they do not feel like this one.  This one is hard, and seems attached to something underneath it. It isn't round or wobly. In fact it feels a lot like the lump I felt which turned out to be a triple negative malignant tumor. I don't go back to see him for 2 months, and don't see my onc. for 2 months either. Should I wait? Should I make an appt. with my surgeon and have him take a look? In 5 months, I have a 2nd surgery to have the nipples worked on and the breasts modified to look nice. Then he'll work on that area, my PS says. If I didn't know how agressive the TN cancer is, I wouldn't be so concerned. Have any of you had a similar experience? Should I seek a 2nd opinion or wait and believe my PS who so far has been very trust worthy?

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  • MicheleS
    MicheleS Member Posts: 937
    edited October 2010

    If you are uncomfortable waiting, then I would listen to your gut.  Can you call your onc or surgeon and ask one of them to order an ultrasound?  An ultrasound would be the fastest, least invasive way to tell if it is fat or scar tissue or something potentially yucky.

    {{{hugs}}}

    Michele

  • Carlatap
    Carlatap Member Posts: 96
    edited October 2010

    Thank you Michele, That sounds like a good idea. I think I will call my surgeon and ask if he can do an ultra sound! Thanks again, I didn't think of that. This is why I like these boards. Its so good to hear the ideas of others.

    Carla 

  • LRM216
    LRM216 Member Posts: 2,115
    edited October 2010

    I second Michelle's post.  It's probably what the PS said it is, but your mind is still not at ease, and we all know how that goes!  You'll drive yourself nuts worrying. Wishing you all the best -

    Linda

  • Carlatap
    Carlatap Member Posts: 96
    edited October 2010

    Thank you, Linda, I just didn't know if I should wait. But I think both of you are right. I will call on Monday for an appt with my surgeon. I don't want to seem like a paranoid patient, but sometimes it pays off to be pro-active. I will post the date of the appt, and the outcome. I really want it to be a ball of fatty tissue! That would be sooooo much better.

    Thanks again for taking the time to write,

    Carla

  • MicheleS
    MicheleS Member Posts: 937
    edited October 2010

    Carla,

    I'm glad you are going to call.  Not because I think it is something bad, but because we all know what the worrying is like. NOT FUN!

    Please let us know what he/she says.

    xxoo, Michele

  • LRM216
    LRM216 Member Posts: 2,115
    edited October 2010

    Michelle appears to be reading my mind again!  Isn't it amazing how wonderful a ball of fat truly can be! 

    Hugs,

    Linda

  • Carlatap
    Carlatap Member Posts: 96
    edited November 2010

    How I would love it to be a ball of fat!Laughing  I called for an appt today to see my the surgeon who had done my 2 lumpectomies and my mastectomies, but they haven't returned my call yet. But the more I look into the chances of having a chest wall recurrence, the more my hope grows that it is a ball of fat. It sounds like it would be very unusual. We'll see.... Its just that having had TN, and having the BRCA2+, one cannot be too careful. Thanks so much to both of you, for your words of your encouragement! It is very much appreciated.

    Carla

  • Lovelyface
    Lovelyface Member Posts: 674
    edited November 2010

    Hi Carlatap

     I wish you all the best.  I have also been diagnosed with tripple negative and have had 2 surgeries, and am on my 4th chemo which is scheduled for tomorrow.  Sorry to hear that you have gone through this twice.  I have learned that tripple negative has a high recurrence rate.  I am not BRCA positive, in fact my insurance refused to pay for the test as I have no family history.  Are you saying that your lump seems to be in the new reconstructed breast?  or underneath the new breast?  I have to decide whether to have bilateral mastectomy after chemo is over, and it is driving me crazy.  I have met with 2 PS and just hate the idea of having artificial implants in my body.  I know nothing can be close to your natural breasts but I just don't know.  I have clear margins on the left side where the tumor was, but on the MRI, the right breast showed some atypic, which is a pre-cursor to cancer.  They took that out, but there seems to be some cells which are pre-cursor to pre-cancer.......you know at least 3 steps away from cancer.  And they are there in the surgical margin.  I asked my oncologist that if I was his sister, would he recommend a bilateral mastectomy - he said, no, not medically.  He said I would have to go through yearly MRI's, maybe biopsies and stuff like that.  Carla - what do you think having tripple negative, should I be thinking of getting rid of my breasts?  Please help me make my decision.  Maybe there is something I don't know about tripple negative or maybe I am refusing to believe them.  I would appreciate your input, anything you have.

    Thanks.

  • Carlatap
    Carlatap Member Posts: 96
    edited August 2013

    Thank you lovelyface, for writing me. You have some good questions. I had my first breast cancer in March of 02 in my right breast.  It was DCIS, which means it remained in one small area in one duct. I had a lumpectomy with 33 radiations afterward. I don't know if this one was triple negative. After 7 years, almost to the day, in March of 09, I went to have a mammogram, knowing that there was some kind of lump in my left breast. It turned out to be a triple negative, grade 3 tumor. I had a lumpectomy, followed by chemo-4 treatments of CT. Then 33 radiations. During the radiation treatments, I found out that I was BRCA2+. So I had my ovaries removed right away, and this past August I had a bilateral mastectomy. I had a skin sparing tram flap reconstruction. The plastic surgeon takes your own fat and some muscle from you lower stomach and pulls it up to your breasts, after the surgeon has finished doing the mastectomy. Its a 9 hour procedure, followed by 5 days in the hospital. I had some complications with some of my top breast skin which died b/c there wasn't enough blood supply going to it. I am still recovering and healing and we are in November. I have to be honest with you. I had the ovaries and breasts removed b/c I was BRCA2+, not b/c of the triple negative. These surgeries were done so that it would increase my chances of not having new cancers.  Because of the triple negative, I can still have recurrences down the road in my bones, liver, brain,...... Having a mastectomy does not get rid of that problem.  If I find out I have cancer again, it is most likely a new cancer which has grown off my chest wall. It will most likely be triple negative again, because how fast it has appeared. It is on the left side of my right breast, so it could be a mound of very hard fat tissue, or a tumor located very close to my sternum. I'm hoping for the best. My appt with my surgeon is on Nov. 16, at 3:45, so I have 2 weeks to wait. Not fun.  If it is cancer, I don't know what the treatment will be because I cannot have radiation anymore. I probably will have to remove my right reconstructed breast. 

    So, I encourage you to think twice about the mastectomy. If you are seeing your doctor every 2 or 3 months, then every 6 months, after your chemo and you are aware of your own changes in your breasts, I encourage you to wait.Are you having radiation? If you are, I heard that its better to have a mastectomy at least a full year after radiation if you are looking into reconstruction. Your skin is very tender and needs to heal even if you don't experience burning. There is a greater chance of infection. I waited a year before having mine.  But each woman has to decide this for themselves. You have to feel right about whatever you will decide. I see that you want to be in God's will too. The Lord has his ways of letting us know what to do. Continue to pray, and to seek His Word. Since the beginning of this journedy of mine, I have prayed not only for healing, but for wisdom, and His direction. He does this by directing you to get opinions from people who have gone through this before, ( as you are now)  and by giving a peace of mind as you make a decision. He is in control.

    Take care, and I will be praying for you,

    Carla

  • Carlatap
    Carlatap Member Posts: 96
    edited August 2013

    Well, I saw my surgeon today. He took a biopsy of the lump. He first felt it, and didn't say the words I was hoping for. I thought he would say,"OH yes, definitely, fat necrosis". "Dr. H. is definitely correct." No, he hesitantly told me that it was rounded, well defined, and agreed with my request for a biopsy. He said that it would be very rare if it turned out to be cancer, but didn't say it probably was not. I had been there a few other times for some lumps and bumps I have felt, and he would quickly tell me they were nothing to worry about. This time he didn't. Sooooo, I'm waiting for results by late Friday afternoon or Monday.  I really hope and pray this isn't cancer again, especially after going through the mastectomy and reconstruction. But if it is, it is.....and I go on from there.

  • Carlatap
    Carlatap Member Posts: 96
    edited November 2010

    I'll try this again. I went to my surgeon today for the 2nd opinion regarding the lump I found. He felt it, and wasn't smiling. He said it was round, well defined, and told me it was wise of me to ask for a biopsy. I had hoped I would go in and he would feel it and say, "Oh yes, this is definetly a fat necrosis, just like Dr H. says." SHOOT! So I had the biopsi done in his office. He took 3 different samples, and told me to call the office on Friday afternoon for results. He said that it would be very rare for the lump to be malignant after having the mastectomy in August, but thats all he said. I really do not want this to be another cancer!!!! 

    In the waiting room,

    Carla

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited November 2010

    {{{{CARLA}}}}} I am holding your cyber hand while you wait!

  • Carlatap
    Carlatap Member Posts: 96
    edited November 2010

    Thank you so much, Barbara! I made it through today-just 2 more days to go! (I will call them late Friday, if they haven't called me by then.) I really hope I don't have to wait through the weekend.

    waiting, but hopeful,

    Carla

  • Carlatap
    Carlatap Member Posts: 96
    edited November 2010

    Well, my husband asked me to call in for the results. "Maybe they will be in already." So I called the office and asked. His nurse said that they were in, but Dr. F. needs to look at them first before she can tell me. He won't be in until tomorrow AM at 9:30. This is almost worse! But....I'm also thinking that nothing was found and that is why they came in today already. If it was positive, it takes longer to know the grade and type of tumor it is, right? This is what I will keep on telling myself until I call tomorrow morning.

    Thanks for listening,

    Carla

  • Luah
    Luah Member Posts: 1,541
    edited November 2010

    Hang in there, Carla.  Sending good vibes your way....

  • Carlatap
    Carlatap Member Posts: 96
    edited November 2010

    Thank you, Luah, for you encouragement. It means a lot to me.

  • Carlatap
    Carlatap Member Posts: 96
    edited November 2010

    I am so happy to be able to write that the biopsy came out all clear of cancer!  The report said that the lump was a mix of fatty tissue, and actual breast tissue, but B9! Now I can just continue healing from my reconstruction mess, and not worry about this crazy lump which will come out during stage 2 of the reconstruction process. Thank you for everybody's thoughts and prayers!

    Carla

  • anonymice
    anonymice Member Posts: 532
    edited November 2010

    Yay for the B9!!!!  

  • Carlatap
    Carlatap Member Posts: 96
    edited November 2010

    Yes, Yey for B9!!  I see, Pamin, that you were diagnosed in September of this year. How are you doing? Are you in the middle of chemo or in radiation? I hope you are doing OK.  Thank you for posting your encouragement.

    Carla

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited November 2010

    {{{{CARLA}}}} Happy dance for you!

  • Carlatap
    Carlatap Member Posts: 96
    edited November 2010

    Thank you, Barb, for your cyber hugs! Yes, I am so happy and releaved. Now I can just go on, continue healing, enjoy my family, and be grateful for each day.

  • LRM216
    LRM216 Member Posts: 2,115
    edited November 2010

    Carla:

    Such great news! I am so happy for you and can well imagine the clouds you are walking on.  Guess this will really be a HAPPY Thanksgiving, huh?

    Linda

  • Carlatap
    Carlatap Member Posts: 96
    edited November 2010

    Thank you, Linda. Yes, I am walking on clouds of relief, and now I am very much looking forward to Thanksgiving!  -another great reason to be thankful.

  • anonymice
    anonymice Member Posts: 532
    edited November 2010

    Hi Carla!  I'm doing much better than I ever thought I would, the SEs with my chemo have been much more manageable than I knew they could be.  Thanks for asking!

  • Carlatap
    Carlatap Member Posts: 96
    edited November 2010

    I'm so glad to hear that, Pam! I hope you can enjoy Thanksgiving feeling well.

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