Calling all ladies in their 20's

Well that all makes me feel better. I didnt get the US done at a DR office I went to a imaging place and when I asked her what she thought was going on, she simply told me that shes just here to take the pictures and send them to my DR. If anything is wrong then the DR will contact me or let me know at my appt. But maybe it just didnt look like cancer. IDK my appt is on OCT 12th so they r not in any kinda hurry really....and I will let you guys know if they call me before or just how that appt goes...hopefully good,so I can get some good sleep

Texas- that really sucks about ur DR......what a loser. I really hated my GYNO when I first saw her...but after awhile I really got to know her and I wouldnt go anywhere but there. She really took me seriously when I told her about the lump (but ita huge so when she felt it, i guess she kinda had to) anyway I couldnt image going and getting it looked at and someone just letting it go and telling you its ok! I would take her to court, I wouldnt want her to do that to anyone else.

I'm sorry for all you ladies who had the dismissive Dr's! We may be young but a lot more young women are getting breast cancer and to just assume that it is something else is ridiculous. I was lucky enough that my GYN send me immediately to get tests done. The only complaint I have is that when they gave me the test results it was over the telephone in a "oh by the way.." tone of voice... THANK GOD I wasn't driving!!!! I don't think they should be allowed to tell you something like that on the telephone!! 

Well, after having a negative biopsy in my early 20's and now BC I decided to have a double mastectomy. I know some people think that its a little extreme, but I feel in my heart that I am doing the right thing, especially since I was first told I was triple negative and then was told I was slightly estrogen positive. I am having my surgery next week on the 14th. Oh yeah, nannababy I am having a skin sparing mastectomy with immediate DIEP reconstruction.

I was wondering what everyone else's doctors says about screenings once your treatment is over? My Onc said they dont really do screenings unless you have some type of symptoms (like bone pain or something) but that sounds weird to me...

Mari 

My doctor was good about getting testing done after she found the lump, but she and the other techs told me several times not to worry due to my age. And she did tell me over the telephone. Thank god I wasn't at work! I had gone home sick and was in bed when she called. That was a phone call that I will NEVER forget.

Mari- yes, my med onc also told me they don't screen either...and that I should have symptoms before anything would show up on a test. That makes me nervous. Not that I like blood draws...but I would feel more on top of it if I could get tested every so often. Now I feel like the slightest thing is going to set me off and make me think it's coming back.

Mari- thats an awful way to get the news! i was also told over the phone by the radiologist- but by that point i sorta KNEW it was Cancer!

Symptons- Mine were bloody discharge, breast pain, a lump, my nipple was puckering inward, tenderness in my arm pit, chest pain in my ribs (thats one of my mets), pain through my arm pit to elbow, and sudden numbness in my fingers.... All on the left side- and this dr said it was nothing lol- now i know it was cancer and although not everyone has symptoms at all,

there is not one set of symptoms that soley belong to breast cancer -because so many can be caused by other things, so check every lump and bump!

thank you Mari- i dont think we can be careful enough! Become parinoid girl it could save your life!

I also got thrush with each chemo too, seemed to get worse with each one. Just try and drink lots of water and I would brush my teeth a tongue and use BIOTENE mouth wash about 2-3 times a day. It would only last around 5 days and I could hardley taste anything.

I had an MRI last week and got my results back on Friday. Seems like they found some small regions of concern and are keeping an eye on them. I start Tamoxifen soon so they should help them from growing. They are too small to biospy so they just want to keep watching them. 

Is anyone else on Tamoxifen??

I am keeping my fingers crossed for ya too MelB

Playa and Shira,

I've notice that most younger women opt ofr bi-lat because of our age. There is a slight chance for the BC to spread over time. My surgeon said its somewhere between .05-1% each year, so if we are expected to live 40 more years that gives us on the higher end a 40% chance that we'd have recurrnce in the other breast. So a 25 yr old might opt for the bi lateral vs. a 75 year old because they have less % chance... Something like that LOL

Playa- because i have mets i went straight to chemo and didnt get a surgery, but the more aggresive the tumor the quicker they tend to have the surgery. Before my scans came back they were talking 2 weeks until the mx from when i found ot, but needed to do further scans and turned out to be beyond surgery. I was opting to do both as well. I might want to mention that i had a LARGE tumor 1 was 11cm so the whole left breast would have to have been removed for clear margins and because of my age i was gonna get the other side done just in case!

 I just turned 25 a few days ago. I have not been diagnosed but I can't seem to get a doctor to listen to me. here are my symptoms,

Bloody discharge that comes and goes

nipple inversion/pain/ itching

breast pain

swollen breast

lump

arm pain and swelling

Every doctor I have seen tells me I'm too young to get BC  and to go home. I have never walked into a doctors office and dais " I think I have BC." I have simply stated my symptoms and was accused of pretending to have cancer symptoms. I had one doctor that wanted to treat my breast pain but none of the other symptoms. She just dismissed them all. You can clearly see that my breast is swollen, its almost double the size of the other one. You can see the nipple inversion and feel the lump. They did an US but all they told me was that they could treat me for an infection even though they didn't see one.They said to come back in 2 months(that will be the first week of November) Its getting super frustrating.

How do I get a doctor to really listen and find out whats wrong with me? I really hope its not BC but what ever it is, it is interfering with my life.

Kiki, I cannot believe dr is still putting young women away when symptoms showed. Here in Canada, a young girl, 4 ys old, just had BMX a few months ago. Try women health department or breast clinic directly, they will listen. Good luck. Meg

KIWIKI- i would suggest not walking but running into a breast specialist right away! I actually am org from Olympia- born in OR raised in WA and you have the EXACT SAME symptoms of me (i forgot that i was extremly itchy too- easy to forget when its gone!)

I have heard of there being a higher number of BC diagnosis per capita from ppl in WA- not sure if there are "official" studies done on that or not.

ut always better safe than sorry! (i was also put off by Drs until i found one that didnt look at my age and automatically say i was fine- it went so long in my case that i have stage IV- you def dont want it to get worse if it IS cancer) But i am praying and sending good wishes your way!

Treadsoftly- No worries because it is a hormonal drug discharge changes is to be expected- the itchiness may signal a yeast infection or something like that, which could be caused by the hormonal changes and ph balance... Go to your gyno and make sure its nothing

Soooo....I went in to the dr today for my appt, so they could tell me whats going on now that I did the US. She said they didnt see anything like a mass or a cyst, but i for sure have a lump so they have to do more tasting and she referred me to a breast surgeon . DId any of ur guys US come back with nothing on them and they still wanted you to see a surgeon??n I would think if nothings there then the lump is just part of my breast tissue??well i will be seeing her tomorrow so i will let you guys no

Treadsoftly - I've just started tamoxifen, and when I was reading the leaflet that came with the tablets, you're symptoms are listed in the possible side effects and that you should tell your doc.  Might just be the usual - but best to get it checked out to be sure.