For all the node positive, Stage 2 ladies

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  • mumito
    mumito Member Posts: 4,562
    edited October 2010

    I am a member of this group how in the ### do we not worry.I am always expecting the other shoe to drop.Even my doctors have me in every 3 months for followups.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    mumayan, Has you onc told you how long you will be on three-month follow ups? I see mine every three months but I was dx'd a year after you. BTW, I also go in for Zometa infusions every six months.

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited October 2010

    Hey, just as an FYI, I quit smoking in June by doing auricular stimulation. It totally worked for me. I walked out unaddicted to nicotine and did not suffer the brain fog from prior quit attempts. Totally worked for me. I did need to go for a recharge three days after the first session but it worked and it has been since June 2. WOO HOO!

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2010

    IM GOIN FOR THE ONCO RESULTS ON THE 27TH OF THIS MONTH.NERVOUS

  • mumito
    mumito Member Posts: 4,562
    edited October 2010

    Athena I had  all my scans redone last may.When those came back he said he wanted 3 month followups for atleast  another year.He scared me again by ordering an extra scan on my liver but the shadowing was just fatty tissue thank god.My family doctor told me that this medical onc that  I have has a rep for being overdiligent.That is fine with meSealed

  • IsThisForReal
    IsThisForReal Member Posts: 384
    edited October 2010

    Athena - excellent sites  for quiting smoking - Thank you!

    Barbara - congrats on your quit :-)

    Mumayan - I am on 3 month follow ups right now also.  That actually helps me feel more secure to be honest.  I believe I am on 3 month follow ups for 2 years, then go to 6 month follow ups etc.  I do relaxation therapy on a daily basis and I have to say it helps to 'destress'.  Truth be told, if I was worry free I wouldn't be on this board either.  But, I've decided that I am going to enjoy each and every day - every one.  Until I am diagnosed with a recurrence or worse, I am going to shove it in the back of my mind and enjoy being here.  When it comes to the forefront of my mind I will have to deal with it head on, in order to be able to relax a bit again.  I will continue to research and be on these boards to  keep abreast of what is new in tx, how others ladies cope, share information, etc.  That's the best I can do with it so far. Does anyone have any other strategies that help you deal?

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    mumayan,

    I think I own a summer home overlooking the river DeNile, because I haven't had a scan since my breast MRI just before surgery. I have decided to go by symptoms and have had no reason to think anything is up. Stage IV is not curable anyway. But that's just me.... 

  • mumito
    mumito Member Posts: 4,562
    edited October 2010

    I would welcome ideas i have even considered taking a meditation class.I do exercise at the gym about 4 out of 7 days.That has helped with sleep issues.

  • mumito
    mumito Member Posts: 4,562
    edited August 2013
    Maybe I should buy a home on that river but what about floodsYell
  • calamtykel
    calamtykel Member Posts: 1,187
    edited October 2010

    I thank you for sharing your stories!  I would like to add mine - cousin of mine diagnosed in 1989 - had LN removal (not sure how many nodes positive) and underwent chemo.

    Totally cancer free 21 years and has not had any long term SE's from the chemo.  She  didn't do anything special (no special diets or vitamins or anything) and she has been fine.  She's the success story I often think of when I become discouraged!

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited October 2010

    Athena, I feel that way, too - I live on that same river because It has been over a year and I haven't had a PET or bone scan since my first one (just breast tests).   I figure no cure if it spreads, anyways, so I am in no hurry.

  • mumito
    mumito Member Posts: 4,562
    edited October 2010

    I was glad to have the scans.I intend to catch any progression early and live along time.

  • KitCat1
    KitCat1 Member Posts: 53
    edited October 2010

    Well ladies, i can realte to all of these stories. i am constantly worried about recurrance and the node being psotive, i had one node positive but it was a biggy 2cm. Onc said it deosn't make a difference, thats'what the nodes are supposed to do.. catch those suckers!! I aslo was an occasional smoker and quit right away the day i was diagnosed and never looked back...done with it.. but I must say it does cross my mind when i have the occasional wine?? Speaking of which, I really miss chilling out and enjoying my wine.. after all this stress.. i have cahnged alot, eating habits, exercise, i want to start power walking and gte really into it...... I just fineshed my last chemo 4 weesk a go, start rads on Wed and continue on Hercepton for a year. What a nightmare the whole thing is ... really...... bu I have a inner energy and strenth I never knew and will go forward with that. I am so happy ther is such a board like this where we can excahnge thoughts and knowledge!~ Also my onc said that worry is not good.... how do you stop? Even when i am trying to enjoy my day.. it's there in the back of my head.. lurking.. reminding me......

    Hugs to all

    Cathy xox

  • gingersfavorite1
    gingersfavorite1 Member Posts: 273
    edited October 2010
    calamtykel,   I'm going with your cousins story!     I was stage 2, with 6 or 7 positive lymph nodes (of 14 removed).    I'm not worried.    I don't borrow trouble.   Never have.    I expect this to be a short sidebar to my journey of a long, happy life.    I believe that my 4 rounds of A/C,   12 rounds of Taxol,   and radiation will completely annihilate any and all cancer cells.
  • memory
    memory Member Posts: 106
    edited October 2010

    Hi ladies, I'm glad to see this thread did what I intended it to: remind everyone that plenty of women have gone on to live happy, healthy lives, nodes or no nodes.

    It's true that us node positive women tend to be termed the lucky ones. But this is such a crazy disease that people like me can't always assume we'll always be cancer-free, anymore than anyone should ever assume that a node-positive patient won't live to be an old lady in a rocking chair.

     I guess in the end the only thing we all can do is live as well as possible. Carpe diem.

  • memory
    memory Member Posts: 106
    edited October 2010

    btw, in terms of follow-ups, I've been told I'll be going in every three months for the next two years. If we reach that milestone and I'm disease-free, then we go to every six months.

     My doctors are "surveilling" the hell out of me; colonoscopy (ordered by primary), pelvic ultrasound (also ordered by primary, reviewed by both new gyno and onc.) But I guess that's better than them saying, "ah, we'll let it go."

     During my last visit with onc, I quipped, "if it weren't for these endless doctor's appts, it'd be like I'd never had cancer." (Not true, I have a whole new chest.) She looked guilty, apologized; I then told her I was kidding, that she has to get used to my smart-assy sense of humor.

    And from the sounds of things were going to have a doctor-patient relationship for a long time, so she will get used to it.

  • memory
    memory Member Posts: 106
    edited October 2010

    btw, in terms of follow-ups, I've been told I'll be going in every three months for the next two years. If we reach that milestone and I'm disease-free, then we go to every six months.

     My doctors are "surveilling" the hell out of me; colonoscopy (ordered by primary), pelvic ultrasound (also ordered by primary, reviewed by both new gyno and onc.) But I guess that's better than them saying, "ah, we'll let it go."

     During my last visit with onc, I quipped, "if it weren't for these endless doctor's appts, it'd be like I'd never had cancer." (Not true, I have a whole new chest.) She looked guilty, apologized; I then told her I was kidding, that she has to get used to my smart-assy sense of humor.

    And from the sounds of things were going to have a doctor-patient relationship for a long time, so she will get used to it.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited October 2010

    Yeah, the doctors appts never end.   But I suppose that means we are in good hands.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2013

    I'm really happy with my onc. He has been so understanding of my unconventional decisions and circumstances. He seems very caring.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited October 2010

    I feel like a number with all of my doctors.   I just figured that is the way it is.   Plus, I live in a huge city, maybe that has something to do with it.

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited October 2010

    Athena, you are blessed to have an onc that doesn't roll his eyes or stick his fingers in his ears and chant 'I don't hear you, I don't hear you' like mine does. I am basically doing this alone.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    Being in a big city is a blessing if you have serious illnesses. You really need to be able to choose from the best. I am not in NYC, but Washington DC has decent hospitals/university centers/practices. I have not always been happy with my medical care, but now I have a superb team of doctors.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2010

    i will never feel like a number with any dr.I go to a large hospital where all my drs.work in and know each other.i have a special relationship with each and every one of them.if it was not that way i would have to change drs.it took me 4 drs.to get to the place im at now.NO FEARLESS it is not that way.unless you let it be.if your ok with that leave it alone.if your not.move on.

  • mumito
    mumito Member Posts: 4,562
    edited October 2010

    Fearless I had 3 tumors 2 in my breast and one big one in my nodes that I found myself.The mamogram that I had 4 months earier showed no signof cancer.I found the big one in my lower armpit because it hurt when touched.I just thought it was a lymphnode infection since I had just returned from a holiday in Mexico.Family doctor ordered an ultrasound and the next day I was in  a breast surgeons office having a biopsy.  Too many  stories on these threads about useless mamograms.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    BarbaraA - this is horrible. I have experienced it in the past with my PCP. They make you feel as though you are imposing on them. He is no longer my PCP even though he is supposed to be very well known (I don't have a PCP at the moment - I suppose you could say my onc is it). I hope you can find someone else, because your health may suffer as a result. My current onc. is the second one I saw because the first was awful. My current psychiatrist, whom I have been seeing for one hour every week for 11 months, is the first one I have seen in my adult life who has truly been effective and wonderful.

    Finding good doctors is like identifying a needle in a haystack - especially certain specialties (like psychiatry). The good ones are hard to identify and when you find them they often aren't accepting new patients. Even in big cities this is the case. 

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    OOoh, that sounds like a scary story mumayan. It brings back memories. I ended up having one node in particular that was 2.4 cms but I didn't feel it until a few days before my surgery. Never have I been so thrilled to have surgery. 

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    So I have a question:

    Is it good or bad news if you have HUGE nodes?

    That is to say, of course no one wants cancer to spread, but isn't it better to have a node that is holding it all in? After all, you see so many on the stage IV thread who list 0 or one nodes - it makes me wonder if their lymphatic system malfunctioned as a "first responder" and whether that is what enabled the cancer to spread undetected?? 

  • KitCat1
    KitCat1 Member Posts: 53
    edited October 2010

    Hi Athena,

    I had one node positive out of 16.. it was 2.2 cm. My onc told me that it is better to have one huge node than 4 little ones. As he explained it to me.. the node system is a highway of pitstops.. mine stopped at one big one.. others go on a little further.. thats how he explained it to me and it made me feel better...none the less he expalines it's all gone now and chemo is preventive measures.. all thsi makes me feel better.. but the fear is alwys there and to say the least... lymph node involvement is lymph node involvement... i also know a nurse who had 32 out of 35 lymph nodes positive , some big, some little.. that was 8 yaers ago..she;s doing fine!

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited October 2010

    That's incredible, isn't it? And then go to the Stage IV thread and see how many and how few nodes some people there had. Staging is truly in its infancy. I think our stage II with nodes, epitomizes the uncertainty. It could really go so many ways for each of us.

    I have chosen to think that I had three large nodes because I had some super-duper nodes that really kept the cancer away from the rest of my body.

    So part of me is prepared for death; the other part keeps my summer home overlooking the DeNile river staffed with servants and pantries bursting with food. 

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited October 2010

    Athena,  can I come visit the vacation home on DeNile? Sounds lovely. Seriously, though, the onc is not cool but my PCP is totally cool and will order tests because what I say 'intrigues' him. I'm good. Would be nice to find an onc who didn't roll his eyes. The rad onc does that, too. Sigh.

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