Newly Diagnosed

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dmtmb
dmtmb Member Posts: 3
edited June 2014 in IDC (Invasive Ductal Carcinoma)

Just diagnosed this week with Invasive Ductal Adenocarcinoma with Lobular Features.  Met for first time today with surgeon.  Next step is MRI and meeting radiologist.  Any suggestions for the right questions to ask when I next meet with surgeon?  He is the same surgeon my friend had 7 years ago!  She is doing great.

Thanks for the support!

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  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2013

    dmtmb ~  So sorry you're joining the club that none of us ever wanted to be in, but I'm glad you've found BCO!   I'm not sure why you haven't had any responses to your question yet, but that occasionally happens -- just the timing of posting when very few people are on BCO (like a weekend nite), then your topic quickly falls to where it's not seen. 

    Glad you already have a recommended surgeon lined up.  One thing I would ask if he doesn't bring it up is about having an MRI, to be sure you have the full picture of what's going on before deciding on surgery.  And, of course, you'll want to know if you have a choice between a lumpectomy and a mastectomy.  And if a mastectomy is on the table as an option, what plastic surgeon does he work with on reconstruction.

    Those are just a few things, and hopefully this will bump your question so that you'll get more input, too.     

    By the way, I also had invasive ductal with lobular features, and lobular bc, in particular, sometimes sets up little satellite lesions -- so that MRI can be a really important diagnostic tool.   Deanna

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  • eileen1955
    eileen1955 Member Posts: 365
    edited October 2010

    I rec'd a similar dx exactly 7 yrs ago. Wish I knew then what I know now. Most importantly, I wish I knew of this website so I didn't feel so isolated then.  

    I knew exactly what surgeon I trusted when I was diagnosed. So that part was similar to your journey; we knew who to trust.  

    We will guide you thru this whole process.  No need to get ahead of ourselves when we don't know much info yet.         Inhale;exhale; repeat.   At least you have found a site to support you and a surgeon you can trust.    That's a great start.         i will keep a look out for your posts;but feel free to PM me anytime. I am recovering from surgery now so I have a lot of time on my hands.   Being on this board helps me directly and also helps me feel productive that I can use my experience to try and help someone.       Take care, eileen 

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  • dmtmb
    dmtmb Member Posts: 3
    edited October 2010

    I am waiting to hear when appointment for MRI is...this coming week sometime.  Then meet with radiologist.

    My doctor did say that it would be either a lumpectomy with radiation or mastectomy.  Either one would accomplish the same end.  I guess it's up to me. Oh jolly decision!

    I am thrilled that I did not have to cancel my trip out to Seattle on Nov. 10 to see my daughter.  Makes me  feel a litlte better...like it is not growing so fast that I better get it done NOW. Plus, he wouldn't have any time to do the surgery until after that, anyway.

    Have been trying to research and seem to come up with it  being the "best case scenario" as far as breast cancer goes.  I would think, though, that until they actually go inside I still won't know the full picture and neither will the doctor. 

    I am calm right now...have several  local folks who have gone through this and they are alive and kicking happily..thank  God!

    All support and input is greatly appreciated...you can never have too much knowledge.

    Happy Halloween!!!!

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  • dmtmb
    dmtmb Member Posts: 3
    edited October 2010

    Thanks for the kind words of support, Eileen.  I will surely be needing more help as I learn more.  Right now, I am taking it easy and just not letting it get to me...too much.  What you don't know can't hurt you, right? Plus, I am not one to worry untiil/unless I have a reason to worry.  Wastes too much good energy.  the good Lord and many good folks, like you, are what will get me through.

    I hope the surgery you are recovering from now was much less traumatic.

    Donna

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