What are our children thinking?

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YATCOMW
YATCOMW Member Posts: 664

This weekend I was out in the yard doing yard work with my son and husband. (we call it Jacqueline's fun farm----altho they will tell you it's not so fun).  Anyway...my son was only 7 when I was diagnosed---he is now a man of 13. He came across a spider web and a spider near the pool and said to me......"remember mom when you got bit by the spider.....(i don't).....you got cancer right after that.....I thought the spider gave you the cancer."

I looked at my husband and wondered.....has he been afraid of spiders all this time?  When did he know they didn't give you cancer?

It hurts my heart to think that they ever worry about all of this.....and more.....what else are our children thinking....and worrying about......

Jacqueline 

Comments

  • GrandmaBubba
    GrandmaBubba Member Posts: 111
    edited October 2010

    We are raising two of our grandkids, a girl 10 and a boy 8. We have noticed a lot of anger in the 10 year old since I was diagnosed. I have always been her safety net when she couldn't depend on her mom. She used to call me and tell me her stuff was packed and she was moving in with me, could I come get her and she was only 5 or 6. Then when she was 7 DCFS took them away and brought them here. She's been taken away from her mom and dad and separated from her other brothers and sisters and now she's worried about losing me. We try to reassure her and keep her as informed as appropriate, but I think what has helped her most has been her counselor and the support she gets from her Sunday School teachers. I have surgery scheduled for 11/19 and I'm hoping when that's over she'll feel better.

  • caaclark
    caaclark Member Posts: 936
    edited October 2010

    Jacqueline- when I was diagnosed my girls were 4, 6 and 8.  Right before my diagnosis I took my middle daughter to a museum.  We walked by a mummy case.  A couple months later-cancer.  I never thought about it but 2 years after I was finished treatment my middle daughter (now 8 yrs old) came to me and said something about the mummy.  I did not know what she meant and after some questioning I discovered that she thought (for 2 whole years!!!) that the mummy cursed us.

    Additionally, they never asked me if I was going to die.  I was certain I was going to die but they did not ask so I did not address it.  Just recently the two older daughters told me that they thought I was going to die.  They apparently discussed this together when they were 8 and 6.  How sad is THAT!?

  • Bugs
    Bugs Member Posts: 1,719
    edited October 2010

    My son was 8 when I was diagnosed.  He says he barely remembers it and the only time he really remembers it is when he sees a pic of me with my scarf.  He won't admit to any fears or thoughts at the manly age of almost 13. :)

  • YATCOMW
    YATCOMW Member Posts: 664
    edited October 2010

    Wow Carol......so similar to my story....

    I knew my kids were scared....  especially my son.....  something about a mother and son bond I suppose.....I'd find notes in his back pack that he wrote as "dear diary"...or notes to God.....

    but the spider really caught me off guard.....

    Jacqueline 

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited October 2010

    It is  sad what children "get" and we don't realize.  I had my BMX on 6/30, my son just turned three and he still asks if I am "sore" and wants to see my scars to see that they took the boo boo away and  I am ok.  I will say the more honest I am, the better he handles things.....but I am going to get nipples in January, how do I explain that?

  • Tg5471530
    Tg5471530 Member Posts: 111
    edited October 2010

    Talking about children and what is going on in their heads.   My kids are 4,6,and 9 (autistic)  My 6 yr old never talks about the cancer. (except maybe at Gilda's club)  Last wk I asked him how he felt about mommy having cancer and he said that he was scared.  "Scared about what hunny?"  That you might die.  "Have you told anyone about this"  no just u.  And here are some cute stories.  My daughter (4 yrs) carries around her dolls and stuffed animals and says "this is (dolls name).  She has cancer.  She lost all of her hair.  But she's ok now.  And all of her hair is back now"  Then after I told them that mommy was cancer free.  That wk my husband called and told me that she told her teacher that "mommy got her cancer for free!!"  and after seeing my scars on my breasts after BMX my husband said that the said to her brothers  "Mommy's boobies are weird now.  Cancer made them stripped" So cute!

  • mom3band1g
    mom3band1g Member Posts: 817
    edited October 2010

    I was talking to my dd (4) in the yard the other day and she was playing with one of her babies.  She kept giving her baby a bottle and I asked her why she didn't nurse her baby (I am a huge advocate of nurisng).  She told me she used to but her 'nursies' were gone.  I asked her where did they go?  She said she didn't know but "someone took them away and she had to have radiation once".  I was so afraid she was going to think everyone grows up and has their breasts removed.  I told her the only reason they were gone was because of cancer....most people keep their 'nursies' forever!  It was interesting to hear her take on things.

    My oldest son (11) had a lot of anger issues and a counselor was a big help.  He wouldn't admit then or now to being anything other than 'fine' though.  My Aunt, whom my kids loved, had died from ovarian cancer almost 2 yrs before my diagnosis.  My son is smart and I know he put the whole cancer thing together.

    I just realized this is the stage III forum....so sorry.  I

  • KerryMac
    KerryMac Member Posts: 3,529
    edited October 2010

    Wow, Jacqueline, the stuff that goes on in their heads.

    My kids were only 2 and 4 when I was Dx, so we never used the "cancer" word. It is only now that I think my daughter (6) has connected the dots in her head and knows I had cancer. She still gets a bit jittery about things, although my son (now nearly 5!) seems quite oblivious to it all.

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited October 2010

    I apologize as well- I didn't realize I wasn't supposed to post here.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited October 2010

    Really - ANYONE can post here

  • YATCOMW
    YATCOMW Member Posts: 664
    edited October 2010

    Ditto.....what Kerry said.......ANYONE.

  • cathmg
    cathmg Member Posts: 278
    edited October 2010

    Hi moms,

    The hardest part of this journey was having to put my kids through it. They were 13 and 16 when I was diagnosed. They didn't talk much about it, so maybe I was hoping they didn't absorb much of the trauma-wrong. My son had to write an essay about resilience for his class this fall, and my story made it into that essay. He included dates and great detail about what I went through. I'm glad that he can process it now. My daughter is now at college, and was at lunch with 2 girls. They got to talking about healthy eating, and somehow it came out that all 3 had moms who went through bc. 

    May all our children have peace and healing,

    Cathmg 

  • onward
    onward Member Posts: 296
    edited October 2010

    I have two college age boys that left after my blm on july 29th of this year. They are coming back for the first time this weekend. Although we talk throughout the week, I havent really talked about my stage or s/e of the months of chemo have taken on me. Ya know, I just want them to enjoy college and not be constantly worried about what's going on at home. Anyone have older kids? How much do they really need to know? I dont finish chemo until february than I will have rads. I am a stage111c. Help. Onward

  • cathmg
    cathmg Member Posts: 278
    edited October 2010

    Hi Onward,

    My daughter is the same age as your boys. I sent you a pm.

    Cathmg 

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited October 2010

    thank you for making me feel welcome. 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2013

    My kids were 22, 24, 25 and 26. I spoke to all of them in person except the youngest girl when I had the "bad" mammo. I knew it this time. I couldn't get ahold of my step-daughter (my kids were the 24 and 26 year olds) and when the diagnosis came through I was able to call them all to confirm it....except the youngest. I kept leaving her boyfriend messages on FB to call me but she never did. Finally I posted on Facebook that I had breast cancer and was going to have a double mastectomy on Tuesday! She finally called on Monday night crying. Too little, too late. My own daughter (24) posted on FB that she "had to be strong". I responded to that by saying "no she didn't! It was okay to be scared." My step-son (25) was with us the night before the surgery and my daughter visited the day of surgery. My son (26) was WAY up north (7 hours). They've all been fine since. I hope I taught them something of how to react in a crisis; strength and humour!

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited October 2010

    onward- I was 24 when my mother was diagnosed stage IV.  The more I knew and the more "in the loop" I was the better.  I lived in another state as my mother and actually left my job for two weeks, ( I was a bartender)  and went and stayed with her and my Dad through her mastectomy surgery and recovery time.  I am so happy that my mom shared her fears and let me be there for her, she was always there for me.  Because I was so involved with her treatment it kind of made it normal, we dealt with it all as a family.  She and my Dad moved back to our home state and I would go to chemo with her, that we we could sit and talk and pass the time, we even did my seating chart for my wedding at chemo.  Only you know your kids, but I am grateful for how much my mom shared with me.  She was truly my best friend.  Remember the old saying "Knowledge is power."

  • karen1956
    karen1956 Member Posts: 6,503
    edited October 2010

    my kids were 7, 16 and 19 (soon to be 8, 17 and 20)...my son (middle child) does not talk about BC with me...but I know at the time of Dx when I had 2nd biopsy and DH and I were telling him results (more cancer etc), he asked if that meant I was going to die!!!!  BC is openly discussed with my 2 DD.  Whole family did RFTC in Denver the beginning of the month.  Older DD and I are doing the RFTC in Israel tomorrow (1st one ever in Israel) afternoon.  I have talked to older DD alot about the need for BSE as she is not too young (at 24)....younger DD knows when I see the onc as I need to let her know my schedule...plus, I am an active volunteer with the Komen affiliate....My kids know how hard Tx was for me, but I am currently NED, so that helps put it in perspective.  When I was Dx, younger DD was in grade 2 and her teacher arranged a lunch date with a 3rd grader who had been in class with my daughter the year before whose mother was a survivor....it really helped my daughter...to be able to talk with someone.....I know my younger DD had to grow up quicker because of my BC, but at 12 and in grade 7 (4 1/2+ years later), she is a well adjusted kid....so are her big brother and big sister!!! 

  • Bugs
    Bugs Member Posts: 1,719
    edited October 2010

    Karen!!  I do hope you are having fun in Israel!!

  • tougherthanithought
    tougherthanithought Member Posts: 454
    edited October 2010

    My kids were 5 & 7 when I was diagnosed, and we gave them information we thought they could handle at the time.  18 months later, they both understand more and realize that Mommy had cancer, and all the crap I went through was to get rid of it.  But the funny thing is that my daughter associated the word "surgery" with losing your hair for the longest time, since that was what stood out in her mind through all of this.  So when she heard of someone needing surgery, she would follow up with "Oh, they're going to be bald!"   She actually had a classmate last year mention that her Grandfather was having foot surgery, and my daughter told her, " His hair will probably fall out" Smile I had to continue to remind her that the chemo made me lose my hair and that all surgeries are different and are done for different reasons!  Now she finally gets it!

    Sherrill

  • YATCOMW
    YATCOMW Member Posts: 664
    edited October 2010

    Losing the hair seems to stick with kids the most.....and I think scares them the most......

    They also lost a friend from leukemia and she was bald so I think they associated it with dying... 

    I was bald at this time six years ago and I teased them that I would answer the door on Halloween with my bald head...(this was a big deal as I always had my wig on)........they said "wow....really....????  They thought that was funny and lightened up the thought of it all.  They also wanted to have me in some video bald and send it off to Nickelodean for a prize.....I said of course.....they thought that was way cool......fortunately for me they never got around to doing it....

    Jacqueline 

  • GrandmaBubba
    GrandmaBubba Member Posts: 111
    edited August 2013

    Onward

    I have a 19 y.o. son and he avoided me most of the time I was getting chemo. Then he shaved his head and got a ribbon tatoo. He's more comfortable with it now and we have always been an open family so he knows all he wants to know. He even bought me a hat with hair on top. My 30 y.o. son has only spoken to me twice since I was diagnosed in May.

    Karen

    What is RFTC?

  • karen1956
    karen1956 Member Posts: 6,503
    edited October 2010

    grandmaBubba....RFTC is Race for the Cure

    Bugs....I am having a fantastic time!!!!  Today is the RFTC and it is in less than 5 hours.....I am so excited....going to meet up with Leah_S for the race (and her hubby too)...some former Denver people who now live in Israel are also doing the race and I hope I see them...plus the 4 denver people here from the Denver Komen affiliate.....I met someone on the flight who is doing the race and a gal from denver who is also a survivor (but she is not doing the race).....Having a great time with my daughter...we are going non-stop from morning to night...I think she is getting worn out!!!!  Going to take lots of pictures.....This is an amazing experience to think about doing the race/walk here.....I"m soooo lucky to be able to participate (and have a wonderful family to give me the opportunity!!)...

    Sorry for side tracking the thread.....

  • Tg5471530
    Tg5471530 Member Posts: 111
    edited October 2010

    Karen1956-  Wow that must have been so exciting.  I just read that there were over 5000 people there.  What an amazing event to be at!

  • karen1956
    karen1956 Member Posts: 6,503
    edited October 2010

    The Israel RFTC was absolutely amazing....I am soooo glad that I was able to be a part of it.  I have lots to tell, but its almost 2 in the morning and I'm up way too late.  Tomorrow is our last day in Israel and we fly home late at night...Will post pictures and tell all about it in a few  days (or more!!!). 

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