For all the node positive, Stage 2 ladies

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  • shadylady1
    shadylady1 Member Posts: 75
    edited October 2010

    I had 3 positive lymph nodes with level 1/level 2 axillary node dissection.  I have truncal and left arm lymphedema and wear a compression bra, sleeve and gauntlet.  I am scheduled to start whole breast radiation in a few weeks.  Has any one else had axillary node dissection and radiation?  I am just wondering if I will experience additional issues with the lymphedema.  Thank you!

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    Claire - LOL! Never underestimate the healing power of skincare.

    Real - that is scary. There is nothing like the naked eye. Perhaps because of my very positive experiences (that is, I do very well apart from the success of the procedure), I am a huge fan of surgery whenever it is an option for just about any medical condition - even exploratory surgery. I know I am almost alone in this. :-)

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited October 2010

    Shadylady, yes, I had Axillary node dissection and rads.   No problems.   I had some mild lymphedema since surgery - it flared up slightly during rads and decreased shortly thereafter (a few weeks).

  • LadyinBama
    LadyinBama Member Posts: 1,132
    edited October 2010

    Hi ladies, glad I found this forum. I guess I missed it when it started because I was in the hospital that week. I had a 1.8 cm tumor, IDC, 1/14 nodes positive, 0.8 cm in the positive node. I like what one person said, if you are node positive, it just means your lymph nodes were doing their job. My father had colon cancer, stage 4 by time of diagnosis, but he lived 4 years. I learned from him that you cannot dwell on it everyday. To me, it's a medical problem that has to be dealt with, and other than that, I go about  my life as usual.

    For whoever it was who wanted to stop smoking, there are a couple of stop smoking support threads on here. I quit before my BMX in July. I had been wanting to quit for a while and surgery was good incentive. I smoked again after surgery, but I've been totally smoke-free since August 10th. I used the patch and wellbutrin. I'm not good with withdrawal symptoms, so needed some help. So far, so good. You can do it and it will feel so good to be a non-smoker. I'v just spent 2 weeks in the hospital and I can't imagine how much worse that whole ordeal would have been if I had been craving a cigarette the whole time.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2010

    Athenia----YOU ARE NOT THE ONLY ONE WHO OPTS FOR SURGERY.I am with you 100%.I AM NOT INTO PAIN.I LIKE TO WAKE UP AND ITS ALL OVER. bc is hard enuf.and it suks.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    Grannydukes, we are kindred spirits!

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2010

    yes we are.no one else posted anything about it.HEY I GO TO SLEEP TO HAVE A TOOTH PULLED. yes im a chicken.

  • dutchgirl6
    dutchgirl6 Member Posts: 673
    edited August 2013

    I don't consider myself a chicken, but I had my wisdom teeth pulled out under general anaesthesia.  I didn't want to deal with the possibility of valium and a local not working properly.

    Shadylady, I had axillary node dissection and I finished rads four weeks ago, and I haven't had any problems, although I don't have issues with lymphedema.  I also just came back from a vacation where I had to change planes twice each way, and so far so good.  I do keep a close eye on things.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    Welcome, Ladyinbama, congratulations on your quit! I went cold turkey and paid dearly, but I would do it again. Today is my 18-month anniversary and it does feel wonderful and free.

  • IsThisForReal
    IsThisForReal Member Posts: 384
    edited October 2010
    Congrats on your 18th month anniversary Athena and to you Ladyinbama on your quit also.  I've started champix and Tues Nov 2nd will be my quit day :-)  I've quit several times before, with 2 times being for a year and I can also say that I can't wait for the freeing feeling of no cravings.  Not to mention all the health benefits.  Now, to come up with a plan to keep any excess weight off...I'll have to watch that like a hawk since I have 10 lbs to lose already.
  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    Setting a date in the future worked for me - I think it is a great tip.

    Also, despite all the obvious reasons WHY one should stop smoking, it is a testament to the power of addiction that I often lost track of exactly why I had stopped. And I thought I had a brain.... I wrote down my reasons to quit on a piece of paper and had to refer to it more times than I care to recall. The number one reason that worked fo me was that it was cancer TREATMENT. Since we all know that cancer treatment is horrendous, it made the horrendousness of quitting more bearable. Good luck, Real, and keep us all posted! BTW, I found th American Lung Association's tutorial very useful and they have a great number of online resources. Go to: http://www.lungusa.org/stop-smoking/

  • misfit
    misfit Member Posts: 60
    edited October 2010

    Quitting smoking is at the top of my to do list but I still keep putting it off. I'm down to a handful a day (which I think makes me enjoy them even more!). A few people I know recommended a book called "The Easy Way to Stop Smoking" by Allen Carr, so I've requested it from the library. Has anyone read it?

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    Misfit, that book is a great motivational talk but I personally didn't think it had useful tips. People vary - we are all differently motivated. I found the book How to Stop Smoking and Stay Stopped for Good by Gillian Riley helpful because it drums the following thought into your head which, in a twisted way, is rather empowering:

    I can always go back to smoking if I want to. I am free to do so at any time. I will make the CHOICE to not smoke, just for now.

    This helped me because in previous attempts I had felt so trapped by the inability to smoke. I never saw it as a choice, but rather as a sentence.

    One thing I avoided like the plague:

    --People who smoke (easy - no one in my family smokes)

    --Quitters who fall off the wagon.

    The book you mention I believe is a prelude to a sales pitch of motivational seminars. It got loads of good reviews on Amazon but it looked suspicious to me from the start (though not enough because I bought it - lol!).

    I found www.whyquit.com helpful - it insists that quitting cold turkey is the only way. I don't know. I did quit cold turkey after initially using the patch because I was hospitalized half way through my quit. However, it might not work for others.

    A final note about nicotine patches:

    --I used to smoke in my apartment, so when I made an attempt to quit many  years ago, the nicotine patch helped because I was inhaling my own second-hand nicotine anyway. However, I eventually fell off the wagon, but then stopped smoking in my apartment and only did so outdoors. This meant I had on-and-off access to nicotine and could do without it for some periods.  So when I initially quit successfully and used nicotine patches, they were an ill-advised nightmare, because I was actually infusing myself with nicotine 24 hours a day and got really agitated. This is only my experience, but I recommend thinking twice about patches if you are someone who does not smoke where you eat, sleep, etc....

  • misfit
    misfit Member Posts: 60
    edited October 2010

    Athena - I'm generally skeptical about self-help books. If I read them at all it's only if I can get them from the library. My biggest problem is that I enjoy smoking, which will be hard to overcome. It's nice to know that I'm not the only one having a hard time quitting. Everyone thinks a cancer diagnosis is a gold mine of motivation - but that wasn't the case for me. All it did was make me more secretive about smoking! I don't smoke in the house, I usually go for a walk. And I don't smoke around friends and family members because I get the evil eye. I will have to set a date soon, though I think it's probably going to end up being January 1st - again:)

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    Misfit, I generally shy away from the self-help culture - smoking was the exception, oddly enough.... I needed the platitudes.

    So I was wondering - stage II has a whiff of a death sentence. You are neither going to die nor NOT going to die. It might be confusing and difficult for family to understand. In my experience, it really brings to the foreground how well family members understood you to begin with and I was wondering how I would rate my family throughout all this. I don't not love them but, excluding my mother who has been wonderful, I am gong to say a three.

    Anyone else?

  • gingersfavorite1
    gingersfavorite1 Member Posts: 273
    edited October 2010

    I'd rate mine at least an 8

  • sanbar8771
    sanbar8771 Member Posts: 281
    edited April 2011

    Hi Athena,

    Pardon my french but I am scared shitless. You and I have similar BC. I don't know how old you are but I am only 34. I just recently got married and I have no children.  I completely know what you are talking about with node positive. I mean, do I buy a house with my husband...will I be alive long enough pay the morgage? I am not supposed to think about the future (BC therapyst said that) but I just can't help it.  I wish there was somethng that can ease my mind about being node positive. Thanks for your thoughts.

  • Shari0707
    Shari0707 Member Posts: 448
    edited November 2012
    Athena... I am constantly scared and worried but let me tell you >I was told I have a90% chance of being cured. Cured! Or having it ne'er come back! It's hard to remember that at times but that was from my oncologist.. A doctor! I am doing pre chemo before surgery but they already biopsied a lymph node and it came back positive, so I know I have nodal involvement and my tumor is around 2.5 cm.... So with all this being known, my doctor staged me at stage 2 and then gave me my prognosis, which was pretty darn good I think. I have a lot of rough days still, because of what I read on the Internet, but I also know doctors tend to try and tell it like it is.. And she was pretty friggin positive... I am scared but it is also because I am going thru it right ow, and when I look in the mirror I have no hair and I feel like I won't get thru this... But I will... I am 31 by the way and have my whole life ahead of me! So try and be positive because I am trying over here too... Hope this helps a little
    10/8/2012, IDC, 2cm, Stage IIb, Grade 3, ER+/PR+, HER2-
  • StefH
    StefH Member Posts: 97
    edited December 2012

    Hi Ladies, I was node positive, and I am six years from diagnosis.  I was really afraid of the nodes, especially since everyone else I knew ended up being a Stage I, but so far it's worked out pretty well! Smile

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