HELP ME PLEASE... I AM BEGGING FOR HELP...

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  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2013

    It takes time, time, time.......be gentle with yourself and patient. (My eyelashes fell out two weeks AFTER the last chemo; fortunately a friend, who it had happen to her, warned me in advance........at least they grew back quickly....it took me 6 months before I could ditch the wig.) Keep hanging in there! Ruth

  • boobuddy
    boobuddy Member Posts: 9
    edited September 2010

     Hi Vicky, Sorry for what you are going through. I had 4 A+C + 4 taxol and I was just like you thought I couldn't keep going but I have to say the Taxol was so much easier than the AC.so hang in you can do it and none of it is easy but it does get a whole lot better.I had two lumpactomies and then bilateral mastactomy since then diep/tram reconstruction and another excisional biopsy so keep your chin up I drank tons of water and I ate ice cream and jello also ice pops and nibbeling on saltine crackers helped a bit but I was very nauseus for a week after treatment then the sixth day started to feel alive again until the next tx.Good luck and lots of prayers for you.God Bless

  • Mariposa109
    Mariposa109 Member Posts: 61
    edited September 2010

    Hi Vicky, I know just how you feel.. Once my chemo was over I expected to get up and go! lol.. but I would still get really tired much faster than normal.. and found out that if I over did myself one day, the following day I would be EXAUESTED! My husband was the one telling me I needed to slow down and take things easy. As frustrating as it was to hear it.. he was right. It does take time to get back to feeling more "normal". Ruth, like you my eyelashes finished falling out AFTER chemo!! But my hair started coming back in about a month and a half after chemo.. at first I could feel it, but couldn't see it!! Then it went to a peach like fuzz.. and now I have a little bit more. So celebrate that you are done with the chemo! It may help you feel better =) and just know things will slowly get better =)

    Mari 

  • CT124
    CT124 Member Posts: 85
    edited September 2010

    mcjonsie,

    sorry to hear that you are dealing w difficult news. hopefully your onc. will have a good plan to address it.

    vickie

    you did it!!! I did my last chemo 2 weeks ago and again despite neulasta wiped out my wbc. I am just starting to feel energy coming back, and temps and pain going away and just finished my last antibiotic I hope for a long time. Next week I go back to PS for one final expansion and then on to radiation for 4-6 weeks. One more surgery after that to replace expanders. I am so glad to hear that your husband is going to be there for you. I wiah I could tell you my situation was the same, but it is not. However, this journey has shown me who will be there to support me and many times so many people surprised me. You learn who you can rely on and who you cannot. But sometimes, I think our diagnosis scares our friends who don't know what to do and because of that they back away. After going through this treatment process, we emerge much stronger, but with a different perspective-our "new normal". Our bodies have been pretty "beaten up", and while I know it will take time, the waiting is difficult. Hope to hear that in a few weeks, you are feeling much better. Thoughts and prayers to you all.

  • foxygirl
    foxygirl Member Posts: 1
    edited September 2010

    I can feel your pain.  I have felt it also.  I was diagnosed in July with BC from a mammogram.  I have had mammograms every year like clockwork.  Dr. said a lympectomy and maybe radiation and I would be fine.  Had the lumpectomy and more cancer was found in the lymph nodes.  A mastectomy was necessary.  Had a mastectomy - more cancer found in the lymph nodes.  I am still kind of in shock. Now need to have 6 treatments of T- A - C then 5 weeks of radiation. I know I am having all the same thoughts you all must have had - Why me?  What did I do?  I have always taken good care of myself - No cancer in my family.  I have had my first Chemo treatment.  Really tired.  And am bouncing from constipation to diahhea.  This is my first post, but I feel really good reading the support in this forum.  Thank you all.

  • Suzybelle
    Suzybelle Member Posts: 920
    edited September 2010

    Vicki, I am sending you a cyber hug right now...I can so relate to what you wrote about feeling like a monster...I still have days where I just feel like a total freak show.  No boobs, swelled up arm...I just don't feel like 'me' anymore.  But other days are much better, so please, please hang in there.  I don't have the chemo. experience....I had a bmx and skipped the chemo, but wound up with lymphedema in my right arm.  It has given me fits all summer...constant pain and discomfort. 

    I laughingly call the place where I go to get physical therapy for my lymphedema "The Island of Misfit Toys"...and I fit right in.  I'm never going to be what I used to be...and that makes me sad.  But, in some ways, I'm better.  Today, I can say that...tomorrow I may be hiding under the bed with a plate of brownies!

     Foxygirl, welcome!  This is a great place for info. and support.  I'm so sorry you're having a rough time.

    Suzanne

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    Foxy, welcome.  There are lots of great threads on this site.  Be sure to find one or two that are going the treatment at the same time as you...It is great to have others who are dealing with the same things at the same time...This place was the best thing for me.  Answered all my crazy questions, and it surprised me how open we all are about such personal things...like poop, sex, and nipples.  There is someone here almost any time you need a shoulder to cry on, or share a chuckle.

    Suzie, can you share those brownies.  We all have days like that.  I am coming up on my chemoversary in Oct.  It is hard to believe it has been a year already.  In many ways it flew by and in other ways it dragged along.  Looking back it was easier than my imagination thought it would be.

  • VickyThomas
    VickyThomas Member Posts: 54
    edited October 2010

    Hey ladies. Well I wish I could tell you that I am feeling better but actually it has gotten worse. I thought that the new normal would be happy nope not for me sad and depressed.. I have pushed my husband so far away from me that he doesn't want to come home after work because he doesn't know what bag I am going to come out of he is so not happy with me anymore. . The last four days has consisted of me being a !@#@! and doing nothing but crying.. yep even that about taking my own life..Can't seem to find that happy place anymore.. everything is so negative...

    I started to clean out my mother's things on Sunday and life has been down hill since then.. I am insecure and afraid and lonely.. and the only time i feel better is when I drink, thinking that I will go to sleep and nope still really no sleep for me.. I got it bad ladies.. I did schedule an appt to talk with a counselor on October 13,2010.. hopefully that will help.. I wish someone lived close to me so that we could do coffee or something..

    foxygirl welcome.. this is a great place for support and we talk about everything.. i would not have made it this far.. Oh well I am in a bad place right now but before I wasn't and if I was I would read and feel better, so I encourge you to stay tuned in.. when you fall off you end up like me.

    mcjonsie, I am glad that you aren't having pain.. I kept getting the shot in my right arm.. and it kicked my butt everytime.. I tried the clairitn and tylenol before and nothing seemed to help..I am glad you found what works for you..  

    No celebration yet either..

  • Suzybelle
    Suzybelle Member Posts: 920
    edited October 2010

    {{{{{{{Vicky}}}}}}}}}}}- I am so sorry you are struggling.  Please hang in there.  It will get better.

     I am sending cyberhugs and prayers your way!!!!!!

  • apple
    apple Member Posts: 7,799
    edited August 2013

    Vicky Vicky.. hang in there babe,, I just lost my mom a couple months ago.  I feel that she is still with me.  I hope yours holds you close and helps you get thru this time.  you have kids to be mom too.. so i hope that helps you too.

    I pray for you.  just wanted you to know.  If you live near Kansas City.... pm me.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited October 2010

    It is going to take time, time, time; especially since you are dealing with going through your mother's things; which is so extremely difficult even when you are perfectly healthy. Do you have friends in your town that you could go out to coffee with? Every day could you just do one nice thing for yourself? A bubble bath, facial, read, listen to music, go buy yourself some great new shoes (whatever would be nice for you). Also getting some exercise really does make you feel better both mentally and physically. I am glad you have an appointment with a counselor; he/she can help you sort some of this out. Really, it took me about a year before I could even start to deal with the whole experience and put it in some sort of perspective; don't think that it's odd or bad or be impatient that you haven't found a 'new normal', it would be very unusual if you had so soon after treatment.

  • gingersfavorite1
    gingersfavorite1 Member Posts: 273
    edited October 2010

    Vicky,   I am sorry that times are so dark for you right now.    I could only suggest the typical things - try to stay busy, get out, phone a friend, a hotline, another survivor . . . . escape into a book (instead of alcohol).    I am glad you made an appointment for counseling.   I've been there and it helped.    As did a mild antidepressant.    Both were temporary but got me through the most difficult time of my life.    Don't look too far ahead - that is oftentimes too overwhelming and scary.   {{ hugs }}    Be good to yourself.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2010

    Vickey, just keep holding on....don't drink, it only makes things worse....give yourself time.

  • TifJ
    TifJ Member Posts: 1,568
    edited October 2010

    Vicky, like Apple i am in the Kansas city area. Haven't started chemo yet , but will by the end of the month. Would love to help you if I can. I have two kids, 8 and 5, and I see this as a fight for them. I will get through this as crappy as it may be, but they need me. I am triple negative too and scared, but I am not going to let this beat me. There is no shame in seeing a counselor or therapist and taking meds. As the others have said-please don't take to drinking as a release. It is not only harmful to you, but your family as well. My prayers and good thoughts are with you. Postitive attitude-I believe in it.  Tiffany

  • VickyThomas
    VickyThomas Member Posts: 54
    edited October 2010

    I am in Cleveland, Ohio..I am doing a little better not much.. Nope I am lying I am still crying today.. I didn't drink any alcohol.. I think that I just need a time out.. just to do nothing.. but me.. what ever that is.. I am overwhelmed.. for sure..

     I did manage to hangout with my daughters yesterday.. which was really nice..we just watched tv and laughed..

  • VickyThomas
    VickyThomas Member Posts: 54
    edited October 2010

    I am in Cleveland, Ohio..I am doing a little better not much.. Nope I am lying I am still crying today.. I didn't drink any alcohol.. I think that I just need a time out.. just to do nothing.. but me.. what ever that is.. I am overwhelmed.. for sure..

     I did manage to hangout with my daughters yesterday.. which was really nice..we just watched tv and laughed..

  • jenand123
    jenand123 Member Posts: 1
    edited October 2010

    Vicky,

    I know this is tough, but you can do it. Talk to your doctor. There are other nausa medications that they can give you that will make you feel better without the horrible yucky feeling. Zofran is better than most. I always hated the 3rd day after my treatment because I was going to be drugged out for the next 3 days. Zofran helped that and I was actually able to go see my 7yr old daughter in a school program on day 3 of my third treatment. You have to tell the doctors what is happening and ask for other medications. It is almost like a big secret that you only get told when you ask? 

    Eat very small meals frequently. I did not have trouble with weight loss. Just the opposited. They were giving me 250mg of decadron with every chemo treatment and well everything tasted good and I gained nearly 100 pounds... Eat high protein foods a little at the time. That will help you stay stronger. Also, acidopholis will help prevent mouth sores and yes it really works.

    Just remember chemo does not last forever. You hair will grow back. Go buy a cute wig and have fun with it. I refused to let anyone see me without my hair, but I would change my wig with my mood. Good luck, and I hope this helps..

  • lwd
    lwd Member Posts: 1,084
    edited October 2010

    Hi Vicky,

    I'm so sorry to hear what you are suffering.  I do hope and pray that things will turn around for you.  You are in my heart.  I'm wishing for better times and health for you.

    Lane  

  • lwd
    lwd Member Posts: 1,084
    edited October 2010

    Vicky,

    Ask about anti-depressants.  They really do help to take the edge off.  There have been times when I've been beside myself with grief.  I've been on Celexa and it has helped so much.

    Lane

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2010

    LWD, I lived for four years in Monument.  Loved it there.  We were up on Monument hill...

  • VickyThomas
    VickyThomas Member Posts: 54
    edited October 2010

    Hi ladies.. I am doing better.. I just keep telling myself that all this is just temporary, the hair will grow back, the eyebrows and eye lashes will be back.. I actually go and talk to a counselor tomorrow. hopefull that will help with the depression.. I have been hanging out more.. My husband's birthday was this past Saturday and I threw him a surprise get together. Which was really nice.. I hope to have many more days with family and friends. I plan on celebrating myself if I can get them to take this port out..

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited October 2010

    Vicky that's GREAT!! Big ((((HUGS)))))) for you! You go girl. The counselor will really help you. Way to go!

  • poodleluvbug
    poodleluvbug Member Posts: 171
    edited October 2010

    Vicky, I just finished my chemo on September 23rd. I too thought that I would feel so happy because it was over, (except for the reconstruction which is kind of exciting...at least to my husband...lol), but I feel sad and kind of shocked by everything I went through. It is almost like I didn't have time to process what was happening to me until it was over. I feel like a freak most of the time. If only someone would develop a chemo that doesn't make women loose their hair. That has been the worst for me. I feel ugly most of the time. I notice everyones hair too! I have total hair envy! I just want some for myself...I want bangs again!!!!  Ugh! I had a crying spell when my husband took me out to breakfast and we had this cute waitress with gorgeous hair wait on us. I suddenly felt like the ugliest person ever and I started crying right in front of everyone and couldn't stop. It just hit me suddenly, that I am bald and have no boobs. I just keep reminding myself that I  could be dead...I am glad that I am alive for my kids and my husband. Vicky, this too shall pass...we can get through this! We will have bangs again...lol! Stay strong and be nice to yourself.

  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited October 2010

    It takes time - I had the most wonderful experience (NOT) at my last chemo visit - after 8 months, wouldn't you think I would have had a reaction?  Oh no...the very last one sent every nurse in the place scrambling - my body rebelled big time - they thought my kidneys were shutting down and starting flushing me with everything and anything they could think of short of sending me to the ER.  It happened as the last drop dripped and the beeper thing went off on the unit and I instantly starting screaming from the pain.  Having a baby was easier. 

    I ended up having to be sedated and call someone to come and get me and my vehicle.  The next day, that part was all just fine - but the chemo brain and tiredness and I could still taste the crap - I got some anti anxiety meds and anti barf stuff and within about 6 months, I was pretty much back to being me.  Let yourself have the time, you earned it! 

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2010

    Ladies, i does take time to get back to a new normal....Vicky, I am so proud of you...you sound so much better already...

    Poodle, you are beautiful...just look at yourself...you have an amazing smile.  I think hair is overrated. I am 6 months out of treatment, have my hair back but i just had a haircut..I love my new short hair..I think I look younger...just think of all the money you saved on products and salon fees.  You should buy yourself some fancy sexy shoes.  I bet your DH would rather look at you than some chick with hair.

    Low, boy that sounds like a trip to hell and back...I hope you are feeling better.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2013

    And once your hair is back you will be so happy that you will never have another 'bad hair' day (and be quite horrified when anyone complains about theirs being to long/short/straight/curly/whatever)!

    Getting that damned port out was HUGE in helping me feel 'normal' again.

    I totally endorse 'retail therapy'. Go buy yourself those great shoes, new clothes, scarves etc. Do crazy things with fashions that you would have never dared do before. Poodle, go out and buy some cheap, fun wigs; be a blonde when you go out to dinner one night, and a redhead the next.....why not?!

    Big Hugs all around! Ruth

  • lwd
    lwd Member Posts: 1,084
    edited October 2010

    Hi Vicky,

    I'm so glad you are feeling better about things.  Lots of issues to work through with this disease.  I think the counseling should help you, also.

    Lane

  • princess74587
    princess74587 Member Posts: 5
    edited November 2010

    Isnt it weird when before when a commercial came on for hair you didnt really notice it but now i hate them cause the girls have gorgeous hair and they always put it in slow motion

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