Starting chemo January 2009?

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  • PLUTZ
    PLUTZ Member Posts: 133
    edited October 2010

    Hi Ladies!  Had my 3 month checkup and it went well. I also suffer from leg cramps and restless leg syndrome. Mentioned it to my Dr. and she prescribed Xanax. It didn't really work the first night. I guess it has to kick in. Got pumped up again in my breast. Its going to take awhile to get it the size I want. I keep going back and forth about breast reduction because  my left breast is large. Has anyone had it done and how does it look comparing it to the fake one? My Dr. said they will not be the same so I'm confused on what to do. Ladyjane-Good Luck on the walk. I loved it when I went 3wks ago although I could only walk the 1 mile. My husband and I are going away for the weekend for my birthday which is Oct 5th. Its cold and rainy. Oh well. Have a great weekend.

  • jillyG
    jillyG Member Posts: 401
    edited October 2010

    I got my bloodwork and CT results!  Everything was fine.  Don't know why I am having these headaches every single day.  I drink so much water and I have a very healthy diet, not sure what's going on.  Anyway, I don't care what it is......since it's NOT CANCER! 

    I just got my first up-do for my hair since having any hair to put up.  It looks really cute.  I am going to a formal ball tonight so I bought a floor length gown and my hair is fancy and we're going to have a great night in the rockies tonight.  I love the place where this event is, it's nestled in Waterton in the rocky mountains, just gorgeous.

    Have a great weekend ladies!

    Jill

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited October 2010

    Jilly g---Photos???

    Bk---photos???

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited October 2010

    Had a good appt with my rad onc. I see her every 6 months. See my onc in Nove and surgeon in Dec. The onc appts make me nervous, though. 

    LadyJane-Hope the walk was lots of fun--and so great that your family joined you! Wow--$1,000!!!  Jilly--HOORAY for the all clear!!! Like you said, at least it's not cancer (and of course our minds go there). Hope though that the headaches go away. They must be so tiring. Is Waterton just over the border from Glacier National Park? Have a great time.

    Jess--Unbelievably (sadly I can believe it), my husband DID NOT see me cross the finish line!! Said he was watching. Funny, I did not cross in a crowd. He did get me from the rear in my bathing suit, from far away, and from the rear riding my bike. Not flattering angles! He could not figure our how to use the zoom on my small digital. Geesh...Oh well, I have the medal to prove I finished!!  Phyllis-Happy early birthday, and isn't it great to get the "all clear" on the appts!!! KM47--good to hear from you and that the follow ups are clear.  Renrel--I think I'll also remember exactly how I felt when I got the "call" My dr. said I have some really bad news, and I felt really cold and light headed. I don't think he put it very well. kmmd-Did you loose any curls with the cut? I never had curls and just couldn't part with them at my first appt--so just got a trim.

  • ktym
    ktym Member Posts: 2,637
    edited October 2010

    Good for you Jilly G.

    Berkley Kim.  I had pretty curly hair to begin with.  The weight from the hair being longer is taming the tight tight post chemo curls, but its still pretty curly.

     We've all been so positive lately that I hate to do this, but, can I rant a little?  My PS is leaving.  PS has been wanting to do a little more work and I haven't been able to stand the thought of more surgery or putting an expander back in so just have been ignoring things and being happy that once I'm dressed no one else can really tell and just keep trying to move forward.  Guess that settles the question of more surgery for the near future.

    So, last week I'm asking PS who I should go to if I change my mind, or more importantly, what if I get a recurrence or a new cancer on the other side.  That's my real worry.  What if I need more surgery or radiation and need a PS again.  So I said "who do you recommend I go to if I get another cancer or have a chest wall recurrence."  I get back "ohh, thats not going to happen."  I just wanted to scream "what about my chart haven't you read, what about breast cancer did you not learn when doing reconstruction all these years."  Still raises my blood pressure when I think about it. If I can live with that reality, the least you can do is acknowledge it. 

  • mnmom
    mnmom Member Posts: 2,068
    edited October 2010

    kmmd I hated getting my chemo hair cut off as mine was always & IS straight having that soft fine curly stuff was neat. Hope things work out in the PS department.(HUGS)

  • Renrel
    Renrel Member Posts: 497
    edited October 2010

    It has been a crazy week here. We were out of town for the weekend for my ILs 60th anniversary and a little kiddy b-day party for DS and a cousin.  We drove back on Monday and DH flew out on a business trip that night. He came back last night after midnight and flew out again before I got home this evening. He will be back in the early evening.  Then this weekend DS has Soccer on Saturday and Sunday school on Sunday morning and then we are having 9-10 kids over for a b-day party in the afternoon along with any parents who choose to hang out.  We have done nothing to prepare, the house is a mess and DH and I are already wiped from this crazy week.  Then today I lost the IPOD I bought just before I started chemo and I already miss it.  I need to replace it but have to decide if I am upgrading to a touch or smart phone or sticking with an affordable nano.  Work is crazy.  A normal case load of 5 hearing a day had me carrying huge backlogs.  Now they have up it to 6 hearings a day by making us hear the ones that are expected to be easier in a half hour.  That extra time used to be the margin we could use to help deal with the back log.  So I just spent an hour or so of my free evening writing a case that is old because my bosses boss is on his case about any cased older than 40 days.  So tell me, why am I on line typing right now and not sleeping????  Why am I as bad as my almost 7 year old when it comes to actually getting into my bed and going to sleep????  OK I am going beddy by right now.  Night Night girls, sleep well.

     OH, I forgot, the reason I actually got on to post.  I saw in the paper today an ad for a campaign to raise money for breast cancer.  They want people to sign up to wear a bald wig one day this month and have people sponser them. I am tempted as I was very into supporting the bald look as I went through that part of this experience.  I did do it that often since it was just too cold here but I did do it.  OK,  now I really am going to sleep. 

  • momand2kids
    momand2kids Member Posts: 1,508
    edited October 2010

    Hi all

    so, it is getting to be that time--- my 2 year anniversary is at the end of the month- which means dr. appts and mammogram.  I rationally understand that everything is fine--but had a pain in my hip this week and immediately decided that things were bad (couldn't be the very aggressive yoga class I took or  3 days on the elliptical???)  I only get like this in October.... makes me crazy..... I am hoping some of you can talk me off the ledge.  I feel great- and I know I am fine, but you know how it is....

    I have to see my pcp and am due for my first colonoscopy--- thought I would do it in the summer, but I was having too much fun..... sigh..... 

    I am also concerned that the femara may have raised my otherwise normal cholesterol (I read these things and instantly apply them to myself).  

    Things are really good-- hair is amazing-- the curls are still there, but I am really starting to look like my old self...... my kids are healthy, h is healthy, my job is secure..... if only it wasn't October!!!!

    hope you are all well....

  • mnmom
    mnmom Member Posts: 2,068
    edited November 2010

    momand2kids

    I think we all go through this ...I know that I did this spring/summer I had increasing difficulty swallowing & was sure it was esophageal cancer turned out to be acid reflux that I have already posted about & I have bursitis in my shoulder ...my body/brain have aged immensely since BC My spirit is making up for it though.

    Hang in there hoping the best for you.((hugs))

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited August 2013
    Yup- my two year cancerversary is coming up.  My mammo is next week on Thursday.  I just had my blood taken  and during the unremarkable physical, the doc blandly remarked how the skin of my foob has changed.  Great. She went on to say it is probably nothing ( how many times have we heard THAT before??) and I shouldn't worry.  ( Yeah, right.....I am writing about it now and everyone else in the house is asleep, so "why me worry??"  )  Of course I am on the horn.  I call the plastic surgeon and the oncologist and appointments have been efficiently made.  I check the foob for anything - I now know the incision, the implant stiching alongside the alloderm almost intimately.  I can't tell the difference!  I have decided ,and maybe at this point I am talking out loud, but I have decided I am going to cancel all those appointment and just go to the mammogram because what are those other two specialists going to be able to do anyway?    So ( and it is a big SO!) when I go back and read everyone's thoughts about this time of year, I realize we are truly reliving our past at the same time- different than the kind of memories when you learn how to ride a bike, but a memory so profound you just can't seem to shake any connections with the night mare.  My only savings grace is You-- January Jewels, my students who come up to me everyday and hug me and beg me to act out the stories I read(  they know when they ask I make them do it Cool) , my dd who is home this weekend from the big city of Ann Arbor and the hope that one day, there will be a cure.
  • ladyjane54
    ladyjane54 Member Posts: 192
    edited August 2013

    Hi ladies.  Just wanted to drop in and say the walk was fantastic.  Had a lot of fun and great weather.  Check out the new avatar.  That's me and my hubby at the walk.

  • ktym
    ktym Member Posts: 2,637
    edited October 2010

    Congratulations LadyJane, and I love the new avatar

  • KM47
    KM47 Member Posts: 65
    edited October 2010

    Hey, well done LadyJane!
    Jess, I can relate to what you said about the thoughts you have at this time of year. Hope the mammogram went okay? I don't have my next one until December and I know I'll be a wreck right before that.
    It's interesting that our anniversaries coincide with breast cancer awareness month (at least it is here in New Zealand) so I don't think I'll ever forget the anniversary. Here is a story about a woman at our local university who shaved her head to raise money for a special bed for the hospital for women after their surgery. The hairdresser in the middle (the guy) is my hairdresser! http://www.ch9.co.nz/content/fund-raising-events-across-country-breast-cancer-awareness-month
    Interesting mnmom to read about your hair. Mine is at bob length now and so much thicker than it ever was before. I have heard that changes in hair don't last but in my case I'm hoping they do since I always wanted thick hair! Shame it came back in the same shade of brown and gray though!

    K.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited October 2010

    NE freakin D!!!!! Just got home and I am feeling quite relieved.  I did cry again when I was told the news- had a mammogram and it is all good!

  • ktym
    ktym Member Posts: 2,637
    edited October 2010

    Yeah Jess!!!!!

  • jillyG
    jillyG Member Posts: 401
    edited October 2010

    That's awesome Jess!  Here's to many many many more years of good news!  What a great feeling! 

    about the hair.......mine grew in super curly and was straight before chemo.  It was down past my shoulders when pulled down (looks shorter cause of the curls).  I just got a cut and she straightened it for me for fun and when I got home from the hair salon my son (7 yrs old) said 'your the old mommy!' and he was all excited that I looked like the old me.  It made me want to cry how much this has affected everyone in my family.  Hey, I'm just glad I HAVE hair, but it would be nice to have my old hair back sometimes.  The curls are taking over!

  • ktym
    ktym Member Posts: 2,637
    edited October 2010

    Oh, Jilly G that story brought tears to my eyes.  I am so glad your son has his "old mommy" back.

     I'm going to take advantage of my fellow January Jewels to make a plea.  We've done a lot of talking on these boards about the good and bad of "Pink October."  We wonder who isn't aware, and we want a cure.  I was ashamed of myself today to find out that November is lung cancer awareness month and I had to look on the Internet to find that lung cancer is associated with a pearl ribbon.  So my plea is for people to remember that next month is lung cancer awareness month.  I know lung cancer is associated with smoking.  You know what?  I was not overweight until I went through chemo and Tamoxifen.  Every time I look in the mirror now I think to myself "everyone is going to think you got breast cancer because you're fat."   How many times have we beaten ourselves up for not insisting on more imaging, a biopsy, being a few months late getting that mammogram.  No one deserves cancer.  Its time to stop dismissing and assigning blame.  So, I'm asking that next month we all think about that pearl ribbon and remember our lung cancer sisters.   

  • Renrel
    Renrel Member Posts: 497
    edited October 2010

    I have a very silly pet peive that I think you girls will understand. I don't know why but it seems every other book I pick up has cancer as a main or sub theme or topic.  But none of them have been described that way in reviews.  I keep getting blindsided by a fictional characters bad news, which is sort of like a flash back for me.  I seriously can't remember cancer being in any books I read before I had cancer.  Maybe it is just that it is now on my radar but I find it hard I would be unable to remember any books at all given how many I read now work it into the story.  It just happened to me again yesterday. I downloaded a book onto my ipod called "the middle place.  It is described as coming of age story about a woman who loved being a girl and the things that made her grow up.  It makes it sound like it is about her relationship with her Father.  it does not mention that the thing that made her grow up was being diagnoised with a 7 cm tumor in her breast 4 years into her marrage, with two little girls to care for.  I have just listened to the first few chapters, up to her calling her family to give the the news.  I relate to everything she says, even if my own reactions were not quite the same, and it is well written and a good story.  But Dam!  I really hate getting blindsided like that.  I do intend to finish the book because it is good and I can take the emotions, but still,  the author gives away this topic in the prolog so the libary could have put in the description I relied on in downloading it. 

     Sorry for the stupid rant. I know of all the things that can go wrong in our worlds this is pretty minor. But I really wanted to vent a bit about it.  

    Jilly G - I can imagine how your heart ached to hear those words from your son.  I remember how my son was fine with my losing my hair but upset when I said it might grow back differently.

    Jess - Yeah for good news.

    Ladyjane, I am glad the walk went well.

    My surgury was on Veterns day which is coming up in early November.  It is on a Thurssday and I get the day off. I am thinking of taking the Friday off and having a long weekend to relax, maybe accomplish something, and reflect and rejoice that I will at that time truely be a full 2 years cancer free, to the best of my knowledge of course since I won't be tested again till I think March.  Maybe I will do the mikvah again.

  • ktym
    ktym Member Posts: 2,637
    edited October 2010

    You know Renrel I hadn't thought of taking a day off on the anniversary of my diagnosis.  I remember when you did it last year.  Last year was too soon for me and I didn't feel I could take anytime after being off during surgery and chemo.  This year the idea holds a lot of appeal. 

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited October 2010

    Leg Cramp!! Now I can REALLY emphasize with you who've had this. Very painful. I've had foot cramps, especially after a long swim, but I got a thigh cramp last night and wow--ouch. I tried to massage it, but it would release then cramp again, and finally went away. I'd gone for a long walk in the evening, and didn't drink much water. I hope it doesn't happen again, but of course I'm nervous now.

    LadyJane-congrats on the walk! Jess--Hooray for NED!!! Jilly--What a touching story. This disease affects our family in so many ways--some on the surface and some much deeper. Renrel- I'm glad you gave a heads up on that book. I've heard about it and want to read it. I always hope I can get through my book club book to read more, but never seem to find the time.

    kmmd-I didn't know about Nov lung cancer month. There are plenty of people who never have smoked who get the disease. We did not cause our cancer. Plenty of overweight people don't get bc and plenty of thin woman do. Also, that whole "positive thinking" really irks me. I was really positive until I got bc.

    My surgery is close to Renrel's--Nov. 12. Maybe I'll take an extra day!! Great idea. We get Thurs off--and have to teach Friday. Today is the anniversary of my MRI, which showed more disease--then the biopsy on 10-23, then the bad results a few days after that (after already going through the finding lump in Sept, then ultrasound, then biopsy, then result, then bs and onc appts). Then finally the surgery. Here I am reliving this crazy timeline. Stop!! I was so stressed for over 2 whole months. All due to "insurance authorization" crap and the mammo and ultrasounds not showing the whole picture.

  • brendafromflorida
    brendafromflorida Member Posts: 90
    edited October 2010

    Hi Jewels, I haven't been around for a while again, but today is my cancerversary and figured I should see how things are going for everyone.  Sounds like we are all having the same thoughts and concerns.  Lady Jane, congrats on your walk.   I am actually doing Making Strides Against Breast Cancer walk in Daytona Beach next Saturday.  It is a 3 mile walk.  I did it last year so hope I can muster up the strength to finish again this year.   Last year was very emotional since I had just finished all my treatments.  Hope to enjoy the walk a bit more this year.  

    I saw the onc on Thursday.  Everything seems good, just waiting for blood work results.  The week after is always stressful hoping not to get a call from them.  No news, good news is what they tell me.    I will be happy when next Thursday gets here and I haven't had a phone call from them.  Had mammo a couple weeks ago and that was all clear.  I was sure it would be though because when I had my surgery in June, (lift on the good one), they sent tissue for analysis and that was all clear.  

    My hair came back very curly.  Straight as a poker all my life.  It is now losing some of the curl but I am keeping it very short so it still has a bit in there.  I was told that usually a year after your hair comes in, it usually changes again.   That's what happened with me.

    LEG CRAMPS!!!  I can relate.  I would get terrible ones.   Onc says it is from the Femara in my case.   He recommended taking calcium and magnesium every day and it really helps.  Doesn't eliminate them but I don't get them as often. 

    I will certainly remember next month for Lung Cancer.  The mother of one of my good friends from work is fighting now.  

    Take care everyone.   HUGS, Brenda

  • ktym
    ktym Member Posts: 2,637
    edited October 2010

    Does anyone else worry that the aches and pains are the cancer coming back?   My last visit in I was complaining about chest wall and clavicle pain on the cancer side.  They couldn't find anything and said it was probably the LE.  It's getting worse.  I hate to call and make an appointment and go in if it is nothing.  I'm afraid I'll feel like an idiot hypochondriac again, but, its starting to worry me.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited October 2010

    Kmmd-- I do worry. Though the mammo came back clear, the bloodwork says wbc and now rdw is low.  I have yet to talk to the oncologist about this all.  So I worry I am getting a different kind of cancer.  Sigh.  ANd yes, I feel like I shouldn't be worried, but ya know "once burned-twice shy"!

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited October 2010

    Brenda-great to hear from you, and that you're doing well and walking!

    kmmd: I'll join the worriers. It's hard to sort out all the aches and pains. I have pain in my neck and upper back that I'm pretty sure is LE related. Swimming has helped so much. But the on-and-off pain in my upper back thigh is worrying me, and I don't even want to mention it because I'm worried!

    Jess--I think the chemo affects our bloodwork for a long time. My brother is over 3 years out from chemo for throat cancer and his counts are still way low, including his platelets. He even had a bone marrow biopsy a few months ago, but that was fine. My WBC went down 2 points last visit, after going up gradually after chemo. Worried about that since I feel it should keep improving!

  • brendafromflorida
    brendafromflorida Member Posts: 90
    edited October 2010

    I think we are destined to be forever hypochondriacs and I also think that is OK.   Before my mammo on the lifted side, I felt something that I was sure was another lump.   Probably just scar tissue because the mammo was clear.  I worry about every little pain I get.  There is so much going on in our bodies from surgeries, chemo, radiation and LE that it is hard to keep everything from seeming like something.   Hopefully that will go away eventually.   Not sure if I have already said this but, LE sucks.   I have pain in my neck also.  My wrist is very sore, shoulder kills me and I think that is all from being on computer all day and then laptop at night but mind tells me it's in my bones......   Can't seem to turn it all off.  I'm considering retirement soon.   Really getting tired of the rat race and looking to enjoy my life more.  My blood work is finally improving but still very low end of normal or just outside that. 

  • ktym
    ktym Member Posts: 2,637
    edited October 2010

    Thanks you guys.  Brenda, you're right. LE truly sucks.

  • Renrel
    Renrel Member Posts: 497
    edited October 2010

    I too worry about cancer with every stupid thing.  I have two thard iny skin bumps, smaller than  pin head , one on my ear and one inside my elbow. I felt like a dork asking my Onc to check them at my last appointment but after a friend told me her mom's bc returned on her scalp I really did not know what to take seriouslly and what to let pass.  My onc has told me that the things to worry  about are the pains that are constant, that don't go away at all.  A head ache that comes and go during the day is not likely to be cancer in the brain.  A headache that is there all the time, every day for a couple of weeks should put my on alert. That has helped a bit but that does not mean I don't worry alittle about all the stupid joint pains and every occassional pimple on my chest.

  • brendafromflorida
    brendafromflorida Member Posts: 90
    edited October 2010

    Just wanted to share this with everyone.  I walked in the Making Strides Against Breast Cancer walk in Daytona Beach yesterday.   We had close to 9000 participants.  It was amazing.  The survivor's walk during the ending ceremonies announced 1244 years of survivorship.  That should give us all hope for a long and happy life.  It certainly inspired me.   There was a woman pushed in a wheelchair who has 46 years behind her.   How great is that!    Anyway, just wanted to share some positive news with everyone.  

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited October 2010

    Awesome Brenda.  Very encouraging.  Thank you

  • KM47
    KM47 Member Posts: 65
    edited October 2010
    Jess (FEC buddy) - woohoo! So pleased to hear the mammogram results. Fantastic. Any news re the blood work? Even when you know it's unlikely to be anything to worry about I know it's hard not to worry so I hope you get to talk to the onc and get it sorted out soon.
    JillyG - that's an adorable comment from your son. I can relate to it - sometimes I look in the mirror and think I'm almost starting to look like the old me again. Not quite... but getting there.
    BerkeleyKim - I can relate to you a being irked by the positive thinking comments too. I remember sitting with a friend one day as I felt like crap in the middle of chemo, with food tasting dodgy, my scalp tender and a bloody nose from a low something-a-rather countin my blood and she told me how important it was to be positive. I just smiled and said something like "so they say." I know she was just trying to help so there was no point in getting mad, but honestly, I was over it!
    Sorry to hear about those of you with leg cramps - haven't had any (touch wood). Hope they lessen as time goes on for you all.
    Kmmd and others - yes, I completely relate to feeling every ache and pain. My specialist said it usually takes two to three years for these pains to disappear. Friends who have been through it concur and tell me that now three-five years on, they don't even notice them. It's funny you mentioned this Kmmd , because I wrote a new blog entry about exactly that the other day after meeting woman who had a er...unusual and amusing method of dealing with such pain! You can read it here and maybe try it out - it worked for me! http://aplodder.blogspot.com/2010/10/telling-pain-where-to-get-off.html
    Brenda - great to hear such a positive story. Well done to all who participated.
    K.

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