Calling all TNs
Comments
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Blindsided- treatment was easy and I had no immediate reaction to the TC. My vision is blurry, due to the steroids (they make the lenses on your eyes thicker) The nurse told me days 3-5 are usually bad days- I hope she is wrong and there will be no bad days (of course there will be, but I'm trying hard to be positive). Thanks for thinking of me!! Have a good evening!!
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LJ - so glad to hear the news - I'm doing the happy dance..............
Monika - glad to hear you're home and doing well
hheidi - (((hugs))) while you wait in limbo land
Sugar - I am in New Orleans and if you're interested in information, hotel recommendations, where to go or not to go, restaurants, need help or want to meet for lunch send me a PM.
I hope that everyone is having a wonderful day.
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Hi everyone. Hope you all had a great day.
Hhfhiedi- I'm sorry you or any of us have to wait for results. Ugg! I'm sending beyond positive thoughts your way and look forward to you singing as loudly as me when you hear the good news. I love the sound of owls. I hope you had a great walk. Is it cold there?
MBJ- Thank-you, thank-you, for the hugs. By the way "You look fabulous, darling"
cc4npg- Thank-you also. I can hear you singing. You are right we kind of all make up our own minds as to what the weather is. Glad you had a glorious day.
Mitymuffin -Thank-you too. I think it is inspritional to go without your wig. My hair is also growing but I haven't quite found the balls to go commando. Just might though! You are so beautiful in your photo as I am sure you are radiating that beauty with or without your wig.
Retrievermom- Thank-you too! How fun to see snow. I typically spend a lot of time in Park City, Utah during the winter and I heard they now have snow too. I started ski lessons a couple of years ago and finally got off the bunny hill last year. I always go out there for the Sundance Film Festival. Are you far from there?
Teka- You are right about Bill being a good luck charm, but even he was in a state of happy shock this morning as was my surgeon when I saw him too. I have to keep my drain in another week but who cares? Not me. My surgeon told me to stay as active as I can and I have. Funny his nurse said if I slow down a little I could reduce the drainage and have it removed sooner. Ha! For me I'd rather stay active it keeps me sane. Well almost. LOL
Lynn- I can hear you singing! How are you feeling? I can feel your sunshine I hope that means you are feeling better. Take care of yourself.
Luah- You're right. I believe you were one of the first to tell me not to listen to a so called prognosis. Well I can't cry over wasted tears when I am so happy now.
Blindsided- Thank-you. I lost too much weight on AC but quickly gained it back on Taxol. I was told a lot of it was water. I haven't had any chemo in almost 4 weeks and it has kind of stabalized for me. Congrats on the gym. I can't wait to get back to it. I'm going to wait until my last drain is removed unless all of you gals think I could start now?
Fmakj- Thank-you. Emotional is good! As these gals know I am an emotional rollercoaster. I just try and keep the up side a lot heavier. My motto: Life is good but we can make it great!
Sugar- Thanks for the positive thoughts.
Swanny- I think your filet sounds marvelous. Glad you had a great time at lunch;
I guess you all know the best thing that happened to me today. I did have a great time with my son and he even went to the wholesale plant nursery to help me purchase plants for the job we are starting, it is nothing he like to do. So it was really special to me that he wanted to spend the day with me doing what he likes least. We had a nice lunch too. You should see the smile on his face and in his eyes after I got the news. Thanks again to everyone. Have a great evening. I'm looking forward to a busy day tomorrow with an even bigger smile on my face.
Wow! A long one!
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Laurajane: You go girl!
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Hey Kad22,
Apparently you're not 55 yet. Sorry about the lashes and brows. I just had to bump my 3rd round of A/C due to unidentified infection. But I couldn't help but think (with tweezers in hand) LOL, I may have a bald head right now, but those doggone chin things will haunt you, I think they are chemo proof. I should be thankful I only have 2. I made my mom and sisters promise me if I becomeincapacitated or hospitalized, they will do tweezer duty. I hope your lashes return soon.
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LauraJane - what great news....sure is time to do some celebrating!!
Jenn3 - I will send you a PM...that would be really nice to meet up for lunch. I have lots of questions about New Orleans.
Kelley - I love the story about what your daughter said. It's so true and sometimes the younger ones have so much clarity when it comes to things like this.
Heidi - sorry to hear about your tests.
Fmakj - I like your photo.
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Hey Everyone! Heidi..I really don't think you have anything to worry about! Dang those scans anyway...like some of the others I don't have to have one unless symptoms present..and so far so good...My onc. said that the anxiety would be too much for ME..they know me well...it's better to keep Titan quiet than Titan freaking out! Yes I could have one if I wanted..but I don't..I honestly don't think I could handle the anxiety anymore..I just couldn't do it. They said that scans pick up EVERYTHING...and that people have all kind of weird things inside them that are nothing at all...I'm sure that will be the situation with you..I just know it
Laura Jane..when I read your post today I sang along with you....I've always loved that song! great great news...oh..by the way..is your doctor friend single? I think he likes YOU! I'm still a little ticked off at your other doctors..giving you that experation date! If I wasn't a lady I think I would tell them off!
Swanny..that filet sounds awesome...you've got to treat yourself now and then...plus red meat is good for your red blood cells..nothing wrong with that!
Have a great weekend everyone..we are picking up my DS at college tomorrow..haven't seen him for 6 weeks..I'm excited... I'm sure he will be hungry and have lots of dirty clothes...
I see my onc and BS one week from today...I'm OK with it..used to be..I would start freaking out about 4 weeks b-4..now I really haven't started freaking out yet..at least too much...
Can I tell you guys something? I still haven't seen my final path report...I'm trying to get the guts to ask for it next week...I was just waiting until I was far enough out to be able to read it...hmm..maybe I will wait another 3 months..I just don't know if I'm ready for this.
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This is for you, laurajane! 
And still crossing my fingers for you, Heidi.
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Congratulation Laurajane. I am so happy for you. I think you are right - the positive thinking from you and everyone on this board helped. Take care all.
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Hi everyone! Just thought that I would share this sent to me by a friend with mets. I know many of us do this already but I like that it is becoming more the norm in the mainstream:
What you should eat (and avoid) to beat breast cancer
You can't change your family history but your diet can help lower your risk
Advertisement | ad info
By Karen Asp msnbc.com contributor msnbc.com contributor
Explainer: What you should eat (and avoid) to beat breast cancer
previous next
ADD THESE FOODS TO YOUR PLATE
Cruciferous vegetables
Dark green leafy vegetables
Fatty fish
Tomatoes
GO EASY ON THESE FOODS
Grapefruit
Vegetable oils
Sweets
Processed meats
Expand
· When it comes to reducing breast cancer risk, you can't change your family history. But you can change your nutritional habits and that could go a long way in decreasing your risk.
"Because the majority of breast cancer cases don't have a genetic link, you have to conclude that lifestyle factors, including diet, play a large role," says Mary Flynn, R.D., co-author of "The Pink Ribbon Diet" (Da Capo, 2010) and research dietitian at the Miriam Hospital in Providence, R.I.
To help lower your risk, here are five foods to eat and five you should avoid.
· ADD THESE FOODS TO YOUR PLATE
Rich Pedroncelli / AP Extra virgin olive oil The benefits: Olive oil isn't only loaded with risk-reducing antioxidants and phytonutrients -- including squalene which inhibits tumor growth -- it also has a higher monounsaturated fat content than other oils. Monounsaturated fats don't oxidize in the body. Oxidation, a process that produces chemicals called free radicals, increases cancer risk.
Reap the rewards: Add at least two tablespoons of olive oil a day to your diet, perhaps even tossing vegetables in oil, which will make veggies tastier and encourage you to eat more. Use one tablespoon of extra virgin olive oil for every cup of veggies. Although it can be high in calories -- about 120 calories per tablespoon-- studies have found that the more extra virgin olive oil in your diet, the lower your risk. -
yay, yay, yay LauraJane!!!!
thinking of you today, Heidi. stupid scans.
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Heidi: Sending you many good thoughts for your scan today! Hugs!!!
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Laurajane : YAY!!!!!!!!! So happy with your good news!!!!!!
Lynn : How are you doing? I am feeling ok, and yes I am able to rest in my own bed. How about you?
Everyone thanks for the encouragement. I saw the PS yesterday and she is very pleased with results. I have minimum bruising and in her own words it looks exeptionally good. My nipples look alive and I do feel my breast. I am happy.
I will see my BS on Monday and I will post more details. I will try to post some before after pics at the forum. Have a great weekend everyone.
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Monika - so glad to hear you did so well and are recuperating well! Have a wonderful weekend! (try not to over-exert in anything, no matter how well you feel!)
Linda
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MonikaV: Such great news! You will feel like doing more but careful when you reach, pull or pick up something because you don't want to strain the new surgical area. Did your PS say bra 24/7?
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Laurajane, (((((woooohooooooo))))))))!!!!! That's AWESOME!
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LJ - I'm doing the happy dance and sending (((hugs)))
Sugar - if there is anything I can do, please let me know.
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I'm celebrating life! My bandages were removed on Thursday. I can't feel my skin. It is so odd. Will the sense sensation come back where my breast was ever or after recon? I wish they could have at least saved my nipple. Silly to think about now really, but I do plan on being around a long time now. My surgeon said because of my results on my petscan I could now think about recon once I heal. I was in such a state of shock about my progosis right before surgery I never even gave it a thought considering they said I only had a few months to live. Wow now I have a year and hopefully many more.
Thanks again to all of you for the well wishes. So fun to celebrate with you.
Monika and Lynn hope you are healing quickly.
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LJ: It's so good to hear from you and that things are going so well. Come be a ski pro this winter, now that you're off the bunny hill. I'm not a skiier myself, but love going up the canyons. I'm about an hour from Park City.
MonikaV: Happy dance for you, too.
Best things: Taught a dog training lesson this morning then went to lunch at an Indian buffet with another friend. Cleaned up the garden this afternoon, cause more wet weather's on the way.
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Laurajane: Such great news--I cannot tell you how happy this makes me!!! I had a UniMx on 3/20/10 with delayed/immediate reconstruction. I had my implants (I augmented my natural side to match) put in on 8/20/10 after 5 months of expansion on my MX side. I have to say they look better then my originals and the feeling is coming back. I do miss my nipple but not as much as I thought. I am just so happy to be alive!
When you are ready to consider reconstruction, come on over to Breast Implant Sizing 101 or Exchange City. Great bunch of women supporting others who are going through reconstruction. There is also a private picture forum so you can see the results of other women who have been through this before. PM me anytime if you would like to join and I will get you started there. They are all women from BCO and it is completely private, for women only. Have an amazing Halloween weekend. Hugs!!!
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Retrievermom: Nice! I just love Indian food! Yummy! Have a great weekend.
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Laurajane; Congrats on getting your bandages off! That must feel good. It is exciting to think about reconstruction, isn't it?
Monika: I am feeling a little better each day. I hope you are too. Today I went out for the first time since surgery, it was so nice to get out! Good to hear your doctor's appointment went well.
MBJ: Thanks for the information about foods. I have been reading about what foods are best and that is right on target. I am trying to reduce my sugar intake. I have been eating blueberries since reading that study that suggested they are good for TN, they are actually good for lots of things. I need to lose a few chemo pounds, hard to do around Halloween lol.
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I'm with others - now that I'm finally just past chemo and radiation (as of last week), I'm giving myself this weekend to rest and heal, but I invested in some new running shoes and I'm going to get it together starting next week... shed some chemo pounds (ok, I didn't gain any weight but I have about 20 to lose anyway) and get my stamina back. I'm glad that's the hardest thing I have to worry about now. I can DO this!
Sadly, I had my own sister last week call me, concerned that I was on some level focusing on others who are not as fortunate as I - since I recognized that there are some ladies out there who are struggling against this crappy disease... she thinks I'm obsessing. I hate to cut my own sister out of my small circle of people with whom I share my thoughts and concerns... weird thing, she's a nurse's assistant. *sigh* It's not unhealthy for me to acknowledge our sisters in need, is it?? Geez.
I see my onc and radiologist for (final?) follow ups on monday. I got new glasses today. I stood up very quickly with my new glasses, got a bit dizzy, freaked out because it occurred to me that now had brains met. THIS is the new normal?? (dayum) HRMPH
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Best Thing Today (before it happens): I am going for a massage in 1.5 hours. I am sure it will feel great.
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Laurajane: Love hearing you so happy and full of life! It's an exciting new world out there and you're embracing it. So many people go through life and never really realize how important the little details of life are. On the numbness... I have it too. It's very irritating. So far, I've seen little change, but I hear from others that a lot of the feeling comes back over TIME. Being that I know a little about medical issues, I can tell you it takes quite some time for nerves to grow back, but many of them do. I have more feeling on my right (noncancer side) than my left. And I have feeling from the nipple down and to each side toward the armpit. But the top... from the niple to about 2" from the collar bone... pretty doggone numb and alien feeling. Definitely look into reconstruction and look at the picture board Timtam has to see the process of many who've had it done. It's an excellent resource and I am amazed at the results!
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swiftbird: Obsessing??!! Well, until you have cancer, you can't know how it feels. I try and make myself available to anyone who needs it--This board has been such a comfort and help to me and it's all about paying it forward, isn't it? I don't know that I would cut your sister out of your life but let her know that you never really "get over" cancer. There isn't a cure yet, and it is very healing for you to stay focused on it so you can stay well! I hang out on the Nature Girls thread as there is some amazing information there on foods that heal, supplements, Iodine, recipes--a bit of everything. My perspective is, since my cancer isn't hereditary, I must have done something to contribute to getting it so making lifestyle changes is a huge part of getting better--and hanging out here with my BCO sisters!!!
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cc4npg: Timtam needed some help so several of us, including myself, are helping to get others to the picture site, though she still does the final approval. She was getting a bit overloaded there.
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MBJ. Thanks for acknowledging how personal this is and how, unfortunately, it's hard to understand unless you've gone thru it. Funny, I mentioned one person who was having a tough time, once. In a way I wonder if I have myself to blame - I worked through chemo, and radiation, totally toughed it out and didn't complain to anyone who doesn't see me on a daily basis which is mostly my DH and very tight circle of friends. In a way, I was trying to stay positive for my own sanity, but sometimes it came off like I didn't need any help or never had any fears. I'm sure lots of ladies here have experienced the same thing. So the one time I acknowledged how tough and scary this is and I got a lecture about staying positive and moving on.
Sorry to vent - I'm fine and over it. Not worried. My sister is a bit of a drama queen sometimes...
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Swiftbird: It's sometimes even difficult for DH and friends to "get it". I'm the same way. Wore a wig through it all and most people didn't even know I was sick! Venting is what BCO is all about! Hugs.
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Swanny: A massage? Wahooo!!!
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