November 2009-Starting Chemo

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2010

    Alicia, indeed we all have a lot to be grateful for this year.  I cherish my Warrior Sisters.

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited October 2010

    Well, Happy Cancerversary to me!

    This year has been a series of ups and downs. Thank you, sisters, for holding my hand in cyber space and listening to my rants and celebrations! I couldn't have done this without you.

    We have done it. We are on the other side. Last year, as we were facing baldness and scars, we cried. But we did it! We can hold our head high and finally breathe! What an amazing group we are. I've never been a "feminist", but today, I am proud to be a woman :) I may break out in tune pretty soon! LOL

    Again, thank you Brenda for creating this forum. Thank you for all the laughs and letting me be part of your lives!

    I love you all! Lin

  • Melinda41
    Melinda41 Member Posts: 672
    edited October 2010
    (((((Linda))))) I wonder when Hallmark will come out with a new line of cards.
  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited October 2010

    Happy Cancerversary Linda !  You did it and are here to celebrate ~  Big hugs.

    Melinda ~ I think your onto something with the new line of cards !

    Hugs girls.

    :)

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    Tomorrow is the anniversary of happy cancer removal day!!!! Mammo and ultrasound today - wish me luck!!!

    Sue

  • doronet
    doronet Member Posts: 342
    edited October 2010

    Go, Suepen!  Go, Suepen!    All will be well with the world.  :)

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited October 2010

    Rock it, Sue! Good luck!

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    Thanks girls - I'm not really worried that they might find something - more worried it will hurt - the poor old left boob is still hard and tender from rads. Imagine it getting squished in the machine - yukk!!!!

    Sue

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    Well after nearly 4 f-ing hours at the screening place I was totally pissed off. What an ordeal. They did the mammo and found something in the right breast (the left was the one with the cancer last year) - very small feather like thing at the back. Then they did 2 more mammos of that one only magnified. Then after waiting ages, they did the ultrasound. They can't see anything on it. Then she got another bird in to double check. She couldn't see anything either. Then they put me in a different US room with a different US machine - they couldn't see anything on that either. WTF?????

    I didn't take my mammo from last year so they couldn't compare it. I didn't think I actually had it at home. They called the old surgeon's office - they say they don't have it. I said "isn't everything computerised - can't you get it that way" - apparently not.

    Anyway, we agreed I would call and let them know if I had it at home - then if I didn't they would request a copy from the screening place where I went last year. Finally got home after 6pm not in a very good mood. Checked the place where all of my scans are and I don't have it. I'm sure the surgeon kept it when I went to visit him the first time and the prick has probably got rid of it since I dumped him.

    So, I guess it will be ages before I find out anything as they'll have to send me a release form to get the copy. I can't believe there would be anything there after all of the poison I've had and you would expect it would show on the ultrasound if it was anything of significance. So I'm not panicking (but DH is) and will just wait and see.

    I feel like my day off has been stolen from me, so I might just play hooky tomorrow.

    Sue

  • Melinda41
    Melinda41 Member Posts: 672
    edited October 2010

    Sue: man, that sucks. I can't believe that you are supposed to tote your tests results around for comparison. Surely they are on someone's computer somewhere!

    And I am like you, it is too hard to believe that any new shit could be growing after what we did to our bodies the past year. (((Sue)))

    Take a mental health day, you deserve it.

  • doronet
    doronet Member Posts: 342
    edited October 2010
    Sue, I'm so sorry you got the run-around yesterday.  I had the same problem earlier this year with tracking down rad results.  I actually had them with me and didn't know it.  (blush)  And that was after calling my breast surgeon, my med. onc, and 2 hospitals.  I agree with Melinda that I don't see how it can be anything significant with all you've had in the last year.  Seems to me it would be easy for them to get a copy since it is a request from one medical office to another.  But what do I know.  Stay positive.  
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    Thanks girls - Guess what, I found them after a late night flash of genius. They were inside another big scan envelope. I'm staying home today and will take the pictures over there. I might ring first to see if they want me to hang around while they look at them. Trouble is, parking at that hospital is SO expensive. I might be able to find a space out in the street for free.

    This little feathery area they found was at least a 10th of the size of my cancer (11mm) so it was extrememly small. When I asked Big onc if I should have an MRI he said the chemo/herceptin would have knocked off anything in the other boob.

    DH is going away on a cycling trip for a few days so I'll get some peace. He worries way too much.

    ((((((((((((HUGS)))))))))))))

    Sue

  • doronet
    doronet Member Posts: 342
    edited October 2010

    A huge sigh of relief, no doubt.  (Like I said, I know the feeling!)  Hopefully, they will let you know something when you take the films.  If not, it will be obvious that no one there has ever been in the same situation.  :P

    DD was home from college for the weekend and two extra days, her fall break.  Had a blast with her, as always.  She talks non-stop, which is good.  We enjoy each other's company so much.  Now, I'll have to wait until Thanksgiving to see her again.

    11th grade son is not doing his school work, not doing well on tests and quizzes and just doesn't seem to get the gravity of the importance of this school year's grade and college acceptances.  Am at my wits end, but he'll have to deal with the consequences if he doesn't start trying harder.  sigh.

    My head hurts. 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    I just called them, the doctor from yesterday isn't in today, so I'll just have to drop them off - poop. At least I'll save parking money :)

    Nette - maybe your son would be more interested in taking up a trade. Not everyone is cut out for higher study. Hope his attitude improves.

     Sue

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2010

    Oy,I was away from here for two days and all is crazy.

    Sue, don't ya just hate all the cancer crap...Hell, after last year nothing could be growing inside ya unless it is an alian.  I hope you took your much needed mental health day.

     Nette. I have a son who works his ass off and gets great grades.  Then I have a daughter who could give a fat rats ass how she does.  Never wants to do more than she needs.  oy.  Kids.

    Melinda, how is it going with the new boy toy?  Seems like you have not been on here so much...must be having fun.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    Michele I did stay home and have been watching tv and napping. DH is away and he keeps calling to find out if I've heard anything. I don't expect to anytime soon. I did make an appt with the bs - she just had a baby and is back at work already. I'll see her week after next.

    I ended up parking in a drop off zone in front of the building I had to go to. Went up and dropped the pictures off - hope they connect them with my chart.

    I decided, if it is more lobular cancer, I am damm lucky that it showed up. Lobular is so sneaky. I was SO lucky last year. Imagine if it wasn't found until it was much bigger. After all we've been through this past year we've become so tough we can handle anything.

    Sue

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited October 2010

    Sue ~ sending up positive vibes that all is fine.  Glad you are trying to rest today.  Hang tough sista we are here for you.

    Nette ~ I have an 11th grader too.  (My daughter)  Tough year.  Progress reports came yesterday so far so good.  My son is in 6th grade, one teacher wrote he is too talkative and missing assignments.  I find that impossible. SO not my son.  (He is super smart and quiet)  Almost a nerd I tell you.  I will be emailing that teacher today. 

    To everyone a big group hug.

    I am doing a Biggest loser contest at my gym, exercise everyday and follow a menu ~ I have lost 13 lbs in 5 weeks.  I am tired though ~ 5 more weeks to go!   

  • Melinda41
    Melinda41 Member Posts: 672
    edited October 2010

    Sue: Glad you found your old mammo, but do you need to get it back so you will know where it is? It appears that you are better at keeping medical records than the experts.

    I have had a lung crud that is taking a long time to shake. I went to my general doc and she said that "my cilia is not perky anymore". I said "Hey, that is kinda personal!!". Ha Ha, the cilia (hairy fingers in my lungs) are all radiated and crunchy so they are not as effective in fighting the lung crud.

    So I am the owner of a shiny new nebulizer, fancy inhalers, and a steroid dose pack. But I feel so much better already. I wonder if I will grow new perky cilia or if we are stuck with crunchy lung hair forever.

    Boy toy and I only see each other on weekends but it is going very well, very comfortable. He is going out of town this weekend, so I will have a chance to get caught up on my sleep and crocheting. He is cutting into my crochet time, productivity is waaay down...but it is worth it. Ha Ha

  • doronet
    doronet Member Posts: 342
    edited October 2010

    So, on top of all the other crap we have to put up with due to the chemo/radiation, we have to worry about cilia that is no longer perky.  Go figure.  At least the new lung hardware is working.

    Glat to hear Boy-toy is still around.  If the only negative thing you can say is that he is cutting into your crochet time...

    Go Alicia!!!  13 lbs in 5 weeks =  2 1/2 lbs a week.  That's great!

    Sue:  def. keep us posted on the latest results.

    Thanks, all, for the encouragement re: my son.  Report cards come out in 2 weeks.  He'll either be okay or there will be major consequences for his lack of effort, mostly having to do with him having much more "free time" to get school work done. 

    Happy Thursday.  Nette :)

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2010

    Alicia, wow, way to go.  You big loser, you.

    Melinda, glad things are going well for you.  Lung crud, yuck.  I too have a cold and have a hard time shaking it.  I want perky cilia now.  I guess I have cilia envy. 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    I won't find out more until Monday - they have to wait for the radiographer who was handling it. I did actually speak to the director of the breast clinic which is something. They have breast physicians on staff - I was very surprised.

    There's definitely a change from last year's mammo - SHIT. But no need to freak out until we know what it is. I found out that if they can't see something on an ultrasound, they can use mammo somehow to do a biopsy. I called the surgeon's office to see if I could move my appt up to next week and they said to call after I speak to the breast clinic and they will squeeze me in - nice people.

    So, I now have the whole weekend to try and not worry too much - wish me luck.

    Sue

  • Melinda41
    Melinda41 Member Posts: 672
    edited October 2010

    Suepen: Remember, It ain't cancer until someone says it is cancer. I am not too familiar with ILC but is it likely to do this? I hate that you have this hanging over your head all weekend. Personally, I hate it when people say "I am sure it is nothing, don't worry about it." So I won't say that. But for today, and this weekend, it is NOT cancer because no one has said so.

    Alicia: Great job on the weight loss, the Halloween sales are killing me, I have no will power right now.

    Nette: I hope son's report card comes out well but I love your theory that he may need more free time to do homework!

    Michele: Have you tried Mucinex to help thin out the lung crud so your crunchy cilia can move it out? I have been taking tons of it and it does help.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    Melinda: Yes, ILC has the tendency to turn up in the other breast. It could be a benign thing too. As you said it ain't cancer until they say it is. Maybe I should give it a name - maybe Clyde II :) and we can all hate him too. It did look very tiny compared to the one I had cut out which was very small.

    Meanwhile, I'm going to try and enjoy my few days of freedom while DH is away. Luckily he's going out of mobile phone range and I won't have to endure the constant phone calls - he figured out how to recharge his prepaid balance unfortunately. He already called this morning even though I explained everything last night. Got to love the guy.

    Sue

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited October 2010

    Sue ~ Glad to hear you are hanging in there !!  I'm with Melinda ~ it's not cancer unless you hear otherwise.  AND that's JUST NOT GOING TO HAPPEN.  Enjoy hubby being away, watch girlie tv and don't do the dishes.  :)

    Melinda ~ sorry to hear about your crunchy cilia.  Geez, can we get a break here please !   Listen you don't want to crochet too much it could cause carpal tunnel or something ~ hang with boy toy sometimes to keep an even balance.  LOL

    Michele ~ I'm a BIG loser alright.  LOL

    Hope everyone has a good week, I am waiting for hubby to come home with sushi for 2. woo HOO

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    Alicia and Melinda: Thankyou for your support - I love you guys!!!!!

    Sue

  • Melinda41
    Melinda41 Member Posts: 672
    edited October 2010
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    (((((((MELINDA))))))))))))) (((((((((((((ALL OF YOU))))))))))))).

    I just upset this stupid chick on another thread. I must be feeling a bit bitchy. She said "This difference might be why your tumor didn't respond to the treatment" - she was talking about hormone receptors. WTF!!!! I don't have a tumour - YET!!! I was wondering why I felt so down this morning and realised what she wrote had really upset me so I posted and told her it did. Now she's upset because I was bagging her in public. I just asked nicely for her to think first before she writes anything.

    Thank God all of my sisters on this thread are at least sensitive :)

    Sue

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2010

    Sue, like LInda said it ain't cancer until you are told it is cancer.  I always liked that during the early testing stages, the fact that from Friday evening to Monday morning, nobody could call and tell me I had some extra cancer, or my blood was low or some other feared diagnoses.  Those were my days to not worry when the phone rang.  Sue, we a lucky group of ladies.  All of us are doing well, for the most part.  Nothing we can't deal with...We are the Good Luck Sistas.  (((hugs to all))))

  • doronet
    doronet Member Posts: 342
    edited October 2010

    Wow.  We are lucky to have such supportive women on our thread!

    Sue, take comfort in the fact that what was seen on the mammo was not seen on anything else.  It's my understanding that the ultrasound is more sensitive and will pick up things not seen on the mammo.  :I

    Will be substitute teaching next week for 4 days in a row.  I didn't work that many days in a week even before the bc.  Will be tiring, but then, some of you have been doing that all along.  I have always had a ton of respect for those moms who work outside the home and  are still good mothers.  I'm not sure I would be very good at either one if I had to do a 40 hr. work week.

    Happy Saturday!!!  Nette  :) 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2010

    Nette: I researched the not showing up on the US - it can happen. I was clinging to that as a good sign. I'm still thinking if it does turn out to be something, then I'm lucky it showed up so small. Better knowing than having something growing in there and you don't know.

    Did some gardening yesterday but am so bored without DH to feed. I'll do some more gardening today - hands in the earth is therapeutic and I have yet to move the big pile of stuff I created yesterday.

    Have a great weekend girls!!!!!

    Sue

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