Down in the dumps

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kayec
kayec Member Posts: 6
edited June 2014 in Stage I Breast Cancer

Hey All.  Got stage 2 BC in Sept 09. Had double mast. No chemo. Had expanders put in, had to have them removed because of infection. Had one side removed, then two weeks later, had to have the other expander removed. Just 4 wks ago, had the expanders put back in. It was pretty intensive and I've been pretty much stuck at home. Needless to say, it has been a long hard year. Now I'm feeling like the world is passing me by, like my family and friends are tired of me and my breast cancer. I've had my husband, but he works and the days seem so long. Even my sisters seem to be preocupied with their busy lives. One sister hasn't even called me. I'm bewildered and confused. I don't call anyone and ask for anything. Have any of you felt like everyone is just too busy for you or have you had loved ones pull away for some reason? Maybe people are afraid that I'm going to ask for something. I don't know, have you had alot of support? Just wondering if any of you have felt this way, and if so, what do you do to make yourself feel better.  Cry

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  • Godlistens
    Godlistens Member Posts: 47
    edited October 2010

    yes, everyone seems so busy.  I work from home and sometimes feel a bit isolated from the rest of the world. I had a lot of support in the beginning but now everyone has gone on with their lives, and I guess that's as it should be. .....

    I worry about the damn thing coming back but that's part of the territory. I try to keep busy but don't put too much pressure on myself to be busy constantly. I have no desire to be busy constantly......I work from home part time, I take yoga classes, and I'm taking a college course in music. I also pray a lot and God listens.  Just because you don't hear from people frequently, it does not mean they are not thinking of you and loving you. You also have support here!!! I have learned that we each must make our own lives and find our own fulfillment with or without breast cancer!!  Try to find what makes you happy and do it...........hugs to you. 

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2010
  • don23
    don23 Member Posts: 512
    edited October 2010

    Me too, grannydukes.

  • pinkie48
    pinkie48 Member Posts: 21
    edited October 2010

    Kayec- It sounds like you have been through a lot this past year. I have isolated myself alot and it has been my DH and I through almost everything. It is lonely and frustratng when you are sick or tired or both all the time! I have grown children and try to not bother them with all this because they are busy with their lives and  they don't really get it! I tell them all is going well. I do try to stay optimistic and have until done well with attitude until recently

    I have not had the issues as long and not sure I can tolerate too much more even what has happened to me in alesser amount of time! My BMX with TE's was Sept. 2nd. I had 3 expansions after the drain tubes were out. Luckily,I did not need chemo or rads. However, at the time of the 3rd exp, the nurse saw fluid in left breast and slight redness.The put me on oral Antibiotics. PS aspirated the breast next day  of 100 cc's of seroma fluid and worried me terribly because he said  the TE might need to be removed becaue of infection. He scheduled me for a IDC (Incision, drain, cleaning(?) the next day on Oct 11th. After the surgery he said he was pleased when he cleaned around the TE (said it looked good) and he also stapled the incisions because they were not holding well. Of course, I have one drain tube again(at least not two). This one is not as bothersome-probably because I am more healed! The culture came back negative for infection last Friday. So I thought all was well. I awoke this morning with pain in my right breast now which is radiating a little to the center of my chest-I have no redness but I really think I  have more issues starting. I am not so sure this reconstruction thing is for me! I can't even have root canals because my body rejects the dead material in my jaw. I had my doubts about all this in the beginning. I told my PS I thought I might reject the TE's and the implants because my body doesn't tolerate invasive things. He convinced me to go ahead because I would feel more whole after! I agreed but at this point but had some lingering doubts. Now I  don't know how much time I want to give to this whole ordeal. I was supposed to return to work on Monday the 18th. My boss was very disappointed in this delay but he was supportive. I work for a great place and hate to lose my job there! We can't afford me to be off much longer. I have disabilty pay at 80% and they let me work at home on the laptop to keep up with some things but I am going crazy because it does feel like life is just passing me by. I have been off work since July 27th since I had the lumpectomy which caused me alot of pain.It feels like forever! I just started driving again a few weeks ago! I still tire easily an was just beginning to get some of my old strength when this happened!

    I have done a little research on "no reconstruction" and I have to say if this doesn't work out here shortly I will have the TE's removed and go with FOOB's and stuffed bras as required - To answer your question to help me cope I try to focus on little projects that I can accomplish here around the house. I am working on having a stamp collection appraised (might need the $ it will bring) or I make a little date with my husband to go somewhere at night even to the store for food or just for a drive. I also have been invited to a Breast Cancer support group in my area and will do so as soon as things settle down. Do you have a local chapter in your area?

    I can't make commitments to anything presently while I am on this rollercoaster of Dr appts and set backs! Have you ever wondered abut discontinuing the recon?

    I wish you the best luck!  Please let me know how you are doing!

  • soulswithin
    soulswithin Member Posts: 154
    edited October 2010

    Kayec, YES! I have down days, and I think the long term of your cancer surgeries is longer than most, and it eventually gets you down, making one feel removed from the world. I had 3 surgeries which in between 6 biopsies, and now chemo, before even the radiation, has made this a very LONG strrssful period, topping a year when radiation is through. I think length of time has alot to do with the depression too. You have been throgh so much! Just trying to give your body time and patience, not alone the long period you have endured this, is hard in the best of cases.

    You are not alone, believe me. My best friend has called me once. I know some people have trouble dealing with the fears of cancer, but I have realized that difficult friendships are not for me anymore, reserving all my energy for my recovery. Try not to waste negative vibes on someone who is inept in being a good friend. Sometimes I find peace in the fact that I am ok, even when I am alone, and when I get depressed I find some distraction that gives me positive energy. It doesn't always work, but what I have learned from all this is valuable life skills.

    And I am a firm believer that when bad things happen to someone, good things will come in return, with patience, Maybe not right now, but it will be there in your future.

    Breast cancer is so isolating, even men won't discuss it! It really puts us out there in limbo, and forcing us to deal with the daily changes by ourselves. I hate how people treat us differently now. I hate how people blubber some stupid comment about cancer, or who died, or who survived. I don't want to hear about cancer! I want to hear about life! I'm still the same person!

    It's been dreary weather around here and boy, does it change my mood. All I want to do is eat, ;) and that sucks. It doesn't even taste good.

    What I do when I am depressed:

    1Hang out at Amazon.com and buy something I always wanted!

    2Browse a dream sheet of things I'm going to do later

    3Read funny storries or eat something I shouldn't. lol

    4Find a cause online that distracts me from Breast Cancer, like Wildlife Preservation, etc.

    5Tell some idiot that, no, the dog throwing up was not life changing trauma.

    6Tell someone I love them

    7Call the doc [have done this twice] and said I wanted to try a mild antidepressent.

    8Find an old movie

    So dear girl, I hear ya, and totally understand. I often wonder how I will get my respect back, because it feels so condescending to be like this. People are so weird. Such hard efforts to remain the person we were. All of it. The light at the end of the dark tunnel is coming, I figure, after Christmas. I'm shuting the door on all this crap about then!! ;) Hang tough there! I am a firm believer that payback is joy and happiness in the future, for all we have been through. We have to stay focused on that rather than the moment, as hard as that is. Let your feelings be. It's ok to be sad, mad and discouraged. Those are temp of course.Innocent

  • Makratz
    Makratz Member Posts: 12,678
    edited October 2010

    Yes, I have had many days like that too.  DH and my BCO sisters are the only people who truly understand me.  That's why I spend so much time here and with my BCO friends on FB.  I know I always have someone to talk to and many who understand.

    My best to you!

  • nene2059
    nene2059 Member Posts: 270
    edited October 2010

    Kayec, I thought I would post to let you know that what you are dealing with is very common and normal during this process.  It seems like your recon has had some setbacks but one it will get completed and you will be so happy with it.  I had moments during all of my treatments where I felt down and like the other ladies have said you have to take little moments and do some things that give you comfort.  Eat that ice cream, buy a juicy book, get that pair of boots that make you feel fabulous.  Also, do have a few other BC sisters that you can call or meet for coffee?  I did not go to a "support group" but I ended up with friends of friends that reached out to me and I had a few different ladies that I could talk to when things were low and I knew that they would understand.  I really do think that our families and non-bc friends can not deal with going to a fearful place in their minds so they act as if nothing is wrong.  They will follow your lead, I believe, and if you let them know that you are struggling a little some of them may be glad that they can finally do something for you.  I think we all keep stiff upper lips while going through all of this crap.  Some days you just need to yell, "I have freakin cancer and I need some attention". Best wishes to you and be gentle with yourself during this trying time.  It does get better I promise.  xoxo 

  • kayec
    kayec Member Posts: 6
    edited October 2010

    Thank you, each and everyone of you who posted a reply to me. I am sitting here with tears running down my face because you took the time to reply. It means alot. I will take your advice.  I don't want to sound like I don't have gratitude in my life, I have a lot to be grateful for and I appreciate the things I have. I have a wonderful husband that has gone beyond the call of duty. He has been my rock, but I don't want to drain the life out of him, ya know. Besides him, I feel like it's all I have. See, I even feel guilty for saying that, because I know there's some precious lady out there that may not even have that! I have truly found out who my friends are! *even within my family*  I'm going to check out BC on Facebook. There's also support groups in my area. I may check them out also! That was some great advice my dear BC friends. Wish we all lived close by each other.  With sincere gratitude, kayec

  • mari65
    mari65 Member Posts: 131
    edited October 2010

    Sending lots of HUGS....

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