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  • Lilah
    Lilah Member Posts: 4,898
    edited August 2013

    Mantra yes as the others said I can get some cleavage if I push... or, I suppose, wear a push-up bra (which I haven't yet tried.  I am now about 5 months out from exchange and I find there is more give/moment than there was the first few weeks... if you JUST had your surgery in the past few weeks you need to be patient.  It takes a few months but they do soften up in terms of movement.  They don't move much but they do move more than they will right now.

    Jerusha -- your pain sounds like post-mastectomy pain syndrome.  Have you investigated that?  I know there is a thread started by Deeds on this site (you could search her name or the term).  And if it's not that, then you should absolutely switch the gummies for regular silicone (if you think it's the gummies)!  I have no discomfort ... my only issue is the numbness, which of course would be the same with any implant.   My TE gave me a very specific pain/discomfort primarily in my shoulder blade and shoulder, due to the pectoral stretching... this pain is gone now. Another possibility for your discomfort could be trunkal lymphedema.  If you are feeling constant discomfort you SHOULD be investigating all possibilities so that you can resolve it and be more comfortable!

  • Sharon2010
    Sharon2010 Member Posts: 49
    edited October 2010

    Lilah- They did change the dx to IDC once they found the 1mm invasive part, but the vast majority was DCIS.  There is actually a thread on here for DCIS with microinvasion, because it is kind of rare.  As soon as the find any invasion, it automatically changes to IDC.  The treatment is almost never chemo.  They don't do chemo for 1mm.  I don't think they do it until 5-10mm.  You got treated with Herceptin because you kept your non-cancerous boob.  It's to help prevent it from getting that one too.  Once it's in the nodes, it's a candidate for chemo.  I had no nodes involved.  They don't typically give herceptin to bi-lats that are non invasive.

    Mantra, Mine felt like rock solid bowling balls on my chest at first.  They had virtually no give at all.  After about 3-4 months they softened up and are now very squishable.  If you read my original posts, you will see I had many of the same complaints.  I believe my revision took care of all of them, although hopefully you wont have to do such an extensive one.  One thing that could absolutely help the cleavage issue, and is not invasive at all is fat grafting.  I had a major ridge on the inner cleavage of my left implant.  My PS filled that in, and also added a little more fat along the cleavage line to create an AWESOME cleavage, even without a bra.  Some doctors don't do fat grafting, so you might have to go elsewhere.  As soon as my bruising fades and some of the swelling subsides, I will post pictures. You will see a huge cleavage difference between my befores and afters.  

    Jerusha-  I felt the same about having discomfort with or without a bra.  I liked wearing a tight shelf tank (I like the ones sold at the store Express.) I found a fabulous bra that does the trick for me.  The brand is Barely There, and the style number is 4085.   It's wireless, yet has different fabric textures to create a little bit of structure and lift.  It is completely comfortable.

  • Sharon2010
    Sharon2010 Member Posts: 49
    edited October 2010

    Jerusha- One clarification.  I had discomfort from the heaviness, and back and neck pain, but NOT chest pain.  If you're having that kind of pain, that's not normal.  Maybe they are positioned wrong and need to be tweaked.

  • Lilah
    Lilah Member Posts: 4,898
    edited October 2010

    Actually, I was told specifically that whether I had a bilateral MX or a unilateral MX I would NEED chemo because I was HER2+ and needed Herceptin (and Herceptin has been shown to work more effectively when given with chemo).  Size of tumor was not the issue.  Nor was my surgery.  It was entirely because I was HER2+ that I was given chemo.

    Technically my DCIS was changed to IDC because of microinvasion.  I had extremely tiny calcifications IN the ducts... and then extremely tiny ones were discovered outside as well after my first lumpectomy.  These did not show up on MRI or in mammo.  Only the ductal microcalcifications showed up on those two diagnostics.  I had two lumpectomies, then chemo (during which time the one year of Herceptin began), then the MX.  If I had chosen to have a bilateral MX prior to chemo I still would have had to have chemo because I was HER2+ and this is a form of BC that runs a higher risk of becoming metastatic... especially when not treated with Herceptin (and chemo).


    Diagnosis: 6/2/2009, IDC, Stage IIa, Grade 3, 1/17 nodes, ER-/PR-, HER2+

  • Sharon2010
    Sharon2010 Member Posts: 49
    edited October 2010

    Lilah, I'm sorry, I stand corrected!  I just asked my husband about why you got it and I didn't.  I didn't give him access to this site, just shared your diagnosis signature, and what your doctor told you.  Uni/Bi has nothing to do with Herceptin/chemo, it's all about the tumor/nodes.  You had a node involved and I didn't, and that changes everything.  I had no nodes, and only a 1mm microinvasion.  He said if I had had 6mm or had a node involved, I would have gotten it.  There could also be other factors that may have contributed to your getting it and my not, that are too detailed to include in a diagnosis signature.  He said the uni/bi factor would come into account for Tamoxifin.  If I kept the non-cancerous breast, that would have reduced my risk of getting it there in the future.  

    And this is why I am not an oncologist!  That and the fact that I got a D in Bio 101 in college, the first time I took it, and a C- the second. 

  • Lilah
    Lilah Member Posts: 4,898
    edited October 2010

    Sharon -- LOL -- it's okay!  I was actually told I would have chemo/herceptin BEFORE I had the SNB -- before I knew I had 1 node -- so perhaps it has something to do with some other aspect of my diagnosis (like the fact that they knew I had IDC already).  My SNB was done with second lumpectomy (first one having failed to get clear margins).  We all have such unique pathologies anyway... it's hard to compare or generalize.  Anyway no worries and the most important thing is for them to get YOU back to NED!  Please keep us posted.  Sending you MORE HUGS!

    By the way: how are they looking and feeling since the revision? :)

  • Mantra
    Mantra Member Posts: 968
    edited October 2010

    Sharon, the fat transfer sounds like a good idea. I was coming up with creative cleavage solutions and was thinking "restylane injections" but figured the cost of having it done every few months would find me in the poor house!

    It not that the gummies feel hard . . . I honestly don't know if mine do or not because I'm wrapped. I have poked a finger into the cleavage area and it definitely feels softer than the tissue expanders. However, it's just that the cleavage seems to be lower than it was with my tissue expander and definitely not full. I like to wear tops/dressers that have a v or plunging neckline . . . not too low but just low enough so that my cleavage is clearly out in the open :) When I removed my hospital bra and put on a dress just to see, I have zero cleavage and my dress looked insanely ridiculous on me. I'm sure any of my clothes with a similar neckline will look just a silly.  I just don't understand how my tissue expanders could have been beyond perfect (loved them) and had a full cleavage yet this completely disappeared when I woke up from my exchange. I assumed the implants would fit into the tissue expander pocket which included a lovely cleavage!! I just so underwhelmed by my implants and since the tissue expanders were perfect, I imagined my implants would be nothing less. Talk about lunch bag letdown !!

    Part of me feels I should just be greatful I am cancer free and not harp on this and maybe I should. I wonder if I do fat transfer if all the fat taken survives the transplant? Or do they take extra to ensure a good portion of it will stay. I'm sure I can provide enough fat to fill my cleavage! She said I didn't have enough for a DIEP (??) but I didn't want it regardess so it really didn't matter. 

    I was soooo hoping to be finished surgery and ready to move on to the final stage  . . . nipples. Now I feel like I've taken a few steps backwards and have way too many unknowns. First, will she agree to more surgery. Second, is she able to do what I want. Third, how long do I have to wait until surgery and then I have to go through the entire recovery again. Forth, will ON Health Insurance pay for this? I feel like I'm moving in reverse instead of going forward. Not exactly what I had hoped to be feeling at this point. The good news is, my drains will likely be out on Monday and so far (other than the first night) I've had no pain and haven't needed any medication.

    I'm waiting for the drains are removed before attempting to try on some clothes again just to make sure my cleavage hasn't suddenly grown and moved up. Wouldn't that be the perfect ending to the story? 

  • Lilah
    Lilah Member Posts: 4,898
    edited October 2010

    Mantra -- I have not had fat grafts but as I understand it, it usually takes 2 or 3 times for success.  It doesn't always take or even if it looks good at first some of it can get reabsorbed.  So the best thing is to do it a few times (layering?).  I think insurance has covered it for other ladies who have done it.  Go to Breast Implant Sizing 101 and post your questions to Whippetmom -- she is a genius and knows a LOT about all things to do with implants, including fat grafting, which she herself has had.  I do know she recommends using a doctor who is comfortable and experienced with the technique. 

  • Sharon2010
    Sharon2010 Member Posts: 49
    edited October 2010

    Mantra, the amount needed for a DIEP is significantly more than for fat grafting.  When I asked my PS if he was removing enough fat from my stomach to see a difference, he said "yes" but he didn't want to remove too much in case he had to do more grafting.  I laughed at him and told him that I have no shortage of fat supply.  My thighs and hips are a renewable resource!  Hey, don't people tax credits for using renewable resources?  Some buy electric cars, I regenerate fat for grafting.  Ha!  Some of it will get reabsorbed.  It's also subject to change with your body weight, just like fat everywhere else.  If you loose or gain 10 lbs, it may change.  I also recommend a doctor who does it frequently.  There are many who do liposuction, but either don't do, or are new at grafting.  How and where it's placed seems to be a bit of an art form, I guess like much of plastic surgery.  I hadn't heard of Restalyne for cleavage...that is creative!  It's ok to want more than be cancer free, although that's the most important thing.  Its ok to want to feel "perfect" again.  I was really unhappy with my result, even though everyone thought they were great.  That, coupled with the back pain cinched my decision for a revision, and now I'm sooo glad I did.  I could have been looking at a bad recurrence down the road.  Wait awhile for more surgery though.  I'd say several months, before doing anything at all.  They'll change a lot in that time, and surgery is so physically taxing. 

    Lilah- I love how they look now!  Minus the bruising, of course.  They sit higher, are not as wide at the bottom, and the cleavage is great!  I'll post pictures this week.  They are still really bruised up.  I respond really well to Arnica, and I forgot to take it one day and looked like my boobs were used as punching bags! 

  • Lilah
    Lilah Member Posts: 4,898
    edited October 2010

    Sharon -- woo hooo!!!!  So you got TWO good things from that revision: better looking foobs AND an early catch on a recurrence.  That is a great thing indeed! 

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited October 2010

    Sharon-glad to see your doing better and love your revision. Can't wait to see the pics. You have a great medical team and they watching you closely, I know everything will turn out alright. We are all here for you.

    Mantra-the TE are round and the anatomical's tear dropped that is why they looked so different. I had the choice of either and was really leaning towards gummies until about a month before my surgery. I kept asking my Dr how they would look different. Every time I did he would take his hand  and squash down the top of my TE and say that's how the gummy would look.  All of the sudden I just didnt' think they would be right for me. I reviewed everything everyone said and I had to ask myself what was most important to me. For me I wanted more upper pole fullness and breasts that I could push up. It was especially important for me since mine were far apart and the Dr told me he couldn't move them that much closer together because of where my muscle ends. I really agonized over my decision but finally made a choice and just went with it figuring I could change it later if I had to. I do like the rounds a lot. They are not perfect though. I see a lot of rippling already. What I do like is that they are so soft, they are movable and they are round and perky. I wish I could have everything. I remember Sharon saying that in an earlier post no matter what we choose we will find something wrong with them. You and I both just had our surgery so we have to give it time to make these foobs "ours" and grow to love them as part of us. Part of that will be accepting the things that we see as not so perfect about them. I too am considering fat grafting, but who knows in a little while I may just settle down and say I had enough of this for now. For now I am trying to keep an open mind and hope things keep changing for the better.

  • Mantra
    Mantra Member Posts: 968
    edited October 2010

    I'm now one week post op have had time to let everything sink in. I'm not 100% sure how I feel about my gummies but I am certainly more accepting than I was a week ago. I've just re-read all of your replies and it has helped me to understand the differences between TE, gummies and what I can and cannot expect with implants.

    Although I'm still supposed to wear my surgical bra 24/7, I did take if off for a bit and had DH snap a photo. I was surprised to see rippling on one breast. However, according to DH, the rippling is much less than it was a week ago. I will post the photo as soon as I can. Unfortunately, DH decided to wipe out my computer and reformat it and lost all of my outlook express files so I don't have the email that gives me the link to TimTam site. A data recovery site is hoping to find what has been lost.

    I also tried on my pre-mastectomy  (as I mentioned to someone, I never could have imagined that word would actually be part of my vocabulary) bras. Surprisingly, the bras fit perfectly. I was actually hoping that I would be one size larger but that was because I was kind of getting used to the additional foobage provided by the TE. So I'm now over that . . . I was never unhappy with my size before so I should be accepting of it now.

    Beesie, you're absolutely right when you talked about the tissue expander being higher and the implants being more where the natural breasts are. It never occured to me but that is exactly what happens and that's why my cleavage is lower. I guess during all the time that passes between mastectomy and implants, you tend to forget what your real breasts looked like. It's only been a week since my implant surgery so it's way too soon for me to try squishing the gummies into a bra to see if I can access the possible cleavage factor. Thanks for your input. As usual, you are able to provide a clear understanding which is extremely helpful.

    Can anyone tell me how long it takes until the gummy is stable? I'm trying not to do anything that engages the pec muscles but I'm unsure how the process of stability happens. I know the implants are textured and that something (muscle??) is supposed to stick to it and keep things stable. Does this happen in a month? 6 months? A Year!!?? Also had my drains removed yesterday so that feels like progress.

    Thanks again for all your replies.  

  • Lilah
    Lilah Member Posts: 4,898
    edited October 2010

    Mantra I think the first 8 weeks are the most important for the healing... I know I had to wear a bra 24/7 for 8 weeks and then was allowed to sleep without one.  After 8 weeks I'm guessing the capsule and scar tissue have had time to form.  I also think that any rippling you are seeing right now MIGHT be dents from the bra itself... I know that when I was wearing a 24/7 bra it left marks that took awhile (an hour or two) to disappear... and now that I don't I've noticed that this is not a problem (the dents).  I have no ripples as far as I can tell but then I don't look for them :)

  • Lilah
    Lilah Member Posts: 4,898
    edited October 2010

    Oh and re: the picture forum -- just send Timtam a PM and tell her what happened.  I'm sure she will be happy to resend you the info!

  • Mantra
    Mantra Member Posts: 968
    edited October 2010

    I'm going to post my pictures on the other site. My screen name is Fore (have no idea why I didn't use Mantra!). I'll try and post them tonight but if not, it will be tomorrow night. Lilah, did your implants feel more stable after 8 weeks. I'm not sure if it's all in my head but I keep feeling like if I stood on my head (not planning on doing that . . . just an example Laughing), my implants would move out of place.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited October 2010

    My PS did not require a bra 24/7 after exchange.  Just one of the "preference things" I guess.  I had exchange in June but when I went to start physical therapy I was told get it cleared by my PS afterwards and I was 2 months post-exchange then.  He said it was fine at that point.  I think we all must heal at different rates too from comments made by mny onco, bs, and ps.

  • Lilah
    Lilah Member Posts: 4,898
    edited October 2010

    Mantra - my implant does not move unless I push it (and even then it doesn't move much).  I think all the Allergan implants (gummy or not) have a tab that the PS sews down... I have to run now but will check out your pics later....

  • Mantra
    Mantra Member Posts: 968
    edited October 2010

    Question . . . do you think sleeping on your side is a bad idea until things have healed?

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited October 2010

    Manta-I just wanted to say I got to look at your pics, I commented there, but I want to tell you again-you look absolutely beautiful!! I reallly think your PS a great job. You have good placement and fullness and I see a LOT of upper pole fullness. I know it's an adjustment going from the TE to implants and accepting the new you, I'm goiing through it too right now. I just want to reassure you from an outsider's point of view you really do look amazing!

  • heebie_jeebie
    heebie_jeebie Member Posts: 125
    edited October 2010

    Mantra - as a future uni gummy girl, (now in my TE witht the first fill) I'd love to see your results, but when I went to the pic site and put in FORE it only showed my your before post.  Any ideas on how I can find the new pics?

  • Mantra
    Mantra Member Posts: 968
    edited October 2010

    Heebie, if you go to Under Construction, it is currently on the first page. The thread I started is called from TE to Gummies.

  • heebie_jeebie
    heebie_jeebie Member Posts: 125
    edited October 2010

    Thanks, found it.  They look great;  but now I am confused.  Is that you in the the post on the picture forum from Fore with a uni, asking "teardrop or round?".  (apolgies if this is adressed in an earlier post here)

  • Mantra
    Mantra Member Posts: 968
    edited October 2010

    Heebie J, it's very possible that was me! I had a single mastectomy in Sept/09 and then had a prophylactic in April/10. I think you must have found a very old photo that had one breast + one TE. My new surgeon removed that tissue expander and placed two new ones. The first surgeon was clueless and caused some damage.

  • Mantra
    Mantra Member Posts: 968
    edited August 2013

    Thanks for the positive comments. As requested by someone on the other site, I will post a photo that doesn't include the PS artwork all over my chest!

    I think I went through a bit of shock the first few days post op. Oddly enough, I never went through the same shock when I woke up after having my mastectomy and waking up with TE.

    I had once mentioned on this thread I was dreading the implant surgery and would have delayed it for another year if I could have. All the other surgeries had a sole purpose . . . get rid of the cancer. That was the only goal. Everything else took second place.

    But I considered this surgery to be cosmetic. It meant that only the results were going to be important. I guess for some reason I had thought I would wake up to something that really looked and acted/jiggled more like natural breasts. My PS had told me that would never happen but in my mind  it's what I imagined. I have no idea why I had thought this . . . I had looked at photos of gummies on the other site that looked FABULOUS and gave me such confidence to go through with the exchange. Yet I guess the mind can be bent and shaped to create its' own reality, or unreality in this case. I do not regret the mastectomies . . . I can live with implants  . . . the operative word being "live".

    I'm getting very used to the look of the implants now and am now happy and accepting of the results. I look forward to getting nipples and tattoos. DH said he doesn't see any rippling now and I will have him take a photo to post, now that the artwork has been washed away.

    I decided that on Sunday I am going to have a try-on of some of my clothes that are "cleavage-dependent"  Laughing I will use the premise that using a bra to create cleavage may never happen . . . but it is way too early to try doing anything myself regardless since I'm just a week post op.

    Lilah, I have two small indents on the bottom of each implant and I imagine this is the tab you were referring to.

    Sweetie, I think you said you had photos on TimTam and asked if I had seen them. No I haven't. . . can you point me in the right direction.

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited October 2010

    Manta-everything you wrote about post exchange is EXACTLY how I feel. I felt so down today. I went to the store for the second time trying on bras. Nothing fit right or looked good. Even though I have rounds I don't see a ton of cleavage either. I would need a push up bra for that and I am told by my PS not to wear underwires. Furthermore I could not fill out a lot of the C cups either so I'm somewhere between a full B, small C. In clothes I look the same size as I did pre BMX yet the type of shirts I used to wear didn't seem right now. I just felt really wierd today, like it all suddenly hit me. I had high expectations like you. It is not that I am unhappy. I am so grateful for everything, for the cancer being gone. It's just that I guess this was the surgery that was supposed to make it alright, all the things I had to give up to get here. Oh well once again we must adjust.

    Pics-mine are under sweetie2040  with the nipple sparing BMX to implants

  • Lilah
    Lilah Member Posts: 4,898
    edited October 2010

    Mantra -- the indents may just be from the post-surgical bra.  I think the "tabs" (if they even exist or if that is even the right word) are not there but on the sides (though I'm not certain at all).  I also think that you need to give yourself time... for one thing, I've noticed that 5 months post-exchange the gummy is softer than it was (and yours will be too).  But I do agree that the exchange is much harder emotionally than the MX was (who knew?).  For pretty much the reasons you gave: it's about looking good, not about getting rid of cancer, and so our expectations are higher. 

    Sweetie -- hugs!!!  It does sound like you're going through the same as Mantra... and as me.  I was depressed for three weeks after my exchange but then, actually, sharing my photos on the other site cheered me up (even if I thought people were just being nice it still made me feel better LOL).  And now that I'm healed and living my life I am grateful to be NED and to still HAVE boobs and they don't look bad at all :)  Hopefully you guys will feel good about your new bodies soon too.

  • Mantra
    Mantra Member Posts: 968
    edited October 2010

    Sweetie, I must be looking in the wrong area. Is it in the Under Construction area? What is the thread called.

    After posting my message, I've heard from others who are feeling the exact same way we are. I think when I try on my cleavage-dependant outfits this weekend, it's going to be a downer.

    I seem to have become cleavage obsessed. Any time I'm watching TV all I look at is the actor's cleavage and get a little green with envy. I know I will move past this and I guess it will take more than a week. My biggest fear is that when I go to see the PS, I'm going to burst into tears and feel like a complete moron.

    Another issue I'm having, and I'm wondering if anyone else is going through this is . . . I cannot bring myself to use the word "breasts". Instead, I refer to them as my implants. Tonight at dinner, I was telling DH that I want to try on outfits before seeing the PS on Monday and that it's going to be very emotional for me. He said "you look great, you have beautiful breasts and you're cancer free." I immediately said "don't call them breasts, they're implants."

    Not that I'm thrilled that others are feeling this way, but it is comforting to know that what I'm feeling is not unusual. I'm just not used to dwelling on anything. My norm is to have my emotional moment and then buck up, put it behind me and move forward. My mantra in life is: Life is a series of peaks, plateaus and valleys. When I'm in an emotional valley, I always say to myself, "just hold steady because a peak or plateau is just barely out of sight . .  but I'll reach it soon." So I'm trying to put one foot in front of the other, keep a steady pace and will hang on until that peak or plateau is in sight. I've only been walking for a week so perhaps I'm just being unrealistic in my expectations.

  • Lilah
    Lilah Member Posts: 4,898
    edited October 2010

    Have patience Mantra -- it's still early and you just need time to get used to the new normal.

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited October 2010

    Lilah-thanks your a doll!

    Mantra-under the pics just look for my name Sweetie2040-it's probably on page two. What you  wrote was so eloquently stated. I feel so much the same way. I am usually strong too and I knows things have peaks and valleys and know nothing bad lasts for ever. I just think sometimes when we are the in the middle of it and have all the emotions it's hard to see our self coming out on the other side, but we will. As for calling them breasts, I'm kind of like you. I keep saying implants, or my reconstruction. I miss my old breasts in a way. They were small but I knew what to expect of them, how they would look in bras and clothes, what would fit. Now I have to figure out this new me and how to make them mine and like them.

  • Mantra
    Mantra Member Posts: 968
    edited October 2010
    Sweetie, I finally found your photos. Now take this as a compliment . . . but I thought I was looking at your before photos . . . before MX photos! Then I thought perhaps you only had a single mx and was trying to figure out which one was the implant and which one was the implant.  I finally had to go back to the beginning of your thread and finally realized I was looking at the after photos and that you did infact have a bmx. Yours are much more natural looking. I'm not sure if it's the shape, or whether you had NSM. All I know is it works! I did see the rippling when you bent over but perhaps everyone's does. I still stuck wearing my Big Bertha Bra and don't want to risk removing it and then leaning over. But once things are more stable, I'm going to do the lean-over test to see if I get ripples. Before all of this started I used to do the pencil test and was always so happy that I could still pass it even at 58. I think with implants, I could pass the pencil case test! Laughing

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