Nervous Wreck

IllinoisNancy
IllinoisNancy Member Posts: 722
edited June 2014 in ILC (Invasive Lobular Carcinoma)

Hi Friends,

I went for my 4 year check up yesterday and had a perfect mammogram.  The trouble happened when I met with my surgeon. She didn't like the way things looked just under the surface of the nipple and did two biopsy's. She said she thinks it is a recurrance. She will let me know for sure on Monday. If it is.....looks like the OncotypeDX failed me with my score of 9.  I have taken Tamoxifen faithfully and had the test early on to make sure I metabolized it properly. I guess sometimes bad things happen anyway.  I will let you know when I hear from the doctor on Monday. 

Thanks for all your support over the last four years,

Nancy

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Comments

  • kira1234
    kira1234 Member Posts: 3,091
    edited October 2010

    I'm praying the results will be b9.

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  • nash
    nash Member Posts: 2,600
    edited October 2010

    Oh, Nancy, I'm so sorry to hear that. I've got all my fingers and toes crossed for good results. Keep us posted.

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  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2010

    I will pray that it's not a recurrence, but if by some chance it is, that it's entirely localized and that you've caught it very, very early.  I'm so sorry to hear you're going through this, but it sure points to the importance of continued follow up with our surgeons, especially since your mammo was clear.     Deanna

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  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited October 2010

    Oh man...so sorry to hear that...I will pray that it is nothing.  And if it is...please let it be tiny and local and hope to the angels you won't be joining the SS Mets Cruise Line - after 10 years of clear mamo's...a dumb xray showed something funny and well, I suppose I could say we caught it while it was still only in the spine - if it had to be mets - mets to bone only is the best one to have. 

    I will keep all my fingers, toes and anything else I can cross, crossed for you! 

    Big Hugs...LowRider 

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  • lwd
    lwd Member Posts: 1,084
    edited October 2010

    Thinking of you and hoping for the best for you, Nancy.

    Hugs,

    Lane

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  • Texas357
    Texas357 Member Posts: 1,552
    edited October 2010

    Nancy, my heart goes out to you. Hoping you get good news!

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  • toomuch
    toomuch Member Posts: 901
    edited October 2010

    I am so sorry that you have the stress of waiting for your results...I hope that your doctor is mistaken and that she calls you with good news on Monday.

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  • Gitane
    Gitane Member Posts: 1,885
    edited October 2010

    Holding you in my thoughts this week end, Nancy.  Hugs, G.

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited October 2010

    Sitting in the waiting room with you and the rest of these wonderful ladies.

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  • SAMayoFL
    SAMayoFL Member Posts: 958
    edited October 2010

    Nancy, my thoughts and prayers are with you.  Waiting for results is the worst.  Please let us all know your results.  Think positive thoughts! 

    Hugs,

    Susan

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  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited October 2010

    Nancy..praying for ya

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  • Gitane
    Gitane Member Posts: 1,885
    edited October 2010

    Thinking of you today, Nancy.   Hugs. G.

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  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited October 2010

    I am still playing the waiting game. They told me to call yesterday at 10 am...no results.  They said to call back at 4pm....no results.  They told me to call back this morning at 8:30 am....no results.  They called me back at 9 am and said that I could hear later today but it could be tomorrow. The waiting is killing me.  I can handle the facts, (I think) but I just need to know.  I really appreciate all the support you wonderful ladies have given me.  You're the BEST!

    Nancy

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  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited October 2010

    Well...so much for hopeful thinking.  I have pleomorphic ILC back and this time it is under my nipple and scattered on the skin on the same breast.  They are scheduling me for a PET scan, bone scan, MRI's on both breast, xrays and something else I can't remember.  If all clear I will have a bmx followed by chemo.  If it has spread and I'm stage IV, I will just have chemo.  I am shocked and sickened.  I was stage I and a oncotypedx of 9.  I feel fantastic and can't believe this has happend.  My mammogram was perfect and no one suspected anything except my BC surgeon who is super good.  She is the only one I trust of all my doctors.  I have seen all the others in the last couple of months and asked them about my lump and spots and they all said it was scar tissue.  I'm just numb and discouraged beyond words.

    Nancy

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    Nancy: I'm so sorry it's a recurrence. Hang in there. Your surgeon sounds amazing - lucky she questioned the results.

    I'm in a similar situation  - just had my first mammo after chemo/herceptin and they've found something in the other breast. I still don't know what it might be as the mammo was inconclusive. I have an MRI scheduled for this Friday. I see my onc today and he will be flabbergasted, as he said there was no way anything could survive the treatment I've had. I just have to think if we get a new primary or recurrence that the sooner it's found, the better.

    (((((((HUGS)))))))))))

    Sue

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  • Gitane
    Gitane Member Posts: 1,885
    edited October 2010

    Nancy, I have been waiting, hoping, and in the back of my mind thinking this can't be happening.  Please know that we are beside you as you start the tests and scans. This surgeon sounds like a very special lady, one who can lead you through this maze of stuff that must be done.  Thank goodness she is "super good" and didn't believe the mammogram. Hold on, sister, and let us hold your hand.  How I wish this had not happened to you!  Sending lots of love. G.

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  • nash
    nash Member Posts: 2,600
    edited October 2010

    Nancy, I logged on to check on you, too. I'm so sorry to hear the news. Like Gitane said, thank goodness the surgeon was so astute. Remember, all your PleoPals are here to support you.

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  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited October 2010

    Nancy so sorry that you have to deal with this again. I will keep you in my prayers. Hugs, Mazy 

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  • MaureenA
    MaureenA Member Posts: 39
    edited October 2010

    Nancy, I have been thinking about you and am so very sorry it's a recurrence.  Good that you have such a wonderful surgeon looking after you.  Sending gentle hugs your way. Maureen

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited October 2010

    I'm am so sorry about your results.  You did everything right the first time around.  It just that cancer is nasty. 

    We're here for you.  Work with your BS and listen to your gut.  The two of you will find the right path but for now let yourself be numb.  When you're ready the anger at the cancer will come back and give you the strength to beat it down.

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  • kira1234
    kira1234 Member Posts: 3,091
    edited October 2010

    Nancy,

    I'm so sorry about your results. Thank goodness for such a good BS.

    Know we will be there to support you.

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  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited October 2010

    Thank you all for your heartfelt concern.  You all mean so much to me and I will need to lean on you a little (OK, maybe a lot) in the next year.  I hate this stuff and wish they would find a cure.  I feel so bad that my husband and kids are taking it so hard.  I have such a loving family and I feel like I'm ruining their lives. Only you ladies know what it feels like and I can tell you anything and know you will understand.  Your friendships are priceless.

    Love you all,

    Nancy

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  • Texas357
    Texas357 Member Posts: 1,552
    edited October 2010

    Nancy, hang tough! Continue to be persistent and your own best advocate! This disease is so darned sneaky. I'm so sorry you have to go through this.

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  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited October 2010

    Thanks Sherri...I can use any advise that you want to offer.  I keep pulling myself out of a dark hole. My phone just rang and it was a plastic surgeon wanting to see me in 3 weeks.  I don't even know what stage I am and feel like a beginner all over again.  Please feel free to give me any and all advise. 

    Take care,

    Nancy

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited October 2010

    You said that you're scheduled for scans.  When are those going to happen?  And when do you have the visit with the ordering doc?

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  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited October 2010

    Hi,

    My PET scan is on Tuesday morning and my MRI is on Tuesday afternoon.  I also have appointments scheduled with my surgical oncologist, my regular oncologist and a plastic surgeon all within the next 10 days.

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  • kira1234
    kira1234 Member Posts: 3,091
    edited October 2010

    Nancy, know well be with you on Tuesday in spirit.

    Karen

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  • JennyB100104
    JennyB100104 Member Posts: 237
    edited October 2010

    Hugs, Nancy. I've been thinking about you. I'm so sorry about your recurrence...ugh, this disease makes me so angry...

    Hugs again,

    Jenny

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  • Gitane
    Gitane Member Posts: 1,885
    edited October 2010

    ((((((Nancy)))))))

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  • Suzybelle
    Suzybelle Member Posts: 920
    edited October 2010

    Nancy, I am so sorry.  I just went through a skin biopsy this past week that turned out to be benign and the whole time I was waiting I was worrying about how hurt my family would be if the cancer had come back.

    I am praying for you and your family. 

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