anyone tried acupuncture?

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gfbaker
gfbaker Member Posts: 173
edited June 2014 in Lymphedema

I have mild le but protein build ups in my muscles that won't go away. I am going to try acupunture next week and curious if anyone else has tried this and what your results were.

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  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2010

    Hi, gf!

    Some women here have tried acupuncture, and the results seem to vary widely. The important thing to know is that the needles do not have to be placed in the affected quadrant of your body. There's currently a study in progress to assess both the effectiveness and the safety (infection risk is high when the lymph system has been compromised by breast cancer surgery) of acupuncture for lymphedema, but there are no results available yet. At present the guideline call for no needles in the arm, chest, back and side that has been treated for breast cancer.

    Keep us posted! And be well,
    Binney 

  • Suzybelle
    Suzybelle Member Posts: 920
    edited September 2010

    Please post what the results are - I'm curious about it and have been considering it.

     Best to you - thanks for posting this!

    S.

  • mollyinco
    mollyinco Member Posts: 71
    edited September 2010

    i've been going to acupuncture for almost a month now, not for lymphdema issues but for help with chemo side effects. i have needles put all over my back, shoulders, arms....even my left side where i have no lymph nodes and have had no issues, in fact, acupuncture has given me my life back during chemo...energy levels are up, sleeping without meds, no emotionally down days, my body temp fluctuations are lessening. i never consdered acupuncture before cancer but i'm a believer now. i hope it helps your issues

  • SleeveNinja
    SleeveNinja Member Posts: 178
    edited September 2010

    I had one session about a year ago.  It didn't reduce my LE swellling but I felt better (increased energy, decreased funk) for a few days after.  Coincidence?  I had no complications from the needles and I did allow doctor to place some in affected quadrant.   I'd like to do it regularly but already spend so much on garments / supplies/ copays, etc. . . .

  • gfbaker
    gfbaker Member Posts: 173
    edited September 2010

    Went to my first session today and it was fine. Did needles in both arms and feet. We are going to try once a week for a few weeks. The hope is to get the protein & fluids out, and then I need to exercize my arms regularly. Oh, and I guess the acupunture can help with the ultra crabbiness thanks to tamox. Mollyinco, how often do you go?

  • mollyinco
    mollyinco Member Posts: 71
    edited October 2010

    i go twice a week right now, i have my last chemo tomorrow (yippee) and until my body has recovered from that my acupuncturist recommends twice a week...and i can tell i really do need it that often for now, funny how you can "feel" your body lose the good feeling that comes with acupuncture.....i'm finding it can help with lots of issues, like i said before, i dont know how it works but i'm a believer now:) my oncologist was pretty intrigued with the positive changes i'm experiencing too..he's not a believer at all but when i told him how it was helping me emotionally and that i hadnt had a day of crying endlessly since i began, he was really interested and encouraged me to keep it up. keep me posted on the changes you feel as you continue to go!

  • Suzybelle
    Suzybelle Member Posts: 920
    edited October 2010
  • gfbaker
    gfbaker Member Posts: 173
    edited October 2010

    I am going once a week right now, and not noticing anything with arm yet, but my mood swings are not nearly as bad as they usually are around my period. I've also upped my lymphatic exercizes. Today I woke up feeling like crud & my arm is a little puffy, but I also went crazy in the kitchen yesterday. Ugh, I would like some of my old spunk back!

  • Julie50
    Julie50 Member Posts: 227
    edited October 2010

    I've been going for over two years...Stopped for awhile then back at it due to being off my HRT since my BC in May.  I love it....I go twice a week....

    I see my Onco next week regarding my elbow pain that I have had which started the last 3 weeks of radiation, not sure what is up with it.  Swollen (very little) Surgen said its from the Rad, Onco had me go for a Ultersound of the arm to make sure no blood clot, I have no idea what is causing this pain but its bad and hurts....I had 2-3 nodes removed and had a Lump.

    I have no idea if I have LE, no one has said yet.  But I did find a good place to go in the event I have it, its all the specialize in, its at the same Hospital I had my operation at.

    Julie

  • mollyinco
    mollyinco Member Posts: 71
    edited October 2010

    i am seeing significant drop in my hot flashes with the acupuncture, not to mention my sleep is so much better, i am not takign any sleep meds. the hot flashes are decreasing in strength, lenght and in number, my acupuncturist assures me that we will be able to stop them altogether with acupuncture.....i'm loving this!

  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited October 2010

    I am posting an abstract on one of the lectures held at the NLN conference regarding accupuncture and lymphedema.  I take no sides on this but wants to bring this up:

    SATURDAY - 2:00 PM-3:30 PM - ALTERNATIVETREATMENTS FOR LYMPHEDEMAACUPUNCTURE SAFETY IN PATIENTS WITH LYMPHEDEMA: A RETROSPECTIVESTUDY

    AMY L MATECKI, CARMENCITA C MERCADO-POE, LISA BAILEY, MARTHA TRACY, MING KUAN, JILL CHEN, DAVID

    IRWIN.

    Center for Integrative Medicine, Alta Bates Summit Medical Center, Berkeley, CA, U.S.A.

    Background: Although acupuncture's effectiveness on postoperative lymphedema have

    been reported in two studies (Alem and Gurgel, 2008; Kanakura et al, 2002), acupuncture

    use in lymphedematous limbs has been avoided because of infection concerns. To date,

    there is no documentation in the literature of increased incidence of infection that is

    attributable to acupuncture.

    Methods: To determine whether the infection risk was raised by performing acupuncture on

    lymphedematous limbs, a retrospective chart review of women with post operative

    lymphedema was conducted. Prior to treatment, consent forms explaining the risk of

    infection and deviation from standard of care by utilizing acupuncture were provided. A total

    of 1139 treatments were reviewed. Limb infection occurring within two weeks of treatment

    is counted as possibly being treatment related. Signs and symptoms of infection were

    evaluated pre and post treatment.

    Results: Twenty-nine women, aged 29 - 79, with clinical lymphedema (N=25) and

    subclinical lymphedema (N=4) were included in the review. Upper extremity lymphedema

    was noted in 23 women; 6 women had lower extremity lymphedema. A total of 1139

    acupuncture treatments were evaluated as to its effects on the affected limb. No adverse

    events including infection, bleeding, or increase in pain or swelling, were noted in the

    medical records. Patients reported improvement in range of motion, shoulder pain and

    function in affected limbs as well as reduced swelling and heaviness.

    Conclusions: The current practice of avoiding acupuncture on lymphedematous extremities

    because of increased infection is called into question in light of this review of 1139

    acupuncture treatments which demonstrated the safety of acupuncture in the treatment of

    extremity lymphedema. Further study is warranted.

    Alas and alack, "Further study is warranted" seemed to be added to just about all research on LE.

  • Nordy
    Nordy Member Posts: 2,106
    edited October 2010

    OneBadBoob - I had read the entire study online - and decided to let my accupuncturist place needles in my affected arm. He always left it up to me, but said that treatment would work better if he could utilize it. I have had 6 treatments and so far (knock wood) no issues with infection or increased swelling. In fact, I have had a bit of decreased swelling... not much but a bit. I would say that the biggest difference I have noticed is that my arm feels softer and recovers from intense exercise much quicker than it usually does. Accupuncture also has had other benefits - I have suffered from tmj for about 2 years now, the pain in my jaw was gone in 2 treatments. I had also hurt my ankle running... gone in one treatment. I don't know how it works, I know it has to do with the energy flow. Honestly, I don't care if its hocus pocus - it is working and I love it. I don't go often - only about every 2 weeks and insurance will cover 12 treatments a year. So, the accupuncture in conjunction with a lighter sleeve (which defies all odds and I had started experimenting with prior to treatment) is helping to relieve some of the lymphedema - mostly the heaviness and softening it - minimal size difference, but all good effects so far. I still think it is a big decision as to whether or not you allow the needles to be placed in your affected limb, and I would certainly never tell anyone to do it or not to do it - just letting you know what I have done and my experience. And with that, I hope the experience continues to stay positive!

  • kira66715
    kira66715 Member Posts: 4,681
    edited November 2010

    bump for Betsy

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