January Mastectomy
Comments
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Kat, that was a whirlwind!! So awesome for you.
Some of the details, from my FB account:
So exactly two weeks ago (in another 3 hours) I realized as we arrived having driven 11.5 hours from Columbus State to Door Co, WI.... that the black leather portfolio filled to the brim with 15 quilts from RWB and my favorite 3 from YW were not in the car -- that they had been left on the side of Grove street somehow in the re-packing of the car. Before dawn the next morning, we called our dear friend Brett a CS student & he went around the campus posting reward posters. We called security on a daily basis yada yada.
This morning hubby Allen drove down to the campus to do his own personal investigation, spoke to security scoured the building where I presented, did a canvas of the campus etc etc. He then drove north to OSU to pick up our great-neice who is here spending the night tonight, and as soon as she got in the car his cell phone rang. In those few minutes in the interim, student Missy noticed one of the reward posters and realized that it must be the porfolio that had been tucked into the computer lab where she studied. So Allen and lucky-charm neiceie drove back to that campus.
So somehow they walked across the street and down to a new & different building and got 'stowed' in the computer lab for the 14 days of my agony. Strangely, my name and email address were right on the exterior handle. I don't think anyone ever even unzipped the thing to see what was inside. In any case, Missy put it all together and made the call...... then she absolutely refused the reward, saying that she'd only made a phone call. Seriously, she refused the reward!! My head is still turning about that! Blessings will always follow her. My Catholic yoga friend, Mickey had suggested first to pray to St. Anthony and gave me the prayer: "Tony, Tony look around...... something's lost and must be found." In the two weeks interim, I added about 20 additional verses beseaching him. We became quite good buddies.
I think it's safe to say that I had a "blanket" and outpouring of prayer that crossed the country, crossed religions & denominations & cultures & even countries -- asking & hoping for a happy ending. I feel as though I have won the super lottery, the Super Bowl and then gotten a hole in one in the same morning. I seriously couldn't unzip it/the portfolio for the longest time. Then I just stayed on my knees for the next hour. Then as I finally saw them again I literally had to lay prostrate on the floor.
THANKS to EVERYONE involved in the praying, hoping, wishing for their safe return. What was 'eerie' was last night, no less than 6 different people asked me if they had been returned. It must have been the collective concern that turned the corner.
xx00xx00xx00xx
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Debbie - I am sooooo thrilled for you !!!!!
Kat - Sounds like it was a fun trip. Love the picture and can't wait to see you in the catalog.
Kim - A new car !
Robin, I to have started the memories from last year. I received my diagnosis on Nov 12. I find myself thinking along the lines of "last year at Halloween, (or birthday party, or whatever) I was still normal. I was not diagnosed. sigh.
I go to see my PS on Wed. I have to decide what I want done. I am either going ahead and getting my nipples done, or I am going to get a lift with nipples done later. I would like the lift, the divot from my rib area is back, and this would eliminate it. On the other hand, right now I have no scars and that will change with a lift. I guess I have to decide if I want to live with the indented spot, or some scars. H is absolutely no help, still being an a**, so I am not even giving him a vote this time.
It is so good to have you all here. Love ya Team January !
Never Surrender!
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Hey Sally...have you thought about showing your foobs to the picture board? I bet some of the gals who have been through trams can be of help to you in deciding what to do. I learned long ago not to give men a say....they will come up with size DD with Farrah nipples! Best to go with what your heart tells you. (and/or a few experienced women!
Scars or no scars...that's a biggie. My scars are fading and I thought the tattoos would detract from them but now it just looks like a horizontal line through my nipples to either side. The lift scars though go vertical and from the bottom to the nipple so maybe it wouldn't be too noticible. And they do fade!
Today I'm hurting. Lugging baggage around for the last 24 hours and then I went to the grocery store. Towards the end of the store I can hardly push the cart. What a wimp I am. I feel like I should be fully recovered and I act like I am. But maybe sometimes I should take it easy. sigh.
I feel a nap coming on...enjoy the rest of your Sunday! (with out Mad Men
Kat
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Debbie, I am so happy for you!!! I love it when good things happen to awesome people and you definitely fit in that class.
Robin, So sorry about your foot. I am sure that is so annoying. I really pray this time it will heal and you will be pain free again soon.
Kat, Love the pic on Rodeo Dr. You look great.
Paula, Don't be so hard on yourself. You have been through a lot this year and so has your poor body. Hope you had a great weekend with your friends!
Hope everyone had a great weekend and hope everyone has a great week! I had a good weekend spending time with my nieces and nephew. I know how you feel about being sore Kat. I played outside with my 7 year old nephew for about two hours on Friday and I am so sore it is crazy! I had fun helping my 14 year old niece make a costume for Halloween. We made one like one of the outfits Katy Perry is wearing in her video. Of course hers is not as risque as Katy's! It turned out really cute and she was super excited. My beloved Georgia Dawgs won and we had two great church services today! So it was a pretty good weekend!
Becky
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Hello January sisters {hugs} Wow, I have been gone for a while and what a whirlwind! I am sorry that I seem to disappear at times. Life gets so busy with the kiddos that I often don't have time for the computer. And I have been overwhelmed by the October PInk month. Debbie was right, it was very emotional and in your face every where you turned. I just needed to not think about breast cancer for a while.
Debbie, I am so glad to hear you got your artwork back. God is good!
Kat, you looked so cute in the picture with the beer and so beautiful on Rodeo Drive! I love that picture! I do not blame you at all for making bc wait.
Kim {{hugs}} so sorry that you are unhappy. Good for you for telling your doctor and good for her for listening. You should be able to like and be happy with them.
Marianne, I think marriage counseling is a good idea. Where there is love there is always hope. I don't blame you at all for wanting to live for the here and now. I can't wait to see the picture of you in her Hooters shirt!
Paula, so sorry to hear about your uncle sweetie {hugs} I am sure you will be looking hot in Cancun! I love your joy and enthusiasm. Your posts always make me smile.
Robin, I was so touched by you saying your hubby kisses your scar. You are a beautiful lady
I am so glad your ankle is healing nicely.
Donna, I had hysterectomy in 2002 and remember how painful the recovery was. But I have never looked back or missed 'it'. Hugs for a speedy recovery.
Laura, I am with you on missing my natural breasts. At times I feel very sad. But these 'newcomers' are starting to settle in and months after placement (April) they are finally softening up and feeling more like real breasts. Even if I can't feel them. {hugs}
Gina, your smile always makes me smile
{hugs}
Sally, I think my daughters soccer season helped me not think about bc more than anything. I am praying for your friend Sonya. {hugs}
Anyone I didn't mention please know that you are in my heart and prayers as well. Team January rocks! We are rapidly approaching our 1 year anniversary, time is just flying. I found out I needed a biopsy the Wednesday before Thanksgiving last year and this is kind of a weird time for me. Wow, how life and my perspective has changed in the last year. I am struggling with lymphadema issues. Finally got my sleeve and I can't stand it. It keeps rolling down and just wearing it makes me want to cry some days. Oy. I am looking forward and not looking forward to this last surgery. Hopefully if the PS removes the scar tissue that is mishaping the breasts and I get nipples I may feel better and more like myself. We shall see.
Love to all. And if you haven't added me as a friend on facebook, look me up: Lynbob Grossman. Just say Team January!
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It's great to see all of those celebrating good things! For those with pain and sadness, my best thoughts and prayers go out to you.
Today is the one-year anniversary of my diagnosis. Where did the year go? Coincidentally, our local cancer organization ran a fund-raising golf tournament today. I played with a friend from my breast cancer support group, my first time out since all of this happened. What better way to celebrate being through treatment and getting to the one-year mark than to play golf? I played much better than I thought I would since it's been over a year since swinging a club. Those Lilias yoga tapes I've been doing are really helping to open up those tight areas in my chest. At the ceremony afterwards, as the youngest survivor there, I was presented with a survivor bag full of goodies. It was all I could do to hold off the tears. I didn't expect that reaction since I had been so happy just to be out playing.
As much as I love that this month brings in so much money to fight breast cancer, I will be glad to get a break from the constant reminders. Last October was hard, as I was waiting to get my second mammogram, then waiting for my biopsy results, all while having to see breast cancer awareness everywhere.
My best to all.
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Well it's over and done now!
It's weird reading all the posts of memories of this time last year...here I am really living it over again! They took 4 little chunks of needle biopsy from my nodule and the doctor is encouraged it's a fat necrosis. I will find out for sure tomorrow.
The worst part was walking in the same place but this time knowing...looking around at the scared women who are trying hard to be brave as they get through their ultrasound/biopsies of their intact breasts. When I walked out I saw the little room where I first heard the words uttered 'you have breast cancer' and I can't believe how far I've come.
It was fun to say to the techs though...'this aint my first rodeo' (I've always wanted to say that!:)
Feeling a nap coming on. Have a great day Team January!
Kat -
{{{{Kat}}}} I'm glad it is over for you, and I will send out all my prayers for tomorrow's results.
I saw my PS today, and decided no to get a lift. I just do not want the extra scars. So, I will be getting my nipples on Dec 17. I had to push the date back a bit, to fit my work schedule. Now that it is decided, I am so excited ! I want my nipples now !!
Lynbob, my girls' soccer definitely makes time fly and keeps me very busy. That means less time to think about BC.
I treated myself to a massage and haircut at our local spa today. When I was checking out, the girl (early 20s) has on a cami with a button shirt over it. When she bent over to right out a slip for me, she exposed nearly every inch of her breasts. Last Dec and Jan I was so breast obsessed, I would have checked them out, noting the size and shape, etc. Today I just discreetly looked away - I guess that's progress !
Hugs Team January !
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Hey you all...I just LOVE reading all your updates!!! It is an interesting time for all of us, though, isn't it???? I know we're ALL thinking about our "this time, last year.....", because each one of us was somewhere heading toward the new chapter in our life that led us to this little group.
I wouldn't have purposely chosen this path, but now that I'm here, I wouldn't trade it either. Thank you ALL for being a special part of my life....every single one of you!!!! You have blessed my life immensely
Kat....I loved reading about your experience with CAbi....now I'll have to check out their clothes. Hadn't a clue of them before...
Debbie....I loved reading your miracle story again.
Sally....glad you made your decision. Making the decision is usually the hardest.
CinD....congrats on your one year cancaversary!! Glad you enjoyed it, and got something special!!
Becky...always good to hear from you, glad you had fun with family!
Life is going way too fast around here....son away at college, daughter applying at colleges, and is finishing her 4th college class now (even though she's a high school senior), 8th grader is growing up too fast, too.....too many things to get done. AND I'm having to prepare for three programs at school.....ugh. Still trying to decide what to do about the hysterectomy. I seriously need advice. From those of you who have gone that route....this surgery is up to me. But IF I'm going to have this done, for insurance/financial reasons, I need to have it THIS calendar year - otherwise, I need to stick it out forever and always.
Seriously, I DO need advice.....so if you have any, feel free to PM me if you'd rather....
blessings to all...you're always in my thoughts and prayers....robin
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Robin, I had a hysterectomy when I was 36...best thing I ever did. HOWEVER...the re-coup time was LONG. I was thinking..."Oh this can't be any worse than having a baby" Wrong! It is worse...or it was for me and I was 11 years younger than I am now. The bilat Mastectomy was easier than the hysto. It was seriously 8 weeks before I felt half way normal again. And, they did the vag type (for lack of a better description, it's the apple, peeler, corer method) Maybe an abdominal incision would yeild better results. Now, I'm completely happy with having it done...
If you're going to do it, I would recommend doing it around December 27-30 then that way you won't be laid up for the holidays. On the other hand, if you're not on Tamoxifen (which can give uterus complications) and you're not BRCA + you may not even be at risk for any other type of cancer. Maybe you could keep your girly parts intact.
I will also add that it did not affect my sexual function at all. I was worried about that, but no worries. It's still all good!
Have a great day ladies
Kat -
Love hearing from so many.
Brilliant for those of you capable of giving individual shout-outs. That part of my brain seems to have gone on hiatus. Know that I pray for each one of you as I read your posts -- so grateful to see what's happening in your story.
I do know that I'm thinking of you Kat, as you ride the rodeo train in a new variation at the moment. Sending up all sorts of love & energy on your behalf while you await the news.
xx00xx00xx00xx
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Oh, Ladies....I'm going to have some cheese with my WHINE right now....went to my ortho doc today to see what my ankle MRI said. Well, there's a torn ligament in my ankle/foot area, and two other damaged ligaments, and I have another CAST!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I can't believe it. For another month!!!!!!!!!!!!!! I broke down. I'm sorry. I KNOW it could be worse. I KNOW it's not the end of the world. But I am so ready to get ON with life. I'm ready to just move on and get going. To be able to run, to move, to get up and go....and I haven't been able to do that for almost a year now. First, it was due to all the BC stuff, and the surgeries...and when I finally turned the corner from that and my energy level had finally returned in June - THAT is when I injured my ankle....
And I'm sorry, I just didn't feel like a PINK cast this time
I decided for purple. No particular reason, but it just seemed more "fall-like"....plus, I think I'm a little pinked-out at the moment.
Thanks for your imput on the hysterectomy, Kat. Mine would be laproscopically done, if I did it. Not on tamox, not BRAC+, either. It's for other reasons. Doc recommended it last fall, but I waited until I found out what bum mammo said....
I was hoping to have it done Dec. 10th, so I could return to teaching Jan. 3 and not miss school, since I missed so much last year. But it's a "then" or never situation....
blessings...robin
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Robin, I had a hysterectomy (the abdominal type) in 2002 and have never looked back. As Kat said it did not affect my libido (if anything I felt more like it! Ha!) Definitely tougher than the bi-lateral recovery. The first two weeks my doctor had me stay on my pain meds 24/day to aid in recovery by not being consumed by discomfort/pain. So that was a blur. I wished I had said something to my doctor about doing a bladder repair at the same time because I had to have it later. So if you have any issues there you may be able to do it all at once. As for the recovery, the doctor said I could go back to work in 6 weeks. I kept feeling very weak and tired and wondered how I was going to do it. But sometime during the 5th week I perked up and was ready to go back to work. My doctor left one ovary and I am looking at having it removed as it is enlarged and quite frankly it scares me. I will have to have it done this year as well since my deductible is met. Great big {{hugs}} for you dear.
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((((((((KAT))))))) Here's hoping this rodeo ride is a little different!
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Greetings Team.
I got the good news of BENIGN fat necrosis! Whoohoo! Praise the Lord! If it doesn't bother you, don't bother it. Nothing atypical....just a dud from the fat grafting that didn't take. We're going to leave it right where it's at. I see the PS and the BS next week so I'm doing the happy dance now! Would you believe I didn't even tell my children? I just didn't want to get them upset...hence there is nothing on facebook...but now I feel like I can sing like a canary!
YaY!
Oh Robin I'm sorry about your cast again! But purple is good! The color of royalty. You tell your family "All I ask is that you treat me no different than you would...the queen!" HA! Hang in there!
I'm with ya Lynbob on the bladder repair. They seem to omit that little piece of information that suddenly incontinence is a bit of a problem. I've been wearing poise pads for 10 years now. Just part of life I guess. Never thought about going in for a bladder lift. Just saying NO to anymore surgery...and that goes for my 2 little ovaries out there like beacons. I'll take Lupron first before I talk about any more slicing and dicing!
Well my house looks like a tornado went through it. Off to see what kind of dent I can put in it.
Sweet dreams team January!
xoxooxoxoxoxoxoxox
Kat -
WHAHOOOOO!!!! YIPPPEEEEE! YYYEEEEHHHHAAAAA! Anymore stupid little hollers I can do!? I am so happy for you Kat! I know that you seemed fairly calm in your posts but I imagine you were going out of your mind! I am so glad that it was nothing!
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Yeah Kat!!!! So happy for you.
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Ohhhhhhhhhhhhhhhhhh happpppppppppppppppppy day, KAT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Drat, Robin: drat, drat, drat, dang-nabbit, crap-o-ski. Have yourself a serious cry-in, you deserve it. Then be purple to the max!!
LOVE team, J. Lottsa love.
Spent the cool, windy evening out trick-or-treating with the grands. Sooooo awesome.
xx00xx00xx00xx00xx
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Kat, that's great news! I'm so happy for you!
Robin, I'm so sorry to hear you're having more ankle/foot problems. Here's hoping that all will be well with you soon.
Cindy
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I've been a lurker for awhile, but I thought I would post a couple of things - I'm so glad you had good results, Kat. And I'm bummed for you, Robin - the same thing happened to me - just started to feel good and ended up in emergency room with badly sprained back and bulging disk (in August). I'm fine now after much rehab. I hope your healing goes well this time.
I was interviewed on local NPR station about a charity that I've both contributed to and benefitted from - here's the link - it's very short (they did get the month of my surgery wrong!). And, I'm finally getting a peaceful vacation, at least, I hope. Leaving son and taking the dogs, we're going camping in the Ozarks. If we don't freeze to death, we'll have a great time. Leaving in the morning, so I better get some sleep. Thank you to everyone for being there - even when I don't post, it's a comfort to read about everyone and to both worry and celebrate with you.
Elaine
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WoW Elaine...that's really awesome. A needed cause that was able to help you while you helped it! It's interesting to hear each others voices too....you get a 'picture' in your mind about how people sound and then you hear them for real. Wild!
Sally....way to go on treating yourself to the spa treatment! Watch out...it's addicting and then your girls will want to join in. And I still get boob envy (bad)
I've got one little issue that I'm hoping will be nothing...but ever since my biopsy my R shoulder and underarm feel strange...achy like. I'm scared that I've got a lymphedema brewing. She went in not exactly at the armpit just medial to that and pointing to my divot to get to the nodule but I'm still afraid. Someone talked about some selenomethionine? Anyone have any thoughts on this? I would like to nip this in the bud.
Have a great day girls!
Kat -
Another lurker jumping out from behind the curtain to check in. The summer was filled with college searches, drama with my addict brother, clearing up my dad's estate. Now life here is pretty normal and busy most of the time, but the annual appointments are looming. Not looking forward to walking that path again.
Kat-Congratulations on the good results. I'm so happy for you. For anyone else who may have this happen, it appears that it's not uncommon. I had a revision 3 weeks ago to get my right foob out of my armpit. At the same time, I also had a bb-like cyst biopsied. It was in the area of my original bc, so I was a little worried, though my bs didn't really seem to be. Kat, have you been to the lymphedema forum? Binney has amazingly informative posts and good tips for prevention.
Robin-I had a hysterectomy 4 years ago, then ovaries removed at the same time as my bmx. The recovery from the hysterectomy (LAVH) did take longer than I would have hoped, but I'm glad I did it. I had adenomyosis, so my periods were brutal. No change in libido after that. With the ovaries, I'm not sure whether I could tell or not. The cancer, reconstruction, etc. has been the dominant influence in my life, so I'm sure that has played a role in any decreased interest. That seems to be improving. I also vote for including a bladder lift with it, if possible. I had a sub-urethral sling, and I'm so glad my ob/gyn suggested it. My mother-in-law is jealous! Considering your ankle injury, this might not be a selling point, but I can jump on a trampoline again without risking public humiliation!
It's great to see everyone popping in again as this roller-coaster year winds down. I read an article that asked when you define yourself as a cancer survivor (date of diagnosis, surgery, end of treatment). The doctor replied that the second you take your first breath after hearing the news is the moment at which you start surviving. We've all come so far. I think of you all often and wish you all the best.
Maura
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Haven't even gotten out of bed today....and it's going on 1 pm.....hubby brought me the paper and coffee. Kids brought me breakfast. Guess I'm having my own little pitty-party. I just want to be able to do what I want to do when I want to do it. I had finally gotten my energy back in June...and then, BAM. The ankle.....sigh. Thanks for the well wishes, guys. I know it could be far worse, and it's *only* for a month.....but the month of September with the last cast was one of the longest months of my life. argh.
Kat....SO happy for you!! Maura, you too!! (and so good to hear from you, and Elaine!)
anyway....always so good to check in on everyone....robin
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I went digging around for this photo that I took shortly after I made my segway from being addicted to the chatroom here, to being addicted to "the boards." Anyhow, I wanted to find it for our 'beach' thread that is about to hit a new milestone in pages.
It is the sunrising, early winter's morning, Atlantic ocean @ Pompono Beach, FL.
It took me a while to locate it, but now that I have, I feel like it bears repeating.
See what you want.
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Debbie...that's really powerful! Yes, it defintely bears repeating.
Thanks Maura for the PM"s about your bb nodule...that helped me stay calm cool and collected. I didn't feel that way the first go around so I appreciate you helping alleviate my fears.
Hope everyone has a happy halloween! Paula...your pics on facebook are great! Looks like you had a fabulous time
Enjoy!
Kat -
Two weeks from today I turn 40-aaaaah! Then the next day I get new boobs...happy birthday to me! lol. I talked a good friend into having a party on the 20th for me since I won't be able to do anything after the surgery. Then I'll have to weigh out whether I should stop taking the pain meds so I can have a few drinks, or take an extra pain med for fun (kidding.)
Yea Kat! I'm so happy everything turned out alright. I knew it would.
Robin-so sorry to hear about another cast You have a right to have a pity party, so go right ahead. And purple sounds lovely.
Everyone else who has just recently checked in, it's nice to hear from you!
Not much new around here...getting started on my Christmas shopping little by little-and my daughter's birthday is December 10th, so I have to do that at the same time. My dilemma is how I'm going to put up Christmas decorations this year. I won't be able to lift anything by the beginning of December, so I'm going to have to talk the husband into getting everything down and into the house for me. We'll see how that goes...
My anniversary for finding the lump is coming up-November 28th. Then there was the doctor's appointments, finally with a diagnosis on December 17th. I'm not looking forward to the anniversaries. I miss my boobies.
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Hi Everyone! It has been a long time since I have been on here, so I was pleasantly suprised to see the "Team January" still going strong. What a great bunch of ladies here!
I am glad to see October come and go, like so many of you, last October/last fall certainly brings back alot of very bad memories. Of course while we are trying to move on, there is those pink ribbons everywhere, and I mean everywhere ugh! I have been trying to do my part though, to make sure as much money as possible can be raised and participated in lots of different events.
I tried to stay away from the boards as I was recovering from DIEP reconstruction. It certainly seems, if it could go wrong it did
I didn't want to scare anybody else off of having the DIEP reconstruction, my recovery certainly wasn't typical.
Debbie love the picture. Kat, congratulations on your new modeling career! good for you. Happy Birthday Burley. You have come so far. And all of the rest of Team January, you are the best.
Take Care
Cathy
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How wonderful everyone seems to be doing well!
I've been off-line totally for a couple of weeks. Family obligations and then DH decided to go into kidney failure and almost died on me! He had to be transported by ambulance to Denver (he is a transplant patient already). He's home now and stable but it is still going to be a long road. I told him he can't up and die on me since he has to keep going for me to take care of me in my old age....which I hope to live to be!
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CATHY !!!!! Holy cow ! Welcome back, we were all quite worried when you went missing. Are you feeling better now? Where are you at in your reconstruction process?
{{bc}}
Gotta run, lunch time for my kiddos.
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WoW Cathy...welcome back! We were very worried about you! I'm glad you've popped in so that we can all hold hands and get through these anniversaries together! Since you are the team leader of Team January, do you think it could be possible for you to change/edit the topic of our thread from January Mastectomy to Team January (?) I think we're all in agreement that we would love for it it to say that. Thanks for all you do!
bc...how horrible for you to go through this with your husband. Prayers for both of your contnued healing.
Kim...Happy Birthday coming up and good luck with your revision! Whooho! I saw my PS today and he's actually talking about about a DIEP to cure my ripples. Ummm...let me think about it. NO! I am not going through another big procedure just to be ripple free. They look great in clothes and I can keep a cami on during the night time. Maybe after 10 years and the implants lose their warranty there might be something new out to solve this problem but certainly now I'm so not interested in any type of revision. I am having my tattoos re-inked though so I'm happy for that!
Well, it's been a harrowing week at work and here I go again and it's only Wednesday. DH has been in AZ for a week and my daughter leaves on her senior retreat today until Saturday. I hope she has an experience filled with self discovery and positive aspirations for the future! Remember how it was to be 17? (e-gads...I'm glad it's her!)
Hope everyone has a great day! It will be sunny and beautiful here for a couple more days!
Ciao! Kat
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