Anyone starting chemo in June 08

Hi ladies.  Sorry I've been AWOL lately.  The last few weeks have been full, with doctor visits and Chronic pain mtg. classes. My feet and hands have been having numbness and pain problems, as well, so I know how you feel Choc...The neuropathy in my feet, was finally diagnosed with an NVC test, and the doctor said it was polyneuropathy, and that it wasn't good, but at least we know now what it is, and that it's not all in my head.  This accounts for the fatigue in my legs, and the muscle weakness. The doctor said it was in my motor functions, so it doesn't sound good, but I'll know more on Monday when I see a Neurologist. I had to be a pessimist, but it looks like it's going to be a long time before I can go hiking, camping, and kayaking again. But at least I can eat....I've gained 6lbs.in the last month, and it's not going to come off, if I don't get out walking around again.  Choc. it seems like I'm eating for you and then some. I sure hope you feel better soon.  Kelly you sound like your doing much better!  Three miles on your elliptical, gee I have trouble walking around the house, and it's not that big, so YOU GO GIRL!

Love to all of ya'all 

well gals, I'm back in the slammer and it was only ã misdemeanor! on Sunday, during Thanksgiving dinner. I ate pureed carrots and mashed potatoes with gravy, but the turkey got stuck in my stent.

I began vomiting immediately and after 48hrs. finally let hubby bring me to emerge. they did ã scope, cleaned out the stuck food, but also saw new tumor growth and need to put in another longer stent. So that's scheduled for Friday. pls send me love and prayers! I'll let you all know how it goes.

xo chocolate

Hi all, had a great walk with a friend this morning.  Beautiful blue skies and even short sleeves!  I said a prayer for all of us, but especially Chocolate, while enjoying the weather and hot air balloons.  We all need to get healthy so we can go on the cruise when I win the lotto!     Kelly

I am sending warm wishes to all of you, especially you Chocolate.  I am glad you got your port Wyoming.  I know how nice it will be for you and hope your treatment and week off are good to you.  Karen, I will bet the fall colors were beautiful.  It is so nice to be able to enjoy those things.  Kelly, glad you are doing well and out walking.  It is so nice to hear.  Leggy..hope your pain mngt is working.  I still have a bit of a problem with my incisional hernia repair but nothing that warrants a post to complain.  No open wounds or infection.  Bonnie...how are you?  Thoughts are with ya all!  Hugs...Hunkydory

Wyoming, I think that is great news.  I hope this break from trt provides you with some feeling of normalcy.  More energy to keep up with your dear kids and your small grandchildren.  Love hearing your news.  I am a bit anxious to hear what my onc has to say about my last chest CT.  PS told me not to worry about it so I guess that is a good sign.  I go for my checkup in a couple weeks.  Chocolate...I say a simple prayer everynight for you.  I have a lot of people on my list.  Stay comfortable my friend.  I'll bet Diesel is one big boy by now.  Gentle hugs to all!  Hunkydory 

Wyoming I'm so happy for you!!!!!  No chemo. is such good news! HunkyD good luck on the CT.

Thanks for all your well wishes for me, I got the blood drawn yesterday, Thank God!  It did take an hour, to find the order from my doctor, and I had to go to two labs that were about 5 miles apart, but I had a really good girl who got me on the first stick.  All she did was warm up my arm for 5 minutes, and we were good to go.

KK, I hope you feel better soon, and have sweet dreams....

Love to all

Hey, Choc....glad your scope showed some cell damage from radiation.  Hope it is tumor cells that are dying off.  I know your eating is still limited.  I hope you have your laptop and will get some decent soft/blended foods.  I am another person with bad veins, so I totally understand the convenience of the port.  Ok, I know I have to make the decision but I have question to ask here.  My onc has been pushing for me to have ooph and possible hysterectomy because of my stage and Tamoxifen.  I did not have BRCA testing but am highly suspicious.  I have met my catistrophic medical limit again this year so if I were to have the surgery before December 31 it would be zero dollars out of my pocket.  Can anyone tell me any pros-cons to this?  I asked my PS at last appt and he said it would more than likely be done vaginally because of previous surgery, so not laproscopic.  He also said he would definately do it if my onc was for it.  I know I have been through a few surgeries but would like your imput if anyone has had it done.  I am now almost 2 years through tamoxifen.  Thanks....HD

Yahoo!  We've had good news from Kelly, Wyoming, and now Choc.!  That makes my day!

Hunky, I've been on Tamoxifen for 2.5 yrs, and I'm now on a VK, from it. You will be so happy to not have to take that cr#p, anymore.  It sounds like the doctors want you to have a ooph, and they know better than I do, that's for sure.  I've still got all my plumbing, but I wouldn't miss it at this stage of my life. 

Choc. I'm really happy for you, and hope you can have some really food soon.

Love to all

Thanks for the laugh Kelly, I needed that. 

Kelly that was a good one. I'm don't want that kind of therapy either.

Hunky I have been working all along. I have only missed one day when I had my port put in.

Chocolate have you had any food yet? I hope so.

Leggy have you gotten your blood results back yet?

Happy Thursday everyone!!

Wyoming

Leggy, hope your neurologist appt turns out ok.  I think the amount of drugs from chemo and the hormonals does irreversable damage to a degree.  I am pretty sure.  I am glad you don't have to endure the physical and mental torture of work anymore right now.  Wyoming, I can't believe you can keep working.  It makes me tired hearing that. I am totally amazed.  You are one tough cookie.  They raise them there in Wyoming though I know!  LOL.  Hope everyone else is coping.  I got a call out of the blue at work today...PS wants me to go get ultrasound on incisional hernia repair area.  He tried to drain something out of what we thought was seroma last week but got nothing.  I just hope it isn't a big problem with the mesh he used, or even worse...ultrasound shows something else.  It is always something.  I am really getting crazy.  I am also penciled in for a hyst/ooph? in December.  I have met my catastrophic limit again this year so if I get it done will save me money.  We will see what onc and gyno decide.  Both Drs are for it from what I understand.  I have to get past this incisional hernia problem also.  Sorry to go on about myself.  Hugs to ya all....hope your have a great weekend. 

P.S.  You candyholics....halloween is coming up.  I am jealous I can't eat candy cause of poor teeth!  Whaaa!  HD

Leggy, pain is real...no matter where ya are.  At least your in warm climate.  I don't know if that is a factor with neurapothy.  You are not a baby.  I can understand cost of living.  Economy isn't good here either.  Need my insurance and my co-pay went up %7.  It is raining here today and cooler, so not much to do outside.  Picked a lot of tomatoes the other night with flashlight and put them in a plastic grocery sack.  If I through a couple onions and some cilantro and chili peppers in there will it make it's own salsa....I am definately not very energetic.  Hope all are doing ok.....XXOO Hunkyd

Leggy you are not a baby. We all have our own tolerance for what we are going through. Have you tried taking vitamin B6 for your neurapothy? I take about 4 tablets a day and it seems to be working. My onc said I could take up to 6 a day. 

Hunky I laugh about your salsa. Wouldn't it be great if it did make itself. I used to bake a lot but now I don't feel like it. If I do bake I take to school for my staff. It helps me not to eat it all.LOL. I have been trying to be a good girl and not buy too much Halloween candy. 

I have some sad news, I have to put my dog down. She is 13 1/2 years old. Last year she was diagnosed with congestive heart failure, but was doing really good. This last weekend she started to throw up, took her to vet and had blood work, she is in kidney failure. So tomorrow after work hubby and I will take her to vet and then back home and bury her. She was one of the family.

Chocolate, Bonnie, Kelly, and Karen hope you all are feeling good.

Have a happy week.

Wyoming 

Yea, I like it when everyone is posting up a storm.  It makes me feel closer to you all. 

We had a nice weekend visiting my son in Crested Butte Colorado. I think my boys (19 and 21) were glad to see us but you could really tell at the end of the weekend that the boys were not too sorry to see us go.  I guess that is growing up and they don't like us there correcting them.  It was a long drive home with a two hour stop so my husband and two of the kids could fly fish a bit, then pulled into the driveway, ran in the house, put on costumes, and ran back out to go bowling with girl scouts.  Boy was I tired last night!  But glad to have made the memories with the kids.

I am off to my second support group meeting in Boulder.  Keep telling us about your days and medical stuff too so we can be checking on each other.  Love you all,   Kelly